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Starting Chemo November 2012

Re: Starting Chemo November 2012

Hi Sparklers

A good day today, feel like I'm getting away with things a bit easy at the moment. Hope I don't have to eat my words later, but just taking each day as it comes. Thrush on its way thanks to tablet I took, no nausea today and had visits from work mates and my niece. Just feeling a bit tired now but thats normal.
I know what you mean about the funny mouth Pascal48. Mines been the same but not painful and nothing I can pinpoint so just brushing teeth a bit more and using mouth wash regularly. I got some shampoo and conditioner from Boots called Naked. Its 97% natural and is mild for sensitive scalps. I've been using that since chemo but only washed my hair about 3 times when I'd normally do it everyday. Dont know if its helping but thought I'd give it a try.
Glad your wig is spot on Jellymould. I have quite fine hair and the wig is a lot fuller but I'm getting used to it [I keep practising putting it on]. Showed it to my niece today and she liked it so can't be too bad. I went to Headstrong session a couple of weeks ago and the girls were like a double act! I got some lovely scarves and a sleep hat and like you got some ideas on how to tie them. Hopefully won't look like a cross between a pirate and Maria from the Sound of Music now!
The ditties are great Col123, they have made me smile and I need all the smiles I can get. The best I could do might be a limerick and I'd probably struggle with that.
Dealbeach I was wondering if I'd still have my hair for next chemo. I'll have to wait and see. It sounds like you are a week ahead of me so I'll have a better idea by this time next week I guess. It might be worth getting your eyes checked out if they are sore to make sure there is no infection. A pharmacistor your GP may have some idea of what you can use to help them. The only tips I've read about eyes relate to when the lashes go and thats to wear pale sunglasses to protect them from dust. I know how irritating eyes can be as I wear contact lenses and the slightest thing can set them off watering. I tend to use eye drops when I have problems. Sorry I can't be of more help.

Better head off to bed soon. I'm going shopping with my mate tomorrow and going to treat myself to a nice coffee and a cake while I can.

Keep strong and carry on sparkling!
Shazza xx

Re: Starting Chemo November 2012

Hi sparklers.
Hair now comes out when I touch it, I think tomorrow will be my last day of 'normal' hair. I thought I wouldn't mind, but feel quite emotional. I now realise I will be wearing my wig for my 2nd lot of chemo this Wednesday, I was hoping to keep my wig in its box for at least 1 more week. Just hoping the eyelashes last a bit longer as my sore eyes are already a problem even with lashes to protect them. Has anybody got tips for streaming eyes?

Re: Starting Chemo November 2012

Hi All
Mags 2710 I had my first session last Thursday and used the cold cap. I read on here only to wash my hair once a week and only to brush it once a day. I washed it yesterday and used conditioner on it. I just did it as normal, not sure what you're supposed to do. It feels normal so far, I'll let you know how it goes.
Col123 Brilliant, keep them coming.
I am now on day 8 and feeling good, my mouth feels a bit strange but otherwise ok. I only take an anti sickness pill at night just in case I wake up feeling sick. Nowhere near as tired as I was.
Hope everyone else is coping ok
Lots of hugs
xxx
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Re: Starting Chemo November 2012

col the headstrong girls were great and i the scarves are so easy and great to play with, got lots of new ideas on how to wear them. i now know how to plait 2 together and make a really groovy head piece using head bands and brooches. xx

Re: Starting Chemo November 2012

Col, I'm nipping over from the September thread just to say that you are a poetic genius! Thanks for making me laugh

Re: Starting Chemo November 2012

I col i loved the ditty
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Re: Starting Chemo November 2012

Thanks waiting too. Kids are amazing about all this. My little ones way more excited about my wig than I am!

Great news Mags - hope it get off lightly. Take it easy. I'm afraid I cant help on coldcap as not using it.

Great eig news jellymould. The headstrong thing sounds good - I'm crap with scalves and always end up looking like a pirste or an armish woman!!! How did you get on it?

Glad you like the rhyme - they're a bit daft but a bit of fun eh? hope they dont offend anyone!

Anyway, good luck to anybody with appointments tomorrow.

Sleep tight all.

