glad you had a good break away. we'll be hoping along with you that all is well, and that you get the results quickly to put your mind at peace. looking forward to good news soon xxx A
Angela your too kind I bought a little book and watched videos on youtube - there are some amazing creations out there, I thought a mouse was the easiest to start with, I had trouble getting him to stand up!
oh my, suzy, you really have a gift. the mouse is georgeous. my skills fall far short of that. how did you learn to do it?
Hope u all had a nice weekend still getting a lot of swelling under my arm going back to hospital tomorrow cannot have bra on for long just hope they can help ?
Anglea-Thank u i had surgery in July lost my left breast I was just hoping I think to get back to normal by now cannot wait tell I can get back to work xx
Nipinuk- I think we have all hit lows times but i think that's normal for what we have all been through i had a good cry on Saturday and I think it helps xx
Suzy- Thank u have a lovely time at the party cannot wait to see the picture of present xx
well IM of to bed speak soon take care love to all xx
suzy, i'm looking forward to seeing your felting efforts. what a brilliant idea for your mum.
and maybe you shoud consider felting the hedgehog a little something ready for winter?!
by the way, i don't think i ever said how impressed i was with your painting in the kitchen, it looks amazing. it's good to hear from you, though i understand that we are all slowing on the posts, and i do think it's because we're getting used to the new "normal" and maybe don't need such frequent reminders of what has gone before. it's good to keep in touch though.
get that mini/long break organised and go for it
love A x
Not posted for awhile - life's taken over, which must be a good thing right? I've been very busy and finally finished my Mum's 89th birthday present ready for her party on Friday night. I couldn't decide what to get as a gift, so I made it - a needle felted mouse in a green coat holding a gift, will post a pic later. Hope she likes it, she's had a multitude of Suzy made gifts over the years, some better than others!
Shells, so exciting about your wedding plans - hope you've picked out some stunning bikinis!
Nipinuk - good to hear from you and that you found your recent retreat valuable - I really could do with a break, but would like the OH with me as I think he needs it more than me in a way.
Organizing a Halloween supper for our friends, sesame prawn ghosts, buried chicked and devils food cake!
Angela you do well to fend off the enthusiastic parishioners and pace yourself. Have fun in Seville, we had a great time there, fab tapas
I have been commandeered to feed my friends hedgehog for 2 weeks while she's on holiday, his name is Henri and personally I think he could make it on his own, but she has been such a wonderful support over the last year, I am honor bound to do my duty.
Love to all xxx
so glad you posted, we've missed you. keep your chin up as they say. you're through the worst. maybe you tried to do too much too soon? that might be the cause of your low feelings. i certainly had to slow down after our move, and the expectations on me/us in the new church were very high in terms of taking on everything straight away. i had to very quickly learn again to say "no". thankfully they now realise, as i LOOK tired when overdoing it, so they can see. so try to take it easy a bit more and see if that helps...so speaks agony aung angie!
anyway it's good to hear from you.
I'm so sorry for the long silence. I did subscribe to the thread and used to get notifications when someone posted but I don't get that now.
I haven't had the chance to read the messages but must post as I've been wanting to for a long time.
Janey and Tanya, I'm thinking of you. Big hugs xx
I went on a 3 day, 2 night retreat near Swanage last Monday. It was funded by Wessex Cancer Trust (WCT). There were 11 ladies altogether including the facilitator and a rep from WCT (she's one of us really as she had cancer 3 times! Twice were breast). The retreat was wonderful. We shared our innermost fears, lots of tears, meditation, fabulous walks, wonderful vegetarian food. I felt very priviledged.
I've been feeling a bit low the last few days and I wonder if it's the tamoxifen that's doing it? Maybe it was getting back to the daily grind.
