72.6K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Starting Chemo, June 2010

MrsSloth
Member

Re: Starting Chemo, June 2010

Well yesterday was the first day off anti-sickness and steroids and I am really glad to be off them! Last night was the first night approaching good old fashioned sleep that I've had in a few days, plus my eyesight is gradually returning to normal (distance vision had gone all blurry), so next chemo session I'm going to ask to have the steroid dose reduced, I think it's too strong.

Managed to cook a mild lentil biryani last night which was yummy, and didn't upset the heartburn too much!

Acupuncture and briefly popping in to work to say hi to everyone today, will mean a trip on the tube in this awful hot weather so I'm loading up with water, sandwiches and ginger biscuits!

Hope everyone else isn't doing too badly!

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi, Suze, my second FEC also on Thursday as long as my WBC back up. Am I right in thinking you go to Tameside? If so might see you there!
My hair also disapearing from the sides, perhaps it's because we sleep on our side & not standing on our heads! I think my eyebrows are thinning out all by themselves, saves on plucking!

Good luck for Thurs.

Carol x

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi everyone,
Deb, hope you are coping ok...well done for getting no1 out of the way. Take all the medication, eat little and often and of course the drink loads is v important. If you feel a bit yuk remember it will pass and after a few days you will wake and feel normal again!! It's a great feeling when that happens:-))

Jo good luck for Thursday, you will be fine, I have my 2nd FEC on Thurs and 3 weeks ago I was panic stricken and felt like the runaway train was where I was heading too...so I can tell you...you are normal.If you're worried ring your bc nurse as she will help a lot with your concerns, mine was great and although no one ever ever wants this treatment your nurse will help you stay calm through it.

My hair is receeding now from behind my ears and thinning all over (even though I used the cold cap) it began to come out on day 10 after 1st chemo, a little at first then more each day. Had it cut really short on Friday and still coming out in handfuls. I keep thinking that if it continues to work upwards from my ears I will end up with a mohecan HELP!!!!!

Hugs to everyone
Suze xxxx

Guest user
Not applicable

Re: Starting Chemo, June 2010

Thanks Deb,
The boys are 4 and 5.

Bless them aren't children wonderful. Was it your first chemo? I hope you are ok and side effects won't be too bad.

My husband is a firefighter and the fire service have been amazing they have given him the first week of chemo off and have said he can take as much time as he needs so the childcare is covered.

I think if I'm honest I'm just freaked out as I am usually so in control of everything and I feel a bit like I am about to board a runaway train.

Thanks for your support Deb,

All the best,
Joxx

Midge
Member

Re: Starting Chemo, June 2010

Hi Jo

Sorry don't know how old your children are but mine are 2 and 5. When I was diagnosed my first thought was them. I wanted to protect them from all bad things. It is so hard. But they have been very good today while I have felt a bit off. Just get as much back up as you can. In terms of child care plan for the worst and then everything is a bonus and you will feel much less stressed. Better that than hoping you will cope and then feeling guilty for having to give up for a while.
Remember they can do a lot dot side effects now and children are mighty resilient. They know I am on yucky medicine and my hair is going to fall out. Oh and playgroup and school have been great.

Very best wishes. Debx

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi all,

Starting chemo on Thursday. Really not looking forward to it. It's just hitting me that I can't protect my poor little boys from everything that is going on.

I've told them the truth the whole way through but have always managed to minimise the impact on them. Today though I feel like I'm having a bit of a melt down.

It was my little ones birthday on Saturday and my oncologist let me delay chemo by 10 days so that I could celebrate with him and have party etc. I didn't realise though how bad I would feel after his birthday and how much of a countdown it would feel like.

Sorry I am rambling but I'm hoping that you'll all understand how I am feeling and will tell me that I'm not going mad! Can't sleep now either, I was like that too when I was waiting for the op.so not too worried just annoying as I've got that tired headache.

Here's to mild side effects and happy children, keep your fingers crossed for me.

Love Joxx

Midge
Member

Re: Starting Chemo, June 2010

Hi Julie
Have just taken second anti sickness tablet. Def don't feel like eating, am trying to drink lots. Wishing you all mild side effects. Die cancer cells die!. : D

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi Deb - Hope you're not feeling too icky. Maybe a nap will help. I think the whole idea of chemo is a bit alarming, so you're bound to feel the need to collapse a bit afterwards.

