Good to hear from you all. I've just returned from a very pleasant cruise to the Canaries - never been there before, and liked it all very much. Came back with a cold (about a third of the passengers got one - I think the germs just go round and round in the air conditioning!) which is a nuisance, and haven't dared get on the scales yet... Got cold feet at the last minute - something about leaving the 'safe space' of home and heading into the unknown, not to mention the memory of my last cruise 2 years ago when I returned to find a summons to the breast clinic waiting, and subsequent diagnosis... but very glad I went. Very relaxing to have people doing everything for you for a couple of weeks! 2-year mammogram next month - trying to ignore that at the moment.
Love to all, Axx
Hi girls and lovely to see my old friends are doing OK. I am back at work, had a few scares along the way but generally feeling fine.
Love and best wishes, Sue x
Great to hear from you both -
Hazel, glad to hear you are doing well. Pilates is great for you (I did it for years until they closed the local venue) and always found it very adaptable for the bits that don't work quite as well as they should...
Sue, I shall have to investigate those shoes - I'm a great fan of comfy footwear. Can't blame the chemo for my arthritic knee, but bet it didn't help... at least, the steroids did wonders for the knee, but don't want to go back on those! Am starting to suffer from low back problems, but that's more to do with having turned 70 last month...
Love to all, A
Hi girlies and lovely to hear from our little crew again. Remamber my kidney pains, well still had them and had a ct scan a month or so ago and all ok so gotta get on withit although the pain is MUCH improved.
I am not mad about exercise either Hazel although I do like a nice walk . I have developed sore knees (blame the chemo) and have discovered Skechers shoes which have memory foam in the sole so really comfy and a good investment if you have sore ankles and knees I think.
Take care, Sue xxxx
Greetings, ladies, I hope our long absence from the front page means that we are all well and getting on with life. I know there are times when I think 'it never happened, and if it did, it never will again!'. Then the stiffness and aches around the clearance area remind me that it did... I had my regular checkup with the oncologist this morning and all was well; I quizzed him on the bits that still hurt, and he agreed with my tentative diagnosis of a mixture of clearance surgery and the subsequent major nerve damage, and the after effects of the radiotherapy, which he said could last a year or more. I finished rads at the end of July last year, so if it's still hurting in 6 months time, won't be best pleased...Anyway, next mammogram and appointment with him booked in today for next November. In the meantime it's back to 'it never happened' mode!
Do hope you are all doing well. Hazel, how is the exercise going?
Love and best wishes to all, Axx
Dear ladies, didn't know so many of you had also had full node clearance - it's good to know we can compare problems/fitness regimes/recovery techniques.
Kess, your exercise regime sounds great, no need to add the gym if you don't want to. I only go because I prefer working out alone to a class, though I must use some of my Pilates DVDs which are just gathering dust at home! I seem to have developed some lower back problems for the first time in my life: I blame the chemo for destroying my body...
Hazel, weren't you due a mammogram? All clear, I hope.
Love to all, A
Hazel, I had full clearance on the left and now exercise at the gym, using all the resistance equipment I used to before all this happened. Have built back up very slowly - increasing repetitions at first rather than increasing weight, and stopping if anything hurt. I had a friend who suffered with dreadful lymphedema which pretty well disappeared once she started exercising at the gym, under the guidance of a knowledgeable fitness trainer. Why not work with your trainer to see what you can and can't do, avoid what hurts to start with, and start at the lowest weight and a small number of reps. Then build up as you get stronger.
I can certainly do things I couldn't 6 months ago. I agree with Kess that it would be the unexpected and uncontrolled application of stress on the arm (like trying to pick up something heavy, or move a large piece of furniture!) that is more likely to cause damage. I still carry shopping, but with equal bags if possible, or the heaviest on the undamaged side, or shifting one bag from arm to arm as I walk.
Hi Hazel, I suppose it depends on whther you had full node clearance or just the sentinel and one or two more. I just had sentinel and 2 others and have lifted and done weights with no problems. Perhaps try it and see how you get on? I do think its important that we do what we want within sensible limits of course
Hi girls it is soooo nice to read your posts and that your scans are all tickety boo.
I have had a chat with my psych at the cancer centre and with her agreement have come off the antidpressants. They were making me pile on the weight which is depressing in itself ......
So I have been swimming and going to do a bit more exercise at our council gym which should help boost my mood.
Love to you all girls and hope all keeps goes well for us all xx
Morning, ladies - was hoping to enjoy the partial eclipse today but here in London it's just been an ordinary gloomy spring morning, very chilly, too!