Col xxx
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Re: Starting Chemo November 2012

afternoon everyone, just back with my wig and its great, looks just like mine. also met up with headstrong who show you different ways with head scarves and hats, wow, freebies galour, head for my wig to sit on, scarves, hat with a small donation, so made up, even managed the twisty scarf look. xxx

Re: Starting Chemo November 2012

Afternoon sparklers,
started chemo yesterday, dranks loads before i went and when i can home pee pink straight away, now it looks a healthy colour. A bit nauseated but tablets seem to be keeping it bay. Slept till 3am got and had tea and read a book for 1 hour then went back to bed. Having a pj day. It's pouring of rain here so best place to be
Tried the cold cap and yes you forgot it's there eventually, but my forehead felt cold inside but warm to touch sounds strange i know during the night. Took painkillers which seemed to help.
This is a stupid question i know but here goes, when using conditioner wiht the cold cap do you just put it on the surface hair or rub it in like you would when washing it.

Hugs to all xx

Re: Starting Chemo November 2012

Dear Kerry 1981 and ladies,

loss of hair with little kids. Mine 5 and 3 yrs didn't bat an eye. It shows that your identity for them has nothin to do with your hair. Another forum member told me her son thought she wouldn't be his mummy any more if she didn't have hair so watch out for unexpected connections that little ones make. In general little ones are a great motivation and love you regardless.

good luck ladies Ask for What you Need.
Clare

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Re: Starting Chemo November 2012

col i love it, you should write them down and have a little book made up, im sure others would love to hear your ditties while going on this journey. you make everybody smile. xxxxxx
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Re: Starting Chemo November 2012

col123 that really did make me laugh out loud hahahaha , keep them coming

big hugs xxxx
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Re: Starting Chemo November 2012

Morning all sparklers!

Shazza & curlytop - glad the new boobies are fitting in well. Have you given them names?

Lucy - eek about the hair situation! I know what you mean about getting it cut but I've got a wig thats long like my own and I think going long and then short and then long again seems odd but I really dont know how just shaving it all off will feel either. Just dont feel prepared for the hair thing. Everybody keeps saying its a small price to pay to get better etc and I'll deal with it - theres no choice - but it still makes me feel really sad. As shazza said, its a girl thing. Well done for biting the bullet!

slm - I admire your approach my girl - i wish i was as strongminded as you are at the minute.

I went to a look good feel better session yesterday and it was great! You get a goodie bag with alll sorts of skin care and makeup in it to take home. Quite a treat!

Like Lucy I was awake again in the night - I dont stop the steroids til Sunday!! aaarrrgghh. And you know what I do in the middle of the night dont you?????? I was thinking how much I keep going onto my other half and friends about this bc lark and thought I must be getting on their nerves ( not that they'd actually say it so I thought I'd say it for them!)........

I know a sparkler and she's all of a glitter,
But if she takes her temperature once more I might just have to hit her,
She used to juggle it all and live upon her wits,
But now she just has this strange obsession with her tits.

Since her diagnosis and confirmation of the dreaded C,
She talks a whole new language and it's double dutch to me,
She goes on about infection and avoiding people with the flu,
And has a seriously unhealthy interest in the texture of her poo!

I know it's only temporary and we'll get her back one day,
And if it helps her to cope then it's a small price to pay,
But if she tells me once again that she's had another flush,
I'll be forced to get her steroids and shove them up her tush!

Keep sparkling! col xxx
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Re: Starting Chemo November 2012

Morning all sparklers!

Shazza & curlytop - glad the new boobies are fitting in well. Have you given them names?

Lucy - eek about the hair situation! I know what you mean about getting it cut but I've got a wig thats long like my own and I think going long and then short and then long again seems odd but I really dont know how just shaving it all off will feel either. Just dont feel prepared for the hair thing. Everybody keeps saying its a small price to pay to get better etc and I'll deal with it - theres no choice - but it still makes me feel really sad. As shazza said, its a girl thing. Well done for biting the bullet!

slm - I admire your approach my girl - i wish i was as strongminded as you are at the minute.

I went to a look good feel better session yesterday and it was great! You get a goodie bag with alll sorts of skin care and makeup in it to take home. Quite a treat!

Like Lucy I was awake again in the night - I dont stop the steroids til Sunday!! aaarrrgghh. And you know what I do in the middle of the night dont you?????? I was thinking how much I keep going onto my other half and friends about this bc lark and thought I must be getting on their nerves ( not that they'd actually say it so I thought I'd say it for them!)........
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Re: Starting Chemo November 2012

Morning! Another 2am wake up!

yestetday, after the gym I showered and went I put the brush through my hair, a massive clump came out. I had long hair which I cut to a bob. there was no way I could dry my hair or touch it, so went to hairdressers to get it shaved.