Midge
Member

Re: Starting Chemo, June 2010

Hi all

Just back from chemo. Had a couple of anxious moments and lightheadedness. Might go for a nap. hopefully the SE' s won't be too bad. Debx

Guest user
Not applicable

Re: Starting Chemo, June 2010

It's hit and miss with the cc I think, even though I lost most of my hair day 20 first fec and still grit my teeth at every session (done 2 fec/2tax-c) I will carry one for the last two cycles, I emailed paxman they say it could help with regrowth. Sue, are you still planning on attending the ywf in Swindon? I keep confusing people with the hair/no hair look, especially the children on the school run, mornings with hair, pm with hat/cap! There is no denying the hair thing is for me quite challenging, but getting the hang of doing makeup without lashes&brows.

Guest user
Not applicable

Re: Starting Chemo, June 2010

Thanks Beverly, I'll keep on with it then. For a bit at least. Good to know at least someone's got some hair then. Good luck for chemo 5!

barneyb
Member

Re: Starting Chemo, June 2010

Sorry for jumping in to your thread.

My hair started to come out Day 16 after first chemo back in April, but slowed down. Had cold cap again for second chemo and more came out on Day 4 after that. However, it slowed down then and I go for chemo no 5 next week and still have nearly all of my hair. It was very thick to start with and although it has thinned, particularly on the crown, it's still there. Just thought I'd pass this on if you were thinking of carrying on with the cold cap Julie.

Hope you don't mind me commenting.

Beverley

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi All - Haven't been here for a few days, but it's good to see you're all so positive amidst the fug.

Gill, and everyone else, am sending you all a huge hug for your hair. Hard isn't it!? I'm trying cold cap, but it's still coming out. Started on Day 16 after first FEC and still shedding now (day 19). I've got quite thick hair, so for now nobody would know, but if it carries on at this rate it won't be long before I decide to shave it all off. Thing that really depressed me was washing it and seeing how much tried to escape down the drain. We'll all have blocked drains if we don't watch it.

Haven't got time to post to all, but Sue hope this round doesn't hit you too much.

Onwards for us all then. Seems like we've a long way to go, but surely the first round and the hair loss is one of the worst parts.. x

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi all,

Went to the pub with OH last night wearing the dreaded wig - so now cost down to just £30 per wear! He prefers the bandana look I think. Gave the babysitter a shock when I opened the door for her earlier, forgetting I was completely bald! She was very good and didn't look too surprised, and didn't comment when I reappeared minutes later with wig on! Poor girl.
Enjoyed a glass of red wine as I know I won't fancy one for at least 2 weeks...
Enjoy the weather all - with factor 30 sun cream of course...Pity it always seems a bit chilly in the chemo suite.

Sue xx

MrsSloth
Member

Re: Starting Chemo, June 2010

Hello all!

Well this is day 4 after first chemo, so first day without anti-nausea and steroids so I'll see how I get on.

Got the red face look (and a hairy chin yesterday morning!), plus hiccups and today a bit of heartburn (nice....), otherwise it's just been the awful tired jitteriness, so I'm wide awake when I'm lying down and dead on my feet walking around!

Have gone out for walks each day (managed another hot chocolate yesterday) and while I'm eating every so often I'm having bigger portions now as in the past if I don't eat enough I get a bit nauseous with low blood sugar. I've also made a big start on the spring clean that I wanted to do and found some stuff I thought I'd lost yesterday!

My temperature has been quite low, so I think my expected trip to the endocrinologist about my thyroid might be a good idea when it happens!

Tomorrow I have acupuncture so hopefully that will help with the minor stuff.

