I have lobular cancer too. I am waiting now for a treatment plan, which I hope is next week and not still more tests. After initial biopsy I've had an MRI and then more biopies because it showed another area in the same breast. One of my lymph nodes is enlarged too, although it was 3 years ago when the screening mammo results were all clear ... maybe wrongly now I think.
The waiting is awful.
I was lobular invasive. I think the biggest challenge with this form is that it's sometime harder to diagnose because it doesn't always show up on mammograms quite so easily and it's sometimes found to be larger after surgery than at the initital diagnosis. Basically it sometimes takes a bit longer to get to your treatment plan but you will get there. I don't think there is much of a difference in long-term survival outcomes than with other types.
One year on from my surgery and eight months from my last chemo I'm feeling pretty good and enjoying life.
It's easy to say don't worry because obviously you will but there is light at the end of the tunnel I promise you.
So sorry Emma I have no idea . Perhaps one of the other groups on the site may have some information , this is newly diagnosed isnt it ... I look at DCIS because thats what I have so I will ask questions on that one for me . I had no idea there was so many different types of breast cancer and the terminology ....I guess this is the only aspect of this site which maybe you have to be wary of , because we are all at different stages and some girls have better prognosis than others . I bet you have cried and maybe the advice Treeze suggested is the way forward but its difficult to focus on anything when youre upset ... but it sounds like today has been a difficult day for you and thats fine youre allowed to ( as my friend always says to me , and she also says " youre having a bad day or moment not a bad life " . And thats what I say to myself to chivvy myself along . Im hearing you Em and sending you some hugs and squeezes xx
I know Im being selfish really ...life in the grand scheme of things is good . I also have other problems which are adding to my anxieties .I am looking forward to Monday when I get my final diagnosis and options .. Im sure these feelings will pass and then I will take the steps ittle by little . Appreciate your words Treeze . Big hug ... x
Having a bad moment Im afraid .... sadness and tears and I dont even know why ...for all I know my final diagnosis could be positive . Its so crazy where the emotions come from ! Theres no point even trying to make sense of why ..its just the way it is I guess . My ex partner from 20+ years ago has been diagnosed with lung cancer ...hes the same . Its a process but one of a hell of a **bleep**ty one .... couldnt ever of imagined Id be ranting on a web site ...let alone to you girls who have more than enough to cope with as it is ....Bloody lol . Im sitting here at kitchin table typing ferociously and the suns cracking the flags in the garden ....normal rule of thumb nothing would keep me from getting those last rays of the summer .... Iv def lost it today . Iv sat on that sun lounger about forty times this afternoon ..only to get up 20 seconds later .... this moment needs to pass asap !!!!!!!
Emma hope you ok today xxx hugs for you , Lesley and Mary too x
This is totally normal and, yes you will be as you say all over the place. Believe me although I am typing quite the thing to you guys I still have those moments when I am a mess. They seem to have got less as the treatment plan is now in place and the same will be for you. I break down when my husband comes in from work everyday, promise myself that I will not today but then it just happens. Trying to be good for everyone else. I really thought when this started on July 21st with the diagnosis that this is it life will never be the same, but now I am feeling more confident and yes it will get back to some kinda norm. Right now we have to face the next stage which we will I am sure. The oncologists,nurses etc know there stuff and this is an area where great strides are being made and improving all the time. I truly hope things settle a bit for you and your plan in place soon. I thought at 46 I was too young, got that wrong .xxxx Mary
That totally sounds like me a few weeks ago, I had bc in right breast and had lumpectomy. Starting Radiotherapy Monday. When I was diagnosed on 21st July I was numb and went through every scenario imagineable, its totally normal. Things have settled quite a bit but the waiting for all to start and know just what is to happen is by far the hardest part. I,like you find home a comfort right now. I am off work for quite some time as I also have multiple sclerosis and through all this had my first ever big relapse. I am taking all advice on board and for once doing what I am told. Hard when I am always a on top of it kinda gal. Please be kind to yourself, things will settle and this site has been a Godsed for me. xxxx Mary
In response to the feeling frightened . I have been diagnosed with cancer in my right breast and will find out my definate diagnosis on Monday . My emotions have been all over the place and last week I cried on and off . I cant seem to settle and im in and out of the house all day long but not really having anywhere to go . I must be using pounds worth of petrol going nowhere . I dont feel stressed but I must be because my behaviour and lack of motivation says otherwise . So reading what you other ladies have said it is normal repsonse but nonetheless its awful . Good luck Emma with your surgery big hugs x
Hi Emma, You and I seem to be in a similar situation. I have been diagnosed with breast cancer in both breasts and have a double mastectomy next Thursday. I too am suffering from anxiety and keep getting panic attacks about the 'what ifs'. I found this website and it is really helping me. When I get into a state I visit the site and there is always someone there to help me. I live alone and am mainly relying on friends and neighbours to help me through but I too have received some negative comments which really set me back. I will be thinking of you on Monday and when we have both had our surgery I hope we can chat again.
Lots of love, Brenda xxx
I totally agree with Sarah. The surgery was nowhere near as bad as I imagined. I had mastectomy and implant reconstruction. Having never had any kind of surgery before or even had much more than a nasty virus, I was terrified that I'd be in agony for weeks and laid up in bed for ages. That was so totally not the case.
You are at the worst stage right now waiting for the treatment to kick off. Once you get started you'll find it all starts to go pretty quickly and things feel more manageable. Try not to think too far ahead and allow yourself to deal with one thing at a time. You can't second guess what's going to happen next so no use in torturing yourself with "what ifs".
I'm just over a year from first surgery and had my first annual review today. I can honestly say that I feel fine now. All of the people I came across, especially the people who looked after me when I had surgery, were all fantastic and so kind and I was so well cared for. I am sure you will be to.
Let us know how you get on.