Just really been enjoying reading everyones posts and catching up. Had a lovely lunch with Suzy,Mungos-mum and Honeymonster on Tuesday. It was like meeting old friends and a bit surreal at the same time after all we do bare our souls on here don't we. Thanks Suzy for organising it would be lovely to do it again when you come back in February and maybe more could join us. Love the kitchen and your art work.
Jlr- glad things are moving forward lets hope you get some answers.
Scotty dog -I didn't feel too fatigued when having radio and drove myself to the hospital but we are only 30 mins away and your surgery is more recent.
Now you have been talking about chemo brain! OH and me were getting in a bit of a stew about what was going to happen next for him and looked at the bad news letter again which he got on return from holiday only to realise when looking at the date that it was a report from before he had the radiotherapy! What a pair of plonkers! Much relief! so lets hope things are ok. He does have a scan on the 16th and his next appointment on the 31st so we should know more then. lesson- read things properly!
have a good weekend all
I found my boots this morning! ES found my car keys, so equilibrium has returned to our home!!
Karen, I tried to talk to a friend this morning about how I feel physically better, but my brain doesn't seem to be speeding up yet. She responded with the fact that she felt the same because she hadn't had much sleep.... I gave up at that point!
Daffodil - I really enjoyed pilates. I have done it before, but went back to a beginner session as I am so unfit. I have already noticed a difference walking today. I'm looking forward to regaining the inch I lost when I stopped! It seems like a gentle way of exercising, but you get out of it what you put in. It's just a relief that everyone else is concentrating on themselves during the lying down exercises; The prosthetic doesn't lie the same way as my good side!!
Suzy - :I have a trip to JL planned next month, it will be my first major christmas shop. My mum comes down to stay purely to visit JL. Your kitchen looks fantastic, and I love the colours you have used in your painting. Have a safe trip home.
I had some compliments today abut my new hairstyle (as if I chose it!!) and someone commented that I looked edgy, and she wondered if I was an artist from Hoxton! It is so different to my previous look (Think Julia Roberts with her finger in an electric socket) but it is an opportunity to try something I probably wouldn't have otherwise. However, I now have a pair of straighteners I probably won't use again - any takers?!!
Have a good weekend all, xx
Hi, have been feeling really positive lately with treatment nearly finishing then I go & read an article in the mail today which sets off a wobbly moment. Is it normal to feel like this & does it get easier I wonder?
On a lighter note, I seem to be confusing people at the moment going with & without the wig, even the staff at the hospital who see me everyday are confused.
Nora, I emailed too & am now booked in. I hope your rads are going ok, the tiredness has just kicked in for me but could be the tamoxifen keeping me awake at night not helping too.
Suzy, love the kitchen!
Mungosmum, I'm hoping to go to Rhodes if all goes well otherwise could be Cornwall again! Hows the pilates going, physio recommended it once rads are finished?
Carol, I keep checking the weather too, are you packing the wig? Thought about taking it for evenings for a more glam look but might confuse everyone there too!
As for healty eating, I've lost half a stone as also had tummy ache in the first few weeks of taking tamoxifen, settled down now though & have another half to go but I ate fairly healthily before bc so not too concerned as look where
that got us . I have made more of an effort to cut down on the wine though, every little helps!
I hope you all have a lovely weekend xxx
Headless chicken here, running around trying to fit in all the things we need to do,buy and see before heading back home. Good news on the appointments front, both surgeons were very happy with my healing and I have a little tidy up procedure booked for the new year on my hip scars, which will be done under local, so very straight forward.
I understand why you were all unable to see the photo's - I had set my album preferences to private, now you should be able to see them!
Janey, I'm really glad you are having the ultra sound on Monday and hope the outcome is good. I'm sure we are all carrying you around in our heads, waiting with you.
Carol I think holiday first, diet later is the way to go. I will be changing my regime shortly as I have over indulged while back in the UK and as I understand our metabolism will be slower on the meds its going to be an uphill climb. I was told today that my body will adjust gradually to the meds and the insomnia/paranoia will subside, I live in hope!
