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Starting Chemo in March - the 11th

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Re: Starting Chemo in March - the 11th

Hi have decided that I have got to stop puting pressure on myself to go back to work, if I can I will, if I cant I wont. My health is more important, & the sonner this treatment is over the better.Day 7 od fec22 & am starting to feel more normal again. I havent had a glass of wine since dx, since the report linking drinking to bc, am I being mad!! Have to say really dont feel like wine while on chemo, might save it all up til finished then go on one almighty bender:) xx

Barbwill
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Re: Starting Chemo in March - the 11th

Crazyleslie, thank you for info about steroids being only to stop sickness, I might well ask them to lower th dose or remove them all together because they were the worst thing for FEC2 for me. And I wasn't nauseous at all anyway.
Not sure what to advice about the job, it is very personal but perhaps they can offer you a level of part-time that would not make you too tired. Would they let you work from home ?
My work (I am a research scientist) said I can work any day I want, from home or from the office, and they'll add those days to my period of fully-paid sickness leave. Pity I went part time just two months before being diagnosed .... but I think I felt tired because of the illness, only didn't realise.

amber32002
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Re: Starting Chemo in March - the 11th

Hi BeStrong! And hi everyone else.
I'm about to have my third set of chemo. I found that both times I've had FEC, I've felt fairly nauseous on day 2 3 and 4 but then it's eased off. And fairly tired but only for a few hours at a time, for the first 7 days or so afterwards. I lost quite a lot of my sense of taste for about a week in the middle, but it came back again both times. And I've had some tingling in my fingers for a few days, which goes as well. Bit of indigestion for a few days during the first week too. Others seem to react differently so this may or may not help, but it seems to be a certain pattern each time.
I found that taking ginger supplements for a few days beforehand and a few days afterwards has meant that I haven't felt very sick, which is backed up with very good research now. Worth trying if you're not doing so yet.

Ann x

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Re: Starting Chemo in March - the 11th

Thanks for the link CM and the recipe Ruth, i'll order my all bran and make it when my shopping arrives......... 🐵
Clare x

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Re: Starting Chemo in March - the 11th

Just back from FEC2 and no steroids this time, so hopefully I shall be calmer. The recipe for go cake is:-
4oz all bran, 5oz sugar, 10oz mixed dried fruit, ( prunes sultanas cranberries etc) 1/2 pt milk, 4oz s/raising flour. Put the allbran fruit and sugar in a bowl add milk and leave to stand for at least half an hour. Sieve in flour mix well pour into a well greased loaf tin and bake at 180C for and hour. Cover with foil after 30 mins if browning to quick. Turn out and cool. Serve sliced thinly with butter.
I love it and it worked a treat last time, didn't need any other medication. Right going to put mine in oven now.
Ruth x

ChoccieMuffin
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Re: Starting Chemo in March - the 11th

Are there any non-public-facing tasks that need to be done? Could your manager reassign you to podding cheques, or making phone calls? It might be worth speaking to your bank's HR to see if there's something they can do to keep you working without putting you at risk of infection.

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Re: Starting Chemo in March - the 11th

Hi all, I havent taken any steroids after fec2 asked the onco if this was ok, & was told they are only for sivkness so if not feeling sick no need to take them. The constipations is better, but now I have PILES!!!!! god I feel like an old lady. Do feel more may self today(day7 post fec2). Had anyone else gone bacck to work inbetween treatments?. I am on my own so need to work finacially, but ono has toldd me not to put myself under pressure to get back to work, as this can delay recovery. Really dont know what to do, I work in a bank so do have contact with the public & dirty money!!!. As I ended up in hospital witth infection once dont wont to end up there again. Help what should I do? Lesley xx

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Re: Starting Chemo in March - the 11th

Hi all
I am new to this thread (and any other one)I have been reading the comments for weeks in anticipation of my first chemo which was on Monday (4/4)I am having 6 x FEC and dreading the side effects. So far I have felt reasonably OK, a tiny bit nauseous and quite tired, but not sleepy. But it is only day 3. I am under strict instructions to take one day at a time and to be strong but I really want to know what might be round the corner waiting for me and how you all cope with it?