Anyway, I just wanted to say I'm still here
i cant remember exactly what surgery you had, but i had 2 lymph nodes removed and lumpectomy (losing about half my breast in the process) i still have some discomfort under the arm, and sometimes under my breast too, but when i mentioned it to my onco, she didn't appear to be bothered, so i guess it's just takes time to settle down. hope that helps.
it's wonderful that you have a date now for your wedding. it makes it even more of a reality for you, and something to really look forward to after the year that you've had. it's going to be a great day for you.
love A x
Its been a long time I've been busy with my wedding I have a date and time now august 30 at 1.15 have my dress just looking had swim suits for honeymoon I cannot believe they cost that much I'm pls to read everyone is getting on well I just have one question I'm still have problems with my under arm how long can this go on for have a lovely weekend speak soon xx
mungo'smum, i too have the desire to be making, but think that is because all my stuff is in a 75litre box still in the uk. i'd like to be making christmas and thank you cards. but maybe i should look into making edible gifts this year seeing as all that is back 'home'. any ideas anyone?
Oh called me to our terrace (he was down on the patio)...i saw the rope just within my reach on the roof, picked it up and threw it down to him. his shoulders sagged and he said i just spent the last few minutes throwing it up there for you to hold onto whilst i came up to hoist the wood up!!!!!!!! he'd put fire wood in a bag to get up to the living room! we had a good laugh about that.
ScottyDog - hope the rads go well - just finished mine two weeks ago.
Can really identify with feeling unsettled (and in my case irritable with nearest and dearest and I thought PMT was in the past....!). There was an interesting item on Woman's Hour Radio 4 today about how we have lost sight of the need for a convalescent period and how people now expect you to "get back to normal" ASAP after serious illness.
I think it's only now that many of us are coming to tterms with the whole BC thing - when you are on the treatment treadmill it all seems a bit unreal. That's why it's good to come on here and chat to people in the same situation
Anyway hope you are all OK. Good to hear that people are getting away for a break etc
Take care! Nora
Karen - I'm glad it went well today, and hope the rest pass just as easily. I think that planning a party is almost better than the party itself! I also like making cupcakes - but have always veered clear of sugarpaste sculpture, but try different icings instead, my favorite are passion fruit and cream cheese (just like cheesecake) and a neapolitan (vanillla, strawberry and chocolate swirled together). I popped into hobbycraft today! I purchased yet more yarn, some bits for christmas and the thing I actually went in for, black sewing thread!
I've had a desire to make many of my Christmas presents this year, and am knitting and sewing like a demon to get is all done. I'm quite sure this is related to my diagnosis, has anyone else felt like this?
Woolfie - have fun singing on Friday, will you be staying for the rugby too? I hope the weather clears up for your trip to Wisley.
Daffodil - have a fantastic holiday, you deserve a break after this year.
Angela - I'm enjoying reading about your escapades in Spain! have a great time in Sevilla. I missed my birthday this year, having had a treatment the same week, but it wasn't a milestone, so will have to make up for it at Christmas!
Chocci - safe flight home. I'm very impressed with your 8km walk, in that heat too! it's all I can do to follow Mungo round for half an hour each day......
Best wishes to all, C xx
good to hear from you carol. how's the herceptin experience? and how many more do you have?
glad you had a good holiday, shame you had to come home.
i love any craft shop, drives OH potty! but there aren't too many here in spain, unless....i have yet to discover them! lets hope so, i want to get back to crafting.
i'm managing longer walks, but not 8k yet!
karen, i don't think it matters when with aqueous cream, i did mine morning and night, and others i think straight away. i was lucky and had no side effects whatsoever, and i have very fair unexposed skin. also could use aloe vera as long as it was 99.9% pure (holland & Barrets own brand)
by the way everyone, my onco said swim (opposite to radiotherapist!)
love to all
ps, my DIL had her 1st day at work as a social worker today. so son is now waiting for the official stuff to be completed to be the main foster carer. then, hopefully their 15 years of tough life will come to an end...hallelujah!!!!!!!!!!!!!!!
