I did try and send an email this morning but I dont know what happened ! Lol ! By the end of all this we will be IT experts !! Look forward to getting your request. It's good for me too as its taking my mind off next Wednesday ! xxxxxxxxxxxxx
Hi all , Facebook page is there but teething issues lol !
bear with me 🙂 , its the first time I have been an admin and there might be a few difficulties but if you search for February Valentines 2014 BCC is the name of group at present , not sure how the email thing works ... at present I havent recieved any so I dont know .
It is a closed group anyone should be able to find it but only members can see the posts so I have to add you first
It may be better for you to tell me your names on here so you can private message me and I will add you , please tell me your facebook name and what your profile pic is so that I am inviting the right person
I am liking this tho its keeping me busy and my mind off the chemo , I am over analysing every ache and twinge I get lol
Good luck to all who have their first dose today big hugs , take deep breaths 🙂
Hey thanks for setting up the FB page - I will log on later and join up - I presume it is closed as like a lot of you I don't want my ftriends knowing either !
Hey Lowfatlovatt - thinking of you today hun - I will be exactly the same next week. Lots of hugs. xxx Pinkrunner xx
OK folks , I have got my friend Glen to set up the page on Facebook , go onto face book and search for February Valentines 2014 and hopefully you should find it ... fingers crossed . If anyone wants to help out and be admin please speak up cos I dont want to do it all on my own and hope it should be a joint effort possibly need 4 or 5 admins so we are about to accept new members ? and the name can be changed I just fiddled about a bit as one does 🙂
members of other chemo threads obviously welcome and all input and assistance accepted with good grace
Gill aka Rowan 44
oh you can also apply by emailing : Febvalentines2014@groups.facebook.com -( hmmm this doesnt seem to be working sorry )
re wigs : yeah me too its a complete change of colour my friend was with me when I tried it and says I look stunning and reckons my partner will love it 🙂
I have a couple of friends who are admins on facebook pages so I will speak to them and see if I can set one up closed group with invites or is open best ? if I set it up and tell you on here you can apply to join , not all my "friends" know my full diagnosis I am keen that not everyone sees what I am putting on there , but I will post on here if I can get it sorted
Gill ( aka Rowan44)
I think that's a great idea re the facebook page. I've got my wig lady coming tomorrow. Not sure about this cold cap thing really so want to be prepared. Have ordered a few things from Anna Bandana and bought loads of hats and some funky sunglasses - hopefully I won't look too ridiculous ! Lol ! xxx
Hi all day 3 after first dose of FEC , not sleeping much cos of the steroids but other than that doing fine , I looked at the cold cap and decided it wasnt for me , they wet your hair and it makes the appointment an hour longer cos you have to keep it on , I hate feeling cold I am a hothouse plant !!
I think I will look funky being bald I am a bit of a rock chick ! also my new wig is awesome have tried it on once or twice but it may be a few more weeks before I actually need to use it 🙂
No nausea today and headache has gone too I actually feel normal ??? LOL whatever that is,
Good luck to all us Valentines starting chemo tomorrow xxx big hugs
Thanks for the support re tomorrow. Was just at the Oncology suite where I had my pic line flushed and checked - all good. My bloods were also good they said my levels would have scored a "B" on a test. . Don't think it will stay that good for long !!! I am going to try the cold cap, however if I start looking like a monk from the 1st Centuary with bits of hair here and there, will probably stop it, I will wait and see. I am taking my mother - in - law with me tomorrow for moral support and yes, I do get along with her and am one lucky daughter in law.
To all of us facing chemo this week - stay strong and positive. xxx
Can I just ask - are you going to try the cold cap ? When I spoke to my Oncologist about it, she said because of the combination of the FEC and FEC-T it wasn't very successful. Just wondered what your thoughts were or anyone else for that matter on a similar regime ? xxx Pinkrunner xxx
I think the anxiety bit is the worse - my breast care nurse told me that you have to find a coping mechanism ! But I totally agree it does feel that you're waiting to go to the gallows !!! Lol ! Good luck xxxx
Good luck for tomorrow - I'll be thinking of you. Please let me know how it goes. xxx Pinkrunnerxxx
Hi Ladies , I started my FEC-T regime on Friday posting on this thread cos it is nearly feb start lol , I have had nausea but not bad on ondansetron which is a really good antiemetic also got domperidone to use and injectable metclopromide , havent used the injections and only had domperidone twice , I have not been sick .I know its easy to say don't worry , I know I was worried before friday but it really hasnt knocked me off my feet as I expected it too , I have had mild headaches but if you drink plenty and do as they tell you I think you will do ok, I have been a bit tired today and due to stop the oral dexamethasone they gave me tomorrow so may get more tired next week I guess , but everyone is different of course
I am a February 2013 member (February Valentines) and am popping in to wish each and everyone of you the very best of luck on your chemo journey.