They just cut it very short and even though if I touch it it still falls out this is much less traumatic than the longer hair in my hands. By the end of yesterday I had a bald patch at the front of my head so I need to now go back and shave off completely. It's such a personal thing but to those wondering about cutting hair or not - the shorter you go the more you get used to seeing yourself like that and hairloss is less traumatic.. It's still hard don't get me wrong!

this is starting to feel real now. I am on day 15. next treatment Wednesday and dreading it.
otherwise, still no side effects since first week of trauma.

keep strong sparklers, this is going to be a white knuckle ride!

xxxxxxxx

Re: Starting Chemo November 2012

Evening sparklers,

Oh my god Curlytop, never even thought about that, thanks for the tip about weight watchers Wont be able to use it as an excuse every week though!

Yvonne, its not silly, I was terrified before I went for my first chemo. Its really just fear of the unknown. But in the words of the book 'Feal the Fear and Do It Anyway'. Glad all went well for you, just relax and take it easy for a couple of days, thats what I did.

SLM, hope I'm as brave as you and can shave it before it gets too bad. Really not looking forward to that bit. Its a girl thing.

Keep strong and carry on sparkling!

Shazza
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Re: Starting Chemo November 2012

Hi sparklers
I saw Bernie on itv back in October and again this morning she is so brave & an inspiration and so are all of us, we are all on our journey together. We need to find all our inner strength, support each as we are doing now, we are sparklers & we are brave!
Thank you everyone of you, reading about your experiences gets me through the day.
A big hug to you all 🙂 x
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Re: Starting Chemo November 2012

Hi my sparklers,
Curlytop I hope your first session went ok I had mine today wasn't at all bad as I thought ok the freezer cap wasn't nice but it felt like heaven when they took it off.
Thank you for all the support and I hope I don't get too many side effects but got my headscarf sorted in case. I have a bone scan on the 30th nov and a couple of CT scans on the 4th dec and my next chemo is the 12th of dec.
I feel worn out so going to get some rest I wish you all a goodnight and I hope we all have a good week,
Stay strongxx
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Re: Starting Chemo November 2012

hi SLM, where in cheshire are you i live just outside of chester, little village called penymynydd. how near are you to me ? hugs hun and stay positive bernie nolan is still positive was watching her on morning tv.
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Re: Starting Chemo November 2012

Hi sparklers,
day 13 for me today , been feeling good about my self , shaved my head yesterday as did not want to see it fall and my head seamed very sensitive , quite liberating really , already got a wig and had been out in it when I had hair , had to go and get it refitted today and the woman is fab , she got her needle and cotton and out and made it fit , (I do love my wig look , I don't mind my egg head look as well ) don't think I'm brave enough to go out like that , plus its blooming cold ,
just been reading the newspaper on line and read about the Nolan who's cancer has come back , it's knocked me a bit again , I was doing really well and I have been mega positive even with every thing ihave been through with this diagnosis.
Just needed some virtual positive ness , itv any of you can spare it
p.s I'm in Cheshire , xxxx

Re: Starting Chemo November 2012

Hi Sparklers. Like you Yvonne62 bit nervous for my first chemo tomorrow. Hoping side effects are not to bad.
Got my wig and headgear sorted and hair cut short so let's get on with it.
Shazzaboro had my prothesis fitted yesterday feels good but strange to have boobie that doesn't want to go under my chin! I was surprised how heavy it was must remember to take it out if I ever go to weight watchers again!

