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Starting Chemo after Christmas

27 REPLIES 27
Member

Re: Starting Chemo after Christmas

Thanks guys , I’ve been to my dentist as I read on forums so that’s done , will ring about flu jab , have also bought loads of Claritin as I’ve read that it can help with the bone ache with T ? I read up loads and loads on this forum it’s amazing xx my 7 th grandchild was due on the 18 th but still not here ! Xmas day I think xx I’ve 14 for dinner Xmas day so I’m going to enjoy every moment and try and stop thinking about things if I can xx have a great Xmas all xx
Member

Re: Starting Chemo after Christmas

Thanks Runnerbean for your advice and thanks Shocked  for the hug.  I felt a bit silly crying about having teeth out considering what else is going on but as my daughter said, it probably wasn’t so much about the teeth but just a bit of a vent, which I guess could be true.  Anyhow, onwards and upwards.  I hope you all are able to enjoy your Christmas and you get lots of lovely things from Santa.  I know I am looking forward to mine as our first grandchild is joining us 

Member

Re: Starting Chemo after Christmas

Thanks Runnerbean for your advice and thanks Shocked  for the hug.  I felt a bit silly crying about having teeth out considering what else is going on but as my daughter said, it probably wasn’t so much about the teeth but just a bit of a vent, which I guess could be true.  Anyhow, onwards and upwards.  I hope you all are able to enjoy your Christmas and you get lots of lovely things from Santa.  I know I am looking forward to mine as our first grandchild is joining us 😍

Member

Re: Starting Chemo after Christmas

Hi ladies, I have just popped over from the October thread. Everything you are thinking/ feeling is completely normal. I am 4 rounds in of 6 FEC/T. Everyone has different side effects so it’s hard to say what each of you will get but my biggest piece of advice would be don’t suffer in silence. Your team can always alter your medication to deal with any side effects you get. You will also be given a number you can ring 24 hours a day for advice do don’t be afraid to use it your not bothering them that’s what they are there for. I found the FEC not to bad and even managed to keep working on reduced hours apart from the 1st week when I found I needed to sleep and rest up a lot more than usual. Also although I felt a little nauseous I was never sick so the anti sickness medication worked well for me but if yours doesn’t they can change you to another which should work better for you. I have now switched to Docetaxal which I am finding harder as this causes some bone pain but I control this with painkillers. Also I am more tired than I was but the effects of chemo are cumulative so this is to be expected. If you have any questions pop over to the October thread and the lovely if a little crazy bunch of ladies there will be happy to help. Good luck to all of you xx
Member

Re: Starting Chemo after Christmas

Oh no Dealdoh - thats not nice news I'd have cried too -  big hugs xxxx

Member

Re: Starting Chemo after Christmas

So, at the oncology appt I was advised to have the flu jab and to have a dental check.  Flu jab done - no problem but  to the dentist today and told I have to have three extractions.  I cried more at that than when I was told I had cancer again!!  

Member

Re: Starting Chemo after Christmas

I feel the same peeps...which I guess is reassurung that what we are feeling right now is normal.
It's not even good days and bad days...but a collection of good moments and bad moments.
Finding it hard to get excited about chrimbo. But at least it's a break from appointment as you said
Member

Re: Starting Chemo after Christmas

I know what you mean it’s one long round of appts , got to be done I suppose , I keep thinking I’m doing fine then all of a sudden find myself crying into my cuppa , it’s the unknown I think x
Member

Re: Starting Chemo after Christmas

I’ve just had my date for first appointment with oncology on 3rd Jan I’m also unsure what drugs they will give me - so nervous as I hate anything intravenous  but at least I have next week without any appointments for the first time in a month. 

Member

Re: Starting Chemo after Christmas

Thanks Jen looks like we will be able to compare notes ❤️
Member

Re: Starting Chemo after Christmas

Hey Karen,
I know how you feel. I felt off when I had mine through. But tbh..it was actually ok. My consultant was fab, took everything really slow and explained it all really clearly.
The only downside for me was that she was running an hour behind - way too much time spent in the waiting room looking around at people at various stages of treatment.
I just had my chemo dates through today, and got my heart scan tomorrow - which you may need if your having herceptin like me.
Stay strong babes - we got this
Jen x
Member

Re: Starting Chemo after Christmas

First appt , crazy times xx
I felt sick when it came this morning , everything felt real x
Karen x
Member

Re: Starting Chemo after Christmas

Hey Jamesy46.. is this for your first chemo or first apt with oncology consultant?
Member

Re: Starting Chemo after Christmas

Had my appt today for onco on jan 8 th , what can I expect at first appt
Member

Re: Starting Chemo after Christmas

Hi All,

 

In November I had a double mastectomy and left axillary clearance for bilateral breast cancer with some lymph node involvement.  This is my second time round as I was diagnosed with right breast cancer some 16 years ago for which I had WLE, total axillary clearance (no affected lymph glands) followed by radiotherapy and hormone treatment but luckily no chemo.  

 

Saw the oncologist on Tuesday but not getting away with it this time and will be starting FEC-T, followed by radiotherapy after Christmas.  

 

While I wasn’t looking forward to the surgery, I wasn’t particularly concerned about it and I am recovering well (touch wood).  I am, however, really quite anxious about the chemo.  I appreciate that the side effects affect everyone in different ways and to varying degrees and I know that I have to go through this to get to the other side but I can’t help but be a little afraid.

