Hi girls and lovely to hear from you all again. Yes I have ditched my wigs too and had lots of compliments on my pixie cut which is silver/white with a bit of dark mixed in at the back.
I have had lots of kidney investigations over the past months with nothing found but still having discomfort in my bladder and groin and side but hey ho gotta get on with it.
Work is ok but would love to go part time but cant afford to as yet. I was 60 last year and one of the first of us to have to wait til i am gone 65 to get my state pension. I will consider part time next year though as I think I could manage financially and would like the extra time. How is everyone else finding work?
Love to you all and do lets keep in touch xx
Well, ladies, be careful what you wish for... I saw the surgeon on Thursday expecting reassurance and 'go away, I'll see you in 6 months time' and found myself booked in for a battery of tests! Probably just to be on the safe side, and serve me right for going in and having a bit of a moan instead of my resolutely upbeat normal. Had a blood test there and then (testing for various possible deficiencies, results yet to come) and an ultrasound yesterday. That was good: she was able to tell me immediately that the various bits that feel wrong are scar tissue from the lumpectomy and lymph clearance or hardened flesh from the radiotherapy, things we just have to get used to. Bone scan booked for next week which I suspect will just reveal that I am riddled with - arthritis! Perhaps I should start taking the glucosamine again...
Do hope you are all doing well. I've had my hair cut for the third time and coloured, but no one has complimented me on the new colour, so perhaps it's all a dreadful mistake. I like it, anyhow. And it's not nearly as curly as it was!
Well ladies, we've (temporarily) dropped off the front page - must mean something! Hope it means all is going well with you all. I've a routine check with the surgeon on Thursday and have a couple of niggles to raise with her, things that don't feel/look 'right', but which may well be part of the 'new normal'... She's the hands-on person, though, and will check various areas for potential problems, so it always makes me nervous. Daft, isn't it - you're worried when you have to see someone, and worried when no one is checking up on you, too! Roll on spring/summer - I'm sure things will be better when the sun is shining and it's not quite so parky...
Happy New Year to you all - heres hoping its a better one for all of us.
great news on the clear mammo what a relief that must be,
take care all 🙂
Hi Bigpumpkin, funny enough I booked our holiday to Tenerife last night and got insurance for the week for about twenty three pounds so not too bad.
I may try acupuncture for my joint pain, let us know how that goes?
Hope all is going ok for us all
Love Sue xx
Happy New Year to you all. My Mum died on new year's eve. She was 90 and had suffered from dementia for 12 years, and was only physically ill for a day. So its sad, but it was the right thing. 2014 is officiallly the worst year.
I hope that the first mamograms are all OK and that for most the side effects are minimal. I have a pain clinic appointment for 10th February as my pains are still severe.
Morning ladies, and a happy new year to all. Sue, glad to hear of your holiday planning - I'm going to the Canaries for the first time later in the year. After 2014, feel that a bit of sun and pampering is called for...
Best wishes to all still waiting for that first mammogram. Axx
Hi there darling girls, I have booked my first holiday to Krakow with a friend for May and feel so excited. I was supposed to go for a week in 2013 and my partner Colin died just beforehand. My lovely friend offered to go with me in 2014 and then bang I got this diagnosis so 3rd time lucky this coming May.
I also hope to book a week to the Canaries next month with my daughter, all incentives to shed the extra pounds!
Good luck with the acupuncture Bigpumpkin and good luck to us all for our mammograms
Love Sue x
Happy Christmas and a brilliant New Year to you all. I am doing dry January (which will be tough for me as I have at least one glass of wine every day). I also intend to begin a sensible diet as I have put on about 1 and a half stone, and I know I must lose it.
I am still in miserable pain from muscles, nerves and joints although i am not on Tamoxifen, only Herceptin. I have been referred to the Pain Clinic and hope they can do better at managing it than the Oncologist and the GP.
Happy holidays everyone
Oh Sue, I don't know about this triple neg diet thing! I've been careful with my diet (low calorie, low fat, very little alcohol) for years (fearing heart disease, hah), and even approaching my 70th birthday still go to the gym, but it didn't stop me getting the b****y tumour in the first place! But I guess you're right, and we'd kick ourselves for not trying to stop a recurrence... It'll take me a good deal longer than Boxing Day to finish up all the Christmas goodies, but in the New Year, another concerted effort to lose the weight I've put back - since losing it all during chemo! You can't win.
Love and best wishes for Christmas and the New Year to you all. A xx
Hi Kess and really well done on the weight loss. Like Hazel I think I must have found your 10 pound loss and slapped it on my thighs!
It is imporstant that I lose the weight especially with the recent research findings for triple neg and low fat diet and weight loss improving our outlook for over 56 per cent.
I do plan to have a few treats but boxing day I am going to make a concerted effort to reduce my fat intake and get a bit more exercise.
Hi there Caz a little wave to you if you pop on the forums.
Love to you all girls, Alice, Kess, Alice, Bigpumpkin, Jorge, Hayley, Caz and anyone else I have mislaid in my puddled little chemo mind!!