May I make a suggestion? Once you begin your chemo and post on here about your side effects, or ask questions etc. it is very useful if you include at the top of your post what your regime is, and which cycle you are on, because each regime has different side effects and each cycle is different from the next. For example, mine would have been:
TCH cycle 3
This really helps the others that are on the same regime, and might cause less stress to those on different regimes who may not suffer the same problems.
To answer Mariecay's question about sickness. Not all chemo drugs will make you sick. FEC probably will. Tax doesn't normally. The part of the brain that makes you sick with these drugs is the same part that makes women sick during pregnancy, so those two things are related, and you may find your oncologist will ask you if you suffered from morning sickness. Mine did.
I was never once sick nor was I ever nauseous. I was given a box of anti-sickness tablets after my first chemo but never needed to open them. In fact the box is still in my cupboard somewhere! I was on Tax and Carboplatin with Herceptin.
Good luck ladies. It will soon be over and time will fly, I promise you. xxxxxx
I was told that if you had morning sickness during early pregnancy, or travel sickness, you were more likely to get chemo sickness. I don't know about it being related to your reaction after surgery. I had no sickness at all during my chemo last February. They kept giving me the Metoclopramide tablets even though I refused them. I have boxes of the stuff in my drawer. But then I wasn't sick after surgery either. But I do get car sick if I don't look out of the window all the time. So who knows which of these stories are true??
As far as feeling generally ill on chemo, my 'bad' days started on day 5 through to day 9, I was exhausted all the time, had constipation, painful and bleeding haemorhoids. I also had oral thrush for which my onco gave me meds and burning stomach for which she also gave me meds. But we are all different, and I know some of the the other Valentines had different SEs to mine, whilst others were similar.
Hi Pink Runner,
I am also on the Fec-T regime. Start on Tuesday with 3 cycles of fec, which is a combination of 3 drugs, then I will be having 3 cycles of the T part also known as docetaxel or taxotere . I start on Tuesdaye the 4th Feb, so with let you know how I get on .
I got my chemo start date through in the post yesterday - 12th February - it has just hurled me into a whirlpool of anxiety and stressfulness. I am scared and incredibly tearful. I have been very snappy with the family as well. I am totally dreading it. I am having FEC and FEC-T combined. Apparently you initially start with the FEC and then move on to the FEC-T - is anyone else having the same ? Also has anyone got any tips for coping with anxiety. Sometimes I am so bad before appointments that I am actually physically sick. I know I am going to be a nightmare by the time the 12th comes round. Good luck to you lot starting this week - my thoughts are with you xxxxxx Pinkrunner xxxx
Yes Mariecay I am on FEC next dose in 3 weeks time , I had right total mastectomy and axillary clearance in December unfortunately there is a met on my sternum only small and they are confident it can be held with chemo and radio therapy I will be on tamoxifen and start denusomab in 3 weeks too on calcium supplements now to
I am in Staffordshire
headache is worse tonight but its also a side effect of the Granocyte injections that I am having for 5 days post chemo to boost the bone marrow production of white cells .
apart from headache I am still loads better than I expected
Hi Jill26 , yes a few aches and and dull headache bit not much nausea apart from when I try to take paracetamol lol ,
yes my chemo sounds the same about 5 or 6 different bolus syringes for the FEC
couldnt believe how quick me wee turned red glad they warned me
all good today too
long may it continue !
Hi - I am from September Stars and I finish my chemo in 6 days. I have used cold cap from the start. Although I thought I would lose it all (as an awful lot came out of first dunking - told this is becasue the first poisioning is a shock to the system) I kep on with it. Did develop a small monk like patch on top but was able to get away with a hat. After 2 months the patch filled in and even though it is a little thinner it looks completey normal. I have carried on working so it was important to me personally that I did not look like a chemo patient. My hair is naturally very thick but have been told thick or thin - can't tell who it will work for.
had my first chemo friday morning the 29th , I am pumped up on Steroids , had some minor gripey pains on return home but no nausea and feel 100% better than I ever imagined that I would
been drinking plenty of fluids tea and water and juice and ate as normal tonight it hasnt been as bad as I expected I really hope this continues but I am self medicating , just a slight headache
will keep you posted as the days go on but to all who are due to start soon please try not to worry and listen to the nurses who advise on how to get through it