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Stage 4, 10 year survival rate in the UK

49 REPLIES 49
cornishgirl
Member

Re: Stage 4, 10 year survival rate in the UK

Hi Ladies,
I was just wondering if we realy need 3 threads on this topic? only it does seem a bit excessive to me , or maybe thats just me?.
Also as the upset caused to some members by the inital title has now been resolved by BCC im not sure what the problem is anymore or why people keep gong on about it.

Also some posters here keep saying " you want as much information as possible ,however unpalatable,But you must surely respect the fact that "others" may NOT.

In my endless research of this desease since first being DX ,ive found the infromation on "Statistics" very easy to find ,as im sure others have, so i think if people "want" to know the "Stats" re their own particular DX they can choose to read it,or NOT whatever the case may be.

Finty, im not sure why you found the "Alcohol" comment that i mentioned earlier "bizarre" i found the particular comment about "primaries" greatly under estimating their risk or secondries (complete with figures) unessessary and potencialy scare mongering ,"my opinion" and we all have a right to one of those!
The Alcohol thread wasnt asking for "links" or "facts"it was asking for "Alternatives to Alcohol" theres a difference dont you think?

Anyway, as it seems that some of these threads have become somewhat unpsetting and unpleasant to some members on here,maybe it would be possible for BCC to sort the Topic out to "One" thread so as not to take up too much space on the forum?.

Lemongrove ,as i said before i think its great that you work hard for BC patients in campaging the issues, but i feel that the "tone" in the threads is now coming accross as a bit patronising and people are deliberately ignoring other members views and feeling.

By the way ,I too would support a separate section for more factual discussions on BC Topics ,Maybe thats the point?their should be serarate catorgories for controversial topics then people wouldnt have to read them and get frightened if they didnt want to!

Gingerbud ,just wanted to send you and the other ladies a huge hug.

Linda x

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Thank you Finty and Amber. Surely, the whole purpose of BCC is to provide BC sufferers with information to help them deal with problems, so on an information site, there will always be something someone doesn't like, or feel comfortable with.
Obviously, someone with stage 1 cancer might not like to discover that people frequently die with BC, but equally, I could complain when a stage 1 person posts to say how pleased they are to have received the all clear - because that will never happen for me. But if we all start complaining about this and that, nothing will ever get posted.

finty
Member

Re: Stage 4, 10 year survival rate in the UK

Very good points Amber - I didn't object so didn't comment, although I do understand why some did. I would also heartily support a separate section for factual discussion - like you I want as much information as possible, however unpalatable. Even when threads are introduced as factual discussion people still object - for instance the alcohol thread that someone referred to - which I find bizarre. The support threads are absolutely fantastic for those that use them, and I appreciate they are by far the majority, but I come here for information.

There is also a very difficult issue for the newly diagnosed with Stage 4. I can understand wanting to protect people from their prognosis, but decisions will be taken in the first few weeks of a diagnosis that need to be well informed. Sometimes it's a one-off chance to stop the cancer in it's tracks. So however well intentioned, I think it is a disservice to these people to hide information from them.

finty

amber32002
Member

Re: Stage 4, 10 year survival rate in the UK

Do a majority of those reading this think that it's unreasonable, though? We cannot know. A few will post to say so, a few will post to say they find it reasonable, many will not post at all but may hold either view.

Me, since I have an aggressive form of cancer, I like to know where other centres may be making better progress so that I can campaign and also fight my own 'corner'. I can appreciate that it is distressing for some people, though. Could the site be adapted so that there is a safe zone for support only, and another zone where stats and controversy can go? Is the knack to only tag thread areas which feel safe rather than going to 'latest threads'? No idea, just suggestions.

But personally I'm glad of the info because it helps me plan ahead.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

wasnt saying for it to be restricted i think its freedom of choice!

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

I would like to say thanks to Lemongrove for the campaign and for highlighting a very important issue for all of us.

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Thank you for your apology Gingerbud, I understand things are sometimes said in the heat of the moment because I'm guilty of that myself. Please continue to post about the topic, because it is an important issue, and one we can resolve if we work together.