OXOXO to all. John Lewis tomorrow Christmas shopping with my Mum!
Daffodil Think I've registered (semi registered??!) online for 5 Dec course but got message saying they couldn't send an email so have emailed firstname.lastname@example.org to check if I am registered.
Nipinuk, I got a letter about information events - but if you go to http://www.breastcancercare.org.uk/breast-cancer-services/talks-courses-support-groups/talks-courses in your area If you click on the course name you should (in theory) be able to register although there seem to be glitches...
Jlr - hope ultrasound goes OK - pleased to hear that they are checking things out. Thinking of you
ScottyDog I have found Rads OK and hope they go well for you
Mungo's mum hope you find those boots - know that chemo brain feeling...
Hope all you Marchies are OK
It is so lovely to read how everyone's energy is returning.
Janey, I am so pleased your radiologist managed to speed things up for you. The waiting room is an awful place to be, thankfully you won't be there long. Fingers crossed. xx
Karen, glad the rads process is moving on smoothly. I thought I was being good thinking about christmas! you put me to shame! I seem to have a need to give my close family some hand made presents this year, I am quite sure even a novice psychologist can work that one out! I am now knee deep in wool and have to get knitting!
Daffodil - your house will look amazing! Where are you going on holiday? Spain seems to be a popular destination this year for Marchies!
Angela, I too have had dry pimply skin, and have felt dehydrated generally actually. I am trying to drink more and moisturising, and it seems to be fading.
Suzy - I can't see a picture of your kitchen either! It sounded so full of character.
I was feeling so up beat at returning to normal last week, then was brought back down with a bump when chemo brain set in again this week! I have lost my boots, (still can't locate them!) lost my car keys (and with only one set is rather important I don't....) and have forgotten more appointments than i have made. Still, on the upside, my hair has decided to grow back, yay!
We had a lovely lunch yesterday, guided by Suzy's expert knowledge of dim sum. I was delighted to find people I had got to know through the forum, our characters really shine through our posts. It felt like meeting up with old friends.
Jlr, about time they did something! I don't think they realise how agonizing the wait is. But goodluck for monday, will be thinking of you . I had mine scanned a couple of weeks ago as was worried as seemed swollen but was nothing, thats why I'm going on the signs & symptoms talk as there seems to be a fine line between being vigilant & paranoid for me anyway! X
Scottydog, I'm not feeling tired having rads & am driving myself but you've had major surgery so just see how it goes. Good you have found the energy to shop again x
Hi, good to hear some of you met up, how was the dim sum? Suzy, I hope your appointment goes well today.
Karen, you are definatley making the most of your time off, coffee cake sounds good, isn't it lovely to be able to taste things again.
I'm still painting the doors & windows outside in between rads as feeling well & starting to get restless now. We are hopefully going on holiday mid october if rads go ok, applying lots of cream & going braless when poss seems to do the trick so far.
Nora, let me know if you are going to that talk. I've tried to book online but can't log in, thought it would be the same as the forums?
Angela, I had that dry goosepimply skin after chemo, I just applied lots of moisturiser & seems to have gone on its own.
Anyway lunch break over & back to painting, lucky old me! Xxx
it was great to meet up for lunch today, such a shame we couldn't all have made it.
I have posted a pic in my album to show off the kitchen although its not quite finished!
Nipinuk, Gramat is about 40 mins from us! What a small world
Karen you sound like your having fun with all the domestic goddess stuff! Glad the physio is working.
I'm off to see my plastic surgeon tomorrow so it will be interesting to see what he has to offer re the 'tidy' up job.
Angela sounds like the Spanish is pretty good if you understood all that from the gardener, as long as he wasn't offering you a donkey and you misunderstood, which is the likely scenario if it had been me in your shoes!
Take care TTFN xx
Hope everyone is OK. Apologies for not replying to everyone - brain still not fully functional...!
Angela, Glad that things seem to be going well in Spain.