All the best to all of you
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Re: Starting Chemo November 2012

Day 13I had a restless night sleep but feel ok today, relaxing and watching tv.
Good luck to everyone who is having treatment in the next couple of days
Yvonne fellow sparkler keep your chin up you can do this, we are all here for you no matter how you feel we will listen and send all our best wishes your way. All the luck in the world is sent your way from me and everyone x J
Shazzaboro I am so happy for you, look in the mirror with pride and smile hun x
Stellanbraska we will be there for you we are all on our journeys together and supporting you and everyone every step of the way. Stay strong
Jellymould you go girl good luck with the shopping and the wigs sound perfect and wil look amazing in the photographs. Did you manage to get your tree decorated and lights sparkling? If you did enjoy
Pascal how are things going, I hope you are comfortable and not suffering many SEs.
CK, Susann, Lucypenny and Col big hugs and I hope you are having a peaceful and restful day x
Dealbeach we should all plan when we can for Christmas if that is what we decide it is what we want to do, enjoy the preparations, rest ourselves and everything else is a bonus. x
Santas little helper welcome, we are all here to share our experiences and support each other the very best we can, we are all on a similar journey, we will listen when you need us. I send you a big hug x

Re: Starting Chemo November 2012

Hi sparklers,
Can't believe how much of a difference a bit of weight in my bra has made. The new boobie is a success! Nearly passed out when I saw the box, it seemed huge. When I opened it there was a cute little hat box size case inside, which held theprothesis. When I picked it up it felt fairly light and popping it in my bra I was surprised how comfy it was. The big difference was apparent when I got dressed and looked at my silhoutte. They are in the same place again! As a bonus, it doesn't try to crawl out of the top of my bra either, even when I move. I've spent the last couple of months 'adjusting' myself everytime I moved and pushing the softie back down into my bra. Just have to remember to stop now, or I will be getting arrested

Finished all my pills and potions now but still got some anti nausea, back up, tablets if I need them. Side effects are still mild so I'm not complaining. Been out shopping for an hour today and going to spend the rest of the day pottering around in the house. Hope everyone else is as well as possible.

Keep strong and carry on sparkling!

Shazza
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Re: Starting Chemo November 2012

Hi my fellow sparklers Hope you all had a good weekend.
Wow so scared at the moment and I know it is silly because of all your tips and comments I kinda know what to expect but not looking forward to my first chemo on wednesday. I have just ordered my first head scarf to be on the safe side but still haven't had the courage to cut my hair short yet,
I really enjoyed the poem and I hope we all have a good week without too many side effects 🙂
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Re: Starting Chemo November 2012

Morning Sparklers
Just checking in to see how everyones doing, Yesterday was a rubbish day for me. I went for a CT scan yesterday and had an absolutely rubbish nurse who proceeded to tell me how rubbish the Oncology Deptment was and how she was going to sue them after her reconstuction on the 14th !!!she then messed up my canula so that I was left looking like a drug addict. This would be ok but tomorrow I have to have more bloods taken for my next preasessment, so ive been left with an extremely painful and bruised arm great !!
Anyway thats my gripe over!
Col123 I,m the same as you having my surgery in the new year followed by more chemo so your not alone when the others have finished I,m still gonna be doing it to
Jellymould make sure you post some pictures of your red wig
Welcome Santas little helper Its not as bad as you think were all here for you Its doable honest
Susann thanks for the nail tip mine feel really dry and brittle
Hope all you other sparklers are hanging in there sending you all lots of love and hugs
Stella xx
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Re: Starting Chemo November 2012

Morning all and welcome to new sparklers! Hope we can help you through this awful time together. Glad to hear others SE's aren't too bad. Lucy i am up in the night too bet about 2-4/5am but I'm still on steroids. I feel for you - it drags doesn't it. Work bought me a kindle so i end up sending messages to friends to keep me occupied! The only thing I'd say about the c drug is that i was told it was the stronger one for making you sick. I've read a lot more about anti sicknrss drugs this erek dince I had my nightmare reaction to 1st fec. All the advice seems to point to asking for Aprepitant (brand name Emend) as it has better results but is often not prescribed because of the cost. It's top of my list for my appointment with onc next week as there's no way I'm going through shat I did next time if there's any chance of avoiding it. It's up to you but I'd ask about it especially if you were sick without c drug last time.

Mummybear - am so pleased about your ulsers - im dreading that happening. I'm already waking up in the night with my tongue stuck to the top of my mouth and have to prise it off! ulsers are yuk.

yvonne - i cant help with the question as I'm doing chemo first with surgery to follow next year. I hope someone else can help you here.

cybele - I know what you mean about empathy. I do find it really annoying when people in our position aren't always treated very well. Personally, I've got a brilliant team but I know lots of women who are not getting the informstion or care that they need.

shazza - how's the new boob m'dear? not walking with a limp any more?

jellymould - i think thats a good plan. I know what you mean about pics without cancer all over them. Photos are funny things. I find it hard looking at our happy summer holiday snaps at the moment because I look my myself all smiley and think 'you had cancer then but you just didn't know it'. Anyway, we had a nice time so best to think of that than being all miserable. It's stil difficult at times though.