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Hatty I appreciate your suggestion, but I think these issues are too important to be restricted.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

I agree this post should return to discussin suvival rates for those who want them. The upset has been caused by the title, which has thankfully now been changed. My grim prognosis is not something I wish to focus on but others I'm sure will feel differently. Each to their own 🙂
this thread only became heated when the poster adamantly refused to amend a potentially very upsetting title. The issues raised are undoubtedly worthwhile discussion points- we shouldn't have to accept a poorer standard of care + ultimately a worse prognosis. I have jst felt that awareness can be made without causing distress to those already living the stage 4 nightmare. I apologize if my strong feeling abut protecting other vulneable members have caused any offense to those Reading this thread.
I won't be posting on here again as it is nt my intention to get into an argument. I just felt it important to stand up for the majority of us who wanted the title changing. It was a simple+ reasonable request or so we thought...
Tina

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Wondering if the mods could set up a topic where it was made clear that it was only to be read by those that really want to know or something like that so that those of us who want to know the ins and outs of everything can post and read and those that dont want to know can stay away from it. Just a thought.

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Lisa, please post, it's an important issue, and people shouldn't be put off by others.

Lisa_x
Member

Re: Stage 4, 10 year survival rate in the UK

I have been following this post but have not posted out of fear of reprisals. I'm staying away from this now!

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Gingerbud I have explained my reasons for not changing the title of the thread.
I would also point out that I had the courtesy to edit my post when I read it, and realised it was probably going to cause offence. You made a very unpleasant remark, and made no attempt to edit it, and now suggest it was justified.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

This is all getting very personal again....

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Lemongrove, I am happy for the mods to edit my post if they wish. My comment was justified though, since you blatantly ignored the pleas of many forum members who felt your title would cause (and was causing) distress. You adamantly refused to change your post and seem to think you have the right to decide what information we are exposed to. Yes you are doing some worthwhile campaigning for bc but I do not think your campaigns should cause distress to the very people you are campaigning for!! I'm not sure exactly what you want us to do with this info other than worry about it! Sadly, many of us at stage 4 are very unwell + are unlikely to 'get our campaigning heads on' in the light of your info, as we are already struggling with day to day life, dealing with horrid s.e.'s, and trying our best to care for families etc.
Most of us know the odds are firmly stacked against us and don't need it thrown in our faces every time we come on here for support. Yes, for support.
I apologise if my comment has offended you in any way- however I read your very aggressive and offensive post before you edited it and and feel there is a touch of hypocricy going on. I am one who is prepared to apologise when I cause offense and that is something you adamantly refuse to do...
Tina

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Linda thank you for pointing out that people should comment on the post and not the poster. Actually, I happen to care very deeply about my fellow cancer sufferers, and I find the suggestion that I don't deeply offensive. It's that I do care that I am so concerned about the availability and quality of healthcare in this country.
However, I do not agree that people have a right not to see this kind of information, because in entering a public forum they must appreciate that they will probably read things they do not like or disagree with.
This forum is not only for support, but information and campaigning, and so freedom of speech is essential.

cornishgirl
Member

Re: Stage 4, 10 year survival rate in the UK

Hi Lemongrove,
Ive only just caught up with this thread, so i hope noone minds if i put in my two pennies worth if thats ok?, i am glad that the title of the thread has been changed because i did find it a bit depressing too to be honest even though im still a primary patient at the moment, seeing statistics figures as soon as i log on just puts me on a downer. so i can imagine how distressing it must be for some of the other secondry ladies , I remember when i first came to the forums how i would read stuff that i wasnt ready to know and it would frighten the s**t out of me and put me in a very dark place for days.
Im not an ostrich by any means,and ive been around the forums long enough to know how unpredictable this vile desease is,so i certainly have no illusions about my own DX , but i do think people should have the right to want to know this stuff or not and not have it forced upon them. I know we can open threads or not but if someone has already read a title its a bit late isnt it?.
I read something simular a few weeks ago on an "Alcohol" thread where someone posted about "primary patients" greatly under estimating their chances or reocurrence or secondries and quoted the figures which seemed pretty high ,i found that quite upsetting not so much for me but i dont think it was nessessary to frighten people who were already going through a very difficult time.