Hmmm, 6 a.m., now what can I do?

x

sandra4
Member

Re: Starting Chemo, June 2010

Hi Ladies,
Vickie, l was told by the wig lady not to wear a hat over the wig, as you will end up with a line where the hat sits!! so watch out!
And l wish you would get your laptop fixed, or at least put at the bottom of your posts, that you can spell, it is just your sons have messed all the keys up!!xxx

Anne, I am doing ok Thank you, and Thank you so much for your very kind words, easy to give advice, but not always easy to accept it. I fall apart very easily!! but then again don't we all, and as long as we pick ourselves up again, and support each other, that is all we can ask. Because not one of us ladies wants to be here, but we are! for ourselves and each other.
Hugs to all
Sandra xxx

tors
Member

Re: Starting Chemo, June 2010

i start tax next time and suspect the rest will go then! I would get your wg if i was you, i bought loads of caps etc first but actually feel better in my wig for trips out as you can just blend in and i cannot cope with funny looks, even if they are actually only in my head! I had my wig cut to suit me at trevor sorbie and its made a difference as it feels more like my own somehow now. Am glad i had it waiting for me once hair was shaved, it was good to have kept my options open.

Guest user
Not applicable

Re: Starting Chemo, June 2010

thanks for the info about hair loss/wig Vickie- I'm 10 days from first TAC so much anticipation- My nurse said it would all come out in a 48 hour period- I'm guessing it might be the different drugs I'm on. So we'll see.

Guest user
Not applicable

Re: Starting Chemo, June 2010

Best wishes for tomorrow Deb and Sue- one more step.xxnaomi

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi Sandra

how are you doing. Just wanted to say I have been reading your posts and that you are such an inspiration to everybody on the forum.

You always seem to have good advice about any difficulties anybody is facing, and are always there to lend an ear.

Please keep in touch with all your news.

Speak soon Anne xx

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi Deb

Good luck for your first chemo tomorrow. I know how I felt when I went for my pre chemo appt it feels as if there is so much to take in, but you will get used to it all.

I give myself a Neulasta injection 24 hours after chemo, this is to help my immune system. It seems to have worked for me as I have had always had good bloods and neuts. I am not sure why some people get them and others don't. I think it has to do with the cost and what health authority you are with.

Once again good luck for tomorrow, I am sure you will get on fine.
Please keep in touch so I kinow how you get on.
Annexx

tors
Member

Re: Starting Chemo, June 2010

hi everyone, sorry to crash in on your thread!
Scoobs, my hair started coming out about day 14 after first fec, even though had used cold cap, and i waited til after my sons birthday party and then shaved it the next day and felt tons better for doing it as the waiting was too annoying and upsetting. But i am now on day12 after fec 3 and i still have a fair sprinkling ( maybe 40 pc? 30 pc?) but the hair thats clinging on has also grown, v wierd. I haven't found the hair thing too awful so far really, i wear my wig out and about, nothing in the house escept a skull cap thing if i get chilly, and sometimes wear just cps, like today to watch my sons after school football in the sun, would have mekted in the wig! I also sometimes wear a cap over the wig, rebel!

Midge, good luck tomorrow, at least its here at last. I think the injections are newish and not all trusts and consultants are on line with it yet. Mine prescribed the 5 day course from the outset and then changed it to the one shot neulasta ( which is longer lasting but more expensive) because my white cells went too low after fec 1.

Hope evryone doing alright,

Vickie

sandra4
Member

Re: Starting Chemo, June 2010

Hi Ladies,
Midge, Good Luck for tomorrow, it has been a long wait, but now it is here, hope it does its job! what more can we say. fingers crossed for not too many side effects xxx

Sue, Good Luck for tomorrow! number 3! doing well xxx

Anne, No. 5 next week, well done and good luck xxx

Naomim every time l walk by the mirror, l look and think...........really not looking forward to the no hair, will cry and cry. Dont know why, the main thing is this dreaded cancer has gone!
Yes l have gone a bit mad, not quite up to the shopping with normal people around, so l go on the internet, and spend twice as much! xxx

Tina, Why does the cold cap not work for some people? was it explained to you! xxx

Gill,good luck with the hair cut tomorrow, think l would cry if l went to the hairdressers! but then l seem to cry if l go to sainsburys!!

Had a good day in the garden today, plenty of digging, so hopefully l will sleep well tonight! think l will try and cut the grass tomorrow!

