thanks hazelr, appreciate your comments. I do feel somewht better today, If i could just eat and get rid fo this awful metal taste in my mouth, and clean my teeth propely without retching i would be so much happier lol . Sure it will come xxxx
thanks so much. I hope to improve very soon. Managed some cornflakes this morning without gagging. Lets just hope I keep them down. xxxxxx
Hi newey47 sorry to hear you are feeling so sick, I have now finished my chemo but was very sick with the FEC part and my Onc gave me Emmend for 2nd session and was much better....it is very expensive so they try you with the generic meds firs Please ask for it next time chemo is hard enough so anything to make it easier is worth it. Hang on in there it will pass quite quickly listen to your body and rest when needed you will get there. Sue xx
thanks tuss, I do have some more anti sickness pills they gave me to take. Now I have finished the others I have decided to try them. Unfortunately its really hard to take them and drink a glass of water without gagging. Just did that, then retching in sink. Dont think they came back up so maybe ok. Just had half a cup of soup, maybe that will stay down. maybe take two more before bed and I might get a better night. xxxx
thanks mint will bear that in mind. Day 4 after first FEC-T - I must be a wuss, I still feel so sick, retching every morning like morning sickness and then cant face any food, half a small packet of porridge, half a slice of toast, just enough to take my pills with lol. Hoping it wont be many more days before this wears off. val xxxx
Morning ladies just browsing your thread, my chemo has finished now but I had Luasta injection after every chemo but just the one after each dose when I asked why some had 5-7 lots I was told mine was as slow release so maybe worth asking the question especilly if you are not keen on jabs. Hang on in there ladies it is hard but you will get there and following a further WLE 2 wks ago as had some DCIS in margins I have now been told I am clear Yay!!! So glad I agreed to treatment....good luck to all stay strong and positive. Sue xx
T3D are you going to try and do your own? Hoping my hsband will do mine - he is really good with stuff like that - just dont think I could stab myself with a needle but can imagine waiting for the nurse every day could be a pain
oh my goodness what a nightmare for you KellC - especially with your firt chemo it must be making you more concerned about the rest 😞
At least youfelt well from the chemo to start with which hopefully bodes well for you with future cylces once the infection is cleared up
How did you realise you were ill not just tired - did you have a temperature?
take it easy and hope the antibiotics do their job quickly
Just got out of hospital today after a weeks stay
Had my TC chemo on wed 1st April was ok till Sunday then was extremey tired didn't feel any better and ended up in hospital on Wednesday night,my neutrophils were nil .
They discovered that my pic line was infected (after three weeks and one treatment) so i have had to have it removed and will be getting another one in. Been pumped full of antibiotics and just beginning to feel normal again. Should be having my next chemo next wednesday but will have to wait and see what they say,
if you think you may be ill or just don't feel well get in touch with your chemo unit straight away.
hi all why do you have the GCSF injections, what are they for. I have only had one FEC-T but this hasnt been mentioned to me - YET lol. thanks val xxx
I am going to be an April lady after all!
Went to see the chemo nurses today and am getting Picc line on Monday then starting chemo next Thur (23rd) as long as my inifection has healed up. If not will sneak in on 30th April the following week.
The lovely oncologist has prescribed emend for me from the start 🙂
I will have steroids for two days after so will hopefully be ok for the weekends and then feel bad on Mondays which sounds ok to me.
I will also have white-cell-boosting injections in my stomach for seven days from a couple of daysafter chemo - this is standard here. Has anyone else had these? They appreantly feel it is cheaper and easier to do that than pay for people being hospitalised from infections.
I am out tomorrow night and Sat night living it up as much as I can before next week.
I am probably going to be one of the last April ladies and will be so jealous of you ll when it comes to your last scycle and you are all ahead of me!!
Well I managed the odd half hour sleep last night, and while awake felt sick all the time. I suffered with really bad pregnancy sickness all 3 times and had to have meds, and unfortunately they do say if you suffered with that you will be more likely to suffer bad with the chemo. Just finished my last anti sickness pill, but have got the 3 times a day one metoclopramide hydrochlorideam, if I need them. So will see if i need that today. Managed few spoons of cereal to take with pills, BUT I have so starving its unbelievable, but cant face anything. Trouble is the more hungry you are the sicker you feel, so its a no win situation. Hey ho - can live off my body fat for a while I am sure lol. Just hoping it will get better in a few days. Start more pills on Monday Ciprofloxacin, this is an anti biotic, so who knows what side effects I will get with them lol. Still I live in hope, none!!! Hope everyone else is fairing better than me today. BUT one good thing, the headache has gone - yay!!!