Jlr am thinking about you - hope all will be well
Daffodil am at same stage as you with Rads and also might attend course in December .
Greetings o recovering ones! Goodness, has the site changed? Now we can scroll down to read previous posts? Or has it always been like this and I hadn’t realised!!! (most likely!)
Daffodil – your rads’ll be over before you know it, and then life will begin again, but take it easy then! Thanks for your good wishes by the way. My energy is returning slowly but surely too thank God.
Mungo’s mum – not having trouble with veins, but with seat belt...’tho I only had a lumpectomy, there’s not enough there to keep the seat belt comfortably in place. It’s caused me to think about asking for some kind of recon.
Has anyone an opinion on that? I’d value your views x
Nipinuk - do you know what strength melatonin roadshow takes? I have bought some but one pill doesn’t seem to have much effect, so may try 2
Does anyone have a better remedy for dry goosebumpy feeling skin on arms (or anywhere else for that matter) than E45 cream?
Carol – we are busy, but that will only be until we get to grips with all the stuff we need to do in the church (routines and programmes etc). Then we can relax a bit and be choosy about what we involve ourselves in, but we need to show our faces at everything first. Concerning swimming, I think I’ll check again with onco as there seems to be a general concensus that it would be ok. It would be rather nice to get in the pool! Hope you have a brill holiday in Crete when it comes round.
Suzy – I asked the Spanish gardener the other day what he was collecting the carob for, and if I understood correctly, he sells it to the donkey owners for meal (but I may have misunderstood as my andalusian Spanish is not good (as opposed to real Spanish!)) Hope you have a brilliant time in UK, and that the meet up goes really well. Enjoy your time together.
JLR – sorry your having a low period, I hope it passes really quickly, and that you will feel better soon. The break in Spain will do you the world of good. Your OH must be a gem, and deserves a break too bless him. Hope your lumps prove to be nothing to worry about xx is playa flamenco anywhere near Fuengirola?
Woolfie – lovely to hear from you again, I’ve missed you x not sure I would like the threading, there is so much on the sides of my face, about ¾ inch long!!! Bearded woman...just glad it’s very fair and doesn’t show in all lighting situations (I think, anyway!). so sorry that your OH has that tough letter, that must be a difficult pill to take. Thinking of you both, and hope things turn out better than you think at the moment xx
Pammy – good to hear from you again x
Well, there seems to be a good internet connection at the moment, so I’d better post this quickly before it goes off again! Have a great week, and for those going out together on Tuesday, have a wonderful time. A xx
Hello all, just PM'd those who I know can make it to lunch on Tuesday. Any more takers?
Hope your all having a good weekend.
Hi Ladies, good to hear everyones doing well & getting some normality back. 8 rads down & 10 to go, glad its the weekend as poor nipple was very tender last night. They told me to put aqueous cream in the fridge & have been applying regularly. Fingers crossed it holds out!
Woolfie, shame about your holiday & the dreaded letter, I hope alls well for him. I'm with you on worrying about reoccurring, Bcc are doing a talk in london in December about signs & symptoms which I'm going to attend. As for the hair thing I am going wigless most of the time as feel own hair will grow better. I went for a trim this week (I cold capped wasn't a huge success but has come back very thick & curly) & had a wash in colour put on it then she gave me some heavy duty putty to try & style it with (looked ok when she did it) but just looks like a red shag pile rug when I do it! I went shopping for the first time without wig yesterday & needless to say didn't buy a thing as nothing looked nice. Will definatley be taking wig on next shop!
I hope your rads appointment & tattoos went ok Karen, when are you starting?
Have a wonderful time at your meet up on Tuesday & have a great weekend everyone xxx
Hello everyone Just been catching up with all the news. I must say it is good to have everyone back and really looking forward to meeting up with some of you on Tuesday.
Angela- How wonderful that ou are now in Spain. It sounds great so many new things to discover and enjoy. sorry you can't join us on the 24th after all it was you who got us started on this thread. Good news about your son and DIL . I too have become aware of what seems like more downy facial hair than I was aware of before. do we know why and will it continue? Daughter has taught herself how to do threading so might enlist her services if it gets much worse.