I was the member who posted about "Freedom of Speech" on the Pink thread and its something that i firmly believe in because in my opinion the forums have become intolerable to different views but, and i hope in my post on that thread that i also made it clear that there is never any justification for any nastiness or personal attacks of another member,i feel strongly about this because ive been on the recieving end many times and believe me it feels pretty horrible.

I think its wonderfull that you campagin so very hard to get new treatments approved for everyone with this B***ard desease and i applaud the work you do in that so thank you for raising some of these very important issues, maybe just be more sensitive to others feelings sometimes on issues like this?Attack the post and not the Poster!

Stats can be usefull and helpfull to some people, but for me they mean Ziltch, they dont tell people what will happen to them personaly , it wasnt that long ago that it was found that the UK stats were wrong and they were much better than previously thought, this was because imput and data was incorectly recorded,Stats are only as good as the people who record them!

I think its important to remember that there are new treatments coming out all the time ,There are also about 500 new generation cancer drugs in the pipeline, yes, some of them may not be available right this minute, but people need hope lets not take that away from people.

http://www.dailyexpress.co.uk/posts/view/227397

I realy hope my post hasnt offended anyone ,
Best Wishes
Linda x

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Dawn the stats I have referred to were by stage, not deprivation. On the same page there are other charts that give stats by age, and deprivation etc (and that is what you are have seen). The stats by stage were based on a sample, but cancer research suggest that these are likely to reflect what is happening across the UK. Although they started in 1990, they were updated in 2004 (the year when Anderson reported a 23% 10 year survival rate).
You may also be interested to read and article on today's NHS Choices website (see link below), which gives even worse stats. The NHS say that only 10% of stage 4 BC patients survive for 5 years.
http://news.patient.co.uk/newspaper.asp?ss=15&id=14478
You do however make a good point in that those treated at the Anderson Centre in Texas would probably be affluent, because obviously their healthcare is private. But the difference is too large to be down to that. The fact is that Anderson offer a range of drugs and treatments that are not available here - and that is something we really need to address.
The Daily Mail also published an article recently, that said the 5 year survival rate for all BC's is 93% in the US and only 73% in the UK. Will find the link for you later.

dawnhc
Member

Re: Stage 4, 10 year survival rate in the UK

I was following this thread rather late last night and was puzzled by something. I resisted posting cos late at night isn't the best of times to do some straight thinking!!

I was never any good at debating issues and hoped someone else would have picked up on this, they didn't so now I just have to ask the question.

I am not very good at looking at a lot of statistics and drawing correct conclusions from them - in fact I get very confused! But surely we are not comparing like with like here. What I am seeing is that the English figures are taken from a group of women in the W.Midlands in the early 90s and the word 'deprivation' comes into the article. Would it not be fair to assume that the comparison with Anderson MD (Texas)would involve a much more affluent sector of society? And wouldn't those facts affect the outcome if they were to be set side by side?

I didn't feel too comfortable with the heading when it was referring to statistics so out of date. It came across as undisputed fact to me and it is so easy to take 2 separate sets of facts to support a theory that may not be correct. JaneRA was sometimes guilty of doing that and on a couple of occasions I questioned her reasoning - and to be fair to her she always had the grace to apologise :).

dawn
xx

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Thank you for keeping it on as long as you did Leah - hopefully it will have given some food for thought.

belinda
Member

Re: Stage 4, 10 year survival rate in the UK

Thank you Leah.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Hi all

As you can see (hopefully) we have edited the title of this thread, following feedback from forum members who found the original title distressing. As well as the posts on this thread, a number of people also reported it to the moderators. Although not all the posts here felt the same way, overall it was clear that lots of people did feel strongly about it, and that the issue of the title was dominating the thread, rather than a discussion of the issue raised in the original post.

Best wishes to you all
Leah

belinda
Member

Re: Stage 4, 10 year survival rate in the UK

It would be nice to have a response BCC.

