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Sharing in online illness communitites - have your say!

5 REPLIES 5
Anna_BCC
Member

Re: Sharing in online illness communitites - have your say!

Hello All

 

Peter and Julie (the research team) has asked me to say thank you to everyone one in the BCC Forum community who has offered to take part in this research.  Thanks to the generosity of the community they now have enough volunteers to take part in their study.  They would like to offer their best wishes and thanks to you all.

 

With best wishes

Anna

Forum Coordinator

Anna_BCC
Member

Re: Sharing in online illness communitites - have your say!

Dear Everyone

 

The research team have asked me to extend their thanks to everyone who has shown an interest in this research project.  Research like this would be unsuccessful without the input from people such as yourselves.

 

Thank you once again.

 

Anna

Forum Coordinator

Anna_BCC
Member

Re: Sharing in online illness communitites - have your say!

Dear Bernie, please see below the message from Julie Ellis

 

Hello thanks for your message/ question about the project. Because this is an exploratory, qualitative project we are interested in hearing about people's experiences and we want to see what using the forums is like from a user's perspective.  Therefore, we purposely want to remain open to what we might find.  We haven't got a formal hypothesis like you might have when doing a project where you are trying to test something out because the aims of this research don't require us to make predictions in this way.  We hope to be able to produce findings which are very much grounded in the perspectives of those we speak with.  I hope that explanation helps!  Please do feel free to email me directly (julie.ellis@sheffield.ac.uk) if you'd like to ask more.  Best wishes, Julie 

Bernie610
Member

Re: Sharing in online illness communitites - have your say!

Hello what is your hypothesis?
bpbninja
Member

Re: Sharing in online illness communitites - have your say!

Hi, I hope you get a good response here for your research. I will happily speak to you about this, but wont be available for a week or so due to surgery, and so it depends on whether your timescales will allow for that. Feel free to private message me and confirm if you want me to get in touch. Good luck with your research. x
Anna_BCC
Member

Sharing in online illness communitites - have your say!

Hello! We are Peter Bath and Julie Ellis - researchers in the Information School at the University of Sheffield in the UK.


We are carrying out a new study that is looking at how people with serious illnesses (and their relatives and close friends) use the Web to share information and discuss their experiences. We are also interested in how people build trust with others and empathise with them online. To learn more about what people share and how they build relationships with others online, we want to talk to people because we think it is really important to hear people’s explanations in their own words.


We are looking for volunteers 18 years+ to be interviewed about sharing online. If you use the Breast Cancer Care forums and have experienced a breast cancer diagnosis or you have a relative or a friend with the condition and you think you might be able to help us, then please do get in touch. Our contact details are at the end of this message.


We realise that you may have questions you would like to ask before you agree to be interviewed. That’s fine. If you get in touch, we can send you further information about the study and what taking part in an interview will involve. You can also get in touch with Anna Brown, Forum Co-ordinator at Breast Cancer Care using the email moderator@breastcancercare.org.uk if you would like to chat to someone at Breast Cancer Care before contacting us.


We will share the findings from this research with Breast Cancer Care to help develop online services for people affected by breast cancer. We really hope that this study will be helpful to individuals and organisations that set up web-sites for people to share their stories and experiences about living with illness in the future.


If you think you can help - we’d love to hear from you.


If you’d like to learn more about taking part in an interview, please contact Julie at: julie.ellis@sheffield.ac.uk or you can call Julie on 0114 222 2690.


Many thanks
Peter and Julie

 

Recruitment message for BCC forum users-2.jpg   Recruitment message for BCC forum users-1.jpg