Hi Girls I dont expect anyone to pick up this post as it's been a few weeks since someone has posted but just wanted to give a bit of light at the end of the tunnel moment . I'm into my sixth year now and it has at times felt as though it would never end - you know , one thing after another. This shoulder pain is a real nightmare , painful , exhausting and deeply depressing. However please hang in there - well lets be honest we dont have much choice do we 🙂 Finally this pain has gone , yes I can now do up my bra and stretch to get stuff of top shelves and the secret is keep stretching , but dont overdo it , keep taking the painkillers when you need to and dont stay in one position for too long. It will go eventually, not tomorrow or next week - its a bit of a long haul but lets face it thats what we do best . I get it a bit in bed at night still but I suspect I'm much older than you young chickens so looking positivly your younger, fitter ( yes you are) than me so upward and onward you all go ( hey even played tennis the other day 🙂 something I never thought I'd do again . But I know how demoralised you all feel after all you have all been though It just isnt fair is it.
Now for Anastrozole for all you who are struggling through its side effects - yes it 's a real @*%$ in every way.
But again hang in there - it does get easier no i'm not going to say the joint pain goes but whether we get used to it or the joint pain receeds with use who knows but it'ss not so bad the further you get into it . Go on pampering yourselves and good luck I'll be thinking of you all as you continue on this journey.
I have been having quite bad pain on the op side, also restricted movement (wouldn't be able to do backstroke) and a general weakness in that arm/shoulder.
I love swimming but because of other issues have been told not to do it for some time. Hopefully will be able to after my next consultant appointment but am not holding my breath
Sometimes I wake up with quite bad pain and certainly don't fasten bra from back any more.
I went to see GP and he has referred me to physio,
1st appointment in first week August, he only referred me beginning of last week so also pleased that there'll be no hanging around waiting weeks for an appointment
Hi Ladies. I was interested in reading this post. Since my LD Flap recon in Dec 14 I have had shoulder pain. If I am sitting on a comfy settee it is fine, but once I start to move, carry shopping or sit at my work desk the pain is horrendous. I did have the same pain after my MX in June 14 but it slowly disappeared after about 3 months. Now 7 months after my recon I am getting really fed up with it. I have noticed if I take painkillers my brain goes to mush...not sure if this is the Tamoxifen so try to avoid unless the pain is ready bad. I never know if you should work through the pain or rest. Swimming sounds like a good idea. Many thanks for the suggestion...xx
Hi there, so glad I saw this link.
I am 7 months since FEC-T.
I am in so much pain in my shoulder, as you girls I cant fasten my bra or raise arm above my head, in fact I was trying to put a duvet cover on and tried shaking it on, forgetting about my shoulder, I nearly passed out, the pain was so bad. I am doing exersizes to get it going again.
I think I caused the problem when I had docataxel my joints hurt so much, when I was getting in and out of the chair or going up stairs I used my arms alot, I literally pulled myself around.
I just want to be me again, I look at people running or dancing and feel so envious, how long does it take to feel normal again.
Some one recommended swimming, what do you think.
Hope you are all well.
I fininshed rads end of October last year and about a month ago developed stiffness and pain along collar bone and shoulder. Not quite the same as you as I had a frozen shoulder a few years ago and know how painful etc that is. I also had physio and steroid injectioon for that which took a long time but it did get better. I had my years surgical check yesterday and had my shoulder/neck area checked as I was worried about this. I was told that it was all ok and side effects from rads can take a long time to develop and that after pain is quite common in the breast, shoulder etc. Hope this helps.
Has anyone suffered with what I can only describe as something like a frozen shoulder. I am 6months post rads and never had this problem before. My GP told me to take paracetamol and ibuprofen and gave me excersises to do for arthritis! I can't lift my arm above my head and its the side i had my treatment on. Is this normal?