I've had many years to get used to my diagnosis but if I was newly diagnosed, struggling with treatment or having to deal with all this disease brings whilst bringing up a young family I would most very probably prefer a choice of whether or not I click on to read a thread. I admire your passion Lemongrove but in this case I think the sledgehammer/nut title is not helpful to others. I agree with Julie, Elaine and others here it's not a question of being in denial and I wholeheartedly agree with Elaine in that most of us here accept there is no cure for stage 4 breast cancer.
This does not make us victims or passive patients but perhaps, like myself, the majority aim to make the most of however long they have left, making each moment count whilst still researching various treatments and seeking information. I've always found this paragraph from Musa Mayer's book on living with Secondaries helpful,

Many doctors are reluctant to quote mortality rates or statistics on survival time to patients, preferring to tell them, rightly, that no one can know for sure how long a particular patient will live, and that mortality statistics are based on large groups, and are to be used to weigh decisions about treatment, not as predictors of individual life expectancy. They will explain that since you are an individual, there is simply no way to predict, with any certainty, whether you will be in the larger group that will succumb to breast cancer within the predicted period of time, or the smaller group that lives for many years with it as a chronic disease, or even survives to die of other causes. While initially frustrated, many patients are ultimately able to transform this uncertainty into an opportunity for hope.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Lemongrove I'm glad u quickly edited your earlier post as the tone was very aggressive and unecessary. I really don't think you have the right to decide what information members of this forum shuld be aware of. If people prefer to not know then that is their choice and NOT yours. I feel strongly about this- not for my benefit but for others. I am saddened by your reluctance to edit the title of this thread.

Moderators I am disappointed that you have not intervened thus far...

Tina

sarah68
Member

Re: Stage 4, 10 year survival rate in the UK

Hi Lemongrove and all,

Firstly, I'd like to say that I do admire your articulate, challenging posts and campaigns, Lemongrove and feel that they have certainly helped raise awareness of important issues regarding BC and its treatment. However, I also agree with most of the posters here and find the thread in qustion's title rather too "in your face" and maybe could be modified to something like " Why do we in the UK lag so far behind the US in Stage 4 with 10 year survival stats?" OK, that's a bit wordy and not the snappiest of titles, but you get my drift! I also see what you are getting at with the thread, Lemongrove; if they can achieve almost 1/4 survival, why can't we? Something is amiss in a supposed well-developed nation.

I had a similar "fright" a month or so ago when a ( Brit.) poster who lives in the US started a thread on this site asking various qs etc. She presented with a very similiar dx to myself - ie. supraclavacular mets and in one of her posts mentioned that her onc., unprompted, told her that she should be here in 5 years, but 10 was pushing it. And this is Stage 3 (C)! I was haunted by these words for days and feel that this thread may cause others to go down the same path.

All the best, Sarahx

belinda
Member

Re: Stage 4, 10 year survival rate in the UK

Lemongrove, as your thread has caused some distress would it not be possible for you to keep, the thread, the link but moderate the title..eg. Stage 4, 10 year survival rate in the UK?? Then those who wish to avoid reading further would at least be able to choose.

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Nottsgal, I'll drink to that - and I think it will be. There are so many treatments coming on-line now that can knock back secondaries, and delay progression, but at the moment PCT's are balking about funding them. That's why it's so important to keep reminding people, so that we can keep up the pressure.

Nottsgal
Member

Re: Stage 4, 10 year survival rate in the UK

Let's hope that 7 years down the line, the survival rate is a lot better than 8%. Good luck to all at Stage 4.

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Juliett I wasn't referring to you in particular, and I'm sorry if you think that. I was just pointing out there appears to be an inconsistency, in that the same people who say they don't like the pink campaign because it trivialises BC, then say they don't like the facts being made explicit.
What I'm trying to get across is that there does seems to be a better way of treating metastatic cancer, and those of us with this awful disease need to work together to change this. Sniping at each other, and criticising the way campaigns are run is divisive, self destructive, and won't change anything.

juliet66
Member

Re: Stage 4, 10 year survival rate in the UK

Also Fran,

I am in agreement with you. If I do not like something I will not open it.
However this is the thread title so cannot be avoided. That is the whole point.

Julie

juliet66
Member

Re: Stage 4, 10 year survival rate in the UK

Is it me that you are attacking again Lemongrove ?

If you read my postings about pink and fluffy, that is not what I actually said. I did say that I gritted my teeth and accepted it but I actually do find pink bunny ears trivial, oh and tickled pink underwear endorsed by jordan trivial too. I find the whole notion of being 'tickled pink ' abhorrent !!

