Hi! Mid-September Sizzler joiner (from April 2015 Chemo).
I was explained that my heart needed saving from unecessary radiation by lifting it through a "breathing technique" - hahaha - more like a dentist session than an opportunity for meditation! OUCH.
Anyone else having this? My lump was right above my heart, by the cleavage, on the L breast.
I started rads on 14 September (after 6 chemo cycles) I am going to get 4 weeks ending 9 October.
I know, some of you srarted in August and are thinking of holidays or/and resuming your life. I hope there are still some like me, starting now; and that the one finishing now could give a tip or two.
I get a tube inserted into my mouth (hard plastic between teeth and lips hurting my gum) a clip on my nose so that I am forced to breath through my mouth via the tube and I have to look all the time at the computer screen monitoring my breath. Well it sucks. Of course I have lines on my naked chest and hands up. The tube in my mouth is VERY uncomfortable. Just try breathing through the mouth via a tube (swallowing saliva is a feat, at the dentist at least there is a dental assistant helping with this). 25 minutes adjustment + treatment is not "a short period" while your gum hurts because the hard plastic put between lips and teeth (upper and lower teeth) is "one-size-fits all" and I have a small mouth! Where does all this plastic go when I don't have the space? Yes of course, into my gum!!!
My rads sessions are not what I thought it would be. The chemo was awful and the rads might be 20 days at the dentist. Today, when the tube was inserted, i had tears out of pain. Is that normal? This is going to be horrid, far from any "calm" meditative situation.The "breathing technique" is as invasive as possible.
The only good thing is the hospital is only 15 minutes drive from home. I will speak to the nurses about getting a smaller hard plastic mouth piece, because if my gums bleed, I won't be able to continue, and this realisation comes after two days only!
Well done to those finishing! Egret x
Hi June, yes I live a few miles out of Norwich. I finished my rads four weeks ago tomorrow. I couldn't take Tamoxifen, had terrible side effects. Felt awful, really depressed, couldn't sleep and had bladder problems to name a few! Just started on Letrozole so will see how I get on with that. Since I stopped taking Tamoxifen I have started to feel much more like my old self so proves it was the tablets. I have healed well too and my skin is now just about recovering from the rads. Now off to bed as I have early start at work tomorrow. Goodnight!
Glad you enjoyed it do you live not far from Norwich,its a ;lovely city, im originally fromSuffolk coast but i worked here and when my dad died i moved here permanently,would never move back.
Havent talked to friend who invited me yet, shes oftf on a completely different scene this weekend, 40th birthday in Marbellla.! But saw other people i knew on facebook who went seemed to have all said had great time,I love 80s music but as said not into chemicl loos, fast food or standing about all day, Also being barely 5 foot i cant see a damm thinglol.
Are you still having rads, i do think having cancer is very emotional, i found just after i finished my rads one day when i had been feeling fine, i just spent all day sobbing,but luckily not too many problems on tamoxifen and oncologist says im healing well and all ok.
Good you had good time, weather seems much worse now at least wasnt too cold at weekend,
You must have been to the Reload festival in my city Norwich, all the acts you mentioned were there, Some friends of mine went on the Saturday, they did ask me if i wanted to go,but im not really a festival sort of person, not keen on burgers or chemical loos, bit of a luxury lover me. Heard music was good, yes think x all ages go, my old manager from work went and shes 60 next year,but i didnt like them when 20 so i dont think would now. Glad you had a good time and it took your mind off C, Junex
My hair just needs cutting - didn't notice any problem whilst on tamoxifen so will see what happens with the Letrozole. Goodnight- really tired now! X
I loved the Boomtown Rats in my youth! There were some good and some not so good acts on! Billy Ocean was great and Howard Jones but Bucks Fizz and Limahl (Kajagoogoo) were not great. So many people were in random fancy dress and there were a lot of neon leg warmers and tutus about! I think I just had such a good time I didn't want it to end and that's what made me upset! My friend keeps sending me photos from the weekend - it's great to look back on. I was lucky with the loos as my friends bought me an upgrade to use vip loos - so glad we did, no queues and they were cleaned after each use, they also had a mini pamper area where you could do your hair and make up! I just kept a hat on most of the weekend to cover my hair up!
Hi all - had a fab weekend, the tent didn't leak thank goodness. It was such a chilled out festival due to the fact it was eighties based and everyone was older and just having a great time. There was such a good atmosphere- I didn't want to come home apart from having a nice hot shower and proper bed. My air bed decided to deflate each night so I didn't sleep much! Got really emotional while watching the Boomtown Rats - it's weird when these moments bubble to the surface, drinking lots of beer probably didn't help! My friends were great though and we hugged it out!
Hope your bra burning went well Jill! My skin seems almost back to normal now. I'm going to start taking Letrozole tonight so will see how that goes - just hope I don't get really down again. Anyway off for any early night - I'm really getting too old for all this partying - my knees and legs are killing me - too much dancing! Tried riding on these crazy Bulls that go side to side and roll backwards and forwards - such a laugh but am covered in bruises - my mind is still 18!!! Night all - sleep well xx
Hi everyone - weather terrible here in London and after a morning ironing and watching day time T.V I was overtaken by a wave of exhaustion and a mood nose-dive when I remembered why I was wasn't working and why I haven't got much energy. Signed on and saw all your comments about the men and I'm laughing that they are all so similar. I think the " you had it, they dealt with it, it's gone, pull yourself together" attitude is pretty widespread - they don't want to think about or talk about the "what if" because it's too damn scary to them too. Trouble is that there is no escape from thoughts of "what if" for us and they don't get that. I'm trying yoga and meditation to try and achieve a brighter perspective - trouble is that I'm so knackered that I keep falling asleep in the sessions!
Very wise words girls. Feel exactly the same. I said to my husband last night that I felt very scared about the cancer coming back & he said "Well how long are you going to feel like this? " in quite an irritated way. I am having a new bathroom put in which is nice but the drilling & upheaval is driving me potty. The weather has been dreadful so I have been unable to go out today. Do'nt drive unfortunately. Moan over. Going to have a biscuit
6 days after finishing...I've been very up and down. On the physical side, still in some quite intense internal pain and taking ibuprofen, skin has gone bright red under my boob but dark brown in the rest of the rectangle, nipple area very sore. Keep getting waves of 'foggy' sleep. Emotionally, sometimes I feel fine and other times I feel like a wave of depression has crashed over me. I suppose finishing the physical side of ops and rads has now given way to the reality of what has happened in the last 6 months.
I think we all need to just accept that what we have been through hasn't been some minor thing we will 'get over' any time soon. It will no doubt be a long haul, a bit like grieving, it's a natural process that we need to go through, over which we have no control. I'm so happy we have each other to talk to! xx