Sorry if l have missed anyone, hope you are all coping in your own way

Hugs all around
Sandra xxx

Guest user
Not applicable

Re: Starting Chemo, June 2010

HI Ladies
Had my first chemo 18th June, I have decided against the hickman line for now and just keep my fingers crossed. my arm was a bit red from the needle, I have never had such strange sensations in such strange places but the Chemo was not too bad. I could'nt believe how busy the poor nurses were - they all deserve medals and massive pay rises. so far no side affects so hoping to go in work tomorrow

Midge
Member

Re: Starting Chemo, June 2010

Hi all

Am resigned to losing my hair. Have prepared the children and shown them my hats. I have my wig lady app next tues. I went for my pre chemo app today. They talked to me for 2 hours and I was a bit brain dead by the end. The one thing they didnt mention and I didnt ask was about injections. Did it ever get resolved why some people have them and others don't?

Well first Chemo tomorrow- wonder if I'll sleep tonight. debx

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi all,

Weirdly, I'm keen for ALL my hair to go as am convinced it means the chemo is working. It started to come out day 18ish of first FEC. Now day 20 of second (in again tomorrow...groan) and still have stubble from where I shaved it. Am sure it's even grown a bit. Want it all to go!! Armpits haven't grown since I last shaved weeks ago which is a bonus but am left with about half my pubes! Delightful.

Glad you're feeling better Naomi. Love the wig Tina! Still scared of mine - and it's hot.

Dreading tomorrow. Feel fine (but shattered) and don't want to feel toxic again. Am going to pub with OH tonight though to spin out feeling normal.

love Sue

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi Gill

Sorry about your hair, my hair fell out exactually the same time as yours after chemo 1. My hairdresser says when it starts coming out in clumps she think it is better just to get it shaved off, and this is what I did. My hairdresser turns you away from the mirror and then places your wig straight on so it is not too much of a shock.

I am very fortunate that my hairdresser is one of the recommended specialists of the hospital for wigs. I went in before all my hair fell out and we matched my colour and highlights to nearly an exact match for my wig. I was paying a visit to my work on friday and people did not know i was wearing a wig it was that good. I think my wig only took about 2 weeks to arrive.

if you feel like a scream have one it will probably make you feel better. Next week it is chemo 5 for me, it has passed really quickly.
Speak to you soon Anne xx

Guest user
Not applicable

Re: Starting Chemo, June 2010

We can gear ourselves up all we like but the reality is always a shock. Sending you all my best wishes and virtual hugs Gill.
Sandra I think we may be next? You know when you have that little voice saying "BUT I dont want it to happen?" Its horrid to be so out of control. It means its working and its another step taken (but I still dont want it to happen).
Tina I'm interested in what you say about the wig, I also wasnt going to get one but I'm starting to change my mind. I think it might be good to just feel normal(ish).
Feeling much better today, They put me back on steroids last week to try and make me feel better, I'm going to stop after today as I feel quite wired and keep spending money on the internet!! apparantly mania is one of the side effects. I thoroughly recommend Tamazipam (from the GP) for those having trouble sleeping- I've never had a sleeping pill in my life before, but its bliss at bedtime to not have to worry and I feel at the moment I'm allowed a little help.
xxNaomi

Guest user
Not applicable

Re: Starting Chemo, June 2010

Oh Gill, I am sending you a big hug! My hair went day 20 first fec despite cold cap and I sobbed, I knew it was coming but felt sheer despair when I had a tesco carrier full of my treasured hair. It seems so unjust and awful and what I told my little boys is that it is a sign of the chemo doing it's job. I did not have a wig to start with and just had hats and buffs, but I missed the feel of hair around my face got a wig but not my usual look, I accept the status quo but long for the day I look and feel like myself again. That day will come for you, too!! Thinking of you and sending my best regards, Tina!

sandra4
Member

Re: Starting Chemo, June 2010

Oh Gill,
Don't think we will ever be ready for the hair falling! l keep having that little 'tug' and know like you l will be devastated. Just wanted to say there is nothing good about this dreadful bc. But the chemo is doing the job that we are all hoping for and our hair will grow back. Oh goodness that doesn't sound at all convincing does it! Just a rotten, lousy, stinking thing for us to go through.
Shame you haven't got a wig shop near you, not much comfort, but at least you would have it at the ready for the inevitable.
Lots of Hugs and thoughts of you
Sandra xxx

pina_c
Member

Re: Starting Chemo, June 2010

.

sandra4
Member

Re: Starting Chemo, June 2010

Hello Ladies,
Really thought l was going to wake to problems today, after the last couple of day. But woke feeling alright, so pleased with that, still got a bit of a funny mouth, but no more than that.

