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Hi Sparklers
Been for 2nd cycle today. Only took 3 attempts to get cannula in so getting better!
Feel ok so far but not eaten anything yet. Was very cold and icy today so was wrapped up well today, plenty of layers and 2 pair of socks. Even wore a hat due to thinning hair!
Sorry to hear you have been so poorly CK, hope you are soon feeling better x
Supersusan, mine started coming out about 2 weeks after first session. I've still got a good covering but can't do anything with it. Thinking of getting it cut/shaved later today. Not had any real pain with it but did wake up last night with a weird feeling on my head and pillow was covered in hair this morning for first time. I asked the Onc about effects building up as cycles progress and she told me that if I tolerated the first one well the rest will be very similar. The main increase is in tiredness and fatigue apparently [and presumably picking up bugs etc]. My next cycle is 27th December so I'm going to enjoy Xmas and hibernate at new year! At least I will be half way through by then x
Mags, glad you seem to be doing ok and getting out and about x
Col123, I've got the Red Sea parting too and its starting to bother me. Rest of it is stuck up all over the place. I look like a mad woman, feel like it sometimes too lol Seeing my niece the hairdresser this afty so will get it really cropped or maybe a number 4. I expect to feel emotional once its done and will probably have a good cry, but as I keep getting told it will grow back [bet I hate it when it does too, probably be grey and tight curls so it looks like an old fashioned granny perm!] Hope you feel better about it soon. And I certainly wasn;t snazzy this morning with all my layers, felt like a trussed up turkey! x
Stellanbraska, I'm hitting the water as we speak, started yesterday and will make a big effort over next few days too. Sorry its got you but hope you feel better soon x
Deeh, I've not had any incontinence problems as such but there have been a few times when I've only made it by the skin of my teeth, for both bits. With all the water, etc I'm drinking today I'm keeping within arms reach of the loo! Might be worth mentioning to the nurse, just to be on the safe side in case its the start of an infection. I'm also trying to look on the bright side of all these side effects, saving money on shampoo, conditioner, razors, etc. Take care x
Glad you are feeling better Jellymould, can't believe how cold it is today. Thank god I have a good excuse to snuggle up on the settee and watch xmas films with the xmas lights on
x
Hope everyone else is feeling as well as can be expected x
Keep strong and carry on sparkling!
Shazza xx
Been for 2nd cycle today. Only took 3 attempts to get cannula in so getting better!
Feel ok so far but not eaten anything yet. Was very cold and icy today so was wrapped up well today, plenty of layers and 2 pair of socks. Even wore a hat due to thinning hair!
Sorry to hear you have been so poorly CK, hope you are soon feeling better x
Supersusan, mine started coming out about 2 weeks after first session. I've still got a good covering but can't do anything with it. Thinking of getting it cut/shaved later today. Not had any real pain with it but did wake up last night with a weird feeling on my head and pillow was covered in hair this morning for first time. I asked the Onc about effects building up as cycles progress and she told me that if I tolerated the first one well the rest will be very similar. The main increase is in tiredness and fatigue apparently [and presumably picking up bugs etc]. My next cycle is 27th December so I'm going to enjoy Xmas and hibernate at new year! At least I will be half way through by then x
Mags, glad you seem to be doing ok and getting out and about x
Col123, I've got the Red Sea parting too and its starting to bother me. Rest of it is stuck up all over the place. I look like a mad woman, feel like it sometimes too lol Seeing my niece the hairdresser this afty so will get it really cropped or maybe a number 4. I expect to feel emotional once its done and will probably have a good cry, but as I keep getting told it will grow back [bet I hate it when it does too, probably be grey and tight curls so it looks like an old fashioned granny perm!] Hope you feel better about it soon. And I certainly wasn;t snazzy this morning with all my layers, felt like a trussed up turkey! x
Stellanbraska, I'm hitting the water as we speak, started yesterday and will make a big effort over next few days too. Sorry its got you but hope you feel better soon x
Deeh, I've not had any incontinence problems as such but there have been a few times when I've only made it by the skin of my teeth, for both bits. With all the water, etc I'm drinking today I'm keeping within arms reach of the loo! Might be worth mentioning to the nurse, just to be on the safe side in case its the start of an infection. I'm also trying to look on the bright side of all these side effects, saving money on shampoo, conditioner, razors, etc. Take care x
Glad you are feeling better Jellymould, can't believe how cold it is today. Thank god I have a good excuse to snuggle up on the settee and watch xmas films with the xmas lights on
xHope everyone else is feeling as well as can be expected x
Keep strong and carry on sparkling!