ChoccieMuffin
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Re: Starting Chemo in March - the 11th

Just had a text from silvershar, she's hunkered down after FEC2 and now stocked up on the jabs too. Hope things are going ok for everyone. I think I might have turned a corner today, I didn't have a morning snooze!

And with the weather being so lovely walking the dog on the common was beautiful. Saw a small deer bouncing around, and of course the dog chased it. Didn't catch it though, just barked lots.

Don't think I'll escape without an afternoon nap... night all!

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Re: Starting Chemo in March - the 11th

The recipe is on ''Tips to get you through chemo'' one of the last segments. If you can't find it I will type it out again. Just on my way for next fec and to find out about belly injections. Here's to small se. Least the sun is shinning.
Ruth x

ChoccieMuffin
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Re: Starting Chemo in March - the 11th

You can get the most delicious vanilla prunes in Sainsbury or Tesco. They're soft and juicy and completely delicious, and taste like very rich deliciously intense plums, so think of them that way rather than just as something to make you poo! Apricots are also quite good, also in the same aisle as prunes and other dried fruit, and go for the ready-to-eat ones that are yummy straight out of the bag rather than hard chewy ones. You can get all sorts of dried fruits nowadays, so get adventurous and give some of them a go. If they don't float your boat I suppose you could always add them to the Go Cake...

I did used to have a recipe for banana and date teabread, that'd probably be worth trying, if I could only find the recipe. (Oh dear, I'm thinking about food again...)

Ahah!!! Found a version of it that's very much like the one I used to love. http://www.cookitsimply.com/recipe-0010-01t1446.html. No added sugar, just what's in the fruit you put in, so you can feel virtuous as you munch.

Going to call the helpline regarding the farting, it's just SO unpleasant, and rather uncomfortable too.

Jo_C
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Re: Starting Chemo in March - the 11th

CM I don't know the answer to that either and also need to find out as my insurance company have said I can have all my prescriptions privately if needed as my GP was such a *$*&! when I last saw him.

Hair is now really falling out and sore I have collected it in a bag and am thinking of sticking it back on - what do you think?! lol

I tried Movicol and Senokot Max but neither made a different so I may have to resort to prunes yuk yuk yuk, maybe I will try the cake instead.

Barbwill
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Re: Starting Chemo in March - the 11th

Prunes and prune juice didn't help me this time but Senokot Comfort did a fantastic job - softened the stool just enough without giving any pain.
I don't know if steroids also help with the treatment or if they only lessen the SEs but I personally would talk to the oncologist or chemo nurse before taking a decision not to take the prescribed dose.

Chocciemuffin, the drugs for the next chemo were given to me at the hospital immediately after the chemo, I didn't have to get them myself from the GP.

Still trying to adjust to being hairless.

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Re: Starting Chemo in March - the 11th

Sounds lovely Ruth,
I like malt loaf, do you have the ingredients for it or is there a link somewhere.......Mayb I could forgo the prunes for a few days and have that for a change 🐵
It is funny all the different things we have started talking about but often we are reluctant to ask the oncologist and nurses so its a good job we have an oulet here........
I am off to the wig shop this morning, I am using the cold cap but I thought I would have a standby, just incase. Its 14 days since FEC1 and hair still in place apart from my calves and my knees which is going patchy. Hopefully it will be a laugh as I am going with my best friend whos a hairdresser.
Happy Wednesday everyone
Clare x

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Re: Starting Chemo in March - the 11th

In the tips for chemo there is a recipe for Go Cake. I can confirm that it has the correct name, it really works. It tastes like malt loaf. I also love prunes but this felt like a little treat one slice is enough. Better than medicines.
Can't believe the subject matter that we happily write about, here's to us all going !!!!
Ruth

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Re: Starting Chemo in March - the 11th

Hiya everyone,
I thought i would share my secret of no constipation, involves, no tablets just a regular dose of 'Natures finest' prunes.........I know they sound grim, if you are not into prunes or you hate the tinned ones with custard we used to get at school but I have either 8 prunes or a mixture of prunes and tinned apricots.
These particular prunes are yummy and I have frequently overdosed on them lol.
They work every time too as i was on laxatives as soon as i started codine and suffered complete blockage........painful.
Even through my first chemo i have had no trouble either.
They are to be found in the tinned fruit section in plastic jars with green lids.
I like prunes.............can u tell??? 🐵
Clare x

ChoccieMuffin
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Re: Starting Chemo in March - the 11th

I have felt as if I've been left to it to decide what and how much to take re meds.