I object to the notion that I am head in the sand. I am truly not. I am more than aware of the statistics thankyou very much. I just do not want to see them in excess of 10 times a day. Does that make me an ostrich ??

Some people seem to enjoy posting deliberately contraversial posts. Ok they do provoke discussion. But why is it that when people respond in a way that you do not like they are shot down in flames.

I wonder if I ought to start a thread...." Think you're clear after 5 years think again " or "scared of a recurrence you should be ". Well no I just would not do it....sorry...

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Just to add again to this discussion - I really appreciate the informative and passionate way Lemongrove has presented ideas on this thread and others. I, for instance, get very upset sometimes when I see a RIP thread but realise they need to exist and it's my choice whether I open them or not and I put this thread's title in the same bracket. Secondary breast cancer is not easy to cope with - some days I have to protect myself and other days I can open up more sensitive threads - I have the choice as do all other participants. The title of this thread reflects the initial content so is, in my mind, useful in helping to select what to open. Can we please move on to the content of survival rates - and if anyone does not want to participate they don't have to.... It's important to me to have information shared and I've appreciated having this info shared with us by Lemongrove and, hopefully, by others. I would, for instance, like to know about survival rates in France and any alternative treatments that are emerging around the world (I trust my hospital up to a point but am realistic that there are other treatments emerging and want to be fully informed about them)
Fran

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Hello Anxious, I agree, and had those who have objected to the thread read the post they would have seen the encouraging news that the Anderson Cancer Centre, they were achieving 10 year survival rates of 23% in 2004 for stage 4.
What I'm trying to get across is that there does seems to be a better way of treating metastatic cancer, and those of us with this awful disease need to work together to change this. Sniping at each other, and criticising the way campaigns are run is divisive, self destructive, and won't change anything.

anxious
Member

Re: Stage 4, 10 year survival rate in the UK

Hi Lemongrove,Your threads are well informed and you obviously know a lot about Breast Cancer.You remind me very much of another lady who has sadly passed away.In my opinion your heading is no more controversial than anything that was written by that person and who i is well respected by many forum users.Your other thread had mention of free speech,must we now be careful in chosing a title.I think if you come on an open forum you know that you may read something that isnt palatable to yourself,this is the risk you take,however this is often balanced by other threads that are very positive with people doing very well when maybe there stats had predicted differently.The site is moderated for anything that is deemed inappropriate.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Time for the moderators to step in now methinks...

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

With respect to those who don't like being told the awful facts, I would point out that burying our heads in the sand won't get us anywhere. I also think there are a few double standards going on here, because those who have posted to say they object to being presented with the harsh realities, are the same one's who posted on my other thread saying they they hate the pink campaign because it trivialises BC, doesn't tell it like it is, and turns women with BC into victims.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Yep, another one in agreement. It's our right NOT to ask/reseach prognosis-and this is something I have studiously avoided. Only to have it emblazoned in a very irresponsible manner here-not good.At least, I, and most others with stage 1V, don't labour under the misapprehension that we can be cured. Perhaps when this fact is more widely accepted, we may not have to be subjected to threads such as this one.

juliet66
Member

Re: Stage 4, 10 year survival rate in the UK

I agree with nicky. Am not in denial and I also know we are all different.

However, i also just drop into the latest posts about 10 times a day.
It is not great to be presented with that, even if fleetingly so many times.
Psychologically it is not great... but there is all that research about imprinting things into your brain at a subconscious level.
I do not know if i believe that or not. It is just not what I wish to see.

fudgeincornwal
Member

Re: Stage 4, 10 year survival rate in the UK

Yes I agree too! I went to bed thinking about this thread and woke this morning doing the same! I'm one of those strange people that consultants are still not sure whether I'm stage 4 or not at dx. spot on liver they couldn't identify on 1st CT scan, after chemo and ever since (July 2009) no sign, although cysts have been indentified since. So possibly so and am on herceptin past the usual 12months for forseeable future. Have had mastectomy, recon and having further lipo fil next month so I'm expected to be here for awhile!!!! I've had a look at the info. good that its there but I'm under the impression that it is up to 2008/2009, so 10yr survival is from people dx in 1998? as in my case herceptin has arrived on the scene since then plus other advances, progress is being made all the time we are already almost half-way thro 2011. Who knows what is round the corner eg. there has been vaccine trials (I think in USA) for herceptin and results are good.

