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Shocked and confused x

15 REPLIES 15
Mammycatx
Member

Re: Shocked and confused x

Hi All x Thanks for your replies xxxxx 

Well she was absolutely right!

I have a 3 cm, grade 2 invasive ductal carcinoma x 

I'm having a double mastectomy in 3/4 weeks - not sure what reconstruction to opt for x

Have to say I'm shocked and feeling numb xxxxxx

enzobenzo
Member

Re: Shocked and confused x

My diagnosis was confirmed today. I saw he consultant. Has the mammogram and biopsy on Tuesday and the consultant gave me her suspicions and said she was rarely wrong. She was right. All confirmed today followed by more biopsys today.

I feel your shock, confusion and pain.

If you're not sure or have questions boon an appointment with your consultant sooner than next week.

Good luck xxx
Karenbabe
Member

Re: Shocked and confused x

Hi I'm new to the forum (today) and have a similar experience found a lump referred to hospital had mammogram and ultrasound then biopsy then told I have breast cancer all that on Tuesday this week. Going back next Thursday for results to find out type and treatment plan But think mine is hereditary as have a family history.
HelenRose
Member

Re: Shocked and confused x

Hi I was told I had breast cancer in much the same circumstances as you - I had my first mammogram and was recalled. Had another mammogram and breast cancer surgeon said she was sorry to tell me I had breast cancer. I was so shocked and asked how she knew without a biopsy and she said she was certain for several reasons one being it had nasty spiky bits which were typical but thankfully only 8mm. They did the biopsy the same time and I had the results 2 days later which confirmed the grade etc. I asked BCN later how they could be so certain and she said the digital mammograms which they do when you are recalled after the screening mammogram are so clear that some tumours present as "text book" examples whilst others can take months to get a firm diagnosis xx hope things go well for you xx
Kf791
Member

Re: Shocked and confused x

It is definitely the waiting that is the worst!

Unfortunately mine wasn't the good news that i was hoping but it was strange that I instantly felt slightly better. I was only diagnosed last Wednesday but nothing has felt as bad as that week before, not knowing! Thinking it will be fine, then preparing for the worst, then thinking it will be fine again.

So sorry you are having to go through it, and I will have everything crossed you are in that 5%! Xxx
Mammycatx
Member

Re: Shocked and confused x

Thank you Wemblo x 

 

I'm so sorry you are having to go through it all x

It's all I can think about - every second of the day - all the what if's and doom and gloom - then hope - thinking there's still that 5% chance they are wrong - somebody has to fit in there and it could be me! It'll be all ok after all! It's an emotional rollercoaster!

 

They've changed my appointment to Friday so only 3 days to wait now instead of 8 - so that's a bonus! I can't stand this - I think what you say about once you know what you are dealing with is right. I'm so very ready to know now - then maybe I can pick myself up out of this black pit and get battling!   xxx

Wendyy
Volunteer

Re: Shocked and confused x

Sadly your story is very familiar on here. I was told the same immediately after my biopsy and spent a week in suspended animation unable to concentrate on anything else. To be absolutely honest that was the worst week of my whole experience. I've since had a WLE and SN biopsy. Clear nodes and total excision with clear margins. Once I knew what I was dealing with I felt much more relaxed and able to process exactly what was going to happen to me. So hang in there I'm not saying it's easy but it does get better. I'm now 6 weeks post surgery and waiting for my radiation treatment to start at the end of October. I've managed a couple of little holidays whilst waiting so as you can see some normal life can resume. There's always someone here for those little things you don't want to bother the medics with. Stay strong but disappear under the duvet if you need to, nothing wrong with that either

Xx
Mammycatx
Member

Re: Shocked and confused x

Yes Laetitia, It's a horrible horrible time xxx Something so many many women go through and have no choice but to face full on - I just can't get my head around the fact that here I am facing it too x

 

I'm glad I came on this forum - I'm taking it one step at a time and I'm a little tiny bit less doom and gloom today - although it's on my mind every minute every second! It seems to wash over you doesn't it? Sick to the stomach feeling!

Smiley Sad xHeart

 

 

laetitia
Member

Re: Shocked and confused x

Yes, when I went back after something showed up on my mammogram, the doctor told me she was sure it was a cancer and, if the biopsy results came back negative, she would request another!  She was right, of course.  If only I could get over the shock and fear, I feel I could cope a bit better .....