First time round I was meant to take 4mg dexamethasone 3 times a day, this time round it was 2mg dex 3 times a day. Or was it the other way round? And as for ondansetron, I had one tablet to take after chemo, but then after the hospital trip I was given a box of 30, so I took them with the dex this time round, as I did when I left hospital after the mega sickness the first time...

Also was given Omeprazole, though not quite sure why. I need to ask if that would help avoid the burnt mouth and stinky farts, as those are the two main SEs that I'm getting (apart from sleeping for England) this time.

Should I get any extra drugs from my GP or expect the hospital to dispense them after next chemo? I just don't understand how all this works, as I'm not generally a sick sort of person and have barely needed anything more than a Lemsip for years. I don't understand the system and don't want to make a pest of myself, but also want to use the system in the most effective way.

It's all so confusing, isn't it!

And my kids confirm that my breath is really rank, so I'm using mouthwash and eating sugar-free chewing gum.

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Re: Starting Chemo in March - the 11th

Ditto wind and constipation now have disgusting furry mouth that I imagine must smell like the worse case of halitosis ever but am too frightened to ask in case someone says yes!! I am day 6 post Ecmf, have 11 more to go. I never really took the steroids past day1 though did take the anti sickness as directed though didnt stop the sickness! Has anyone not taken drugs for side effects and just ridden it out or do the drugs they give us compliment the chemo? Just wonder if, since our livers have enough to cope with with the chemo, too much more medication might be overkill? Tingly head but no loss yet, now I know what kids with nits feel like!! Keep posting...Rachelx

Barbwill
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Re: Starting Chemo in March - the 11th

Maxine you are completely normal. It is normal to want to speed up things and feel that we are poisoning the illness.

Crazylesley, my SE after FEC2 are also very different from FEC1 despite everything being the same. This time I am feeling mainly the SE's of th drugs to contain the side effects ! Very restless and insomniac on steroids, and very constipated from anti sickness tablets. I guess we are different every time and our bodies react differently ? I'm glad I finished taking the steroids until the next go and I am hping in a better night (don't sleep despite sleeping tablets).

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Re: Starting Chemo in March - the 11th

Oh crazyleslie I know what you mean about saying no more, i never thought it would be this hard either. Have had the same thoughts myself. Hang in there. Glad you sorted out the sickness choccie, and silvershar got her treatment. I hope they leave off steroids tomorrow as they made me so agitated and crazy.
Had a lovely day out but sooo tired now, feel slightly emotional tonight, maybe it's knowing what's to come over the next week.
Take care all, love Ruth xx

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Re: Starting Chemo in March - the 11th

Hi everyone, constipation still bad, see the onc tomorrow for chat, so will ask for something stronger than the doctor has given me. Cant sit down bottom is that sore:( Not Good!!!. SE from fec 2 seem sooo different from last time, has anyone else found that. Im so tired, but sleep doesnt help, feel & look like an old lady. Booked my LGFB, not til next month as fully booked, there are more of us out there than we know. My hair is also growing back on my head & legs, is this normal, or will it drop out again?Must admit I feel like telling onc to morrow that I dont wont anymore, I will take my chances, know I wont but god if I had known the treatment was so hard, might have looked at it differently. Good luck anyone with tretmnt this week xx

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Re: Starting Chemo in March - the 11th

Just had a call from my chemo nurse to say i can come in earlier than appointment .I said thats great i thought you was ringing to say my bloodcount isnt good and she said i try to get my message out as quick as i can cus people think iam ringing with bad news
So my 2nd fec goes ahead tomorrow maybe iam not normal cus i was pleased she rang with a earlier appointment
hope everyone is feeling ok with chemo + se this week
maxine xxx

Barbwill
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Re: Starting Chemo in March - the 11th

Blue dragon, good luck for tomorrow !!!