woolfie, the melatonin seems to be taking effect, and i have slept 5 nights in a row...phew, thank God for that.
don't think i fancy cold autumn!!!
your choir activities sound fun, we are thinking of trying to get a choir started from our church, but don't know how many would be interested. it would be fun though (especially as i don't sing too well!!)
have a great time in rhodes... we'll be thinking of you
karen, how lovely to have the campervan and be able to enjoy it. i always wanted one! your day out sounded wonderful. and i agree, planning a celebration is just what the doctor ordered, and you deserve it. my OH always used to baulk at the expense of things like massage, but now he says go for it i deserve it!! there are some perks to the awful year we all had!
it's my 65th in november, and we think we'll go to Sevilla to celebrate. we won't have the family here so it'll just be us. my D and YGS are coming at the end of november for a long weekend, and we're really excited about that. we do miss the family.
chat again soon....
anyone coming to costa del sol anytime? if so lets have tapas together!
Hi ladies, I've just read your post Woolfie & feel exactly the same as you. I am enjoying life loads & feel lucky but also have periods of feeling very unsettled, I'm sure it gets easier.
Scottydog, I hope rads goes well today & the next 3 weeks. I found they were a lovely team & time flew by. I finished 10 days ago & just have a bit of prickly heat on rads area but they gave me hydrocortisone which is helping. Such a relief when its over though, sounds like you have loads to look forward to!
We are off to Rhodes tomorrow, I am prepared with high neck tops & sun cream fit for babies! Treatment seemed endless at the time but we did it & we are all getting some normality back at last! I've even started back at work for a few hours & really enjoyed it, didn't even mind getting up early!
Angela, I've resorted to nightol, they work but think I might have to wean myself off them soon!
Anyway its stopped raining so off for walkies.
Love to all xxx
Hope you all had a good weekend.
Angela loved your 'rules of the road' and the stories about you r other exploits made me smile. Sorry you are not sleeping maybe you should return to the dark autumnal days in England which are enough to send anyone into hibernation mode!
Good luck with the radiotherapy sessions, Scottydog. You are on the last lap and I think the easiest. Enjoy organising your party I ditto what Suzy said. I missed my 65th earlier this year because of everything that was going on and always said i would like to have a big party when it was all done with or mostly done with. It's OH's 67th in December so might organise it for then.
Suzy read your comment on facebook it is strange but I have been feeling very unsettled all day yesterday and today and can't seem to shift it. Trying to think what it might be. Its great getting back to normal but i think there are also strange feelings surrounding it . It brings me back to this forum where we can explore our ideas and thoughts safely. We have been so concentrating on what has been happening to us and then suddenly that is not there anymore. Are we ok? will we be ok? Is it a time of year thing? I think it will take time to settle in and we need time to be free of trouble and hospital visits etc to be reassured. Plus the fact that I am p---d off that I couldn't do the car boot sale yesterday because of the rotten weather and since the organisers didn't cancel it will have lost my booking fee.
And my YD goes to India at the end of the month and things don't seem to be too good there-an understatement! She reassures me that they are nowhere near the cyclone area. Just giving voice to some of these things helps.
Still choir is singing at Wembley stadium on Friday for Saracens rugby game and i am going to Wisley on Saturday with my gardening course so I am sure things will brighten up.
thanks for listening
Karen you make me want to laugh and cry at the same time. I love your spirit and enthusiasm for life and feel so sad that you and others have had to endure cancer at your age and younger. Your day out with your OH sounds lovely.
