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Starting Chemo in February 2014?

TresVan
Member

Re: Starting Chemo in February 2014?

Went by myself to have pic line put in. No problems at all. Little discomfort when local anaesthetic went in, other than that I felt nothing. Tip for those that have a pic line, just ordered some cor flex bandages to go over pic line instead of what they give you in hospital (from Amazon) and there is also a lady that sells covers on eBay - tan, black and white for around £12. Chose some funky colourful ones !! 

 

Jonsi79
Member

Re: Starting Chemo in February 2014?

Hia Vanessa! Welcome to the February group! Sounds like you've had a fast paced few months like me!!! Good though! I start on wednesday - 4 cycles of AC and then 4 cycles of Taxol. Just been to meet some of the nurses and had my pre-chemo blood test. No problem with my veins today - nurse was amazing!! But will probably have a picc line too. Was it ok having that?
Picked up my medication too to take on tuesday.
Ladies I live in Narberth, Pembrokeshire.
xxx
TresVan
Member

Re: Starting Chemo in February 2014?

Hi, my name is Vanessa and I am starting chemo on Tuesday the 4th Feb in Reading area.  Found lump early December, appointment with consultant the19th, results on the 27th and wide local Incision with sentinel node biopsy on the 8th Jan 2014. Results 16th Jan, high grade Invasive mixed ductal and lobular cancer with node involvement. So plan of action is Fec-T for 6 cycles, then lymph node removal, then radio. 

Had Pic line put in yesterday and am planning on having cold cap treatment, but have wig in case it does not work. Good luck everyone, together we can kick Cancers butt!!!!! 

Mariecay
Member

Re: Starting Chemo in February 2014?

Hahaha lowfatlovatt you sound just like me! X
lowfatlovatt
Member

Re: Starting Chemo in February 2014?

Blah blah blah sometimes I wish the hubby had an off switch xxx
lowfatlovatt
Member

Re: Starting Chemo in February 2014?

Hey mariecay, unfortunately the word rest is not in my vocabulary although I keep being told that im going TO HAVE TO let people help me during chemo, The hubby trys his best but he just doesnt do things right (ie, the way I do things) hope your ok
Xxx
Mariecay
Member

Re: Starting Chemo in February 2014?

Hi sue, it's good to off load and this is a really safe and nice place to do just that. X
Mariecay
Member

Re: Starting Chemo in February 2014?

Awww lowfatlovatt I do hope you managed to get a bit of rest today...your bound to be nervous just like we all are. It's the fear of the unknown I suppose x
Mariecay
Member

Re: Starting Chemo in February 2014?

Hi Taylor, thank you for your post...how did you get on with the TAC? X
Sue123
Member

Re: Starting Chemo in February 2014?

Sorry that should read that I had my first chemo on 28th January, Sue x

Sue123
Member

Re: Starting Chemo in February 2014?

Hi all, it's good to be able to share my chemo journey and learn from everyone else. I was diagnosed in December with triple negative IDC, clear margins and no node involvement so was pleased about that but scared as triple neg has higher chance of recurrence. Following my WLE I developed pains in my kidney area and groin and to cut a long story short ended up in hospital where I had a contrast CT scan of my pelvis. I was fortunate enough to see a consultant urologist kidney specialist who assured me all was well and nothing abnormal despite my having microscopic blood still in my wee and continued discomfort. He said he didn't see why I could not have my chemo and discharged me from his care.

I saw my oncologist who had not seen this scan but appeared unconcerned after hearing my story and advised I continue with first chemo which I had on 28th Feb. I had epirubicin and all good in that no vomiting or nausea thanks to the anti sickness meds.

The groin discomfort has continued so I rung the chemo triage nurse today who said she will speak to my oncologist so here I am all worried again that I will be ill during chemo and have terrors of needing additional tratment!!

Sorry to offload so much at my first post but I don't want to worry my adult kids ( I am 59) and also my partner died suddenly last June so don't have his support and still grieving for him. 

Thanks for reading if you have got this far!! bit of a moan I know but it does help to write it down, Sue xx

 

 

TaylorJ
Member

Re: Starting Chemo in February 2014?

Mariecay, I am from Doncaster too, finished 6 rounds of TAC chemo end of September. Feel free to PM me any time, Take care ladies. 

lowfatlovatt
Member

Re: Starting Chemo in February 2014?