MrsSloth, sound like you are doing well, if you managed a hot chocolate! and a mile walk, that has to be good. I think that is the best idea, i have given up on dinners mostly have snacks, little and often! xxx

Louise, Thank you, yes l am feeling 'well' today, pleased to see you are doing well! l always read your posts, Take care xxx

Federica, sounds like we started about the same time, l started on the 11th, as you say fingers crossed for the next 3 months!
Hope the hair stays! xxx

Gill, Yes back to 'normal' (i wish) xxx

Sandrae, well done, day 4 of 3rd FEC! The granddaughters will do a double take then, on their 'new' Nanny! xxx

Hope everyone else is feeling 'ok' and had a good weekend
Sandra xxx

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi ladies,

I am day 4 of 3rd FEC, don't fell to unwell, have felt a little more tired than i did with the previous 2 FEC.
Yesterday i felt so aggitated, i couldn't sit still, haven't got a glue why, as i didn't have steroids this time due to slapped face look and bad water retention.
Apart from that i feel ok, i do hope you ladies are managing ok with the cr*py side affects, you all seem to be doing as well as is possible under the circumstances.

MY poor old head is as itcy as heck, since my OH shaved it for me , bless him, he is still recovering from the shock, ha ha, i had a baldy as i got sick of what little i had falling in my dinner haha.
I think i may get my wig out tommorrow and give it a try, my poor grandaughters will be wondering if they have a new nanny, as i went for o bob with highlights, nothing like my own.
Well there's only one way to find out ha ha!

Hope you all have a good few days coming, take care, Sandrae x x x

pina_c
Member

Re: Starting Chemo, June 2010

.

MrsSloth
Member

Re: Starting Chemo, June 2010

Ah, I've optend not to do the cold cap, so will be waiting the wig consultation (always wanted to see what I would be like with blonde hair, now could be my chance!).

I have also opted not to try working through it, partly because I want to avoid infection and partly because everyone at work said go away and come back when you're through with it all.

Fine by me! Not keen on a London commute 5 days a week at the best of times!

Big hugs to everyone today.

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi

I am exactly like you 3 FEC and 3 TAX. I have started 10 days ago and so far I am ok. Going to work and conducting my life as anormal as possible. Fingers cross will continue like this for the next 3 months!!!

I am using the cool cup technique (so I still got my hairs) but guess its too early to see if side effects are kicked in or not.

I have changed my eating habits and it seems to work with me with energy and tiredeness.

Good luck!!!

Guest user
Not applicable

Re: Starting Chemo, June 2010

Sandra.

Hope u ok and today is a better day

Louise

MrsSloth
Member

Re: Starting Chemo, June 2010

Morning ladies!

Well I got through my first FEC on Friday, had the pre-chemo tour the afternoon before which was great, blood test was fine and ECG was normal for me (i.e. off the scale with white coat hypertension!).

Friday morning met the oncologist's registrar again and he put my mind at rest re. my heart (the echo results were very good, in fact my pumping strength is higher than average. Woo!) so I decided to go ahead with it all. The chemo nurses were lovely, in all I was at the hospital for 4 hours in total, that included lunch as I was on a ward! Having the portacath fitted next time, although this one was fine, just had my arm in hot water to get a vein.

Friday was a bit of a write off, stayed awake til 10pm for my last anti-nausea tablet. Yesterday managed a mile walk, then a nap, but the steroids make me feel quite jittery so I couldn't concentrate on much. Finally gave up and and went to bed after Dr Who but didn't sleep all that well. Today just feel fuzzy headed but have been to local cafe and had a hot chocolate, and done a bit of food shopping. Just eating little and often, but generally avoiding sweet stuff which is good for me!