Enjoy organizing your birthday, what a good idea - it will be quite a day!
my bike riding experience has nothing on my hosre riding final experience...i used to ride regularly til in my late 20's. then we had children and so money was an issue, and weight. however we took the children to new forest one year camping at sandy balls (really!) and decided to book for riding. children...no problem...how much do you weigh madam, sir? (i was size 16 then, so not too huge)
the day of the ride came, the ponies were brought out for the children, and 2 carthorse types for OH and me... i was so embarrassed i never tried it again!
or the quad biking experience in california. we'd gone to stay with people we kind of knew a bit. they said we'd go quad biking. when we got to the place to hire them, we realised that their idea of quad bikng was different from ours...it was a 4 seater bike with 4 lots of pedals sitting 2 behind 2, and a canopy. our friends, fit, and us, not quite so, turned to us in the back and said "are you 2 pedalling?" !!!!!!!!!!!!!!!!!!! my OH at the time had undiagnosed angina and was in agony. there followed an enthusiastic (on marco's part) beach volleyball session between the 2 men which i swear nearly killed off my OH!!!
hope your evening is a good one
Hi there, its awfully quiet on the thread - must mean we are getting on with life which is great news.
Karen I'm amazed your bike riding so soon after your DIEP! Wow your a star! I'll be thinking of you having your rads. I'm liking the champagne party your planning, great idea
Angela, your bike riding career sounds similar to me. I didn't learn to ride a push bike till I was 40, fortunately in the Bahamas where the only other traffic were golf carts!
Have a good Sunday everyone xx
i'll be thinking of you this monday. it'll be over before you know it. how many sessions do you have? 15?
well done for the biking, i can't ride to save my life! last time i tried was in "preparation" for london to brighton bike ride. that was 25 years ago. i did the 5 miles to and back to greenwich and nearly got knocked off in the greenwich one way system...that was all the training i did for the 58 mile charity ride!!!! i was sore after that (no, not the training but the 58 miles!) our son did it too aged 11 on his BMX!!
have a great weekend everyone
suzy, it just caught our attention as so accurate! i wish my camera would arrive so i can take pics of all the pictures that would go with it. the parking accross 2 spaces, and parking on roundabouts to 'pop into the bank', stopping for a chat with a queue of waiting cars behind, i could go on. it is hilarious!!! i bet if we tried those tactics we'd be stopped and fined!
temps are still up to 30C, although today a little cooler with a good breeze to cool us. being on a mountainside (albeit a small one) has it's plusses.
anyone, when does the insomnia stop i wonder. even with sleeping pills (overthe counter ones) and melatonin double dose, i still go whole nights without sleep. haven't managed to speak with onco yet, but it will be one of my questions.
well, i hope you all have a lovely week, and that those on holiday will come ack refreshed.
chat again soon.
Angela, I think that allot of those Spanish rules of the road apply here in France too I remember driving in Rome many years ago and a good friend advising me that 'just remember anything that happens past your shoulders is not your concern' its an Italian thing!
Woolfie you sound super busy! I am just about returning to normal after our trip, enjoy all your outings.
Having friends over for supper tomorrow, OH has requested the menu - seafood salad, pasta carbonara and apple tart - all he has to do is eat it
Hope your all feeling well and happy - seems the new norm is not so bad at all.
Take care xxxxx
hi everyone. i wanted to be good and understand the rules of the road here in spain, so i googled the highway code, and this is the first one i found:
Spain has adopted the basic tenet of safe driving: mirror‐signal‐manoeuvre.
However, to accommodate cultural differences between Spain and the rest of
the European Union, the use of mirrors and signals prior to a manoeuvre is not required.
The ten key points of the Spanish Highway Code are summarised below to help non‐Spanish nationals adapt to driving in Spain.
warning to other road users), wind down your window and have a chat with a friend or relation who you have seen walking by on the pavement. When circumstances dictate, it is also permitted to get out of your
stationary vehicle (hazard warning lights should not be used) and pop in to the local bread shop. On returning to your vehicle with freshly baked
‘pan’ you are required to completely ignore other motorists unless it is
raining when a simple shrug of the shoulders will suffice.
stolen by street urchins (that’s if they don’t steal your bike as well).
timing and occasion is at the discretion of the driver but is mandatory for greeting friends walking by on the pavement, in celebration of a victory of the local or national football team, on sight of scantily clad women and during any fiesta which may be taking place in Spain. Prolonged use of the car horn, whether day or night, is not an offence.
regardless as to the direction they are travelling in.
