Hi again - from memory I think my hair started coming out on about day 16 of the second cycle - so good luck to you!!
I was an unlucky one - was first diagnosed 16 years ago and had lumpectomy and rads then it recurred in same spot so mastectomy was the only choice, and then the chemo. All good now.
Yep, keep taking the anti-sickness tablets even if you don't think you need them - best to keep them in your system!
Take care everyone.
Hi Kiwijan thanks for popping in to see us and give us support 🙂
did you have rad as well as chemo or just chemo ?
Lowfatlovatt , no thanks dont envy you at all having to look after a 7 week old little fella , I like cuddles but like to be able to give the baby back for all the serious work ,my kids are 15 and 22 now so they look after me ( sometimes!)
Hi girls! I was a February 2012 girl! Like Jonsi I did the short and sharp AC regime - 4 sessions. Anyway just wanted to say hi and give my support for you all going through this **bleep**e! My best advice is to drink loads and loads of water before and after your cocktail - it really makes all the difference. And no alcohol the night before your poison - I made the mistake once of having a few glasses of wine and boy did I suffer!
I have a vomiting phobia so was scared stiff of that but they assured me the anti-sickness drugs worked and although there were times I felt pretty awful, I was never actually sick - thank goodness!!
I also tried the cold cap for the first 2 sessions but unfortunately it didn't work for me - partner gave me a number 1 which looked disgusting so the razor blade came out which I much preferred! I had thick, wavy hair which came back in tiny tight little curls - think Michael Jackson - but its all back to normal now.
Anyway wishing you all the very best for your treatment - mine is a memory now and I don't really think about it much these days. Feel free to ask any questions!
Lots of love.
Thank you Alice,
That's a bit help. I know what you mean about the lump, as the days are going on I seem to be getting used to it. Just catches me by surprise some times.
Hi all ,
Day 18 for me and still feeling relatively normal and good , bit of collywobbles over going in tomorrow for the Hickman line , I know its the right thing to do as I really had a bad time with veins at the first chemo .
Just feel a bit fed up that its hospital week again LOL tuesday for hickmann , thurs for pre chemo assessment and all being well friday is FEC2 ( ah well only 4 to go after that one )
Hello to Alice sorry that you find yourself here but welcome to the Valentines 🙂 tell me about Facebook gobbling up time ! I cant get off it at the moment lol
Lowfatlovatt your kids sound wonderful , makes me laugh when you tell us the latest escapade , I have good times with my 15 yr old daughter some of the things she comes out with really make me laugh ,
I've found living with the little hard lump takes a bit of getting used to, but the wound has healed nicely and it sounds a lot less trouble than a PIC line as it just sits there for the duration. They go into it with a short stumpy looking needle (very difficult to see what they're doing as you can't see it very well tucked under the collar bone) then add a canula and the drugs go into that. Didn't feel a thing after the initial needle went in and that was nothing to bother about (though the young nurse did miss first time - I guess they all have to practise on someone!) and the following infusion was harder work for him than it was for me. When they take the dressing off you'll probably find a bit of bruising, but it soon goes. And they just slip it out with a local anaesthetic at the end of the chemo (I've already asked!) But once the wound has healed it's just skin with nothing more to bother about by way of maintenance.
Welcome to the forum. I also have a portacath, still have a bandage over the top so can't feel it at the moment. What is it like when they do the chemo? Do they puncture the skin with a smallish needle. Have you had any problems with it?
Sorry to bombard you with lots of questions already. But really appreciate the sdvise.
Hi, I had pic line fitted 5 days before my first lot of Fec-T treatment which was on the 4th Feb.it definitely helps and is easier when having chemo and when they have to draw blood each time to check.levels before each round of chemo. However for some ladies it does come with side effects. I developed a thrombosis in my arm where the pic line is, which basically means that I now have to give myself daily Injections of innohep (blood thinner). My oncologist and myself discussed the option of it being taken out, but the benefits outway the small inconvenience of daily Injections. Hope that helps some xx
Thank you for that - I don't 'do' Facebook (I'm sure it would gobble up far too much time!) but will hope to pick up tips from the forum as we go along.