Shazza xx
hi sparklers
been up since 6.00 am, woke with headache again.
embarrasing question time!!!!!!! has anyone suffered incontinence or heard of anyone who has while having chemo?? i woke at 6.00 with wet pj bottoms, was so shocked and upset. do you think i should report it to chemo nurses or wait see if it happens again?
col - i was goin to get my head shaved yesterday but son couldnt make it with clippers. ive got strands all over - OH calls it a bobby charlton comb over
. sometimes feel like im the only person who doesnt have a problem with losing my hair - i look on the bright side, one less thing to worry about each day, shower, head washed and dried - sorted, just put hat, scarf,wig or whatever on. wish the hairs on my legs would hurry up and disappear, keep putting off shaving them in the hope they will drop out - had body scrub and scrunchie on them and they are still there - every day i try pulling them out but they are in for the long haul i think
Anyway fellow sparklers i know we are all different, and i understand it can be traumatic and upsetting for some of you, but hope my take on it puts a little smile on your faces xxx
hoping you all have a good day today and hoping you all feel better
love and hugs dee xxxx,
been up since 6.00 am, woke with headache again.
embarrasing question time!!!!!!! has anyone suffered incontinence or heard of anyone who has while having chemo?? i woke at 6.00 with wet pj bottoms, was so shocked and upset. do you think i should report it to chemo nurses or wait see if it happens again?
col - i was goin to get my head shaved yesterday but son couldnt make it with clippers. ive got strands all over - OH calls it a bobby charlton comb over
. sometimes feel like im the only person who doesnt have a problem with losing my hair - i look on the bright side, one less thing to worry about each day, shower, head washed and dried - sorted, just put hat, scarf,wig or whatever on. wish the hairs on my legs would hurry up and disappear, keep putting off shaving them in the hope they will drop out - had body scrub and scrunchie on them and they are still there - every day i try pulling them out but they are in for the long haul i think Anyway fellow sparklers i know we are all different, and i understand it can be traumatic and upsetting for some of you, but hope my take on it puts a little smile on your faces xxx
hoping you all have a good day today and hoping you all feel better
love and hugs dee xxxx,
hi supersusan,
my hair started to come out two weeks to the day after my first treatment. that was last tuesday while i was in hospital. had to hoover pillows a couple of times over weekend. went in shower yesterday and most of it came out then - took ages to clean bathroom
. my son bringing clippers tonight to get rid of the last bits.
CK - you make sure you phone helpline whenever u worried thats what they there for. do you take your temp everyday?
im surprised how well im feeling today - waiting for that proverbial bus to come and hit me
take care xxx
my hair started to come out two weeks to the day after my first treatment. that was last tuesday while i was in hospital. had to hoover pillows a couple of times over weekend. went in shower yesterday and most of it came out then - took ages to clean bathroom
. my son bringing clippers tonight to get rid of the last bits.CK - you make sure you phone helpline whenever u worried thats what they there for. do you take your temp everyday?
im surprised how well im feeling today - waiting for that proverbial bus to come and hit me
take care xxx
hi ck1
oh god i feel for you - i had exactly the same many years ago and that was bad enough so can just imagine what it was like on top of chemo. hope you feeling better now. i read what you said about gp giving you throat spray and ive also read what others have said about gp's. where i live and get treatment we have phone numbers for the oncology ward and can contact them 24hrs a day for advice - no need to go to gp. when i had a temp and sore throat last week i phoned them and they got me admitted that night. dont you have the same where you live?
