Hi
Don't post on here to much these days, I live in Sheffield near crystal peaks, I was dx in December 2007 grade 2 and had lumpectomy and 25 session of Radiotherapy at Weston park,I did not have any Chemo but had my ovaries out instead, in May 2009 was told I carried the BRAC2 gene, if I can help with any question you have just ask.
Debra
Thanks for that great info Jan and mizzy.It's really helpful to know what to expect. I only just got used to finding my way around the Hallamshire hosp and now have to get used to somewhere else!!
Will let you know how I get on.
Take care
Anna x
Hi All
I found it alot easier for my partner ( or anyone else that was available ) to drop me off and then pick me up as i was never more than about 20 mins start to finish, all Weston Park staff in radiotherapy and chemo unit are lovely as is my onc Dr Bridgewater who i now see at Barnsley breast clinic..
Mizzy xxx
Hi Anna
I think street parking is very difficult around there. There are so many hospitals and all the staff etc have to park their cars. My daughter in law works at Charles Clifford and she sets off for work at 7am just so that she can get a parking space. She parks somewhere over the other side of the park. You'll be OK in the little car park, just leave some extra time in case you have to queue.
I was going to suggest that you go for your treatment as early as you can. I went late afternoon and ended up having to wait on occasions for 2 hours+ before I went in to the treatment room. People who went in the morning seemed to get in more or less on time.
When you get to the hospital go in the side door which is just inside the little short tunnel on the right. As you go through the door immediately on your right are some curving steps they are down to the cellar!!!! where the radiotherapy department is. It's easy to miss and go wandering off into the main reception area.
When you get downstairs you'll be in the reception area. Report to the desk and then you wait in there until someone calls you to go through to the next waiting area. When you get in there you go into one of the cubicles and take your clothes of your top half and put them in one of the 'supermarket' type baskets which are in the cubicle. Put on one of the short gowns and go back into the waiting area, taking your basket with you, and wait in the sitting area for the machine you are going to be treated on.
At your setup session you go to the same place. You again put on a gown but the changing room is in the setup room itself so you don't have to go into the cubicle or use a basket. You will lie on a bed with a machine similar to the ones which give the treatment and you are measured and the radiotherapy area marked out. I had tatoos, one in the middle of my breasts, one on each side at the bottom of my breasts. These ensure that exactly the same area is treated every time.
They will give you your list of radiotherapy sessions at your setup. They will be differing times but around the time you ask for. I think that when you see the doctor, which I think is after the first two weeks and then every week you go in the afternoon. (can't remember properly)
You will probably get quite sore from the treatment, it affects your skin. I would start slapping the aqueous cream on ASAP to keep your skin in good condition. You can't use perfume or any perfumed products on the radiotherapy area while you are having treatment so you'll need some shower gel/soap which is unperfumed.
I found that it was uncomfortable to wear a bra but some of that was because my scar is in the crease underneath my breast. I got some of those little strappy tops from M & S with a secret support in. They were very much more comfortable.
It would probably be a good idea for someone to go with you for the first couple of times until you know the ropes - oh and take a book or DS 🙂 (love mine, got me through many a long wait at hospital) if you've got one just in case you have to wait.
The treatment itself, mine started exactly a week after my setup, only takes seconds. It's given in two doses from each side. The longest job is getting you lined up with your tattoos on the machine. You are in the room on your own while you are being treated the staff can see you on a monitor so if you have a problem they can come a rescue you. The treatment is completely painless. You don't feel anything at all.
Right off to my son's for my dinner now. It's usually Mum who's cooking so today makes a change.
If there's anything else Anna please ask.
Oh forgot when you lie on the machine bed for your treatment you have your short gown thing on and they just fold it back as much as necessary for your treatment. They are very mindful of your modesty. Really lovely people.
All the best for tomorrow. Let me know how you get on.
I've rattled on a bit. I hope you can make head or tail of what I've written.
Love and {{{hugs}}} to you. I'll be thinking of you tomorrow.
Jan xxxx
Thanks for that advice Jan !
I didn't even know there was a car park there of any sort; I was thinking of parking on the other side of the park over the road and walking across. There are some streets round there with free parking I think...
I am going for the planning meeting on Monday but don't yet know when the actual rads will start.
It's not that much of a journey for me. I can be there in about 20 mins if the traffic isn't too bad. I have asked for a morning apointment ( about 10 ish) if possible so I can go straight from dropping my daughter at school, then hopefully it won't feel so much like it has taken up the entire day!!
I just wondered ( daft really...) do you wear a gown for the treatment, or lie there topless, or do they partially cover you with a paper towel thing or what ??
Thanks
Anna xx
PS Hope you're having a good weekend in this fab weather !
Hi Anna
I did OK with my radiotherapy at Weston Park. All the radiologists are lovely. Parking is a bit of a pain. There is a small free car park but sometimes you have to queue to get a place. The good thing is that people are constantly coming and going so you don't have to wait long.
I think the main problem is that you have to go everyday. It just seems to take your life over. I felt a bit sick for the first few sessions about 20 mins after I came out but it soon passed and after about 3 or 4 sessions it went away.
Do you have a start date yet? I didn't start my Tamoxifen until I'd finished the rads.
If there's anything I can help you with don't be afraid to ask. If it's a bit difficult you can send me a personal message. I'm obviously no expert but I'll certainly help if I can.
Look forward to hearing from you
Jan xx
Hi ladies,
Nice to hear from some other locals !!
Jan how did you get on with radiotherapy at Weston park? ( I am starting that soon).
Let's see if we get a few more replies and maybe arrange to meet up ??
Anna x
hi Jackie
Yes we are very close, my son and daughter in law live in Anston so I'm often in the village.
A meet would be great. As Anna says friends are great, and mine have been truly wonderful, but no one understands until you've been there.
Who did your op at Rotherham. I had Miss Donlan, she was really great. Started off with Michelle as my BCN but she went on maternity leave and so I've got Stephanie now who is really nice.
I have 5 grandchildren. The youngest, who lives at Anston, is 7 months old.
Jan
Hi Jan and Anna
I also live in your area, Anston actually which is very close to you Jan. I was diagnosed August 08 and had a mastectomy in Rotherham General. This was followed up by 7 months of chemo and now I'm on my 5 years of Tamoxifen. I also have two grown up daughters, 39 and 35, and 4 grandchildren with another due in November. At the moment I am back to working full-time but hoping to reduce my hours so that I only need to work 4 days. It would be good to meet up if anyone is interested.
Jackie
Hi Anna
I'm from Sheffield/Chesterfield area. I live in Harthill which is close to Woodall Services on the M1. I too had my radiotherapy at Weston Park although my surgery was done at Rotherham General which is where I go for my check ups. mammos etc.
I was dx in September 2007 so I'm 2 years further on than you. My cancer was grade 2. I had a lumpectomy, 25 rad sessions and now on tamoxifen for 5 years.
I'm much oldre than you though, 62 and my children are 40, 37 and 34.
It would be nice to hear from you.
Take care
Jan xx
Hi
I was wondering if there is anybody on this site from around my neck of the woods ( see title)? I was dx with grade 2 IDC on 31/07/09 and had WLE on 21/08/09. Currently awaiting rads and on Tamoxifen. No chemo planned as not spread.
My treatment has been in Sheffield and I live on the south side of the city, so can get easily into Chesterfield and North Derbyshire.
I am 43, am an SEN teacher ( although off sick at the moment) and have two children of 12 and 9 (nearly 10!)
Would love to meet up with a BC buddy or two. My friends are great but they don't really know what it's like do they??
Hope to hear from you
Anna x