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Seriously need help

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Community Champion

Re: Seriously need help

Wendy! Another great tip, would be good to go on the shared tips thread!!

 

i love that Idea of drifting away to. Music with sleep mask on.

 

moijanx

Member

Re: Seriously need help

Hi

 

I take 4/5 things to do while I am in the chemo room, a quizz book, games on my phone, reading book and my cross stitch sewing, as most of my chemo session have been 7+hours long and I find a variety of things are needed to take the focus of the drugs, I try to have the drip slightly behind me so I do not have it in eye sight. 

 

One lady at our hospital puts her sleep mask on and her music on and sails of to another place in hear head. 

 

I go on my own as trying to be polite and strong for someone else is hard work and I just do ot have the energy for that.

 

Member

Re: Seriously need help

Great idea my dear 👍

Community Champion

Re: Seriously need help

That book sounds good too, sounds like you have been foing a lot of research. Hope you dont mind, but have put the book on the shared tips thread?

 

love Moijanx

Member

Re: Seriously need help

I found "living well with pain and illness" book and cd quite helpful for beginners like me. They are written by a top notch meditation coach and could save us lots of money. 

Deb, I have lung, spine and rib secondaries. I hope that meditation would reduce my anxiety during the chemo sessions. As a holistic approach to healing I intend to try tai chi as soon as my immunity system builds up and then will let you know. 

Member

Re: Seriously need help

Hi Momo I just read your post and found it really interesting.I love all holistic healing and had a Buddha meditation cd the other day which was quite good.Have you got any good books to share? I enjoyed The Power of now .What do you have as your secondary Momo? Best wishes Deb x
Member

Re: Seriously need help

When I was first diagnosed with SBC my BCN looked at me and decided I needed to see the Macmillan psychologist. She was helpful and made me feel a lot better. I also use the headspace app. What the guy says can often be helpful and there is a series of sessions on anxiety.

Member

Re: Seriously need help

Thanks Moijan. Actually meditation coaches are quite expensive costing around 100 + pounds per hour. A sister of my childhood friend has volunteered to coach me for free. However, you can find many coaches displaying free videos online that can prove equally effective. Usually coaches help you get hold of the thread and then you can take things from there on your own.

Let me know if your need more info about techniques. 

Community Champion

Re: Seriously need help

Momo thats realky great....a few new ideas there for us to try..Yes 

I have a group of friend praying for me and i find it really nelps me!

 

glad you are ferling great

 

Moijanxx

 

Momo, how does one get a meditation coach, please?

Member

Re: Seriously need help

Hello lovely friends,

l am back with updates about yesterday's session. My new meditation coach helped me with some techniques and a recording that I ran for 39 minutes during the session. She also gave me a combination of natural flower aromatherapy that I inhaled during the session (after the approval of my once team). I added my own flavour and slept for only 2 hours the night before. Moreover, all my friends of different faiths kept praying and lighting candles for me. They also sent me so many text and voice messages right before the seek on full of positive vibes. All these helped me get drowsy throughout the session. The main thing is that I had absolutely no feelings, neither good nor bad Which left me unbelievably happy and proud of myself.

It is worthwhile to mention that a combination of relaxation techniques can help other ladies sail through difficult times. I intend to carry on with some of these throughout the week in preparation for the next session.

A huge thank you to all of you and we hope to stay there for as long as we can to enjoy life and our beloved ones. 

Take good care and big hugs to all of you. 

Community Champion

Re: Seriously need help

Hi MomO, Avrelia, Sarah Louise, Carolyn,Helen,

 

Sharon at my hospital, when I was discussing the portocath, they explained that bloods wouldnt be taken through it routinely..apparently each health prof needs to be certified competent to use it, up until recently..

the dyes re Ct And MRI werent given via the port for the same reason. 

 

i go to the blood room for my bloods where the phlebotomists get my vein first time! i did ask the chemo nurses if they could do my bloods and leave in the cannula...the reason they dont is becaus Eribulin takes 4 Hours to make up.(that was what they said) and they didnt want to leave it in all that time..but also I guess as the unit is very busy, they may want to use all their time giving chemo...which they do give thru ports.

