Thanks CK x I feel a bit queasy and tired (but not sleepy!) but otherwise not too bad. It was a long day though-over 8 hours at the hospital!
How did your charity event go at your restaurant yesterday? xx
Bit of a long story re chemo! I had my pnemonia injection last Saturday (which I'd checked with BCN and after checking about it herself, phoned back and said it was ok to go ahead) Anyway, I had a reaction-arm had a large hot and red area and a bit swollen. Went to out of hours doctor on Sunday, who said I had Celluitis, gave me a week of antibiotics and said PICC line wouldn't be able to be put in because it could cause the infection to spread. Rang chemo unit on Monday to tell them and the nurse told me it would be fine. ED came home and off we went on Tuesday for chemo. The sister in charge agreed with doctor and said could put in PICC. Wasn't cross with me,but with the nurse who said it would be ok! (who'd also been quite abrupt about it!) Also, I was bit worried if I was sick the antibiotics wouldn't be working. She said she'd have been happy for me to have gone back yesterday, but there were no spaces available, so I'm having chemo on Monday now!
ED and me aren't happy with the nurse as ED wasted annual leave and I could have started my sick leave a week later! Unfortunately I didn't ask her name when she spoke to me, a lesson learnt for the future!
Glad you're going to have your daughter with you for the start of each cycle. ED is going to be home Mon-Wed this week and YD around on Fri, so only Thursday on my own. YD around at night, which is the time I'm more worried about and I've got a neighbour I can call on during the day if needed (although she's having a hip op in Nov! We'll be a right pair!)
I'd wondered about going into work last Wed when chemo was postponed, but ED pesuaded me not as I'd already said my goodbyes on Tuesday! It felt really odd though, especially when it dawned on me that it wasn't just a week off before chemo, it was the beginning of months away from work! I feel a bit like a ship without a sail! I'm hoping I'll be allowed to pop into school occasionally, even if it's just to play with the little ones outside for a while!
I need to have some other interests outside the house otherwise my mind will start to wander! It's good that you've got your restaurant to keep you occupied.The last couple of years ED worked for a charity who send Christmas shoeboxes for people in poorer countries. All the boxes have to be checked before they go though, so very time consuming! (Last year YD, ex-hus and me all got involved as there were so many,we were at the warehouse until the early hours a few times!) She's not doing it this year as she's now working in Oxford, but she was telling me yesterday that she might still volunteer sometimes and I think when I can I'll join her, it would be good to do something useful and it's enjoyable socialising with the other volunteers (as long as they're not germy!)
I'll pm you later for your address xxx
Hi Happygolucky, sorry you are here. Your kids sound amazing. Maggies really is great, and I'm pleased you've accessed it. I'm on a mindfulness course there and it is helping me to accept what has happened, be thankful for what I can do, and more importantly, plan the future. I've also accessed a sleep management workshop there, which has given me tips on sleeping better. A real problem when having chemo, and then afterwards when the sleep patterns are broken. Macmillan also do good support, and there should be one in your hospital. Super that the kids have accessed the Young Carers scheme. Hopefully that will support them, and you on this journey. It is hard to accept help if you are used to being in charge, but now is the time to break the habit. Just accept what's on offer as it makes life easier for your kids as well as you.
Wishing you all the luck in the world. Big hugs. 🍀💐
When you get your appointment with the oncologist, he will explain everything to you. Generally, he will tell you what treatment you will need and you won't need to make a choice.
Sending a hug. Xx
Thanks Sue and Ann, my daughter wasn't happy (she drove back again to Oxford last night and now having to come back Saturday) and I was all geared up for chemo. I've learnt a lesson-always ask for a person's name when you speak to them on the phone! All I could tell them was the time I phoned, although if they ask the receptionist maybe she'll remember who spoke to me xx
Not flu jab, that was fine! Pnemonia jab-nurse who did it just said I might have an achy arm and a bit of a headache, not a red, hot and slightly swollen arm! Wish I hadn't had it done now! xx
Hi everyone, thank you very much for all your kind wishes x
I didn't have chemo after all yesterday! I had a reaction to the flu jab on Saturday and ended up going to the doctor on Sunday, who said I had Celluitis and gave me a week's worth of antibiotics and doubted if I could have a PICC line fitted because it could spread the infection further. Phoned chemo unit Monday to check and the nurse said everything would be fine, she was quite abrupt actually. Went yesterday with ED and they said couldn't put in PICC line and doctor was correct. Also I was concerned as I'd only just started taking the antibiotics. Said they were prepared to do it on Friday, but there were no slots, so chemo's on Monday now!
They weren't cross with me, but they were with the nurse who had spoken to me about it. ED wasted two days annual leave and I could have had another week at work, so I've effectively lost pay xx
Sue, moving house inbetween treatments is definitely a way to take your mind off things! As you said, not sure how you managed to do that! xx
Fortunately I'm very lucky as I've got a good network of support from family and friends around me and one or both of my two daughter's have been with me to my hospital appointments-starting chemo today and my ED is coming with me.
Lots of people have said to ask if I need anything, so will take them up on their offers when I have rads!
A positive thing to come out of having bc is finding ex-husband and his wife offering me support.
I've been ok over the years on my own, but I have found it harder since being diagnosed with bc, especially at night, when I tend to worry more, although probably women with partners still do the same xx
Hi Sue, yes I'm a single parent too, although my two daughter's are now adult and have been very supportive during my bc treatment. My husband left me when they were 11 and 5 xx
It has been suggested to me that we should have a thread for single parents....... so CK this is for you!
I don't know whether this is the best place to put the thread, but let's see how it goes......
I was diagnosed May '16 and had lumpectomy, chemo and rads.
I had been with my partner for 20 years. After my diagnosis, he decided that he wanted to be on his own. He has always been self centred, but that one did knock me sideways. I muddled through my treatment and then left him after my chemo finished. Got settled into my new house....and then had rads! Mad looking back, but it did take my mind off the BC.
I have 2 children, one at uni and one at college. Last year was very difficult for them, in lots of ways, but we seemed to have got through it.
Going through treatment can be hard on your own. But it is possible, with the help of family and friends.
Any other single parents out there?