I'm going on a look good feel better session at Maggies centre today and heard good things so am looking forward to it.

Good luck to anyone with appointments today. Hope everyone has a good day despite the weather!

Love, Col xxx
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Re: Starting Chemo November 2012

morning sparklers, going shopping today for a new dress for my daughter, as we have a wedding on sat. was gonna be outrageous and go with the red wig but i really want some nice family photos that doesn;t have cancer written all over them so might go with my nhs wig in the day and go red for the evening do. hope everyone has a good day. hugs xxx
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Re: Starting Chemo November 2012

welcome to new sparklers! Ask questions and find support here- this forum has made me feel like I am part of a special family and hope it does the same for you all.

agree a meet up would be great, in Surrey/London but can travel anywhere.
i am on day 14 now and feeling great still- since Thursday I have more or less felt completely 'normal'. I currently have no s/e's whatsoever apart from hair now falling quite a lot- think it will be gone in next few days. jelly- I am going for a scotch egg hair cut on Thursday. Also can eat and drink everything and put back on the weight I lost in first few days.
i am wondering if I have been ok as I didn't have the 'c' drug when I had my treatment. I was rough as an old boot for the first week but have since been fine. soo next treatment may not be as easy as I will have this 'c' drug too.
i am not on any meds but waking up at 2am.. Like now! Not sure why this is but hope it sorts itself out soon - nights awake are lonely and boring!
So by the end of this month we will all have been through our first treatment, some of us 2. My next treatment is 28 nov. We are now all on our journey... I am calling mine 'my gap year'!
sending all my love and support you everyone. keep sparkling
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Re: Starting Chemo November 2012

Good afternoon sparklers,
day 12 my mouth ulcers are almost cleared up!! called my emailed my friends about my hair falling out yesterday, once came within minutes, hugs and coffee helped so much.
I would love to meet up for a weekend in the summer, yes pink carnations, pink sparklers and pink champagne would be in order I think don't you.
I live in Northamptonshire so I am in the middle of the country, but can travel to meet.
keep sparkling x
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Re: Starting Chemo November 2012

hi santas little helper, it is all scary before you go for your 1st one, but you know what its not as bad as it seems, i was fine, just make sure you drink plenty of water before, during and after take all the anti sickness meds. you will feel a bit run down and tired and feel some nausea but it only lasts a few days at most, we are all here for support and to help you through it but you know what the sooner you start the sooner it will be over and you will wonder what you waited for. hugs for you, you are brave too. xxx
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Re: Starting Chemo November 2012

Hi - at the risk of sounding very pathetic. I would love to be a sparkler - but keep putting off chemo due to a previous trauma. any words of inspiration, brave, brave, sparkling ladies?

Re: Starting Chemo November 2012

Love the poems, keep them coming!
Feeling good about this first round of FEC as now on day 15 and still feel so much better than I expected, although scalp clearly aware somethings not right!
It's going to be so difficult for us sparklers to plan Christmas as we just don't know how we'll feel, I'm going to get started sooner than usual (I normally refuse to do anything til 2 weeks before) so that things are in place and I can just join in as and when I feel up to it. Fortunately my little lass is now 24 so will be fine if we have to delay by a day or so,and I think she quite fancies being in charge of the kitchen anyway. I really feel for those of you with younger kids - still as long as we are here and healthy this time next year, it will be worth it.

Re: Starting Chemo November 2012

I'm from Cumbria but summer sounds good to me xxx
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Re: Starting Chemo November 2012

im from north wales but willing to travel for a get together, would be nice to get away for a weekend and meet all you lovely ladies. xxx And col cant wait for your next brainwave ditty. lol
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Re: Starting Chemo November 2012

Hi all

I'm defo up for a meet up - that'd be lovely. I'm doing chemo first, then probably mx, rads and then Tamoxifen so summertime sounds good to me. Seems such a long way off though. I wondered where everybody lived. I'm in oxford if there's anyone that way, we could meet up sooner?