 

Momo great that you are trying meditation, and great about the Tai chii, that is quite powerful.i cant find a local therapisttho.

 

 I think Avrelia you said you used visualisation, that is a very powerful technique and im glad it works for you..

 

I keep telling myself to use it but seem to forget...however, I  do a kind of meditation when they are cannulating...sometimes I can make my arm seem dissasociated from my body, so that I can relax..other times I repeat a prayer/mantra and just close my eyes.

 

Would be good if you guys felt like mentioning  these strategies on the 'shared tips' thread as there are lots of new ladies who might find them very useful too. 

 

moijanxx

 

Member

Re: Seriously need help

Momo, even😊
Member

Re: Seriously need help

Hi Mom
I tried meditation and found it very relaxing and helpful so I am sure it will work for you. Regarding your portacath, I don't understand why the nurses refuse to use it to take blood. My nurses are always happy to do so; it is so quick and easy
Highlighted
Member

Re: Seriously need help

Let me share what I say to the chemicals themselves. I repeat to them several times that I thank them for curing me, that I am so blessed to have them as my friends who are going to help me fight that stupid disease. For the time being this is working. I have not heard it from anywhere, it is the way I feel things should go. I have heard before that people are talkting to water, so may be that is what provoked me.

Member

Re: Seriously need help

Sarah
Very similar to what I used to do except I thought of the chemo as Rambo ..killing all the baddies !!!
Carolyn xx
Member

Re: Seriously need help

All the other suggestions that you've had sound great epecially any form of meditation that you can do in the chair. I used to imagine the chemo as pac man chomp chomp chomping away on the bad cells it helped me and Im still here thriving and surviving with secondary breast cancer 5 years and 8 months down the line. Another great help is the Macmillan counselling service, you could book up and see someone prior to the session if your centre is based at your hospital. This is a free service and excellent to help with your mental health. They also offer other free complimentary services that would benefit like relexology, healing etc. all free and a great support. Sending you lots of love and light xxxxxx

Member

Re: Seriously need help

Hi mojo

That is good news if you can get into meditation it really does help, I also have a port yet they don't use it for bloods

Big hugs

Karen xxx
Community Champion

Re: Seriously need help

Well done getting an appt, hope meditation will help. Yes I think you should get them to use your port for bloods, why should you suffer hunt the vein when there is easy access! Good luck xx

Member

Re: Seriously need help

As an update I've an appointment with a meditation coach next Thursday. I hope that this works for me. Some friends suggested tai chi. Has anyone tried it before? 

Member

Re: Seriously need help

Hi Julie,

i do have a porthacath but they refuse to use it for blood samples. Do you think I should insist on having them use it?

Member

Re: Seriously need help

Moijan I go the day before for my blood test for day one.but on day eight the chemo unit test my blood so only one visit and one canula .xxsharon
Member

Re: Seriously need help

Thanks beautiful ladies for your feedback. For starters, I've tried the tapping technique for something minor that was bothering me and it seemed to work. I don't care if it's self-hypnosis or my own delusions as long as it works. I'm saving it for the next chemo session as it can eat up some time even if it fails. I'LL download the meditation app and try it out same day as well. Do you think that I mention it to my oncologist? I'm afraid tags it may consume part of the appointment time and distract him from the follow up. 

 

My friends downloaded some helarious TV shows for me and I hope that they prove to be of help. I am a heavy burden on my hubby who's so far been the only companion during my sessions. He refuses to see me a burden on others, hence my guilt of my in-session lousy mental status is building up.

 

I'm also taking your advice of planning something exciting right after the sessions to keep me distracted. It's the few hours of the sessions that are the most difficult. So please any more advice would be more than welcome as I would like to keep the "shrink" as a very last resort. 

 

Many many many thanks and big hugs from me to all of you 

Member

Re: Seriously need help

Hi Momo,
I agree with Helen there are all different kinds of counsellors Some more qualified than others.. Maybe you need to see a psychologist instead. When my daughter was suffering from very severe debilitatong anxiety we took her to see an NHS psychologist and he was nothing short of marvellous. Best wishes xxx
Member

Re: Seriously need help

Hi momo 

i take an iPad in with my fave half hour comedy programmes on it.... something easy to watch that is distracting.  I am using a cold cap and the first 15 mins are agonising and I want to give up so I have a routine when I use it as soon as starts and it gets me through that first bit.