Hope everyone else is doing OK!

x

sandra4
Member

Re: Starting Chemo, June 2010

Hi Ladies,
Well l have a bit of a sore throat tonight, so l am hoping after my sickness yesterday, it wont come to anything!
Just really wanted to say, l also have Manuka honey, even before bc! the other day on the forum l mentioned l also have Actimel.....had lots of replies saying NO!! seems the good bacteries dont go with chemo. Some of the ladies said in their booklet is states no live yogurt's!!
Sandra xxx
PS. Tina the hair looks lovely!
PPS. Not going to be my night, l now have diarrhoea!

Guest user
Not applicable

Re: Starting Chemo, June 2010

I am on the countdown to FEC no.2 - bloods due on Monday and if all well, next dose on Wednesday. Lucky to have had few SE's, just fatigue really, and not much nausea to speak of except for day 1 - thank God for a good onc nurse who was meticulous is jiggling around my anti-sickness meds for the best effect!

Suzi - reading your question about hints & tips to raise immunity - I have had a few bits of advice from various people:

Manuka honey - taking 1 tsp a day
'Live' yoghurts and drinks e.g. Actimel & Yakult - 1 a day (also helps with the post chemo constipation)
Getting back to normal activity levels pre-dose - trying to walk/swim/exercise every day in gradually increasing amounts depending on energy levels. Now (day 17 post dose) played badminton twice this week (3 games Tuesday, 6 games Thursday), walked round the park, swam & one Pilates class. I have also made a decision NOT to go back to work, but to invest the time in 'ME' - getting as much exercise and fresh air, and as little stress as possible to boost me ready for the next dose.
Hugs to all you ladies just had or getting ready for next dose....keep holding hands virtually!
xxx Sal

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi Ladies, I have just took time to read about everyones news for getting through their chemo, sorry havent been here for a good few days, i had my 3rd Fec on Thursday, felt a little more tired than the first two, look a little less like a beetroot as the doc decided that i leave the steroids out due to bad water retention and aggitation, had some mega hot sweats, but they are to be expected i suppose, but all in all, i feel quite lucky compared to many of you ladies here, haven't felt ill, just a little less like myself.
I have had a bit of an absess in my mouth due to a tooth which needs a new filling, haven't been able to have the filling as the dentist gave me penecillin to take before i can have it done.
Had to check with my onc first, that was a little bit of prob, had to have a bllod test first, before i even went to the dentist, then when i went to have my 3rd Fec, i was told they might not do it due to abcess, then they said it would be ok.now i am taking penecillin until i have the tooth sorted, but have to have a blood test on the day of the filling to check it's ok to go ahead.That's in 2 weeks,what a pain, but i can see why i have to wait, it's just a bit of a pain.
Sorry for the winge, but only you ladies would understand, had to get my hubby to shave my head this morning as some had grown for previous shaving but it was falling out as well, so i have about 2mm if im lucky, other bits are bald, kinda got used to it now, but poor hubby, he felt bad, bless him.

I do hope all you ladies are doing as well as is possible today,i don't have my grandaughters today, so i am in bed resting whilst online, i think looking after my grandaughters keeps me sane, keeps my mind of bc and keeps me active, (i'm not the fitest of people) ha ha.
I do feel for you ladies with young children, it must be extremley dirfficult, it's ok for me, i can send my gd's hame at the end of the day, or if i feel to unwell, but you ladies have to get on with it no matter what.
Hope all goes well for the ladies that are having their chemo in the next week,
Take care to you all
Sandrae x x x

Guest user
Not applicable

Re: Starting Chemo, June 2010

Thanks Tina xx
p.s love your new pic lovely long locks really suits you xx

Guest user
Not applicable

Re: Starting Chemo, June 2010

Suze, I continued with cold cap (paxman) despite there not being much left to save really, but I emailed them and they said it can contribute towards regrowth, so it's a case of grin and bear it for me, I suppose it's one of the things I still have a choice in.
Re the neutrophils, as I have gone along in this BC business, I made my own info booklet, new topic, research and then bookmark so I can refer back to it when needed. I suppose I am a very factual person in that respect! Hope SE's are being managable for everyone, Thursdays tax/c left me a bit tired, slept right through the football match last night despite my four blokes shouting at the screen.... Hugs to all.X