Love and have as happy and comfortable Christmas you can and lets keep posting, I do find it a comfort
Sue, so glad to hear your positive news - now you and your family can relax and enjoy Christmas! And Hazel, good to hear things are progressing well. Great that you can have your holiday in Australia at last - hope you have a wonderful time. I've booked another cruise to replace the one I had to cancel this year, but have to wait until next September for that.
Sue, 3 inches of hair sounds wonderful, fluffy or not! I've had mine cut twice already (trying to subdue the unexpected, and rather unwelcome, curls) and it seems to have slowed things down, though I normally keep it quite short. I gave up the wig some time ago, though I loved the colour of it so much that I'm planning to have my hair - whatever there is of it - coloured in the New Year.
I was diagnosed in December last year and spent Christmas and Boxing days in my dressing gown, having been discharged post surgery at teatime on Christmas Eve! So this year am looking forward to singing in the carol service and decorating the church on the 24th, all the things I was unable to do last year... And two pre-Christmas lunches with friends this week - will definitely have to go on a diet at the end of the month!
Here's wishing all of us nothing worse than an unwanted spare tyre to get rid of in 2015.
Love and best wishes to all, Axx
Hi girls, lovely to hear you are doing so well Hazel.
My daughter got her mri results which were clear, such a relief!
We have all had a right year of it haven't we? It is becoming a memory now but the support of you girls has been great. Lets keep posting now and again?
I had my kidney exploratory surgery last week and tho its been a week of some discomfort, the surgeon could not find anything nasty so I am pleased.
How is everyone's hair? Mine is fluffy and whilte and about 2 to 3 inches long. I am still wearing my wigs but hope to ditch them when i get a bit more length!!
Love to you all girls, Sue xx
Thanks Alice, I am triple negative too so my plan will mirror yours. My daughter will get her results on Christmas eve. The u/s and mammogram were inconclusive due to her having breast implants so on the waiting game again for mri. It is horrible as I was sitting with her in the same waiting room as i was exactly a year ago, but so hoping her outcome will be fine
Love Sue xx
Good news, Sue - I got my results this afternoon, and am also OK! Came home and celebrated with a large piece of carrot cake and a mug of tea... I see the surgeon in January, and the oncologist again at the end of May next year; apparently I will see them alternately every 3-4 months for the next year or so. But apart from that, nothing (triple neg, so no more meds). So now I can start getting ready for Christmas!
Hoping your kidney procedure goes well next week, and that your daughter is OK.
Hi girls, just had my mammogram result, which was normal!! So pleased. Got my kidney procedure on Monday and a but anxious but so pleased about my mammogram wanted to share it with you.
I hope all is going well as we are all coming up a year now since diagnosis
Hi girls and hope you are all getting on OK. Special thoughts to you Hayley, do let us know how things are.
I do need some thoughts on how I am going to cope over the next few weeks.
My daughter (the one whose wedding was called off by her fiance 4 days before the big day) has a breast lump and we have an appointment at the breast clinic this monday. It is also the day of my first mammo so I have moved my appointment to later in the day to be free to support her. I am very anxious for her particuilarly as I had triple neg.
On top of all that my day case for my kidney exploratory op is a week on Monday which is the same day as I should be getting my mammo results. Thats OK as I can change that but i am worried that a week monday may be the day that my daughter gets her results in which case I will postpone my op.
My head and heart are in a whirl. I went to speak to the psychologist at Maggies yesterday and kept on breaking down crying. I pulled myself together and went to the singing group at Maggies and could not stay as any slightly sad song sent me off again into a blubbering mess. Today is the anniversary of when i met met lovely partner colin who died nearly 18 months ago now.
I know that this too will pass but feel so sad and anxious. Ant thoughts or comments would be great. I am going out to distract myself as recommended by the psychologist. I may just spend some money too!!
Just thought I'd check in to report that I had the one-year anniversary mammogram this afternoon and it was the most comfortable mammogram I've ever had! With a rather tender slashed and irradiated left breast I wasn't looking forward to having it squashed (and took some paracetamol beforehand just in case) but the nurse/technician closed the plates so gently and slowly that it was absolutely fine. Hope you are all as lucky with yours. Now just the results to come....
Best wishes to all,
Thanks for yor good wishes girls. My daughter's appointment at the breast clinic is on 1st December, same day as my mammogram. I have rescheduled my mammo for the end of the day (radiography was so good when i explained) so I can support her through the day x
It's all coming round, isn't it... my mammogram is next Wednesday, one year less one day from the scan that revealed the tumour last November. Will be glad when that's over. I don't see the oncologist for another week, so hope they don't make me wait for the result!
Thinking of all us nervous folk in the next few weeks...
(and hope your daughter doesn't have to wait too long, Sue)
i Cath lovely to hear from you again and great that you are enjoying life. Its my cancerversary this week too and it has come round quickly. My first mammogram is on 1st December aargh!!
I have signed the link for continuation of our cancer drugs, thanks Tracy and Alice for that.
One blip on my horizon is that my 28 year old daughter has discovered a breast lump and we are awaiting her referral to the breast clinic. I won't be able to rest til i know she is OK.
Love and best wishes to you all girlsx i am just off for a chat with my BC nurse, I still keep in constant touch with her as my mood does dip quite a bit on occasions.
Love Sue xx