 

sounds like you need some way of breaking the cycle you are in mentally, you say a counsellor didn't work last time, but maybe a different one would be better, there are lots out there with different techniques and tools.

 

best wishes

Helen X 

Community Champion

Re: Seriously need help

headspace.com - Headspace Free Trial‎
Adwww.headspace.com/‎

 

 

How to do the EFT Tapping Basics - The Basic Recipe | PART I For Everyone: The EFT Tapping Basics | Official EFT Tutorial - Emotional Freedom Technique


www.emofree.com › eft-tutorial › how-t...

 

 

hope these are helpful Momo, at least thry are worth a look. You could try both...

 

Moijanxx

Community Champion

Re: Seriously need help

Hi Momo,

 

so sorry you are feeling like this. I get my bloods done a day before so that I dont have two lots of hunt the vein. So that might help.

 

i was having panic attacks with my chemo...till the staff nurse said she had noticed that the antiemetic(

(antisickness) med had that effect on several people and suggested we leave it out....have been fine since then.

 

have you tried Headspace. Its a free online meditation, where the guy talks the meditation through whilst you do it?  Maybe you could have that on an ipad or soneting on headphones?

 

i now, myself keep repeating a mantra or prayer all the time they are hunting for a vein...seems to help.

 

the other thing to think about is EFT. The tapping technique....i got myself through several exams with this tecnique and its freeley explained on the internet...i used it on Thursday evening on my way to a nervwrackng event, and it really worked. You can learn it for yourself in minutes and practice tapping on the points whilst saying yo yourself exactly what your fears are, in time the fears go away or are at least manageable.

 

You said no ords, but im going to be thinking of you,LOVE AND HUGS

 

MOIJANXXX

 

PS will put a couple of links on for you.

Community Champion

Re: Seriously need help

Momo, I'm really sorry you are struggling so much and finding the chemo sessions so distressing.

 

It is hard enough going through treatments let alone having the additional trauma of finding veins so I  would urge you to ask for a line, they can be put in quite easily and will make the session a bit easier  and quicker which might actually help you cope more. Ports are better than lines but as you've got 3 sessions to go and we don't know what type of future treatment you'll have a line might be quicker and easier to sort out at this point. Please talk to your team about getting one fitted.

 

If I  think of anything else that might help I'll pop back.

 

Sending a huge hug xx

Member

Re: Seriously need help

Hi Momo

I really feel for you, I was ok during chemo but before my mastectomy I was a mess having nightmares that I was gone, my psychologist got me into meditating I now do something called head space daily it is a free app I know it does not work for everyone but it certainly helped me with the demons.

Hope this helps

Sending big hugs

Karen xxxx
Member

Seriously need help

Hi friends

I am on my fifth cycle of Tax+Carbo+Avastin with three more cycles to go. Aside from the usual physical and psychological ailments, I'm finding it terribly difficult to cope with my chemo sessions. Every time I go I dread the session as my mind stays focused on the dreadful times when the disease will eventually take the upper hand and then do me. 

These thoughts keep getting worse each session and I find it intolerable to cope with the sessions. Counselling won't help as I've tried it before during my primary BC and it was a fiasco. 

I keep telling myself that I'm very lucky having found out about my disease and this has surely bought me some more time with my loved ones. I'm also better off than many people on this planet who die of huger and civil wars. My friends keep helping me but it's the sessions that I find most unbearable and dreadful. Sometimes I can't help crying my head off. Other times I get the same feeling that I'm in my tomb. Some other times I keep thinking of my body as a weak object that is disconnecting me from my loved ones. In other words I feel that my body is like an old faulty car that can't keep me going. 

Any suggestions how I can cope with the remaining sessions. Please note that words don't help so I hope that you can help me with practical methods.

sorry for the long post but I'm afraid to start panic attacks as now nurses are scared to take blood samples and suggest that I do them a couple of days in advance as they've seen me cry when they were not able to locate my veins.