Like many of you am wigless more than wigged at the moment it feels more natural tho growth in this respect is very slow. Like you say chemo does this to you and in a way i don't think we should hide it but be proud of ourselves that we are fighting it.
Daffodil- hope you are nearly at the end of your radiotherapy and not fining it too bad. Altho I found treatment ok and finished some time ago I still still have discolouration of the skin and hoping it is not permanent.
Nipinuk- glad you enjoyed Scotland. Sorry to hear about your OH's injury and hope he is on the mend ribs can take a long time. Sorry you can't make Tuesday
Mongos-mum -Glad you had a lovely holiday.
Scotty Dog- Sorry you are finding difficulty walking hope the physio helps. I think they remove a tiny bit of rib during recon so they can attach the blood vessels to those beneath it. I had mine on 31st January and it is still sore at that point and a bit lumpy. plastics still keep telling me to give it time and to massage areas of breast that feel lumpy as they are saying it is fat necrosis. I have concerns which I discussed with her but she says they will be able to correct things including doing a lift on the other side but at a later date i am in no hurry for more surgery at the moment.
Jlr- you must be beside yourself with worry. Let's hope you get some answers soon. How inconsiderate of your onc to take holiday when you need looking after! Enjoy Spain you deserve a good holiday.
As it comes round to nearly a year since i was diagnosed I get fleeting worries about reoccurrence I try not to think about it but it creeps in sometimes . How does it feel for others?
Speaking of holidays---ours was not a success maybe I should have done more research but the Scillies were not suitable for Billy -very little access plus the weather changed significantly and when gales were forecast we cut it short and got off the island whilst we could! so we were home on Sunday to clear up the mess of having the new kitchen installed still not quite got everything back in its place. and we came home to a letter from the hospital which said things were not as good as we thought for OH. Misleading info on somebody's part. They want to do a further biopsy
Wednesday I was in Birmingham by 8 am to collect 'Van the man ' from its repairers only to discover it had a petrol leak luckily I had not gone far and the guy was able to come and sort out the problem -a loose clip. Thank goodness I decided to fill up at their local petrol station and not half wasy down the motorway. So things are getting back to normal whatever that is.
Suzy- see you on Tuesday.
hi scotty dog
no, tatoos don't hurt, it feels just like a light scratch. don't worry about it
i'm jealous of the gathering, i wish i could be there too. it would be the greatest fun i'm sure. i too have been going wig/scarf/hat less, it was just too hot at the end of the summer there, so i plucked up the courage and am so glad i did. i do get odd looks occasionally, but have adopted the attitude that as i can't see what i look like, the problem is theirs not mine. i do feel sometimes like shouting at people "chemo does this!" but it would do no good.
we keep going off line here in spain, it's so frustrating, and i lost my last mail to my daughter and had to write it over again grrrr.
i'd love to do some baking, but have to get used to an electric oven after using gas all my married life, and also need to find out the spanish for which flour i need! we'll get there eventually.
we're enrolling for spanish classes on friday evening.
well, have a good day tomorrow, and hope it's not as cold tonight as your weather forcast says it'll be!! here it's 30C!
love A xx
Christine we will be Tony Robinson look-a-likes on the 24th! Easy to spot each other haha!
Carol glad the evonail worked for you, my nails are good too, although in need of a severe manicure! It's all the chainsawing, and hauling of wood that trashes them, so Nipinuk you don't need to envy my woodburners, although the woods free from our land we have to work our socks off to get it, then its gone in an instant, and its our only heating!
To those of us meeting up on Tuesday the 24th, I will book the restaurant
for 12.30 and confirm by private message on Sunday evening.
Looking forward to our get together - I will be in transit from tomorrow so until then take care one and all.
I'm absolutely pooped! I've been trying to get things sorted out before our trip north and it seems never ending. Anyone would think we are leaving for 6 months not just 10 days!