Silvershar, so glad you could go ahead with it.

KittieKat, do you live in France ? I just bought two lovely caps from John Lewis, identical, one black and one white and can't wait for the delivery. Enjoy yours! Hope they'll arrive soon.

I am also constipated, but the up side is that nausea this time has been almost absent. I need to get the right balance between nausea and constipation next time.
I've book a place in a Look good feel better workshop but the first available date is just a month before the end of my chemo so I might need some expert help before then if I loose my eyebrows and lashes. Head is shaven now, strainge feeling, as if it's wet, and feeling a bit embarrassed going out with my head scarves. I hope I'll get used to the attention, people are particularly kind of course, other people's trolleys just moving out of the way so quickly in TESCO ....

ChoccieMuffin
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Re: Starting Chemo in March - the 11th

Yes, silvershar did finally get FECced on Monday, after being postponed from Friday. Had a text from her yesterday before she sloped off to bed (good girl). I'm sure she'll be back on when she's feeling up for it.

Meanwhile, I've been sleeping for England, could win a gold medal at it! But finally on day 6 I'm hoping I can stay awake for longer than a couple of hours. Had three loooong sleeps yesterday and when I went to bed I swear I simply didn't move once the lights went out behind the eyelids.

As with others, SEs seem to be doing things differently, but that could be because of the different meds. Had Emend this time (thank goodness!) and wasn't sick at all, but very sleepy despite taking dex and ondansetron, along with omeprazole. But now I stopped with the meds I'm now developing the sore mouth and windy bum thing that I'd had from pretty much the beginning last time. Do you think the omeprazole might help with that? Must remember to ask at the next pre-chemo appointment as it's a nuisance and not pleasant for other people, it's poisonous!

Still have eyebrows and eyelashes, but I'm just hoping rather than being confident that they'll hang on in there.

Anyone else up for poisons this week?

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Re: Starting Chemo in March - the 11th

Good luck for tomorrow Ruth, may all your SEs be tiny ones.

Crazylesley, ask for Movicol (you can get it without a prescription if need be). It helps to get things moving if you have a bit of an, erm ... backlog. I bought some before I started chemo, fully expecting to need it, but so far have had no problems in that department.

Anyone heard if silvershar managed to get her FEC2 yet?

I've got my FEC3 next week, so that'll be me half way through, hurrah!

Now that the spring weather has arrived, I've decided that I'm not really a scarf or wig person, so have splashed out on some lovely summer caps and hats online in the Debenham's sale. They deliver to France, yey! Happy bunny.

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Re: Starting Chemo in March - the 11th

Bluedragon. Im a week ahead of you, hope all goes well on wednesday. SE this time diffrent from 1st time, but coming out of it now, just need to go to the toilet!!!!!. Oh the joys of fec, Night everyone, sleep well xx

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Re: Starting Chemo in March - the 11th

Had blood test today and I was so scared that they would be low and it would be cancelled again and I couldn't have my next session, but they have come back ok so FEC2 on Wednesday. So I'm back on track, off for a day out and a slap up meal for my silver anniversary tomorrow before I go through being shattered again.
But that will be 2 down 4 to go and a third of the way through.
Hope everyone else is ok and able to have their chemo, those who have had it having none or small SE
Love Ruth

libby_2010
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Re: Starting Chemo in March - the 11th

