Hi everyone and seasons greetings, not posted for a while as I am mainly marking time to the 3rd cycle next Thursday and the half way mark. Now sporting the same look as a lot of other sparklers, a bristly head. Have resorted to sleeping in a black beanie hat some nights as a cold head wakes me up, my husband said I looked like a bin man, which gave us a reason to laugh at least. Due to the previous pattern, I am expecting to be feeling rubbish by Christmas day and then to pick up by New Year, with cycle 4 looming in January. One consolation as others have said, is to be going through this during the winter months, no scraping the car to get to the office, no icy roads to negotiate, no risk of trekking home through snow and ice.
Christmas cards have been sent, I have ordered a sheepskin cossack hat for now and the future when I have hair again. Booked tickets for next November to see Cirque de Soleil, to treat my mother for her birthday and to mark a year's milestone from chemo. How great that will be to look back on this from 12 months distance.
Last time I posted I mentioned the idea of a meet up, since then the contributors to the November sparklers has continued to grow, no idea how many we number now, and of course we are nationwide. I noticed some were in favour of doing this in the summer next year, so thought I would put in a few suggestions for now:
Location - somewhere central in the country, Birmingham/Cheltenham and surrounding counties - Warks, Worcs?
Venue - a nice hotel, good facilities, because we deserve it
Duration - a one nighter or a weekend?
When - July/August
In the meantime, hope everyone battles through the SEs, avoids hospital admissions, some get to have a Christmas and 2013 dawns with the promise of the end of chemo in sight
Love from Susann