We are all sounding pretty perky which is good, still wondering how your doing Janey? I'm hoping no news is good news? We are all rooting for you.
Nipinuk I think Daffodil nailed it with her suggestion of cider, you could go into organic cider production! Thanks for the tip about melatonin, I will make inquiries. I just would like to get a handle on this insomnia before I turn into an old grouch, unless that's a lost cause Hope Roadshow is doing well, please send her my best xx
Angela I've only tried carob a couple of times and I have to say I thought it was nasty, but its a purely personal opinion, others may differ. As its never appealed to me I've not the slightest idea what to do to the pods, good luck! Seems like your having all the good weather, and all the visitors - there has to be a catch
Forgot to say there was an article in the mail (a week ago) about Jenni Murray & her onc said you can dye hair as soon as its long enough for the hairdresser to cope. So will let you know how it goes!
I am definatley enjoying the simple things in life these days too such as energy & tastebuds at last!
Have a good day xxx
Hi ladies, good to hear you are doing well Carol, have you been to crete in october before as hoping to go to Rhodes mid oct & was wondering what weather will be like then?
If anyones eyelashes are struggling, I've been using rapid lash for 6 weeks now & they are better than before chemo.
Angela, no beard as yet but I know threading is brilliant for facial hair. Enjoy the weather & relaxation before the guests arrive!
Have just phoned hairdresser about putting a semi on hair, naughty I know but its long enough almost & can't wait!
Nipinuk, thanks, will let you know how I get on. Didn't you make cider too?
Take care everyone xxx
happy monday everyone! it's great to read all the mail, and all the normal stuff we're talking about too. so very encouraging that we are getting back to our old selves only better because the disease is mostly (if not completeley?) kicked into touch. i really hope that we are all over the worst, and only the best is to come. i'm sitting here with the balcony doors wide open, and a fan on cos it's soooo hot still!!!!!! sorry girls, autumn in mijas has not yet arrived. we have a carob tree just outside our property which has shed it's load more or less, and a spaniard has been frantically collecting the pods. i know it's a chocolate substitute of some kind, but do any of you know exactly what to do with it to get it from pod to mug? (nipinuk, i'm sure you do!).
between now and next august, there are only 3 months left with no visitors!! the queue is very long!
did i say that a guy from our church is selling us his car for a very good deal, which will tide us over til we can get the right documents together to buy a new one. he has been very generous.
by the way, along with new hair growth which is about 1/4 inch, the facial hair seems rather long on the sides of my face! has anyone else noticed this on theirs? i really need to have a waxing!
take care all, and keep taking the pills!
love angela xx
Daffodil - glad your Rads are going well, hope it continues.
Karen - my ears are really feeling this change in weather! I'm not yet going out hatless, I was shocked to discover that I have the equivalent of Tony Robinson's hair circa 2002!
Haven't ventured into the pool again yet, though not having Rads it shouldn't be a problem. I have signed up for a pilates course, so hope this will help get back to normal. Is anyone else still having trouble with veins? I find stretching my chemo arm awkward and slightly painful.
Nipinuk - I love the idea of freecycling fruit! I will do the same for Quinces. They are incredibly difficult to get hold of and are by far my favorite fruit.
Angela - My OH would travel the earth for a good cup of coffee! We're nespresso fans here too.
Have a good weekend everyone, xx
Hi, 3 rads down just 15 to go, the worst bit is parking & waiting for a machine as always at least an hour late. But this seems to be quite normal reading other posts so mustn't grumble! Everyone is always very friendly so nice to sit & chat.
Karen-Good to hear you are upbeat despite being uncomfortable still & doing some retail therapy. My hair is growing ok too, I got trial size fast shampoo & conditioner but will get nioxin when I run out. My hair is really dark too, have been highlighting it for 30 years so its a shock also coming back really curly. I'm going to get a gentle colour put on it once rads are finished.
Suzy-I'm going to try taking my tamoxifen tonight too as not sleeping either. Good luck!
