Dear Ladies, good morning. High on steroids, low on sleep (only arrived late afternoon, so had to take them then) but feeling so much better!
Not allowing myself to get hungy is a problem as I am NEVER hungry and am eating hardly anything. There is nothing in the entire world I want to eat - have to force myself to eat cereal in the morning, soup at lunchtime and something in the evening (that something on recent nights has been 2 crispbread...) I've lost over half a stone already.
Last chemo session they offered something called Nozinan which I refused as someone else had mentioned it and I looked it up and it sounds as though it messes with your brain, which is the only thing that still seems to belong to me, but I think I may consider it next time. Because they have been unable to control the physical reactions they are fast becoming psychological problems. I now feel sick if I think of walking through the front door of the hospital, or think of those fat white chairs, or even look at the clothes I wore last time. So if they can give me something to knock out the psychological probs perhaps it will be easier to cope with the physical ones. Something to discus with the onc on Friday...
No, I'm getting 6 of the b.....s. That is, if I turn up for no.4. More meds faxed to GP this afternoon (more steroids than they usually give) so hope tomorrow will be better. Oncologist will get a right earful on Friday. They say they can control side effects, but it's all LIES.
FEC3, day8 and it's the worst yet. Closest I've been to actually throwing up this morning. Probably didn't because there's nothing in my stomach. Have just emailed BCN with desperate plea for help. Supposed to see oncologist on Friday but I won't get there if I feel like this. I feel sick 21 days out of 21 and nothing they have given me (and they seem to have given me the lot) works. I'd really like something to knock me out completely for the next 2 months... Sorry to be a misery. Glad some of you are doing better.
Aww Poor little pumpkin fracture and chickenpox , hope you hear soon Bigpumpkin whether your chemo is delayed or not ..
I cant seem to wake up today but cant sleep properly either ? still having mouth issues sore tongue in spite of nystatin and difflam if it carries on tomorrow I am going to ring the GP and see if there is something else we can do
Hayley I hope your little one is doing better and hope your chemo has gone ok this time
Marie how are you doing ?
Jilly, that's marvellous news! I'm having chemo post lump removal so can only trust it is mopping up stray cells, but to be able to monitor tumour reduction must be such a positive thing. Something really good to put against any bad side effects.
Just wanted to share some really positive news. I saw the oncologist yesterday and he examined me and in his words "what was a 4cm golf ball is now just a thickening that is really hard to find". It's amazing! I do still have 5 treatments to go, but this horrible chemo, that makes you feel so **bleep**, works.
I know that some of you are having a really tough time - and I hope this doesn't seem like me gloating.
Just wanted to share that IT WORKS!
FEC 3 Day 11
Hello gang , sorry I have been absent over the last few days 🙂
I had my chemo 11 days ago but this time it hasn't hit as hard or I am managing my side effects better .... So last Tuesday I am talking online to my lovely fella feeling a bit down as he went skiing last week and I wouldn't be seeing him this weekend because we had booked tickets to a 3 day rock festival at Hafan-y-Mor in Wales ... I was not expecting to go as it was first week post chemo. As we chatted he drops in "why don't you come with me ? " and this started the cogs turning
So rather than sit at home I upgraded us to VIP pass ( few quid extra but not mega bucks and so worth it ! ) it allowed us access to seating areas with good views of the stages .. I thought oh well it beats sitting at home being miserable because I can't be with him and if I get tired I can always go back to the apartment and sleep and perhaps see 1 or 2 bands if I am lucky
It was a wonderful fun weekend and I did amazingly well !! Saw 6 bands on Thurs and chatted to our friends we were sharing with till 3 am !! Friday I was able to do a full 8 hours of bands and fun !! Wow
Sat was a less busy day and I rested in the morning started seeing the later bands about 4 pm and went on to see the remainder of the line up 😄
Got told how well I look and also no one knew it was a wig I was wearing !
Great confidence booster and a real tonic .. bit tired today and slept a lot more than I would do but I wasn't planning on doing much else ! Its given me a time away from my head and let me be "normal "
Jorge1 I have sent you a message about joining the facebook group so check the messages bit at the top right of this page
if anyone else would like to join the group just message me and I will get on it
Hayley I hope your little one is doing well and on the mend , big hugs xx
I am glad someone else has had this! Well not glad, Fairyguardian, because it's horrid for you, but I had exactly the same - metallic taste 1st time and greasy one next - and they looked at me as though I was mad! It's very nasty, but does go away.
I quizzed them on every drop of what went in this morning and I am being given strong Emend in the pre chemo IV, along with a version of Ondansetron, so they won't give either as pills for afterwards. This time, along with the usual 3 days worth of steroids, they are trying me with Cyclizine and Domperidone. We'll see. At least the latter should keep the bowels working, though my major problem is the miniscule amount of food I'm eating. Lost 6 lbs in the last 3 weeks - mostly from my bottom, I'm happy to say! If this lack of appetite continues, I should have lost the stone I've been trying to lose for the last 10 years by the time it's over.
Discovered a drawback to the snazzy wig - everyone says it looks great and I look so well... Ironic when you're still feeling lousy every day!
Had 2nd Fec on Friday, addtional anti sickness given this time as it was quite bad first time round. Still struggling with eating and drinking everything tatsed of metal last time this time my mouth just seems to taste of grease. Feeling pretty sorry for myself this time round just before I had the second dose I felt fantastic really dont like feeling like this. Everyone keeps telling how brave and insperational I am being so feel i have alot to live up to but really dont feel like it today