i had my second treatment yesterday - not too bad at moment
all the best xxx
oh god i feel for you - i had exactly the same many years ago and that was bad enough so can just imagine what it was like on top of chemo. hope you feeling better now. i read what you said about gp giving you throat spray and ive also read what others have said about gp's. where i live and get treatment we have phone numbers for the oncology ward and can contact them 24hrs a day for advice - no need to go to gp. when i had a temp and sore throat last week i phoned them and they got me admitted that night. dont you have the same where you live?
i had my second treatment yesterday - not too bad at moment
all the best xxx
just got back from hospital - feeling ok at the moment but know it wont last. had a shower before i went and most of my hair came out, i was covered all over in wet hair, not a good look and it took ages to clean the bath!!! Still its gone now so thats one less thing i have to do now
after the nightmare of the hospital - they were actually running on time but that didnt help me cos had to have anti sickness pill 1 hour before so put my session back by an hour, then 3 attempts to get cannula inserted (not impressed) then nurse announced she hadnt checked my blood results!! Good job they were ok or i think i may have inflicted harm on her - anyway got home to find a letter telling me my claim for ESA gone through and backdated to the day i was diagnosed in Sept, so christmas is back on again - so relieved!!!!
Shazza - i was really impressed with the staff at M&S, they even fitted me in without an appointment, to be fair i didnt actually look at the range, they brought some in for me to try on and the second one i tried on i liked, i just wanted a couple that were comfy to get me over xmas and new year - next year i'll be looking round for something more sexy my next treatment is also due on 27th - should have been xmas day but been put off for two days. as long as all goes well this time at least i will be well for xmas, not really bothered about New Year - for the past 3 years i worked New years day starting at 6am so havent bothered with new year always been in bed for 10 o clock so wont notice the difference this year maybe just feel poorly.
All the best for the next few days to all fellow sparklers xxxxxx
after the nightmare of the hospital - they were actually running on time but that didnt help me cos had to have anti sickness pill 1 hour before so put my session back by an hour, then 3 attempts to get cannula inserted (not impressed) then nurse announced she hadnt checked my blood results!! Good job they were ok or i think i may have inflicted harm on her - anyway got home to find a letter telling me my claim for ESA gone through and backdated to the day i was diagnosed in Sept, so christmas is back on again - so relieved!!!!
Shazza - i was really impressed with the staff at M&S, they even fitted me in without an appointment, to be fair i didnt actually look at the range, they brought some in for me to try on and the second one i tried on i liked, i just wanted a couple that were comfy to get me over xmas and new year - next year i'll be looking round for something more sexy
my next treatment is also due on 27th - should have been xmas day but been put off for two days. as long as all goes well this time at least i will be well for xmas, not really bothered about New Year - for the past 3 years i worked New years day starting at 6am so havent bothered with new year always been in bed for 10 o clock so wont notice the difference this year maybe just feel poorly.All the best for the next few days to all fellow sparklers xxxxxx
Hi all,
I'm still in the middle of my 'good' week. Put xmas decs up at weekend and been out for xmas dinner today!
Col123, loved the ditty, thats the sort of luck I would have after a night out! I've just requested an appointment with the plastic surgeon as I know there is a waiting list and I think I will need to lose some weight before they will do anything. I just wanted time to consider options and decide what is best for me, as well as find out what I need to do to prepare. Appointment has come through for the end of January. If I'd waited till after chemo it would just knock everything on by 3 months. Just hope I dont have to lose too much weight as the chemo doesn't seem to have effected my taste buds yet
Mags, glad you are feeling better and getting the fluids up. Keep it going! I'm back on the bottled water ready for Thursday. If I use these I can keep a check on the amount of fluid I am drinking on top of normal coffees and soft drinks.
Lucypenney, com problems must be part and parcel of this merry go round and I'm with you on taking personal responsibility and being proactive. Don't think I'm the most popular patient at my breast clinic too. The way I see it is I don't know what I don't know so I've read a lot of the leaflets on here and asked lots of questions lol I've also spent the last two weeks trying to get copies of letters my consultants have sent to my GP. I asked to be copied into them at the outset but didn't get them. They are arriving slowly now, just waiting for one last lot.