Mammycatx
Member

Re: Shocked and confused x

Thanks All x

 

I've found out a bit more - it's not uncommon for them to be so certain - there's what they class as a BIRAD 5 and if your lump meets this then they tell you straight away - the biopsy is then just to confirm.

 

95 out of a 100 who are told this immediately after a follow up mammogram and ultrasounds - but before any biopsy has been carried out - are confirmed to have got cancer. The biopsies also tell them more about what's happening.

 

So who knows eh! I might be one of the flucky five! Here's hoping! Thanks again - it's such a scary time xxxxx

Seabreeze
Member

Re: Shocked and confused x

When my GP referred me we thought it may just be bruised tissue...they did the mamo, scan, could tell they weren't sure what the mass was (I was aware fatty necrosis could look bit cancer on the scan and could see the dark mass on the screen), so they did the core biopsy. I saw the consultant at the end of the session who said both doc's were 'sat on the fence at the moment', hence the biopsy....followed by the unforgettable line 'you might want to think about bringing someone with you next week when you get the results.' It came as bit of a shock at the time (but at least meant I had a week to take on what may be), went home and carried on working, and remained pretty calm through the following week thinking no point in panicking since it may yet be clear.
I think it's important to tell someone close to you, be it close friends or a partner etc, if you don't want to overly panic them you can say its precautionary so have been referred for tests - you just need someone close to know. Good luck with the results.
seabreeze
Mammycatx
Member

Re: Shocked and confused x

Thank you for replying!

I guess they wouldn't say 100% if they were not absolutely sure x I've just never heard of this before x all I can do now is wait x

Hopefully I'll prove them 100% wrong eh!!
Smiley Happy

SamLee
Member

Re: Shocked and confused x

Personally I do think they know sometimes.  When I first went to my GP she was convinced it was fibroid tissue as it was a spead out lump/area and again when I had the first mammo they could only see that too. 

It was when I went for the ultrasound and biopsy that I could tell from the radioologist's face she was looking more worried and kept looking closely etc.

I asked her straight out what she thought it was and she said that she couldn't say and that I would get an appointment with the consultant if it was worrying.

I said "should I be worried" and she looked at me and said "I would be worried if it was me".  That said everything to me.  And then she said "but don't worry too much, they have great treatment these days".

Like you I was on my own and by this time completely shell shocked.

I know this doesn't help you much in your waiting, but what I would say is that 4 years later I am still here and I survived everything I had to go through to get to this point.

You will too, and believe me when I say that the waiting is definitely the worst.  Whatever the results, you will deal with everything as and when needs be.

Lucy_BCC
Member

Re: Shocked and confused x

Hi Mammycatx and welcome to the BCC forums

Along with the support you will find here during this worrying time for you, please feel free to call our helpliners for further practical and emotional support on 0808 800 6000, lines are open 9-5 during the week and 10-2 Saturdays

Take care
Lucy BCC

Rodent
Member

Re: Shocked and confused x

The first Dr I saw said that if my biopsy came back not showing cancer he would send me back again until he was proved right, that's how sure he was.

I think sometimes they just know. But fingers crossed time will pass quickly till your results and you can get things all clear.

Good luck
Mammycatx
Member

Shocked and confused x

Hi All

 

I'd really appreciate some help & advice xxx

 

Yesterday I went for a 'call back' appointment after a routine mammogram showed abnormalities on both breasts. I had a repeat mammogram on the left and a quick scan on it and the consultant radiographer said she was confident was fine.

 

She said the area of most concern for her was a lump that had shown up on the routine mammogram on my right breast. She then did an ultrasound scan and showed me the lump - she was very serious and also measured an area in my armpit.

 

While she was measuring it (I think she said 2 or 3 cms) I asked if it could be scar tissue from a previous ductectomy and major ductectomy and she said no.

 

I then asked if it could be a cyst or fibro thing and it was then she said "absulutely not - you have a significant lump that is presenting as cancer". She said she is 100% certain that it's cancer. She then did 3 or 4 biposies which she said would confirm this and give them more idea of what is going on and what treatment is needed.

 

I was sent in to talk to the specialist nurse who confirmed what the consutant said - given an appoinntment with the BC specialist in 12 days and I then left to go back to work. I stood outside and all I could think of is I've just been diagnosed with breast cancer! I was on my own as I thought it would just be a scan and biopsy and back for results in a week!

 

Needless to say I'm in shock - I just don't quite believe it to be honest!

I've never heard of such a firm diagnosis before the biopsy result has even come back!

Is this unusual? Did anyone else get this? xxxxx