not needing a laxative any more lol more of a cork , back to normal today and feeling much better , able to go out and do things today so I can cope with a week of feeling yucky so far looking forwards to spending time with Russell next weekend 🙂 🙂
Course number 4 of 6 , first TAX day 8
well the side effects are well and truly here .. I was ok on friday and sat last week then on sunday the joint pains started , very poor sleep sunday night so rang gp on monday and was prescribed stronger co-codamol and naproxen . The joint pains have settled over the last 2 days but I was really constipated with the co-codamol in spite of using the Go cake , so I used movicol sachets as well , seemed to sort things out on tuesday but last night I started with gripey tummy pains and was up in the night running to the toilet now its gone to diarrhoea ! wish I could hit the happy medium but my bowels seem particularly sensitive to both the FEC and now to the TAX , no fever or vomitting so I assume its the chemo that's upsetting my stomach
and as ever I now have the sore mouth to deal with used difflam , daktarin and various mouth washes but nothing is making any headway waiting for the Manuka honey to arrive maybe that will soothe things
I don't know that anything is growing on my head, but my massage lady is coming on Friday and I'm going to have to shave my legs! I shaved them 3 weeks ago and expected that to be the last, but something is still going on down there... tiresome!
Hazel, I misread your last sentence as 'coughing cows' - but I guess you'd better stay away from them, too! You're very brave going away, especially by yourself. I don't dare venture further than the local high street...
One bit of good news: I have been putting off washing my head for 3-4 weeks, but it was beginning to itch. I've had a grey fuzz since the hair was clippered off level 3 and was sure it was just sticking together and as soon as I washed it, 50% would fall out. But this morning I did, and it didn't! How much of the comforting fuzz will outlast the final 3 chemos, I don't know, but it's rather pleasing not to be completely bald (yet).
Bad day yesterday, Cath - better today. Changed the bed linen and did a load of washing. Pathetic, isn't it, rejoicing at being able to complete such simple tasks! I so agree about killing us off: I've often thought (and didn't dare voice) that the oncology team are I am sure very skilled at choosing the right chemo to kill off the cancer, but at the risk of killing off the patient - classic case of 'the operation was a success but the patient died...'! They really don't know how to cope with bad SEs - just throw another load of chemicals at it. I'm so envious of those who are coping well with their chemo, but wouldn't wish my SEs on my worst enemy. But then some of you are having things even worse - I rarely spend a day in bed, though I may be up for very little of it (but then as I live alone if I want a glass of water I have to fetch it, not to mention feeding the cats!)
Sorry you've been having such a bad time, Caz - the association thing is dreadful, isn't it? (I feel a whole new wardrobe coming on when treatment is over...) I've stopped even considering eating my favourite foods for fear of tainting them, and alcohol is completely out. Just think of that nice time coming in the summer...
Hayley I am so glad to hear Ellis is doing well and back at home with you lots of cuddles I bet to catch up 🙂 I have been thinking of you having to deal with this all , I hope you enjoy the big fat take away and I really laughed at your comment over Andy , maybe I will try it with Russ when he gets back from Glasgow !!
Cath thanks I am still feeling good cant really say I have any nausea or tiredness and the steroids are as per keeping me awake at night even tho I take dose at 1pm at the latest !! Enjoying a foot spa at present while watching a DVD drinking fruit juice cos no alcohol for 48 hours post chemo boo !!
I still plan trips away with Russ , it gives me something to look forwards to so in April we are going to see Magnum in Buckley on my week 3 and in May we are going to Northumberland to a cottage near Alnwick castle 🙂 July I will be out of treatment so we are going to Sweden to a rock festival I wont let this stop me doing the things I love !!!