Member

Re: Starting Chemo after Christmas

It has not been as bad as I feared so my advice is ignore the scare stories. I didn't cut my hair before treatment and using cold cap I have kept 75% of hair. Drink tonnes of water. Ask for sleeping tablets to sleep though steroids which kept me buzzing all night. And laxatives. Invest in hand cream and a good face cream. See if anyone can do some cooking batches for you. Good luck x
Member

Re: Starting Chemo after Christmas

Am the same. Saw the oncologist Thursday and just waiting for my appointments to come through now. Had my mastectomy in November and I am more nervous about he chemo . Have prepared and ordered a wig and some turbans. The strange thing is I had the pen ready to sign the consent before she had printed it off !!!!
Going to relax over Christmas and will be ready and waiting in January
Bring it on !!!
Member

Re: Starting Chemo after Christmas

We can do this crazy times , I just want my appts now so I can crack on x
Member

Re: Starting Chemo after Christmas

Thanks Dramaminx for the awesome tips. It's so hard to know what to expect.
I have seen my oncologist now. I'm having 6 rounds once every 3 weeks of herceptin, Carboplatin and Docetaxel. I then have to continue with herceptin injections once every three weeks for 6 months! Then hormone treatment. All kicking off w/b 8th Jan. Just need thumbs up from surgeon and heart scan first.
Feeling daunted, but not as scared as I was about surgery I must admit.
Considering cold capping - gonna try it for first session and if it's unbearable I don't have to use it again. No harm in trying I guess. Having hair cut into short bob on tuesday.

Here's to a jolly festive Christmas. 2018 - I'm ready for you!
Member

Re: Starting Chemo after Christmas

Thankyou so much for all your tips , I'm still waiting for date with onco , I've had an soot for a bone density scan on 4 Jan but nothing else yet , I feel like I just want to crack on now , like it's an inconvenience x
Member

Re: Starting Chemo after Christmas

Hello ladies, just popping over from the December thread to see if I can help. I have just had my second cycle of an accelerated treatment (every two weeks for each cycle). I had my eyebrows micro bladed before I started treatment so I would have an idea of where they were meant to be when they fell out! I had my long hair cut into a bob. I'll only have it for a couple of weeks but it gets you used to having less hair and also finding out how cold your neck gets! Sort out a wig, some bandanas, turbans, whatever you are going to fancy wearing on your head. Try painting your nails a dark colour as that is meant to protect them during treatment. Get some meals in the freezer or ask for some Cook vouchers or similar for Christmas. I also have a squirt of vitamin D each day, an activia to keep your gut healthy and a spoon of manuka honey to boost immunity. You might want to buy some mouthwash for a dry mouth (biotene I thinks it's called), some bonjela if you get ulcers, a soft toothbrush, sensitive toothpaste...gosh I didn't think there was much but there's loads!

 

Most importantly, try to have a nice Christmas. I found the waiting for results and to start treatment was the worst part. I almost skipped into the hospital on the first day! The treatment is fine, the nurse sits with you while she administers the drugs, you get a cuppa and lunch, there are other women going through it who you can chat with and pick up tips. Rest up for a day or two after treatment as I have found them the worst. Make sure you don't suffer in silence, I was sick for 24 hours after my first treatment and after a change in my anti sickness drugs I haven't been sick this time which made a huge improvement in my recovery after this treatment. Everyone is different, some of you will have bad side effects and others will sail through. Just be kind to yourself, look after yourself, let other people support you and this time next year it'll all be over.

 

Good luck xx

Community Champion

Re: Starting Chemo after Christmas

Well that's good news then xx
Good idea to get your hair cut short.
Just try and enjoy Xmas now and try not to think about it too much (I know that's easier said than done!)
Sue xx
Member

Re: Starting Chemo after Christmas

Well I've been signed off from surgeon , 2 nd WlE did the trick , so waiting for oncology appt now, I've had my eyebrows tattood and have had my long hair cut very short as I know I'm. Not going to cold cap , just a waiting game now x
Community Champion

Re: Starting Chemo after Christmas

It's not silly or vain if that's what helps you. It's about self confidence and getting through it the best way for you. Personally, I didn't lose much of my eyebrows or lashes, so hopefully it won't be too much of a problem for you.

Sue xx

Member

Re: Starting Chemo after Christmas

Hi sue , I'm going to get my eyebrows done tomorrow , perhaps silly or vain to some but it's one way of coping for me , I will be starting my chemo after Xmas , waiting for appts , I have found out so many tips already on this forum and I will definitely be on the January thread , it's so valuable x
Community Champion

Re: Starting Chemo after Christmas

Hi Ladies
Welcome to the forum.
It may be a good idea to read the monthly chemo threads. There are many lovely ladies on there currently going through chemo and share tips and advice along the way. I will start a January thread nearer the time.
At the stage, there is not alot you can do. However, you may want to have a think about how you're going to deal with hair loss. I had long hair, so decided to get it cut short before starting chemo. Also, have a think about whether you would consider a wig or scarves?
If you have any questions, please ask.
Best wishes
Sue xx
Member

Re: Starting Chemo after Christmas

Hi ya , looks like we are going to be on this journey together and can share tips , advice , hope xxx
Love karen x
Member

Starting Chemo after Christmas

Morning Everyone.
Went for my outpatient apt with consultant yesterday after my double mx and implant recon. Thankfully lymphs all clear, but have been referred to oncologist now, and likely chemo will start after Chrimbo.
Any words / tips /guidance you can offer on things I can do in the lead up to my start date? Anything to help me prep my body/mind for what it's up against?
I'm not sure which drugs I'm getting yet - other than I know I will be having good herceptin

Thanks in advance peeps x