Please remember we are all different and not just numbers on statistics!

Best wishes to all xxxx

nicky08
Community Champion

Re: Stage 4, 10 year survival rate in the UK

Yes, I agree with the other comments that the title should be changed, especially as everytime someone (like me) adds another post it goes straight to the top of the Latest Posts list and everyone can then see it - whether they want to or not - and I guess they would NOT. None of us mets ladies are in denial but I sure don't want it shouting out at me everytime I look at the Latest Posts.
Nicky

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Yes i agree, pls rethink the title of this thread. I am stage 4, did not really want to know the % as i am 100% ME!

Thank you

Sadie Xx

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

I have to agree with Mary grace. I'm stage 4 triple neg + am under no illusions. I've chose to do lots of research + know my prognosis is grim. But it is a matter of personal choice- some people don't want to know the exact figures etc + the title of this thread denies such individuals the option of choosing not to know. I agree that some newly diagnosed especially those at stage 4 at dx could be scared witless.
However I agree that it is an absolute disgrace that the survival rates are so poor + hate the palliative care approach that our oncs take as soon as a stage 4 dx is made.
I think it's right to raise awareness on this and thanks for doing so but maybe amend the title so the % is only seen if members choose to open +read the thread?
I'd be interested to know if survival rates have improved much in more recent stats?
Thanks 🙂
tina x

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

I'd hope the title did not upset anyone - I've known that's the basic reality since my diagnosis when my Onc wisely said survival was anything from 6 months to 10 years. The rates in UK do need attention - I know we don't all have the energy to actively respond when dealing with our treatments etc but I'm glad those who can are actively working to improve the success of treatments for all of us. I've had phases when I'm just been coping with my own needs but get as sense of purpose from being part of the bigger picture when I've the energy and appreciate having important info shared with me to reflect on if I want to.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Hi, I am not trying to detract from the importance of the issue at all. Just reflecting how scared I was at dx and wondering if the same discussion could take place without having quite such an explicit title in case it is causing problems for other bc ladies, particularly I would imagine newly dx stage 4 ladies?

Lemongrove
Member

Re: Stage 4, 10 year survival rate in the UK

Mary grace, I know your comments are well intended, but survival rates are a very important issue. If we pretend everything is OK, because some would like to bury their head in the sand, nothing will ever change. In any case, just because someone is stage 4 does not mean they want to be wrapped up in cotton wool, and protected from the realities of life. We're still us, and we're not victims.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

I don't wish to sound rude and indeed I'm only primary so maybe you won't think it's appropriate to comment on this thread. I understand what you are discussing and why but I think if I were. Stage 4 person who had deliberately avoided wanting to know statistics (and some do) I would find the title of his thread scary and in my face. Is there any way the title could perhaps be toned down a little just in case 😞

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

I'd have thought "our oncs" were only too aware that survival rates in the UK are less good than in many other countries.
I listened to an interesting Lancet podcast recently where a lot of back patting took place but also reminders that e.g. Scandinavian countries have better survival rates.
I don't think we should be too surprised but yes aspire to influence improvements, somehow.

finty
Member

Re: Stage 4, 10 year survival rate in the UK

At the very least we should all be making our oncs aware of the difference in outcomes and pushing for the same treatment protocols.

Guest user
Not applicable

Re: Stage 4, 10 year survival rate in the UK

Worrying (but presumably MDAnderson stats were not so good in 2004 either) - so why/how can we go onto raise the profile of the issue - ref your other posting. I feel a campaign coming on - how can we all really strongly raise the profile of these stats etc - BCC any thoughts since you'll be aware of the challenges in doing this?

Fran

Lemongrove
Member

Stage 4, 10 year survival rate in the UK

This is a link to Cancer Research survival rates by stage in 2004. How comes Anderson MD in Texas were achieving a 23% survival rate for stage 4 ? Could it be our treatment of stage 4 BC in this country is flawed?
http://info.cancerresearchuk.org/cancerstats/types/breast/survival/#stage