Just popping in from the 2013 Valentines to really cheer up all you Ladies who thought you might be losing weight on your Chemo! I lost 2 1/2 stone (mostly on the T part of FEC-T) and was absolutely over the moon about it. Then I started on my 5 year programme of aromabase inhibitors (Letrozole in my case) and have gained back every bleeding ounce, plus a couple more pounds for good luck!!! This wonderful disease really doesn't seem to have much good attached. My hair however is doing well (9 months after chemo). It used to be chestnut brown and is now nearly black, but thick and wavy. Much love to you all and hope things go as easily as can be expected. XXXX
Just returned from a visit to hospital with (unfounded, thank goodness) fears of neutrapenia. Had a ghastly night last night: awake almost all the time with rigours, shivering, crawling up the arms and legs, etc and temperature getting to the danger point of 37.5. Eventually phoned oncology ward and they said come in. Blood test proved neutraphils were OK and unknown but very nice oncologist checked me over and said no infections in chest or portacath - just very severe reactions to chemo from Monday. Quite different from previous session, where I was pretty OK for the first 8 days, not falling apart after just 5! Perhaps it will be different ever time? Doesn't allow you to plan at all, does it?! At least I know not to panic next time.
Only good thing to come out of the trip is that oncologist gave me a prescription for ondansetron at long last (though I had to visit 3 pharmacies before I could get it). Now I just want it to work. And preferably without side effects such as spots!
PS my cats have examined my wig on its stand - and freaked out!
Hi i found the same too, had 2nd fec on wed no vomiting but the nausea was worse i think..like you taking the meds and eating ..but feeling is right there in my chest.......hoping it will go by tomorrow downing ginger beer helps.....good luck rusty
Good luck with the chemo tomorrow Bigpumpkin hope all goes well for you I am a week ahead of you and back to normal on FEC course 2 🙂
My partner goes skiing this weekend for a week , going to miss him not being about he will be back just after I have had number 3 dose ( assuming all is well at pre chemo assessment ) tough month this month as he is away the weekend after as well things we had planned to do together before all this happened
I have been trying to wear my wig when the kids are about but its giving me a headache when I wear it I think I need to nip to the salon at the chemo unit to have it refitted ! anyone else find they get headaches when they wear the wig ?
just had a pancakes with my kids , my son made the batter it was lovely 🙂 will be moaning later when I get on the scales !
So glad you're feeling better, Mariecay. Yes, teenage spots are back - an enormous one on my forehead is just subsiding...
I washed my hair for the first time for a week last night and vast amounts came out, as expected. But am pleased to say that the shedding seems to be absolutely even and coverage, although thin, is still complete. Until the wind blows, I guess... So clippers postponed for another few days.
Thanks for that, Jaffacakes - haven't seen a doctor of any description since starting chemo but conversations/whines with long-suffering BCN seem to result in action as Emend was added to pre-chemo iv this time and twice as many anti-sickness pills supplied, so we'll see how it goes. I see the senior oncology nurse regularly (she gave the chemo this time and supervised the junior giving it last time). She is very brisk and no nonsense but answers all my questions and inspires more confidence than any doctor! She was the one who insisted I had to have a portacath right at the beginning before the veins started giving trouble, and I'm very grateful for that.
Feeling rather wobbly today but realised that I haven't ingested any caffeine for over 24 hours so am now drinking a cup of coffee which I hope will perk things up a bit! Hair thinning in all sorts of strange places ...
Mariecay - do hope things are getting a bit easier for you.
Day 11 of FEC course 2 cruising now not too tired and feeling better than I did this time on course 1 if that is possible so although I had it rougher on days 3-5 now I feel back to normal want to get out and do some walking in this lovely spring weather
Had a lovely weekend with my partner Saturday we had a lovely meal and listened to lots of good music and planned a little trip away in May before my last Chemo 🙂 He is going to Kitzbuhel with his brother next week for a skiing holiday - I am disappointed that I can't go but have a promise that I will go next year !
Sunday was hilarious we went out shopping for boots for him to wear around the resort and I persuaded him to get some trainers as well seeing as the ones he has are past their best he was happy with them I was trying to restrain myself from buying any shoes my self ( I have lots ) until I spotted some wonderful boots "how much are they ? " he asks my reply " they are Purple ! "
"purple is not a price "
" They are PURPLE !!!!! " says me
turns out they are "Bordeaux " which is a reddy mauve colour but hey I love them and they will be worn at next chemo to kick the cancer !!
Welcome, Bigpumpkin. I had my second FEC yesterday and am feverishly taking the tablets and keeping everything crossed for less nausea this time round! My BCN says that by the end of the 2nd cycle you should have a better idea of how things will go for the rest of the treatment, so watch this space...
Good luck with the cold cap - hope it works for you. I tried it as it worked brilliantly for a friend some years ago, but no luck for me. I'm curious so many of you seem to be seeing your oncologist during treatment; haven't seen mine since he arranged the chemo course, and no one has proposed I should, so I just deal with the oncology staff, who seem very efficient and informed and answer all the questions I would have asked him.
Welcome to the forums, I’m so pleased that you are finding the forums supportive already.
We also have a free helpline where the staff can offer practical information as well as emotional support. The freephone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
If you need someone to talk to, in confidence, then please don't hesitate to phone the helpline here, the staff are here to support you through this. Lines open at 9am today until 5pm, calls are free 0808 800 6000.
When my wife had to have her hair shaved,she went to her hairdressers (who has cut he hair for years)when she came out she seemed fine,she had her wig on and got in the car,I said are you ok sweety,she said yes fine but Louise is in floods of tears,she said as she was shaving my head the tears were bouncing off her chin,daft as it sounds we drove home both laughing our heads off.I know all you ladies on here will think 'He has to say that' but my girl looked lovely with no hair,it is just over 2 years ago this happened she has all her hair back, thicker and it is jet black not a single grey hair (she is 50 at the end of the month)really strange as her hair was brown before the chemo.A lady on here i noticed had the same chemo as her e-cmf can i just say the e part is the hardest the cmf (in her words) was a lot easier.There are not many ladies who have this chemo and if you would like any advice at all please pm me and marg will be very happy to help in any way she can.
Sue, I'm thinking of doing the same with my regular hairdresser (quiet time visit so as not to scare the regulars). Thank you for the tip re clean blades, I hadn't thought of that. I shall take my new wig along so at least I can leave his premises looking OK, and perhaps he can trim the fringe for me, as I think it's a bit too long.
I hooted at your description of trying to get rid of the hairs - I have a sort of scraping device I use on the furniture to get rid of cats hairs, and am now having to clean up after myself more than them! Just now I absentmindedly ran my hand through my hair (something I used to do regularly) and came away with a fistful... and I haven't dared to wash the hair for several days in case it all comes out at once! Just postponing the inevitable, I guess. Good luck to those trying the cold cap - I'm sure it will work for some, but I must admit I didn't miss the discomfort and the headache this morning.
Hi Hazel, I too hung onto the moulting hair and was to be seen like a washerwoaman shaking my clothes out of the window to get rid of the shedding hairs. So I rang a quiet little hairdresser and explained and went up when the shop was quiet and they clippered it off for me. The hairdresser said he was using new blades (no infection) and he would not shave to the skin but leave a little fuzz so i was not shiny, don't want to look like Matt Lucas!
I too had little cries about my hair but i am fine now and feel better without the moult
Best wishes Sue x