Managed to get out of the house today and drive - hurray! I thought hat shopping but by the time I got there, I was knackered so pootled about and then drove home!! It's all relative though and after bring so sick all week, I feel I've achieved something today. I might start thinking of Xmas coming early and getting the sparkly stuff out earlier aka jellymould as I've got a chemo on xmss eve - how rubbish is that! I've got a 5 year old whose xmas I don't want to spoil. Hopefully, it'll be ok.

Good to hear how everybody is.

Take care. Love, Col xxx

p.s. jellymould - i'm banking the ditties/titties with onc and bonk for now so thanks for that. Will come up with something!
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Re: Starting Chemo November 2012

Thanks Jellymould, I hope we can fix something. Although I know this is all about us and our feelings, thoughts, emotions, battles with treatment that we all share in common, I would not exclude partners from a social event as they are very much in it with us and play such a vital part in holding us together at times.
In the meantime cheers to the Sparklers wherever you are.
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Re: Starting Chemo November 2012

hi susan its a great idea to meet up and i would love to meet you all as we get to the end of our chemo roller coaster. ive noticed today on day 13 my hair is starting to shed a little, really itchy so i expect to be completly bald in the next few days. lol we will all have to wear a pink carnation so we know who we are meeting up with. sparkly hugs everyone xxx
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Re: Starting Chemo November 2012

Hi one and all. What a difference a few days make, I must admit I have lost track somewhat except I know this is day 13 for me and for the last 4 or 5 days I have felt more or less normal. Whether this is the pattern I don't know, as the doctors and nurses all tend to say that each person is affected differently. Just to re-cap on my experience so far, I found the first couple of days immediately after chemo to be OK until day 5 when the cumulative effect of insomnia, constipation and not much food, resulted in me fainting in a cold sweat. The SRU at the hospital told my husband to bring me in, fortunately all the tests they ran were normal, even though I had a second faint whilst being wheeled back from chest Xray. The benefit of the hospital stay was at least I came home with a supply of laxatives - lactulose and senna.
Fortunately I have not been sick or felt sick, the insomnia was the worst. Keeping hydrated is key, and all manner of fluids count according to the hospital, so it doesn't have to be water all the time. The other aspect I found alarming but thankfully it has passed, was the brain fog, the spaced out as though I had been lobotomised, staring blankly at the ceiling feeling. During that period I became the woman in a dressing-gown with an erratic sleep pattern.
Sunday we went for an autumn walk in the country air, but decided to forego a pub lunch due to infection risk being high till middle of next week.
One tip to pass on, apparently there is a chance you can lose your nails on chemo, but I heard of a lady who retained hers by using Rimmel Rescue Nails. I have got some just in case, and at only £4.99 it's worth a try.
Christmas is a coming, and it has meaning and importance in different measures for our November group. Those with children in particular I feel for. Our usual routine is our small family come to us, but as I have a 3rd chemo round potentially on December 20th, I have decided Christmas is a write off this year, including my husband's birthday on New Years Eve. We had our names down for a black tie do but of course it is during the time I have to avoid crowds in enclosed spaces. At least by December I should be half way through with the light at the end of the chemo tunnel getting larger.
This morning I have ordered a new tumble dryer, which proves I am compus mentus, couldn't have done that last week. For the readers amongst us, in this situation you can find you become one - I have just finished A Street Cat Named Bob, I found it to be a wonderfully uplifting story, although it made me cry a few times, it is a good read.
On the hair front, I am a cold capper, no losses, no scalp itch or tingle. On the evening of the faint, I washed my hair in Simple shampoo and rough dried with hairdryer and also used heated styler, without any ill-effect. Have washed it a second time using a regular shampoo and styled in same way with the same result. I am expecting after the second cycle I will have to be more careful. I go tomorrow to try the wig I ordered, I want it styled as close to my own hair as possible, so I have it on standby for the future.
So that's all folks for now. Just one thought has struck me, I noted one of the other groups arranged a get together post chemo, and wondered what you all thought about us doing something similar next year. It would be spring or summer, the dark, grey winter days behind us, we may even feel regenerated, hopeful, dare I say happy? I realise we are probably spread far and wide but thought I would pose the question for the future, as I for one prefer to look ahead and beyond.
I hope everyone is finding their own way through this mire, embrace the good days and survive the bad days.
Lots of love, Susann

Re: Starting Chemo November 2012

Hi sparklers,
Day six. Thrush seems to be easing off but had a bit of an emotional blip last night and ended up crying myself to sleep. Hope it was just the steroids wearing off, I'm exhausted. Feeling a bit better today after a good sleep. Got physio this afternoon so that should distract me and a bit of light exercise will help too. Arm is feeling a bit tender today so probably need it too.
I've been waiting weeks for my prothesis to come into the hospital and can finally pick it up today. Yay! Hopefully a bit of weight in my bra will help me feel less off balance.
Keep strong and carry on sparkling!