Yuk...what a crappy night, boob and arm uncomfortable and baby wouldnt settle (at all), dont know if it was just one of them nights or if it was cuz im getting more anxious about starting chemo on tues
Xxx
Mariecay
Member

Re: Starting Chemo in February 2014?

I'm Doncaster x
Guest user
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Re: Starting Chemo in February 2014?

Anyone willing to say what city they live in? I am Aberdeen. X
Mariecay
Member

Re: Starting Chemo in February 2014?

Let's hope it stays that way Jill! Will be thinking of you, keep us posted x
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Re: Starting Chemo in February 2014?

Totally not up on chemo talk but looks like FEC for first 3. I have Crohn's disease as well so need to monitor as we go how I cope with everything. Feeling a bit "heavy" now. Ugh. Don't be nervous ladies. Honestly not bad at all at the time, tomorrow probably a different opinion!
Jonsi79
Member

Re: Starting Chemo in February 2014?

Went well ladies thank you. Home now with some crampy period like pain but not too bad.
Gave my oncology nurse a ring earlier and she told me I can now start chemo next Wednesday 5th at 11.30am. Will be meeting her again on friday morning for bloods and to go through stuff!!! Like you Marie feeling nervous but better to have dates etc now to have things in order and planned.
Hope you still feel ok later on Jill xx
Mariecay
Member

Re: Starting Chemo in February 2014?

Hi pink x
Mariecay
Member

Re: Starting Chemo in February 2014?

Glad it's been ok so far Jill, what regime are you having x
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Re: Starting Chemo in February 2014?

Well that is me home from my first chemo treatment. No problem at all, so far... With all the nausea drugs they send you home with, that will clearly change! I will just get a steroid injection tomorrow too. I am glad you have a plan in place Marie. Will feel like you are in control again. Hope all went well Jonsi?
Mariecay
Member

Re: Starting Chemo in February 2014?

Well I got my start date, a week on Friday, 7th. Mixed emotions, glad it's starting but nervous too. They aren't sure what regime yet though so gotta wait till Tuesday to find that out. Possibly FEC but because of my age are considering TAC. TAC is far more aggressive apparently with worse side affects hense their uncertainty to give it or not. They are having another meeting to make their final decision 😕 x
Mariecay
Member

Re: Starting Chemo in February 2014?

Good luck today jonsi with the egg collection etc, hope all goes well, will be thinking of you x
Mariecay
Member

Re: Starting Chemo in February 2014?

Good luck for today Jill will be thinking about you x
pinkrunner
Member

Re: Starting Chemo in February 2014?

That should of read 'I will need'  my brain is going as well as everything else ! xxx

pinkrunner
Member

Re: Starting Chemo in February 2014?

Hi

 

Im starting Chemo in 2 weeks and would love to join the February thread as I'm freaking out already and will not need all the help and support you lovely ladies have to offer !  Let's do it girls and kick this disease into touch !!!!!!!!!  xxxxxxxxxxxxx Pinkrunnerxxxxxxxxx

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Re: Starting Chemo in February 2014?

Phew! Thanks Jonsi79!
Jonsi79
Member

Re: Starting Chemo in February 2014?

The ve means positive +ve.
Negative would be -ve.

I had a CT scan and a bone scan before my surgery. Standard procedure the BCN told me so nothing extra to worry about ladies! All the best this afternoon Mariecay! xx
Hia Rowan! xx
Mariecay
Member

Re: Starting Chemo in February 2014?

Yes my appointment is this afternoon 😕 hopefully will get all the info I need today unlike last week which was a total waste of time!
Ah now you mention it I think they did say at the beginning that they only scan if it's in 4 or more nodes. I got my pathology report through the post and it said 2/16 +ve it's really bugging me what the ve stands for so can't wait to solve that mystery, I like to be in the know 🙂 x
Rowan44
Member

Re: Starting Chemo in February 2014?

Hi Mariecay ,

I had scans, the hospital policy is to scan anyone with 4 or more affected lymph nodes so if your hospital runs a similar policy this is why they havent done scans for you

 2 out of 16 is good and less likely to have spread 🙂

 

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Re: Starting Chemo in February 2014?

Is tomorrow you oncology appointment Mariecay?
Guest user
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Re: Starting Chemo in February 2014?

I am having a CTfon Friday before they put my marker coil in. I haven't had surgery yet, that will be after the chemo. Could that be why I am having the scan? One more thing to worry about!
Mariecay
Member

Re: Starting Chemo in February 2014?