Hi ladies, I've been lurking since diagnosis in December but now the chemo has started thought it would be good to emerge. Had surgery just before Christmas (successful lump removal and lost the lymph nodes, but all cleared out) and started 6 cycles of FEC last Monday (tumour was grade 3, triple negative, so the only thing to do.) They've given me a portacath as the lymph surgery means they have 50% fewer veins to access. Radio follows. Feeling nauseous 24/7 but haven't been sick. Nights are the worst; you can distract yourself during the day, but just lying awake feeling sick hour after hour is very tedious... Will be interested to compare experiences. Good luck and best wishes to all.
yeah they put the first in and it blew straight off ( told them it would but they knew best !! ... ) then they got the second in but I started to react to the epirubicin and got a rash on my arm along the line of the vein so they took that one out andd 5 attempts before they got the last one in just below my little finger knuckle.. one on the wrist hurt so much I was ready to punch someone !!
really dont want a hickman worried about clots but dont want to go through that each time .. I am not a baby and needles dont bother me but heck that was not pleasant !
I had a portacath fitted on Thursday, which is a central line that they fit under the skin. Feeling very fortunate although it's a small surgery to put it in and then to remove it at the end of treatment, I'm glad I don't have to have a canula put in each time. Hoping that it will make the treatment a little more comfortable.
I think the reason is that the chemo drugs I'll be on are particularly hard on the veins. We'll see how it goes.
Hello to all the new peeps on the forum, sorry you're here but, this is such a fantastic site and thread to help us all get through. Good luck.
Welcome to the group. I start my chemo on the 20th, so I'll just be a little ahead of you. You may already know this but, If you get the chance pop to see the dentist and let them know you'll be starting Chemo soon, you want to try and get all your dental sorted before it starts. I have tried to do lots of pre chemo reading so I understand what will hapen, but honestly some days I just want to forget all about it.
Enjoy this week, take care. See you on Facebook.
hiya , zarzio is a granulocyte stimulator it encourages your body to produce white cells , chemo units using them alot now to stop neutropenia where the immunity goes too low its not something the GP does usually but comes from the chemo unit I think
Day 15 today for me first course of FEC ( having 3 FEC and then 3 Taxotere ) I feel grand ! back to normal .. whatever that is !! The tiredness and fatigue have gone I have done a full day without needing a nap .. damn I feel good but next Friday is now looming .. ulp !
I am going back to hospital on Tuesday to have a hickman line fitted because my veins truly are rubbish ! (7 Cannulas used at first chemo so not going through that again !)
My hair is shedding a little bit more than normal when I brush it so I went into town and got a short hair cut my daughter went as well and said it looks good not much different than when I normally have it cut as I normally wear it short anyway . We went to a stall in the market and they have wigs and extension peices so I have a blond short number on order and am going to spice it up with some coloured sections to make it that more me !
Love and hugs ladies
Well had a walk was actually sunny briefly passed on the sainsburys and bought the nandos chicken home went down well...Feeling iffy but also dealing with period pains tooo lucky me hey! I wondered if anyone has taken these injections called zarzio? I got to start tommorrow?
Hi again feeling a bit better now had a dinner last night but still bit of icky tummy if you know what I mean...I just made a smoothie hoping thats ok....have you guys been out? I know its not the best but feel some air would do me good, and stop by sainsburys too? Maybe pick up a nandos takeaway later? what do ya think Im im running before walking here??
Hello Hazelb sorry you are in the situation to be here but glad you have joined in the forum , hope your first FEC wasnt too traumatic and you are feeling ok at present
I am 15 days in now had my first FEC on 31st Jan so almost ready for the second dose now , I am doing ok sometimes get a bit tired and have a huge spot on my cheek lol feel like a teenager again !
Rustywoof I got your message now and have sent you a friend request on facebook I can add you to the facebook group when you accept ( group settings set to secret now so that posts dont show publicly so this seems the best way of getting you in )
Gill aka Rowan44