7. Neither pedestrians nor motorists have right of way at a pedestrian crossing. The signs and road markings at crossings only indicate where pedestrians are more likely to be run over.
8.It is strictly forbidden to use a mobile phone while driving in Spain except for taking and making phone calls and text messages.
9.In urban areas ‘No Parking’ zones are indicated by a yellow line alongside the kerb. As these yellow lines do not appear on pedestrian crossings, roundabouts and junctions parking (up to one hour) is permitted in such places.
10.When parking in a car park, where parking bays are marked out with white
lines, motorists are required to use a minimum of two parking bays.
enjoy! Woolfie you too sound super busy, so you too must remember to look after yourself. but i do agree, it's good to be doing normal stuff again in place of hospitals
love to all
If in doubt, do as the Spanish do. Happy motoring!
First off - so happy to hear your news Janey, what a relief! And Pat its wonderful that you discovered your mistake re OH's letter, its sounds like the kinda thing we do!
Honeymonster and Cassawary your both counting down those herceptin cocktails every little step as they say, hope the infusions aren't too bad.
I've just taken a breather from unpacking the trailer, phew! What an EXHAUSTING 10 day's, we never stopped. Now I have to find a home for everything - no easy in our chaotic world
I had very encouraging meetings with my surgical onco and plastic surgeon. One very interesting thing came to light, they were both delighted I was not given radiotherapy, even though they had originally recommended it. It appears that the senior clinical onco they work with is in favor for post mastectomy/chemo patients, so they feel they have to back their colleagues methods I guess.
So now I will be coming back to the UK around Feb. to have a little correction done to my tummy scar under local - then I'm good to go as they say. The plastic surgeon also said that if at any point in the furture I change my mind and would like further surgery on the recon and original breast to balance out, I can always have it done, its my prerogative, which is comforting to know. Meanwhile perky and droopy get along together just fine
We have a week of good weather ahead of us so we will be donning our lumberjack outfits and firing up our chainsaws for the winter fuel. Also we are back on the old regime to loose weight and keep ourselves nice, we can only try!
Mungos mum, I haven't been loosing things but terribly forgetful. I didn't make a note of your hotel reservation number and we arrived at 11pm to an unmanned reception. Without the help of a lovely young German tourist we would have been sleeping in the car - makes me think maybe I should up the anti to a smart phone as it would have been easy peasy then, as long as I didn't forget the phone!!
Love to All xxxxx
Janey, fantastic news!! Really happy to hear that. One down and one more to go...
Quick one as I have to work. In case anyone's interested, there are free audio interviews to the Cure to cancer summit here available on until 12pm Paciic which is 8pm UK time. Link here - http://thecuretocancersummit.com/schedule/
It doesn't follow medical convention but I thought it was interesting hearing other points of view though one of two might sound a bit, ah ... bonkers (just my opinion!). Bill Henderson sounds normal so would recommend listening to that. I haven't listened to all of his interview.
JLR - so pleased you had good news...phew! relax and trust the same will happen when your lungs are checked. we're all hoping that along with you. solidarity is the name of the game.
hi everyone else, i can't seem to scroll anymore, the last time must have been a one off. can anyone else do it, and if so, what am i doing wrong?
nipinuk, thank you for advice, will try it all out.
Jlr, I was touching wood whilst reading your post! Thats great news, so pleased for you. I hope you can go off & enjoy your hols now xxx
sorry have not been on for a long time just finished rads and feeling tired keep falling alseep a bit of a pain would like to get back to normal cannot wait tell i can get back to work . Ive read some of the post pls to see u are all ok take care have a lovely sunday speak soon