Deeh, I did know about the VAt free bra's. I found my M and S didn't have a great selection in store. They are better on line and if you order them online you get free postage too. I also found one in Matalan for £8 that doesn't seem to be too bad. It has a lace modesty panel too.
Jellymould, sorry you are feeling so rough. I've got 2nd cycle on Thursday so was wondering if the effects would get worse each time. My 3rd one should be 27th so i might not havre too good a new year. Hope there is something decent on telly!
Keep strong and carry on sparkling everyone!
Shazza xx
I'm still in the middle of my 'good' week. Put xmas decs up at weekend and been out for xmas dinner today!
Col123, loved the ditty, thats the sort of luck I would have after a night out! I've just requested an appointment with the plastic surgeon as I know there is a waiting list and I think I will need to lose some weight before they will do anything. I just wanted time to consider options and decide what is best for me, as well as find out what I need to do to prepare. Appointment has come through for the end of January. If I'd waited till after chemo it would just knock everything on by 3 months. Just hope I dont have to lose too much weight as the chemo doesn't seem to have effected my taste buds yet
Mags, glad you are feeling better and getting the fluids up. Keep it going! I'm back on the bottled water ready for Thursday. If I use these I can keep a check on the amount of fluid I am drinking on top of normal coffees and soft drinks.
Lucypenney, com problems must be part and parcel of this merry go round and I'm with you on taking personal responsibility and being proactive. Don't think I'm the most popular patient at my breast clinic too. The way I see it is I don't know what I don't know so I've read a lot of the leaflets on here and asked lots of questions lol I've also spent the last two weeks trying to get copies of letters my consultants have sent to my GP. I asked to be copied into them at the outset but didn't get them. They are arriving slowly now, just waiting for one last lot.
Deeh, I did know about the VAt free bra's. I found my M and S didn't have a great selection in store. They are better on line and if you order them online you get free postage too. I also found one in Matalan for £8 that doesn't seem to be too bad. It has a lace modesty panel too.
Jellymould, sorry you are feeling so rough. I've got 2nd cycle on Thursday so was wondering if the effects would get worse each time. My 3rd one should be 27th so i might not havre too good a new year. Hope there is something decent on telly!
Keep strong and carry on sparkling everyone!
Shazza xx
Morning all
hope everyone doing ok today?
off for 2nd FEC today and soooo not looking forward to it. More upset this time as i know what to expect (ahhhh ignorance is bliss ). after spending 3 days in hosp last week and still being poorly when i came home i dont feel as if i have had a break.
anyway on a brighter note had a lovely day with my mom yesterday - went to M&S for new bras and the staff there were brilliant so helpful - did you all know that mastectomy bras are VAT free? Also did some xmas shopping for my grandkids and had a nice coffee and scone.
Good Luck to everyone having treatment over the next few days and hope everyone keeps well.
COL123 - loved the ditty
xxxxxxx
hope everyone doing ok today?
off for 2nd FEC today and soooo not looking forward to it. More upset this time as i know what to expect (ahhhh ignorance is bliss ). after spending 3 days in hosp last week and still being poorly when i came home i dont feel as if i have had a break.
anyway on a brighter note had a lovely day with my mom yesterday - went to M&S for new bras and the staff there were brilliant so helpful - did you all know that mastectomy bras are VAT free? Also did some xmas shopping for my grandkids and had a nice coffee and scone.
Good Luck to everyone having treatment over the next few days and hope everyone keeps well.
COL123 - loved the ditty
xxxxxxx
Hi thanks for advice - i was given meds and mouthwash by hospital - touch wood its feeling better this morning. hoping to go and buy my new bras tomorrow - not been able to get there before - and then should be able to start wearing my new prosthesis. next job today is to hoover my pillows - think about half of my remaining hair fell out last night.keep well everyone