Ladies a real quickie ( hope you don'y mind me butting in but this thread always seems a 'busy'one) just been on to the main home page and there is a request there that we sign a petition for the BCNs. Basically as a nurse myself ( my understanding from what has happened in local areas to me) there has been a move in many areas for all staff with any clinical skills to go back and work on the wards ( and of course this means the BCNs)How long they would need to work on the wards has not been stated. You may all be aware that over many years the NHS has been chronically understaffed and this seems to be a measure to put a band-aid over a haemorrhage ( hope the mods don’t jump on me for being so frank) But I do know in the next area to me they ( all staff) have all had an e-mail sent to them to go to the wards eg. At lunch time to feed patients.
If you go to the home page and scroll down a little on the LT there is a Main news bit dated 31/3.
I for one benefited so much from the support and care of my BCN and would really like for her and her colleagues to be there for other ladies too. OK rant over Night night Jackie xx

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Re: Starting Chemo in March - the 11th

Thanks for that, I'm one of those daft people that think if you have the info you won't need to use it, like I have an overnight bag packed just in case. Barford is pretty, I love dedington as well. You do live in a beautiful part of the world.
Thanks again Ruth x

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Re: Starting Chemo in March - the 11th

Hi Ruth,
Barford st micheal is literally 2 miles from where I live, pretty village, hope you enjoy your trip. Banbury isn't a 24 hr oncology unit, so you were correct about the Churchill as thats the one I ring for out of hours service but I'm sure if its within 9-5 Banbury would help. They are a nurse led unit and very friendly and welcoming, fingers crossed you wont have to meet them, enjoy yourself instead.
Clare x

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Re: Starting Chemo in March - the 11th

Hi all , sorry silvershar your having a bad time at the moment. I love your attitude to life Potmaid, very inspiring thanks for that. I did want to ask you a question, I'm caravanning out your way in a few weeks ( barford st micheal) and my unit I could go as long as I am close to a hospital so I thought Churchill was closest, but going by your post you mention Banbury is that a closer hospital and do they have a 24hr oncology unit.
Thanks Ruth x

ChoccieMuffin
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Re: Starting Chemo in March - the 11th

I'm convinced the terror, dread and utter panic of FEC1 pushed me completely over the edge first time, so on top of having a change of anti-sickness meds, I'm on the road now so less terrified, dreadful and panicked, so that too must help.

Barbwill
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Re: Starting Chemo in March - the 11th

Potmaid, thank you for opening your heart to all of us on here. I really love how you express things. Also for me the most sore point is the children, and the first two days after the diagnosis I found it very difficult to be with them. Now things have reversed, I take a huge amount of comfort and joy from them. I also cannot really think about the possibility that I might go sooner rather than later, and I think that we shouldn't push ourselves to do it - it is hard enough as it is.

Well, day after FEC2 and feeling fantastic considering. I don't understand why. After FEC1 I felt quite bad for 3/4 days, no energy, spent most of the day in bed and couldn't face eating lunch nor breakfast. Today I entertained my kids, I cooked scones just for fun, I cooked dinner, I did two washing machine loads, plus more. And it was the same dose. I can only think that the last time I was seriously sleep deprived and this time not because I am now on regular sleeping tablets. I must say that the thought that they got the dose wrong crossed my mind but I did mention it to the nurse yesterday ( I thought I counted more syringes the last time but I think it's because they gave me the anti-emetic and steroid through injections then) so I don't think it's possible. So, good news, I am very pleased.

Hair horrible now, all patchy but not shaving it off so that kids don't have to be faced with a big change. I don't really mind it, so chuffed I am feeling human after FEC2 I don't care about anything else!

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Re: Starting Chemo in March - the 11th

Hi ladies
i have just read the breast cancer care book MUMMYS LUMP to my 7yr old daugther to let her understand i have breast cancer i alway said mummy is poorly she really understood the book and also i have had my head shaved so iam now sporting a gorgeous bandana the kids had a good laugh at mummy being bald
have a good weekend
maxine xxx

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Re: Starting Chemo in March - the 11th

Hi There,
Sorry to hear Silvershar thay your FEC2 was postponed, hopefully with a weekend rest you will be ok for Monday, fingers crossed and hugs x