Nipinuk-I have a smart phone but all the gear no idea I'm afraid.
Mungos mum-Glad you & your boys had a lovely time, very impressed you drove, I still have chemo brain!
Angela-Sounds wonderful, enjoy the sun & sangria. Seems a bit extreme not swimming, I hadn't been told that either.
Have a good weekend everyone xxx
hi karen, christine, suzy....and did i read some from others too? i can't remember!!!!!!!!!
thanks for greetings dear ones. we are one step nearer to buying a car...so much red tape and forms before you can buy anything big here! then we drove 35 miles just to buy OH's favourite coffee for his nespresso machine...he would never have done that in UK!!! mind you, the very first thing we had to buy on the second day here was the machine!!
he had a swim yesterday whilst i looked on enviously. ah well...next year. (just tried an emotion face, didn't work.not as good as the old site is it )
if any of you come to mijas or nearby, i hope you'll try to visit. we can have tapas in some great places! it was 31C here today.
thinking of you as you go through rads (christine or karen, sorry i know it was one of you)
OMG Christine! I was just bemoaning the end of summer! You sound like an awesome organizer to me Although its true to say I like to get the present buying done by the end of November!
So Glad you had a good holiday, bit of a bummer re the vino and hot flashes, not found that problem but can't kick the insomnia. I read this morning that if your on anastrazole and take it at night it can stop the insomnia so as of tomorrow I'll give it ago. Hope your shoulder improves soon. The OH and I seem to take it in turns to pull muscles and beat ourselves up doing the 'project'.
Karen, its a long slow road your traveling right now, it does get better, promise but I can remember feeling almost embalmed at your stage of recovery. You sound very sunny though and that's is a great step in the right direction Although we have had a good summer I feel cheated as I stayed well out of harmful rays and had no energy to join in the usual summer events, I did manage the odd concert and opera alla vampire! So I feel like a summer holiday now too.
Not on the cards for us though, we will have to wait till next year. Sorry you live so far away from London and will miss our get together, maybe you will be over in France soon? That would be fun!
So its we are busy cutting wood for the wood burners, that's enough exercise for anyone, and stocking up for winter. The sweet chestnuts will be falling soon so there'll be no idle hands in our house. Better get on and feed the menagerie
Janey - I'm sorry you have additional worries, and echo others in the hope that swollen glands are due to a viral infection, there are loads of them about (if my sneezing is anything to go by). Thinking of you, big hugs. xx
Angela, I flew out of Alicante on Sunday night, (delayed three hours but that is another story) after 10 days in Cabo Roig, about one hour south of Alicante. Sadly OH couldn't join us, but we had a good time, me indulging the boys' desire for adrenaline after we found a go-karting site and another quad bike site. .... and lots of paella, seafood and the discovery that even one small glass of wine causes lots of hot flushes. not sure it's worth it! I'm glad you are settling in and having a good first week's "holiday".
I hope those having rads are coping OK, and those finished are gaining energy by the day. I was delighted to discover yesterday that my eyelashes have come back, if still rather short. Sadly exhibiting too much male pattern baldness to go hatless yet, but the soft baby hair is braving the change in weather! The one problem I am having is continuing stiffness and pain in the shoulder, this bout caused by wrestling with my ancient gear box (when I'm not trying to change gear with the door handle - and I only drove LH drive for 10 days!!) I didn't expect quite such a legacy from the surgery, and am wondering when I might be able to get climbing again.....
Well, now the boys are back at school, I can start thinking about preparing for Christmas!! (not something I thought I would have energy or inclination for back in January). Love to all, xx
You must ask Honeymonster to take lots of photos when you meet up! I'm on whatsapp with Honeymonster so she can send them to the rest of us (Cassowary, Choccy61, Mungos_Mum, Roadshow - anyone with a smartphone can get whatsapp. pm me and I'll add you)
I'll be collecting some free unwaxed apples tomorrow from a lovely lady who responded to my freecycle post. Can't wait! There are still lots of kind and generous souls around