Hi Rowan. I should imagine you are now feeling pretty nervous as Friday draws near. The unknown is such an awful thing, but at least being able to come on here and see other peoples experiences makes it just a little less daunting I think.
Was wondering if anyone has been offered any scans? I had 2/16 positive nodes and been told scans are pointless? Marie x
Rowan44
Member

Re: Starting Chemo in February 2014?

Hello , I was  diagnosed with grad 3 ERpositve tumour in november and had MX and axillary node clearance in December , I start my chemo on Friday , not technically Feb but near to it so thought I would drop in on this thread and say hello , they have found a met on my sternum too so I am also having denusomab for this and will be having Rad after my FEC D chemo I am having a course of 6 doses , decided against the cold cap I hate feeling cold I am a hot house plant .

Rowan 🙂

 

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Re: Starting Chemo in February 2014?

I know everything seems so negative when at the hospital discussing everything as it is all just medical jargon that we don't understand let alone know if it is good news or bad news. I have noticed medical staff understandably don't want to commit to any "good news" aspects of our case. All very factual.I just want someone to say, "don't worry, we can sort this". Our only control is staying positive and accepting it all as a big journey and adventure and be proud that we make it through the otherside. Xxx
Tracy1967
Member

Re: Starting Chemo in February 2014?

Marie life does feel rubbish right now as we go through treatment but this is just a very small blip in your LONG life. Once you've discussed your pathology results with your consultant put your boxing gloves on and kick ass! It's not forever and before you know it summer will be here and you'll come out of this a stronger person.

Sending you all hugs and positive thinking

Tracy XXX
Mariecay
Member

Re: Starting Chemo in February 2014?

Hi Tracy, yes it was! I will definitely be having words when I go. I feel as though I've hit a brick wall emotionally and can't seem to break it down. I guess sooner or later this had to happen and I'm sure sooner or later I'll pick myself up again. Life is just too rubbish at times! X
Tracy1967
Member

Re: Starting Chemo in February 2014?

Oh mariecay I'm on the November newbies thread but often pop onto the other chemo threads to see how everyone is doing. I can't believe your hospital has sent you your pathology report through the post without the consultant / surgeon discussing this with you first. It must have been very distressing as some of the terminology is 'lab talk'. Hope your feeling ok today, I'd certainly be bringing this up at your appointment. XXX
Mariecay
Member

Re: Starting Chemo in February 2014?

Hi again everyone, hope you are all as well as can be. Thank you for sharing your diagnosis. This disease is so varied! I too am 45 Jill. This seems a popular age for it to strike as I know a few people who have been diagnosed at this age!
I too am gonna order some scarfs from annabandanna, they do some really nice ones. I'm gonna check out primark too for excessories to pin on them. I'm having my hair cut short next week in preperation and when the time comes ill just shave it off. As a hairdresser I've come across and helped several people who have lost their hair through chemo and taking control yourself seems to be the best way.
I had a really rubbish day yesterday. I was in pain from the dental work I had done, plus already felt very emotional then my pathology report fell through my letter box. As I couldn't understand the terminology I phoned and asked it to be explained. Without boring you with the detail, I don't think they were expecting me to get it before my oncology appointment this coming tues! This only caused further distress. Anyway I think I cried enough tears yesterday to give me a few days off, so here's hoping for a brighter few days. Marie x
Purple13
Member

Re: Starting Chemo in February 2014?

Hi all,
Diagnosed on 19th dec. grade 2, 11mm IDC, ER positive. Waiting for chemo start date. Blood tests, ECG and echocardiogram done. Clip insertion scheduled for Tuesday. Has anyone done this and is it painful? Forgot to add, one suspect node. X
Guest user
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Re: Starting Chemo in February 2014?

Sorry for spelling. Predictive text!
Guest user
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Re: Starting Chemo in February 2014?

I was diagnosed on 7th January, grade 3 invasive ductal, hospital says 2cm, consultant says 3.5cm with node inclusion. Double negative. Chemo for 6 X every 3 weeks starting wednesday then surgery including full node clearance. I am 45 next month. Order 6 hats/scarves from Anabandana today just yo be prepared! Xx
Jonsi79
Member

Re: Starting Chemo in February 2014?