I am generally a positive person Barbwell, or at least try to be. It was hard when I was first diagnosed cause as we all know, such a mixture of feelings and thoughts run through our heads, not just once but a constant buzz. I woke up thinking cancer and went to sleep thinking cancer and it was only as the years past that I realised that for a day perhaps that I hadn't thought about the C word, then it just slipped out of my mind......very refreshing, but it did take a long time. I felt it was a huge injustice that I had got it so young (36) until I came on to this forum and realised that actually I had had a great life with kids and women just on the brink of their carears and marriage and children, all much younger, had it too.The scales of injustice doesn't recognise age or any other factors so I felt if all the other ladies could manage their lives then thats what I would do, and really have had the same attitude throughout.
The sticky problem and wall that I cannot face and haven't really, though I have talked about it very matter of factly to people, is the children..........
They were my first thought 9 years ago and they were at diagnosis the 2nd time. I have been through all the practical things, talking to them now and watching how they are coping ( I am so proud of them both) I have planned for their future if I am not around but confronting the fact that I may not see them grow up a see their lives unfold, in my mind is just a blank, I can't even go there as I know it will be a dark place and know that its one thing I wont cope with very well, so I have put that bit in a box at the far reaches of my store cupboard, which is what I try to do to keep positive. I take things, issues out the cupboard, take a peek, then put it back, deal with things one at a time so you are not overwhelmed.
Last year also I separated from my husband, he still was living at home when I was rediagnosed for finacial and health reasons and has turned into a different person, one I quite like. I'm not thinking of getting back with him but we are developing that friendship that we had at the beginning of our relationship 24 yrs ago, so thats a positive too.
I have been writing a few poems when sleep aludes me, one of them is about the wine glass being half full........thats they way I like to try and live.
Goodness I hope that all didn't sound smug, I just cope really....don't you have too. Its harder this time as my fitness and my ability to walk is hindering me, I walk with a stick now instead of a walking miles with my dog and working all weathers as a gardener. Its the outdoors i miss.....
Enough about me, I am guessing that you have twin 3 year olds Barbwell, thats a handful, don't you go doing any deals, we all need hope and with the treatment and the advances day to day I am pinning my hopes on it that some will work for all of us.
Please all have a lovely weekend
Clare x

ChoccieMuffin
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Re: Starting Chemo in March - the 11th

Just had a chat with silvershar, who was meant to have FEC2 today. Unfortunately it was postponed as she's had a bit of a bad throat so will have another go on Monday hopefully.

Barbwill
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Re: Starting Chemo in March - the 11th

Clare, you sound so focused on the positive, I am sure you have your moments and days but what you wrote is very wise. My children are three and part of me feels that if I could go until they're 13 without anymore treatment and bad news and feeling good and positive, and then get it again, it would be a deal that I would be tempted to sign up to. How did you feel after the first one? Did you leave with a constant big worry or did you feel you were fine and had a good quality of life also from the psychological side considering that as far as you knew you had caught it early and you were clear for so long ?

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Re: Starting Chemo in March - the 11th

Hi there,
Barbwell I have a few things done at the Churhill but the Hospital I have chemo at is Banbury as I am nearer. I live in a village ,near Deddington, north of Oxford, if you have heard of it and Banbury has just reopened a lovely new, very personal unit where I have most of my bloods, Chemo and see the oncologist there too. There are only 3 nurses and its a nurse led unit so they are really on the ball and coupled with the mcmillian nurse in a few times a week, I couldn't have beter treatment.
CM I was one of the lucky ladies, who found their lump in the shower one day at 36, it was non agressive, grade 2, clear margins, I had most of my nodes removed and they were all clear so it wasn't thought necessary for me to have chemo. Instead I had a lumpectomy, node clearance, then rads and on Tamoxifen for 5 yrs. I have the same oncologist as I did then and have the utmost respect for her and she said presented with the same case now, she would not have treated me any differently. Its a hard pill to swallow now, of course, as I have arrived on the wrong side of the percentage scale of it coming back!!
Now I say in the back of my head 'what if' but I was happy at the time and no one can really predict what a body is going to do, mayb it was just one of the few nodes that were left in, who knows but I can't change a thing.
When faced with cancer the 2nd time, its never easy but I am thankful my 4 year old then is 13 and my 9 yr old is 18. I have my off days but mainly I am grateful to have found the cancer again as it was purely a chance encounter through an ultrasound scan I had for gallstones......so onwards and upwards with the treatment as it is something to focus on and a plan of action for all us ladies for the next 5 months or so.
Its great to have such a supportive and knowledgable site to hand 🐵
Clare x