Glad to hear all the positive results news. I've now had an all clear from bone scan, ultrasound and blood tests, so have to come to terms with the fact that all the bits that feel 'wrong', that still hurt or don't work properly, are all part of the new normal and have to be lived with... They're still keeping a close eye on things - I see the oncologist in May and the surgeon again in July, which is reassuring - but must now try to get on with life. One thing I want to raise with the oncologist is the series of red patches that recently appeared on the irradiated breast - very odd 8 months after radiotherapy finished, but I suppose anything is possible with the treatment we've had. At least they went away!
Hazel, hope you manage to resolve the hot flushes - sounds horrible. And Cath, do hope your husband's problems can be sorted.
Best wishes to all,
Hi girls, glad to see we are all still messageing. I am feeling OK, work is tiring and I am trying not to stress too much about it. The thing is i like work but do get anxious that I am not on top of things as i usually am. I can't multi task as well as I used to and though my manager is very understanding they still want the job done. I am a social worker and have to juggle adopters, their social workers, the childrens social workers my adopters and all their egos which can be trying!! Hey ho I am off for a few days and though I have been working to catch up i am sorted now and off til Tuesday.
I am still taking the antidepressants, its been about a month now and do feel more calm and a bit blunted truth be told.
I hope all goes well for your upcoming scans Hazel and let us know how you get on. I have had a few scans since my op, more due to my kidney pains which are still problematic at times but have been so investigated I really have given up worrying about them so much. Love to yo Hazel, Alice, Kes and everone else.
Caz where are you? hope you are OK. Hope all is going OK for you Hayley. Lets keep posting now and again
Love Sue x
(Off the front page again...)
Hazel, how great that you made it to Australia - hope you had/are having a wonderful time. Anyone else off on their travels yet?
Kess, have you had your first check-up? Hope all was well.
Sue, hope the joints aren't too troublesome and that you are feeling brighter. I've been on the grumpy step (as the April ladies put it) from time to time, but a bit of sunshine does wonders. (Waking up with a migraine this morning was no fun but the weekend was lovely!)
Jilly, sorry to hear you are in so much pain. Do hope they can help you with it. It is horrid to see so many folk going through what we experienced this time last year, isn't it. I've a friend just diagnosed with BC - we're hoping she won't need to have chemo.
Hayley, hope your little one is thriving. Are you/have you resumed treatment yourself?
Cath, has the acupuncture helped with the hot flushes? Hope the hair is flourishing. My fringe is almost down to my eyebrows now - woe betide the hairdresser if he takes too much off on my next visit. It's wonderful when you can actually run your fingers through it!
Best wishes to all (and apologies if I've missed anyone),
Hi girls, good to hear from you all and best wishes to you Hayley with your new daughter.
I am back at work full time and though I do enjoy it and it is a distraction I would like to be able to afford part time and have started making plans to do that next year. It is difficult to know what to do but have rationalised that I want to have the money to go on holidays and enjoy myself.
I have joint pains too and my knees are quite creaky and sore and its not old age haha, they have got so much worse since the chemo but are improving. I have started a course of antidepressants too as I do feel very low at times as I am sure we all do.
Love and best wishes, Sue x
I don't come on this site often now - and I guess that is the same for others and why we fall from the front page. My immediate thought was that there are so many new people going through it all - poor things.
I have started back at work and as I am freelance and charge a day rate I have negotiated charging by the hour. This has meant that I can go at my own speed. Its 4 week since I started and I am doing 3 days a week from 10 until 5ish. It has been a costly year without any sick pay.
I am still in masses of pain and taking so much medication. I saw the pain consultant last week who said that my pain sensors had been 'switched on to high' by either the Taxol, or the Herceptin. And those pain sensors that had worked before were the ones that were really bad now. It sort of makes sense. I was born with talipes (club feet) and had loads of surgery on my feet and ankles - that I don't remeber as I was a baby and then again when I was 4. I have also had knee surgery. Most of my pain is in my feet and legs. But my hands hurt too - and there hasn't been a historical problem with them. So the theory works - sort of. Anyway - he changed some of my meds and I am waiting to see if I feel any better.
My blood pressure is now high - it has steadily climbed on Herceptin. But only 3 to go.
Love to all
I hate it when we fall off the front page - it feels like losing touch with you all! My bone scan results showed no changes since the previous one (just arthritis) and ultrasound revealed lots of scar tissue but nothing else. So I guess the bits that feel 'wrong', still hurt, or don't work properly are just part of the 'new normal' and something I have to learn to live with... Blood test just done to check on thyroid function - recent weight gain and tiredness might be thyroid mal function, or alternatively just me trying to do too much, and rewarding myself with cake! Roll on spring - although I go to the gym regularly I hate this damp and cold weather and need to get out and about much more.
Hope all goes well with you all. Axx