As far as I can see, the only good to come out of this chemo thing will be if I manage to lose the half stone I've been trying to lose for the last 5 years! Like Sue, I'm only given 3 days worth of steroids each time and giving you an appetite is definitely not one of their side effects - I make myself eat something 4 times a day and that's it, even if its only soup, porridge and crumpets. Shall probably develop scurvy...
Do you remember the anticipation of going out for a nice meal with friends? The choosing of the menu, the arrival of the food on the table, the savouring of it? Seems a distant and fantastical memory.
As for medication: talk about getting blood out of a stone. Went in for FEC2 this morning and after all my resolutions told them what I'd experienced and what I wanted. They did give me Emend as IV before the chemo meds went in, but I've just been given exactly the same pills to take home: small amount of steroid and much larger amount of Metoclopramide. I only had 5 days worth last cycle and this time there's enough for 9 - and I shall take the lot! But if I still feel sick after that, they will hear from me...
Neutrophils were lowish - OK for the chemo to go ahead but I have to go back tomorrow for a blood boosting injection as I declined to administer it myself (would have to be really desperate to willingly stick a needle into any part of my anatomy!)
And, like others, Greatest Respect to those who get through this time also caring for families and even working. It's all I can do to cope with myself and the cats - and at the moment I'm moulting more than they are!
Hi girls, yes the weight thing, I have lost about 4 pounds since starting chemo on 28th January, I am on E-CMF chemo and have not really felt too bad but just not felt like eating so eat when i remember its meal times! Really wierd as I usually love my food! I only have to take 3 days worth of steroids after each chemo session so thats perhaps why i haven't put any on. My onc said that the short bursts of steroids should not make me put any weight on. Just as well as my daughter is getting married in August and i am determined not to be huge mother of the bride!!
Yes I also do admire those that can continue to work and those who work even harder looking after their little ones ( Thats you Lowfatlovatt!).
I spoke to my son and daughter in law on skype yesterday and my new grandson is due next week so very exciting but also feel guilty as i cannot help really as they live about 40 miles away and i really don't feel well enough to drive and then get stuck in helping. My granddaughter is 20 months so they do have their hands full.
Anyway I have the man to service the boiler coming this afternoon (what a full life i lead) and my mum may pop in later. Its lovely to hear from you all and have a good day, Sue xx
Hi girls and thanks for your support. It really is nice to hear from you. I went to see my elderly parents yesterday. They are not in the best of health but it was nice to just sit with them and have a cuppa and we all had a go at doing the Times crossword!! My friend came yesterday evening and she had half a bottle of wine and I had a couple of glasses of cordial, I know how to live it up!!
Well today's another day so I plan to see one of my daughters and go for a little walk. The other daughter lives with me and struggles a bit with my diagnosis telling me 'you are ok the cancer has gone so you are ok' whilst ignoring the chemo issues. I think she just wants me to be strong mum again and it's so hard at the mo, Love and best wishes to you all and have as good a day as you can,xx
I had my first Fec yesterday, Nausea is pretty bad but the worse of it is the metal taste in my mouth finding it really hard to eat or drink at the moment. I am sure it will be a learning curve and i hope things get better
Hi all, and a happy st Davids day to you all. You really sound a lovely upbeat lot and need some of that today. I have had ongoing kidney problems and pain to contend with alongside my chemo and as my chemo is due to continue until at least the end of July I feel at the bottom of a dark slippery tunnel! I have an appointment with a kidney doc in a couple of weeks so hopefully may get it sorted. My kidney probs started after my WLE in December and before chemo and all ct scans have ruled out anything serious thank goodness...so here i am left in pain and feeling sicky with chemo and depressed as my partner died last june suddenly.
So sorry girls but you are my only outlet this weekend. My lovely daughters are both out and about and they have been so good to me i have told them i am fine today, when i am anything but, as they need to have a bit of space from me. One of my friends will pop in later but as we all know saturday is usually family day.
Other than that my chemo has been Ok really, and odansetron has been really good. Just feel a bit off my food but able to eat. Only problem is the dreaded constipation when i have finished the 3 day supply. It is like a juggernaut has started in my tummy!! so taking the lactulose and senna and going for walks to 'get things going' (only we could talk like this hey??)
Anyway, love and best thoughts to you all. i don't post that often but your messages are a boost to read and lowfatlovett, i say you are a star because you just get on with it and I do love to hear about your family and what you all get up to, Sue x
Dear Ladies, I feel really guilty at making such a fuss when some of you are having a much worse time nausea-wise! At least I haven't actually been sick. It's just the thought of the constant nausea - and limited food intake - going on for the next 15 weeks...
Let's hope we all get better relief as the treatment goes on. I guess the first cycle is a steep learning curve for us and for those treating us. It really is most encouraging to hear others' experiences and recommendations. I shall march off on Monday for FEC2 with what I hope are helpful suggestions and hope they will be acted on.
PS despite cold cap the hair started coming out this morning... Off to the wig shop this afternoon!
Jaffacakes, thank you. Do let me know if the new regime of meds helps you this time. I'm going in for the pre-chemo blood test on Sunday, so will try and speak to someone then, though I doubt that there will be a doctor around. But unless the hair starts falling out in handfuls over the weekend I shall continue with the cold cap on Monday, so there will be plenty of hanging around. If necessary I shall just stage a sit-in!
I was just thinking that, too! But here I am about to ask a question. I'm approaching the end of my first cycle and have been experiencing nausea for the full 3 weeks - particularly today. When I go in for FEC2 on Monday they will not be getting near my portacath until I have been told what improved sickness control they are proposing for the next cycle! I know it's not their fault; they had no means of knowing how I was going to react to the chemo (very badly) and, going in in reasonable health and with a very positive attitude, I was astonished at how poorly I tolerated it.
Following useful suggestions from you lovely and supportive ladies, I am going to ask for ondansetron or emend. Having looked them up it seems as though you only take them for a limited period - and my nausea lasts all 3 weeks... Is that so? What is your experience, please? I am hoping that if the stuff works it should knock the nausea on the head for the duration of the cycle - is that the way it works? Anyone else experiencing prolonged nausea, and any useful tips? Ginger biscuits don't help, by the way, and the foul taste in the mouth is just producing a long list of things I can't eat at the moment. Hey ho - only 5 to go...
hi IAC you are welcome anywhere , here or on facebook group as well if you use it !! The more the merrier !
If you use facebook message me with your name and profile pic description and I will try to find you all posts and comments are only seen by other group members as the settings are set to secret 🙂
Hi Caroline welcome and sorry that you find yourself here , hope all goes well with your chemo and we are all here to help and support
I am now day 4 of 2nd FEC , am having 3 FEC and 3 T one dose every 3 weeks , I was really scared imagining all sorts of symptoms and scared of the treatment but so far so good , not doing to bad at all , was a little knocked off on day 2 but that was my fault for not reading the label on the medications ! doh
If you happen to use Facebook we have a group of us on there up and running now , personal message me for details the settings are set to secret so only members of the group can see your posts and comments nothing shows on your normal news feed we all post on here too tho so dont feel obliged 🙂