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Re: Starting Chemo in March - the 11th

Potmaid
May I ask why you didn't have chemotherapy first time round with BC?
Thanks
CM

Barbwill
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Re: Starting Chemo in March - the 11th

Potmaid (Clare), so sorry to hear the cancer came back and that your platelets are down. I was told that bloods hit their worst about a week after chemo so hopefully they will rise again before the next go is due. You must be local to me, I am having my treatment at the Churchill hospital in Oxford and I live near Wallingford, south of Oxford.

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Re: Starting Chemo in March - the 11th

Sorry , me again, was I upbeat, just then? GROAN.... remind me to not count my blessings, quite so fast please. Just had a call from the nurse who took my bloods this morning, platelet level, dropping badly again so must watch any bleeding, clotting issues over the weekend and the white counts have plumeted so also have to be on temp watch too and to phone Oxford if it rises.....I had such a nice visit arranged for this weekend, to catch up with an old friend that I haven't seen since all the rubbish in my life started again...ho hum, lets hope they are bug free and we can still see each other tomorrow.
The nurse mentioned about lowering the dose of FEC next session, has anyone had that before?? I am on day 9.
Many thx
Clare x

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Re: Starting Chemo in March - the 11th

Hi all.
I've been a lurker for a while too, learning valuable things about all the side effects of the FEC through you all and I thank you for it as it made my first FEC on the 22nd March, not quite so daunting.
I have a beautiful 9 yr old springer spanial who was my baby after BC got me the first time. she was my reward when I finished all the rads I had in 2002.
I have unfortunately secondaries now in Liver and bones but didn't have chemo the first time so am starting my chemo journey with FEC.(always makes me giggle that word as it is a well used swear word in Ireland)
FEC1 was bearable, had no sickness at all, actually felt good on the next day but then a wall of unbelievable tiredness hit me the following day which lasted till yesterday, coupled with the inability to walk much, it was hard but today after a week of good sleep I feel so much better. The only and rather uncomfortable SE is oral thrush, in my mouth but also down my throat, I have developed a rather sexy, husky voice too which many have commented.
I had bloods done today as had transfusion on monday and had low platelet levels, handy to have them done half way through as it will flag up the white count too.
My hair (head) seems to be in place, I am trying the cold cap which initially was horrid for 10 mins but your body soon adjusts to the low temp. One good thing is that I am losing my leg hair and a few pesky hairs I had on my big toes that so amuses my children if I missed them when shaving:o)
You all seem one treatment or a week ahead of me, useful for any new SE to watch out for.
Good luck to you all with FEC2 today and next week and hope you all have a SE free weekend as it is supposed to be lovely.
Clare x

Barbwill
Member

Re: Starting Chemo in March - the 11th

Hi everyone,

Just done FEC2 this morning as planned because my bloods were fine. I am still not too rotten yet (mainly a headache that paracetamol won't shift) but I know tomorrow an the next days will be worse. It's great to thing 2 down 4 to go, and to think that the next time I'll be half way through (if we stick to plans).

My hair has finally started to come out properly, 21 days after FEC1. I washed it this morning and 2/3 of it fell out in blotches. I have to say the thought of how I would react was worse than reality. I don't really mind, having it fall out as I do the second FEC is good because I am busy feeling bad so not too bothered by how I look.

My pubic hair is also coming off but I haven't noticed if it started to come off together or after the head hair. Still have my eyebrows and lashes by nurse warned me that they might take longer to go.

Big hugs to everyone, and good luck for all of you for the next cycle.