Guest user
Not applicable

Re: Starting Chemo, June 2010

Hi all,
hope everyone is ok and enjoying the good weather.
Nem sorry to hear that your wbc are so low, wishing you a speedy recovery and hope the count is raised quickly. What treatment/advice have you been given to raise the wbc?
I get my bloods done on Weds this week for chemo on Thurs and dreading finding out that count is too low. I'm taking iron tablet each day for rbc and vitamin C and manuka honey for immunity, having a pretty healthy diet with lots of fruit n veggies,temp is ok and I feel ok so hoping that I AM ok.
Had hair cut urchin short yesterday as I couldn't cope eith the matted mess that it was becoming, didn't want it shaved so opted for scissor cut as short as poss, still getting used to it and trying to avoid reflection as much as possible. Having said that not being able to wash hair made my usual style look yuk too. Deciding whether or not to continue with cold cap...will see how much is left by Thursday as it's really thinning out at the sides now :-((
Good news...I can pull hairs from my knees!!!! looks like I may not have to shave legs for much longer hahaha!! My eyebrow partly disappeared but seems to have stopped coming out now thankfully:-))
Sandra hope the sickness has stopped...yes I think it may be a little overindulgence in the strawberry department!!! You never came on here and told us that there were strawberries to be had!!

Kenni, nice to 'meet' you hope you are ok and enjoying the weekend as much as possible.
Well better go have a busy weekend in anticipation of going back into the chemo hole next weekend...need to get all my jobs done
Enjoy the sun
Hugs as always Suze xxxx

Guest user
Not applicable

Re: Starting Chemo, June 2010

Tina....have they offered you a job in the health service yet?? You are so knowledgeable :-)))
Thanks for the info
Suze xx

sandra4
Member

Re: Starting Chemo, June 2010

Tina, It not only helps, it made me laugh, because when l typed it l almost put at the end 'where is Tina' you are like a little encyclopedia, full of useful information.
Thank you
Sandra x

Guest user
Not applicable

Re: Starting Chemo, June 2010

Neutropenia: ANC < 1500 cells / mm3 ANC Absolute Neutrophil Count
Mild Neutropenia: 1000-1500 cells / mm3
Moderate Neutropenia: 500-999 cells / mm3
Severe Neutropenia: < 500 cells / mm3

Cut off point for Tax is 1500.

Hope that helps. Tina

sandra4
Member

Re: Starting Chemo, June 2010

Hi Viv, Thank you for that, l just thought l had read somewhere EC was for triple negative, now l am interested, it 'seems' more people are on FEC than EC! i will ask when l have my next chemo. But if anyone else knows please let us know
Sandra x

vivrog
Member

Re: Starting Chemo, June 2010

Hi there I had EC and am now on Tax. I am not triple negative. I asked my onc what the difference was between FEC and EC and he said it was just different oncs' preferences. Apparently recent research has shown that adding the F to EC has little extra benefit.

Viv x

sandra4
Member

Re: Starting Chemo, June 2010

Hi Kenni and welcome,
Probably wrong but is EC given if you are triple negative? whatever we are all going through chemo!
Hope you still feeling ok, l started my first FEC last friday, and the first night l had a bit of a headache, probably stress! never really had any bad side effects, felt a bit sick for 3 days but the tablets sorted that out. My bcn told me to eat what l fancied while having chemo, doesn't have to be healthy as long as you are eating, what dreadful advice..........good job l went off chocolate, be the size of a bus by the time l have finished this rubbish. xxx

Ado, well done on finishing your last FEC, xxx

scoobs, l bought some strawberries yesterday, eat the whole lot, probably why l was sick today, but they were lovely.
It is a problem with regards to taking someone with you on appointments and so on. My friend wanted to come on my first chemo, but l said l really wanted to do it by myself, really l just hate people waiting aroung for me! but promised l would ring her if l felt ill, her husband was going to drive her up to the hospital and she would drive my car home. But l felt absolutely fine, and would have no hesitation on going alone again.

Naomi, hope your tablets are working, you can rattle for England!

Does anyone know what the wbc level should be? think l will have to look that up after, just like to know!
Sandra x