I had a mastectomy on the 10th December and all nodes removed. The tumour was 6.5cm and all nodes showed signs of cancer!! ER positive HER2 negative.
xx
Mariecay
Member

Re: Starting Chemo in February 2014?

Hi everyone 🙂 I went along to the headstrong session, I thoroughly enjoyed it, it just gave me a few ideas and I was surprised at how versatile a scarf can be! I dunno if being a hairdresser helped with this! By the end of the session I was quite excited about the ideas I had for 'decorating' the scarfs! I suppose when it happens I will be totally devastated just like everyone else, but I'm confident it is something I will come to terms with quickly.
Teeth are out and the experience wasn't all that bad really. The dentist was genuinely upset that these teeth had to be taken as they were good teeth, but the gums looked suspicious so he was too worried to leave them just in case.
Yes please stay with our group, the more the merrier I say! My oncology appointment is tues and I'm hoping that I get the rest of my results and my chemo start date.
Out of interest ladies, what's everyone's diagnosis and treatment so far?...mines grade 3, 25mm invasive ductal carcinoma, ER positive, HER2 negative. Had lumpectomy with reduction on 2nd Dec then node clearance on 6th jan. X
Jonsi79
Member

Re: Starting Chemo in February 2014?

Hi ladies!
I've ordered the confidence kit from lgfb and have looked into the sessions so will see how things go. I'm also not trying with the cold cap! Maybe having no hair will suit me!! Love her my sis-in-law has got me some scarves from annabandana to wear around the house. Also got the wig I had from the hospital.
Jill please stay with us February Flowers!! While you'll be starting your chemo session on Wed, I'll be having my egg collection and embryos stored (hopefully!) Take care ladies xx
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Re: Starting Chemo in February 2014?

Funny Mariecay. I am feeling exactly the same way about the cold cap! Hair is the least thing I should be focusing on. Was at the oncologist for the first time last night. I am feeling positive. Start the chemo on Wednesday so technically, not a February newbie now. Hope you all don't mind me sticking with you guys though! I fancy the look good sessions too. X
Mariecay
Member

Re: Starting Chemo in February 2014?

How is everyone doing? I've decided not to bother with the cold cap as I think I would find it far too traumatic at this time to have tried and failed. I've decided just to let be what will be and in a strange way it's given me a bit of control on it. I'm at the dentist today, I have got to have 3 teeth removed before I start chemo! Feels very odd having to have dental work on teeth that are causing me no problems, but apparently due to the risk that they may, it's something we have to do! Has anyone seen the look good feel better sessions? Was thinking about maybe going along x
razrazraz
Member

Re: Starting Chemo in February 2014?

Thank you Yankee for such a positive and inspiring post....much appreciated

Yankee
Member

Re: Starting Chemo in February 2014?

So sorry to see so many of you lovely Ladies on a new February group!  but very glad that you have found one another.  I'm from the February 2013 Valentines and can vouch for the fact that meeting each other will be one of the very best things you've ever done!  I remember where I was this time last year, frightened, sore, feeling that my whole life had just disappeared -- but it did go by surprisingly quickly!  Although I still don't feel anywhere near back to normal, I've made it through all the really nasty bits and am excited about the future!

,

On the subject of the cold cap, I would encourage any of you who are interested, to give it a try.  I never found it terribly painful, and although it did lengthen the time you are in the hospital each session, I felt that it was worth it. It wasn't all that successful for me (although one of the Valentines had TOTAL success with it). I lost about 50% of my hair and had lots of bald spots; but I kept enough hair to get away with just wearing a cap.  Also, my hair grew back much faster than that of the Ladies who didn't use it.  Most important for me, was that retaining some of my own hair was a way of proving to myself that I still had some control over my life -- and that became very important, as I was really flatten by the last few sessions of the Chemo!  Remember, if you are going to use it, it must be right from the beginning, as once you've had the first session without it the hair is doomed!  However, we are not, and good days are waiting for you in the future.

 

With so much love for your journey!!!!

razrazraz
Member

Re: Starting Chemo in February 2014?

Looks like I'll be starting chemo in February though no actual date yet, apparently it is so popular there is a waiting list!

 

I desperately desperately want to try and save my hair and would love to hear anyones experiences of the cold cap. When I asked I was told I could try the cold cap but have been given no other information other than it works better for people with thin hair....mine is definately thick. I would be grateful for any information as I so want to give this my best shot. The thought of chemo is frightening but losing my hair seems terrifying! 

 

Best wishes to you all