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Re: Starting Chemo in March - the 11th

Silvershar i agree my dog is everything to me and good luck for today
my hair is now coming out everytime i touch it
my kids are having a cut mums hair day on sat then i will shave the rest off with help from hubby i go for blood test monday then FEC2 on wed
have a great weekend everyone
maxine xxx

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Re: Starting Chemo in March - the 11th

Silvershar, good luck today, you go girl xx

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Re: Starting Chemo in March - the 11th

Morning everyone - thanks for birtday wishes for my Zeyna, yes i agree the benefits of having a dog far outweigh any health risks and I told my onc my dog is my baby, she makes my heart fill with gladness and i love her totally and she understands and comforts me when i am low and when no one in, she snuggles up and i know she knows im not quite right.... she certainly makes me want to get up and look after her as i dont want her to miss out just cos someone up there decided i was gonna endure bc! ha, rant over, im fighting fit today - FEC2 this afternoon, hope as I just read about choccie that they give me that Emend today, tho then again maybe nothing cos managed without last time as threw it all back up!
Blood ok yest but temp bit high and on antibio for infection but they let me go home cos bloods real good so fingers etc crossed!
Yes that thread good for animal/dog lovers etc.......... oh my hair still here, as u all prob know had it cut from waist, but now coming out but stil got full head of hair but contemplating having cut short short as in pixie crop as im malting everyone, - i can relate to the beans thing as i made cauliflower cheese and u can guess the extra ingrediant and i was wearing my bandana!!!

Well, FEC2 here i come, be great to say 3 down 4 to go, then after the 3rd thats the FEC done and onto Tax--- Good luck to all you feccers today, just realised its now April!!!! xxxxx

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Re: Starting Chemo in March - the 11th

Hi all,

I've been lurking for a while but this is my first post. I started FEC chemo on the 16th (2nd FEC is next weds) and haven't lost any hair yet (well, not from my head anyway - it started coming out 'down below' when i wash in the shower). The waiting for it to start falling out is driving me mad but at the same time i don't want to go ahead and shave it until i know for sure it's definitely coming out. Argh - what to do and how long after body hair comes out does head hair start going? I did use the cold cap but don't hold out much hope for it working for a variety of reasons related to it's application.

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Re: Starting Chemo in March - the 11th

Hi Kitekat I actually waxed some of mine off this morning then used a shaver to take off the bits I missed! Waxing worked quite well!

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Re: Starting Chemo in March - the 11th

Hi, I had fec 2 on wednesday, & I am as naggy as hell, good thing I live on my own. I am taking it out on my children when they phone:( God I hate how this thing is making me feel. Like you I shaved my hair off after fec1, & it seems to be coming back, & had to bic it off in the shower. Just had a call of the district nurse re my injections, they wont e to sit a clinic to wait to see someone, the whole point of the injections is to avoid ending bacck in hospital with an infection, so sitting with people who could have all sorts makes no sence at all!!. Told them I need a home visit. Sorry Im ranting on a bit, just fed up of feeling like my life is crap.Could be worse I could be on Jeremy Kyle!!!!! Lesley xx

Lisa_x
Member

Re: Starting Chemo in March - the 11th

Morning ladies, I had FEC2 last week. I too had seriously bad sickness with FEC1 but had extra anti sickness with FEC2 and had no sickness at all which I am so grateful for! I have had bad heartburn which won't seem to shift.
FEC2 has brought different SE's, along with a manky mouth I have had no brain, been seriously cranky and tired. I have been completely out of sorts, talking rubbish and forgetting words. I have been so upset about this and generally been up and down like a yo a yo with my emotions. Anyway, that's lasted a week and I feel so much better now. It doesn't feel like it at the time, but it really does pass. I am now hoping I can get on with life as normal as I honestly feel normal until FEC3.

Kittie- I shaved my hair off with clippers but still had the fuzz which I couldn't bear. I looked in the mirror and my reflection just screamed cancer! I used a BIC and got rid of the lot, but I can feel it coming back. I think I wil have to regular bic in the shower, the same way I used to do my armpits every other day. No hair there though so that's a result. Am using much more make up than I usually would and am going commando, wearing wig, scarves and also have a fringe which I attach to the back of a hat. I'm trying to give everything a go but I don't think the scarves are working for me.

Have a great weekend all and may your SE's be little ones!