I am not on emend. Just got given the ones to take for three days which I took as instructed. I haven't felt sick once. Unfortunately others have as you can read. It's really tricky to say how you are going to feel. I had my first on Wednesday and did two full days at work Thursday and Friday. It wasn't until Saturday that i started feeling knackered and it's not improved much yet for me. Others seen completely different x
so I might be joining you all after all. Chemo nurses rang today and want to start me next week. Shocked doesnt begin to cover it when I thought I had perhaps 3 weeks before I would start.
I am off to see the chemo nurses tomorrow and will have picc line in on Monday.
Any thoughts on "ideal" day of the week to have chemo for a woman who doesnt work a normal job (I am a photographer so can work whenever and wherever) and is more interested in being well at weekends to spend time with family and friends? I want to know what day to ask for when I meet the nurses tomorrow.
Who is on emend and who is coping with other lesser ani sickness drugs?
thanks everyone. Hope those of you suffering SEs and sleeplessness improve soon
thanks Mint, no i havent contemplated sleeping tablets, just hoping I will eventually sleep. Its not that unusual for me, I dont think its all to do with this. I actually havent slep tmuch since the menopause, which is why I went on HRT!!!!!! I gave up work b4 xmas, gave up the HRT. to work at the b and b from home, and the sleep depravation was perfectly managable as I didnt have to go OUT work and could rest when i needed to. I will bear the pills in mind but dont really want to take any more than I am already, you would think one of the pills we take would get rid of a simple headache wouldnt you.
If it hasnt gone by tomorrow, I will check with team to see if I can take paracetemol, please god its gone by then. hey ho lol xxxxx valxxxx
and i am glad to hear, well not glad at all, but you know what I mean, that someone else confirms the headache, just cant shift it and we are not allowed to take anything I dont think. If I still have it tomorrow I might phone for advice. Im hoping its just lack of sleep. Val xxxx
Yes we will Storm. I have just tried some soup, managed a few spoonfuls to take steroids with lol and half a slice of bread. Joy. Not thought of peppermint cordail will have to give that a try. I had very diluted orange squash as I hate water and the taste is not good at the mo. Havent thought of ginger although a lot of people say ginger nuts, cake etc. Opps missed my Asda order now. Have to send OH down to shop lol Who incidentally rubbed my back the whole time I was sick, in fact I had to tell him to stop lol bless him. he is much more worried about all this than me.
Thanks Molliana, feeling a bit better tbh, BUT need some sleep, 2 days now and counting. Just as well I dont got out to work but work from home.
Keep improving ladies - and posting val xxxxxx
So relieved I'm not the only one with the SEs.
Last night I too vomitted didn't have the wee but was so violent it came through my nose.... all my OH could do was laugh!! And as to trying to sleep - was really restless.
Feel a bit flu-ey achey and hot/cold and still have a headache.
Had ginger jam on 1/2 slice of brown toast no butter/spread to take with tablets. Retchng but controlling it.
As to drink went for an old fashioned pepermint cordial - so far so good.
But on the plus side no cystitus symptoms which my nurse was positive I'd get!
We'll get there girl.
How are you getting on after your first chemo. I have posted above re my experience. Not that great but hoping it will get better lol. Take care and let us know - Val xxxx
thank you Gill, that is so nice of you. There is light at the end of the tunnel and all that then. Take Care Valxxxx
Hi Mint, I hope you are right and they are the same each time, well for the first 2 anyway,I change over to the T for the fourth, so expect there will be different side effects. I am told they can get worse each time too- I do hope thats not the case. I am just lying around thismorning, really need some sleep, but with steroids kicking in now too, dont expct I will get any. Take Care Val xxxx
They wont rush it you do need to be healed completely. I had Mx 6 weeks ago just started chemo yesterday and the steroids they give you to take home say may stop healing wounds........ Hope mine is healed enough inside, they must know what they are doing. So dont rush it, even though you want it over with, its a really long road ahead for all of us. Take care and keep posting xxxx
Hi storm and all
Glad your EC went ok, I had FEC all went ok while I was having it, no problems. Unfortunately had me dinner then felt really sick and brought it all back at 9.45while weeing myself at the same time - awful. Had a really bad headache too but not allowed to take anything. Then took anti sick and senokot before bed. Bed thats a laugh, was so tired, as I hadnt slept the night before. But didnt sleepa wink saw every hour in......... This morning feel ike I have been run over by a bus, aching shoulders neck, like an old lady lol. Now took the steroids and anti sick again.....managed 6 spoons bran flakes and trying early grey tea no milk rather than me usual coffee. Let hope thats as bad as it gets, not nice. Keep well and posting xxxx