Great story, thank you for posting. I have worked in clinical trials for most of my career, but the importance of them really hit hard when I was diagnosed in 2014 with TNBC. Being the patient makes me more passionate about inspiring my colleagues to continue to fight to find the killer-blow to this enemy.
Hi Suz777, I thrilled to read of your success on the trial of Keytruda. I am from Australia and we do not have easy access to the drug, but as I hit the final wall a month ago my Oncologist told me of this drug. the cost is horendous but my kids have told me I have to give it a go as they want me around for the grandchildren!! I too wish to see them grow up. 🙂
I've only had 1 session and I can't believe the effect it has had on my old body! I sleep up to 11-12 hrs, my brain has the worst chemo fog since my 1st chemo in August 2014. My brain and my mouth do not correspond and cause me much distress. I'm just hoping that the drug is working so hard that my body just has to go into 'sleep' mode so the drug can do its thing!
As I'm not on a trial I have to wait for 4 sessions before my next ct scan. I was on a trial last year for CDX-011 (as US trial of a targeted drug for TNBC, after 8 mths the cancer spread to my lungs) and was used to frequent scans but I will have to be patient now!
Thanks for any comments you can give me.