Shazza x

Re: Starting Chemo November 2012

I've just had an idea of real genius.
It should become mandatory for all oncologists to undergo a short course of chemotherapy as part of their training.
I think that would help them all IMMENSELY with the whole empathy thing.
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Re: Starting Chemo November 2012

oh col, my husband thinks your nuts, your ditties are so funny lol and yes i did say ditties and not titties. xx
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Re: Starting Chemo November 2012

col your poem was so funny it made me giggle out loud thank you x
newstart we are here for you when you are ready to share or need us to listen take care of yourself, stay strong and sparkle x
nite nite everyone and good luck you all who have appointments in the next couple of days, sweet dreams to you all x
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Re: Starting Chemo November 2012

Ok this sounds like a daft question even for me but any tips would be great! It has been nearly 4 weeks since I had my op and I had under my arm drained last week but it has come back but the fluid build up that is really getting uncomfortable is my breast I don't feel it can strech much more besides exercise and massage is ther any thing else I can do to relieve the pressure ?
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Re: Starting Chemo November 2012

Ha ha love it!!

Re: Starting Chemo November 2012

Night all
Keep them ditties coming Col
xxx
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Re: Starting Chemo November 2012

Hi all

My week seems to have been dominated by toiletry issues (I know I can safely share that with you all as we're all in the same boat) so I put another daft ditty together to try and smile about it (I did forwarn you that I'd carry on!).

Sparklers, sparklers all burning so bright,
I just went to the loo and got quite a fright,
Those naughty wind pixies had been dancing a jig,
With such an effect it nearly blew off my wig!!


Nite all and good luck to anyone tomorow with appointments, etc.

Love, Col xx
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Re: Starting Chemo November 2012

It's nearly time for my second dose of FEC on Friday! I found with the first cycle I had 5 rotten days of sickness and fatigue but I got steadily back to my old self. Day 15 scalp so tender it woke me up in the night and there are sprinkles of hair on the pillow now. I got a mobile hairdresser to cut it all really short and I am wearing turbans around the house. Sore lips too, splitting nails but energy levels not bad at all now. Then it will all start up again!!

Re: Starting Chemo November 2012

Hi Everyone
I have just come downstairs after another sleep, switched on the laptop and mummybear you have made me feel so much better - thank you x
Today is day 5 for me and I have slept most of it. Also feeling a bit sick but have taken one of the stronger anti sickness pills and hopefully that will sort me out.
Jellymould - Christmas decorations, great idea. I work in a school and I sorted out all the Christmas card making before I went off so I don't think it's too early. Do it when you feel like it because you might not again for a while and nothing cheers you up quite like sparkly Christmas decorations!
Starting to feel better already - must be the thought of putting up my decs. Wonder where they are ...

Lots of love
xxx
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Re: Starting Chemo November 2012

Hi Mummybear,
I have been reading the thread but I suppose for a while I have been trying to bury my head in the sand and pretend that it isn't really happening, but D-day is rapidly approaching. I've had my MUGA scan and thats all good so appointment with onc on wednesday for last run through and bag of tablets, herceptin on thursday then my 1st chemo (taxotere + caboplantin) on friday. I am going to give the cold cap a whirl, I would just like to get through christmas looking a little normal.
Feeling very nervous but it's probably more so the fear of the unknown. I am so sorry to hear some of you are suffering with SE's but I was impressed with Jellymould's zumba.
I will post a bit more often but I have to say just reading everyone's posts is keeping me sane xx
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Re: Starting Chemo November 2012

Thanks mummybear45, a big hug is just what the doctor ordered! Hair coming out more today, have got to stop fiddling with it. Appointment with oncologist tomorrow to see if all go for FEC-T #2 on Friday. Fingers crossed no issues.
Am trying to build up courage to go to work for a few days this week.

Hope everyone else is OK today.
Love & hugs to all, Keep sparkling xxx