Goodness Jill, I really feel for you. I hope the Dr can give you some proper help and advice. I think once we finish the treatment we are abandoned way too early and need some access to professional help for the first few weeks (at least) afterwards.
Will be thinking of you tomorrow xx
2 weeks after treatment.
Just thought I would say how things are going and send love to everyone going through treatment. You all sound like you're having a really tough time of it with the medication.
I've been back at work for 3 days and really struggled with fatigue. I've been lucky in that my manager has been very understanding and that she doesn't expect me to work afternoons as the moment and I can just go when I need to. Have been coming home and sleeping until early evening. Mentally it has been great to be back and away from BC but physically it is very hard work, my body can't do what my head wants to. Skin is still sore underneath my boob and nipple but the rest has healed up but still getting lots of 'electric shocks' which take my breath away so still painful. I have my follow up appointment in 2 weeks with the Onc.
Big hug to everyone xx
Hi Sharnie, O so you were under Norfolk and Norwich, was impessed with the treatment recieved there, read today Norolk and Suffolk has one of highest rates for quick diagnois and treatment of breast cancer.,
Ive been quitelucky with tamoxifen, camn live with flushes and feel ok do feel a bit like cant be bohtered, but ive never been really a very positive peraon, so not sure if tht the tamoxifen, if you say it can have effects on your mood, I know i should start going out abd trying to meet new people as all my friends have partners but i dont seem to be able to get my head around it, Hope not the tamoxifen as ir seems ok in other ways.
Yes im lucky am a quick healer, not looking forward ro dark nights though that will affect all our moods.
Hi Jaye, So I'm not the odd one out after all lol! I finished in June this year so no hospital for another 9 months sounds good to me!! Thanks so much for your message and great news that your all clear 😀 Xx Jo
You are not alone in not having a follow up appointment after rads. I didn't either, and thought it most strange as everyone else seemed to have one.
I finished rad last year in June and received a letter for first annual check up this June, which was a year on from finishing treatment.
Thankfully the mammogram was NED but I did have to wait 3 weeks for the results.
Not sure if it was because of the policy that our hospital has - I had rads at Leicester Royal Inf.
RE: Breathing technique: the ABC breath-hold device to protect the heart in left side bc.
Thank you for your support. I asked the nurses and I was told that, yes, the tube and the mouth piece was a "one-size-fit-all". There is simply nothing smaller available. I discovered a picture on the internet and it seems the system or device is calles the "ABC" breath-hold. The nurses are giving me more time - I asked to do it myself to ensure a bearable position. Apparently, the device is a new additio not available widely
Although the ABC device is very intrusive, I am grateful for it, as it is minimising the rads leakage to my heart. I would advise anyone confronted with this tube and hard plastic blue insert, to place the insert themselves rather than having it pushed into one's mouth.
Rads was delayed by 4 hour due to the machine delivering the rads breaking down!
I am a bit nackered. Hugs, Egret x
I will have a look at that Jennifer,how quickly did it help?Have visions of going back to work bald!!Yes, thats a good idea I will tell hairdresser its menopause!!
Just tell them it's menopause. I am through the menopause ( but now back in it thanks to letrozole) but when my hair started to fall out my hairdresser told me that vitobiotics menopace really helped and it did. Don't know if it's ruled out because of BC treatment but worth trying?
I did think maybe I would have a check up afterwards, my ONC said she hoped to see me again at the moving on day in Sept but then in the nicest way never again after that! I did have a letter I was given at final rads and that just says about how things had gone and under the follow up section it says to see surgeon at annual check up, I'm not worried about anything and it's lovely to free of hospital and but i do seem to be the only one here not having a follow up!
And I am so sick of the cancer charities calling me, Mcmillian Coffee mornings and they are even running a cancer story on Coronation Street! No escape!
Yes totally agree Jennifer. You try to put it behind you and then it comes up again and again - I'm fed up hearing I'm sorry! People don't know what else to say I guess. You certainly find out who your true friends are too!
I hate having to tell people - nobody knows what to say and you end up feeling like an object of pity. My husband took me to a lovely Spa hotel last weekend and one of the questions was.......do you or have you had cancer? I HATE THE SENSE OF STIGMA......
Hi all, just dropping by! I've had tiredness kick in again tonight but did have a full on weekend and been at work today. So far just got hot flushes back since taking Letrozole, fingers crossed I don't get any other problems. I have an appointment with onc in 3 months time but I think this is because he changed my tablets and it's a follow up to see how I'm getting on with them. I do have an appointment for next year as well - happens to be on my silver wedding anniversary so might change it - hoping to away somewhere nice for a few days. I am trying to put everything behind me but today had dentist appointment and had to mention it as I had to inform them of changes to my medical history and tell them I'm taking Letrozole. It does get better day by day and my skin is quite good now - just darker on the treated side. Hope yours heals soon Jill.
Nope! Had end of rads review with a lady in my last week but nothing else, been invited to a moving on day this month but that's in a cricket pavilion so not a check up! Can't go as will be on holiday anyway ☀️☀️ Will be called back a year from diagnosis for mammogram is all I've been told xx
Hi Jill - two weeks on from ending rads I am still pretty weary and very up and down about the future. I've had a few rough days to be honest but also some good ones. The letrozole ( I'm on the third month) seems to have hit me and I've got aching joints and legs. I'm supposed to be doing one of the Shine night walks in two weeks but as three miles tires me out at the moment I'm not sure that I will go. That's a hard thing for me to accept as I've always been fit and string. I haven't seen the oncologist yet so the end of rads has left me in limbo again as I haven't even been told to go away and not get it again! The appointment is on the 29 th so I'm still on the appointment treadmill till then. After that? God knows - I've taken up yoga/meditation and even booked myself on one of the "moving on " courses. It's scary. How are you?
Hallo Egret and welcome to the thread. As Jill said, I am a left sider too and had to hold my breath for up to 25 seconds each treatment so that my heart shifted out of the path of the beam. My cancer was in the top left quadrant of my boob, so a little less close to the heart than yours. I didn't need to breath through the tube and I am grateful because that sounds horrible. However holding your breath can be quite difficult especially when they do two " zaps" at a time and you are feeling worried/ nervous and you can see the machine shooting radioactive gammas at your breast! Enough to make you wet yourself ( don't worry I didn't). I got quite worried about losing control mid treatment and ending up with a cooked heart to add to my miseries. I'm glad to say that the radiologists were all brilliant. I told them of my fears and they explained how the infra red beams are measuring your chest expansion and the beam is cut off as soon as you start to breath out. They also varied the length of "zaps" if they felt that I wasn't holding my breath well. So I guess my advice is that you must let them know that you are uncomfortable and ask them what will happen if you feel that you must breath properly and remove the clip. I'm sure that they will be able to adapt things to help you through. I had a few days when I found it hard to do the breathing properly and they coached me through. I'm sure it will be the same for you and you will be half way through before you know it. Keep us posted on how you get on. Best wishes Jennifer
I am also a left sided and was worried about this technique. I also have a small mouth, I had a lot of orthodontic treatment years ago because of it. I found the first two or three sessions difficult getting the mouth piece in correctly but then got the hang of it. I also got used to the breath holds and no problems. I have just done 10 of 15 sessions plus I have 4 boosters to do.
Hope all goes well