Hi February 2014 group.
I know it is nice to have your own private fb group, but I do hope you will still post on here with your symptoms and how you dealt with them. It can be a record for future new groups to read and learn from.
The facebook group is up and running , there are 13 of us in there at present , the group setting is now secret so I am not sure if you can request to join or whether you have to be invited .
Admins are myself , Mariecay , Jonsi79 and Pinkrunner so contact us if you want to join us in there
is the link to the Group page
This time last week was my first dose of chemo , I feel really good this evening main side effect now is a bit of tiredness not too shabby hope I feel this good after the next round .. and the next one
might even have a glass of wine tonight to celebrate 🙂
I was same last week - had my first dose last Friday , I was very anxious and worried but in reality it wasnt as bad as I expected and one week on I am giving myself a pat on the back I hope I continue to be as good with the next cycle , its the unknown isnt it , main thing is to do as they tell you drink plenty rest when you can and we are all here to support each other
good luck xx let us know how you get on xxx
glad you are feeling better , think the headaches are to do with chemo I had one till about day 4 after keep an eye on your temperature tho just in case 🙂 and keep drinking ...
I have a 15 yr old girl and a 22 yr old lad they have been stars this week really looking after me
really pleased to see the link to the facebook group is working now too I can stop pulling my hair out lol https://www.facebook.com/groups/Febvalentines2014/ for anyone that wants to join in 🙂
Hugs to all
looks like its a brand name the generic is Aprepitant
found this site http://www.emend.com/aprepitant/emend/consumer/index.jsp 🙂
Odansetron is my fave drug at the moment lol
Hi I was given a drug called emend as I get terribly travel sick. I had it 1 hour before chemo started and have got two to take at home. Apparently decreases nausea for up to 5 days after treatment. I will let you all know how I got on. Day 1 post FEC cycle 1, so far,so good. Just have headaches, but drinking my weigh in water.
Ask them for Odansetron its a really good anti emetic you take it twice a day for 3 days post chemo , I was given this and domperidone tablets to take they told me they didnt want me vomiting and also gave metclopromide injections to bring home and I was instructed to call the district nurses if the first 2 medications werent working . Crazy isnt it the variation in what different units do ?
I feel for you lowfatlovatt being sick is so horrible
hope you get something sorted to ease the sickness xxx
Hi, the facebook group is called BCC Valentines 2014 , I have tried contacting support to see why its not showing up but no answer as yet- my head is about to explode !
the address of the group is showing as https://www.facebook.com/groups/Febvalentines2014/ so try typing that in ??
however if you want to join send one of us admins a private message on here and we will do our best to get you in 🙂
we need either your name and a description of your profile pic so that we can search for you and add you as a friend and then invite you or your facebook email address so that we can invite you by email .
Admins to the group are myself , Mariecay , Jonsi79 and Pinkrunner so contact one of us to get into group
OK so admins on the page are we 4 members myself , Mariecay and Jonsi79 and pinkrunner so contact us with your facebook details by private message and we will try to add you
There is an option to invite people to the group by email so if you contact one of us admins and give us your facebook email address we will try adding you that way ..
Gill ( aka Rowan44)
ok Facebook ... I have changed name to BCC Valentines 2014 in attempt to make it simpler to find ? give it a whirl search for it on the search bar and hopefully fingers crossed and all that you might find the group then ask to join ! Either that or send me a private message here and I will try to add you to the group please dont post your real names here on the thread as apparently anyone can see . I have to add you as friends Mariecay is also admin on there we are just 2 members at present very cosy lol
I havent done this before so if there is anyone who has more of a clue please please shout up ... please ?
Gill ( aka Rowan44)
I've noticed you have put your real name in one of your posts. As these forums are open to the public you may prefer to edit your post to remove your name otherwise this may result in people finding out more about you than you want.
Hey KittyKat - I am starting on the 12th - be nice to chat to someone starting the same week. xxx Pinkrunner xxx
I was due to start chemo in Jan, so I joined the New Year Newbies Facebook group, and it's amazing! So if someone is clever enough (not me!) to create a private group it'll be such a great comfort and support. I'm starting my chemo on Valentine's Day, so I'd love to join in with you all xx
Edit: Just seen that you are trying to start one up, great! I'll try to join too xx