Kess I know my girl cares for me very much I speak to her daily when she is at her dad's and she has been in to see me today to check I am ok , she is back at her dad's this week but she is able to nip over with her brother when she wants to ( he is 22 and so laid back he is horizontal , isnt it odd how children can be so different from each other
Gill xx ( aka Rowan )
Oh forgot to mention I baked the "go" cake today cos the ondansetron usually bungs me up I used brown sugar and also put in some honey , its gorgeous ...this may be a little too much info but heck it works !! pooped this afternoon no more constipation !!( sorry .. embarrased smile ....)
My son is 15 too - it's a tricky age for them so I can understand why you worry about her. She will be worrying about you too so things will be difficult at times, but I am sure she knows you are doing the best you can, and that's all we can do.
hope you get a nice walk in - maybe your daughter can go with you if your OH can't make it,
Thanks Kess my daughter is 15 yrs old going through tough times what with the divorce exams and now me going through this , compassion doesnt enter her dad's vocabulary he just doesnt think of anyone but himself which is why he is now my ex !!
she was here for the rest of the week going through tests at school so revising like crazy she is so hard on herself but I was like that when I was her age , I dont seem to be able to say or do the right things for her at present
How old is your son ?
have a lovely lunch tomorrow , I hope my fella visits on the way back from Glasgow tomorrow if he has time we will go for a meal at the local marina its lovely there on these nice spring days
Hi all course 4 1st TAX day 2
I have had a bad week leading up to my chemo very low mood after grief of Mother's day with a very inconsiderate ex who kept my daughter all day when it was supposed to be my weekend to have her I felt low and upset and tearful all week .
as soon as I started the steroids 24 hours prior to chemo my mood flicked back into feeling much happier .. steroid high huh ?
Doctor was very pleased with how I coped with the FEC. I asked about the low mood and also wanted to know why sometimes we get low temperature and feel shakey , he said it was hormonal and that because the ovaries are shut down we get hotter and the brain over compensates so we get low temp and the vessels shut down this can last a few hours or a few days .The hormones being haywire and the stress of this illness means we are more prone to mood swings .
I had my chemo yesterday totally different experience than the FEC, the TAX is in a 500 mls bag that is in a red bag to protect it from the light infused with a pump over 1 hour then a 250 mls saline flush usual ondansetron and dexamethasone iv prior to having it plus iv piriton to stop allergic reaction , I didnt feel anywhere near as whoozy as when I had the FEC and since I got home am feeling totally normal ( whatever that is !! )
The usual steroid insomnia but no where near the nausea I had with FEC am eating well and up to press the taste buds are behaving and food tastes normal . I am waiting for the pains etc to kick in I guess that may be after the steroids stop but I am stocked with ibuprofen and co-codamol in preparation. Nails are painted with navy blue colour to protect the beds from the light not sure how long it has to stay on for but I guess until after the TAX has been finished ...
Hope everyone is having a reasonable weekend , I am watching the racing at Aintree on TV my Fella is up in Glasgow tonight for a Gig that we should have both been going to 😞 boo !
Hazel, glad you're surviving FEC3. Interesting meeting with oncologist yesterday; apparently I'm already receiving everything by way of anti sickness meds, and it sorts out 98% of patients... don't know whether to be alarmed at being in the unfortunate 2%! They are going to give me a few more steroids and metroclopromide for next time, as the SEs get much worse the minute the meds run out, at the moment on day 5. 2 or 3 days' worth more may ease things. They are also going to reduce the dosage of chemo slightly because I've lost so much weight. Anyway, Nozinan it is for Monday week,though I shall have to practise as I have to take a quarter of a tablet! They've given me a little cutting device which I will try out on the hated cyclizine tabs which are about to be thrown out. But it was a useful meeting (the first since January), I feel much better informed, and he wants to see me again during FEC4. (I asked about FEC-T being the more usual treatment, but apparently it's never given to those over 60 - I'm 68....)
Kess, the weepy thing is dreadful, isn't it? You just don't know where the real you goes at times...
Big Pumpkin, glad things are improving for you.
Thank you so much for that, Hazel, very encouraging. If I may, I'll PM you for more details. Good luck tomorrow.