so I might not be an April girl 😞
Oncologist appt today and I had an infection in my SNLB wound so I need to get it cleared before I can start chemo. OH and I disagreed on what we thought he said so not sure if will start week after next or the followig week. kind of hoping it will be after May bank holiday as have plans that weekend (for some serious partying!) which will obviously need shelving if I am starting chemo just before 😞
Also found out I definitely have radiotherapy in my future. So after chemo will have boob off then radiotherapy around new Year. Then will obviously need to wait for reconstruction. So a long long haul.
The good news is I have a little longer to go before I need to stop enjoying life - but to be honest I just want to get on and begin to reach the other side. I might need to leave you ladis and be a pioneer for the May group - should know more later this week about their plans for me.
I was part of "The Amazing Augusts" in August 2013. I am nearly 2 years from dx, had a double mastectomy, chemo, herceptin and tamoxifen. Chemo is definitely the scary bit, but it is very doable and you WILL come out the other end. I want to wish you all good luck and lots of love, you can all do this and be fit and healthy again, like I am. Take care, Gill xxxx
Hi Val and Molliana etal
also back from first chemo - EC for me.
Took senna and movicol last night so ready in that department!
Tried the cold cap and take my hat off (or maybe that shoud read hair) to anyone that can take it. Tried twice and failed even 5 hours later still feel like I have frozen head! That was the only bit that reduced me to tears.
The chemo itself was fine. A bit of a cold feeling in the arm and one of meds makes you tingle in the strangest of places 🙂
No SEs so far and now enjoying a pineapple fruit lolly.
have been told if youre having the cold cap take paracetemol about 1.5 hours before so its at its peak when it starts
So far so good, just got back from 1st FEC-T, I was scared I can tell you but it really wasnt too bad at all. I feel really tired, but think thats the relief that its over tbh. OH cooking dinner, fish fingers lol, might as well while i feel like it. Came back with loads of pills, will be rattling soon lol. Hope everyone else got on ok today and good luck to those that have it to come - will keep posting - Val xxxxxx
yeah the wigs are great arent they. I was greedy and got two lol one short blind silver one and one bob light auburn one for a change. fooled many people with theshort one as looks like mine .......took senokot last night in readiness and Will have more tonight. hope I can keep fancying my bran flakes too as that sorts me out every day. good luck at docs. xxxx
hi was due first FEC at 11. hospital phoned and as its my first time and am, s are manic they changed appointment to 2 30 to spend more time with me lol hey ho, could have realise d that last week doh x
Welcome to the BCC Forum. I hope you will find lots of information and support on this thread.
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Very best wishes
hi, lowblood pressure is worrying - that said in most cases better than high. mine is always low so have tomargue to get home after an op. go to the gp tomorrow and get suppositories or you'll end up in a+e.... or dial 111 and say youre in pain because you will be..... dont take no or ok for an answer. xxxxxxx
Hi all i hope you dont mind me joining this thread. 10 years ago i had a Lumpectomy with Radiotherapy and Chemotherapy, This time i had a double Mastectomy follow by reconstruction of the Diep. My first Chemo was on 1st April. Wasn't bad at all but the getting use to taking the booster jabs was a bit awkward at first as i had never injected. A new thing this time round and having to have a Portacath. Anyway i am eager to learn and go on this journey with you.
Not the sort of thing I thought I'd be giving advice on but seriously suggest you speak to your Brest Care nurse and get some suppositories or even an enema. Constipation is soooo painful - I ended up being readmitted after my mx as having had 2 generals in 24hrs I just couldn't go!
The only other things I know of was recommended by my practice nurse - she drank a whole bottle of syrup of figs after her first chemo.
My first session is tomorrow so thank you for reminding me to take all the laxatives I have.
take care xx
hi Tracey thanks for the info
Guess I need to fit in some brie, fresh chocolate mousse and a day at the spa before chemo starts then. Have sorted babysitters for Fri and Sat nights to go out for a couple of last nights out before it all kicks off. Cant really plan a spa day till after Tue when I know dates for chemo - but guess I need to factor in spa before the picc line goes in and needs to be kept dry. So much to plan to make the most of that we normally take for granted!!
Not so bothered about the no spa thing during chemo, will be behaving during chemo in order to get it over with ASAP and not delay any cycles - its the fact that the risk of lymphoedema means I shouldnt really have a sauna/hot tub at all ever again. I might decide to risk it occasionally in the future... 😉
T3D SO funny, good, over indulge in everything before it begins, feel a bit like that myself. I was told exactly the same diet as you, but noone mentioned alcohol. Was hoping If I fancied it I could have it. Will have to look that one up. chances are I wont fancy it anyway judging by what others say. I am off out with a girlfriend to the best restaurant in the area, tomorrow night, before my first FEC-T on Tuesday. I intend to have exactly what I want then and as much as I want to drink,yes I know its only a Monday, but its a special Monday, my last night feeling almost normal, apart from strange boob lol. good luck everybody look forward to hearing how you are all getting on. I hope to post tomorrow, depending on how I am. What do I mean depending, I AM GOING TO BE FINE - NO SIDE EFFECTS WHATSOEVER, wishful positive thinking might work xxxxxx
T3D did it hurt having the PICC ine put in and how long did it take? No idea what is involved?
Tuesday seems a busy day for a lot of us - having treatment or (For me) seeing oncologist. Want to get moving along now.
Do we have to avoid soft cheese during chemo? THe more I look the more I find lifes pleasures denied eg lympn node removal means i should "avoid" saunas, hot tubs and steam rooms THere goes that bit of pampering then 😞 Although I suspect I wll choose to indulge in the odd quick visit as its only once in a blue moon I get to visit them
Julia I am glad to know that someone else will be similar timescale to me at the end of the month - where are you at with pre chemo appointments?
I believe I will be starting my chemo in April so hope you dont mind if I join you and tap you for tips from those who have started already this month. I am recently diagnosed, have had SNLB and one node was affected so am having chemo first (FEC-T) then will have surgery.
Am seeing oncologist on Tuesday and feel in limbo till then to know what needs doing before chemo begins and not able to plan anything. I hope to cold cap but have bought an ebay wig "in case"
So a few questions for you all if you dont mind as some of you are ahead of me on the chemo journey...
1. what needed doing before you started chemo? I have heard mutterings re "scans"? Wha is involved in those and I need to have a Piccline put in - which sounds really scary as someonewho doesnt like needles - does anyone have any info of what is involved and how long it takes?
2. Does the actual chemo hurt? Can you feel it going in?(am such a wuss!!)
3. What do you wish you had known beforehand?
4. what do I need to get in pre chemo? eg pineapple?? anti constipation stuff??
5. what else????
thanks for your help I look forward togetting to know you all and having people to share this with. The fact I am going to be an "end of April" girlis going tobevery usefulto me although I know I will be VERY jealus when you are all finished before me!!
I am strangely envious of those of you like Molliana who have started and know a little more what to expect and are already able to cross off one treatment . At present I feel like I am on top of a cliff waiting tojump off
good luck with that. I went in after four weeks and I must say it did wear me out, took a while for the brain to kick in lol. Going in again tomorrow, playing catch up and need to do the wages for everyone, before I start my chemo next Tuesday. Onwards and upwards, hope you continue to feel ok xxxx