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Starting Chemo in May 2012

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Re: Starting Chemo in May 2012

I hope you have some news regarding your daughter Rattle. Won't beanything sinister I'm sure. Hope she starts to feel better soon.

How are you feeling Alix?

Ive had a busy weekend with the birthday boy.Double figures achieved. It was lovely, if not busy! He said thE "best birthday EVER". When asked what was the best he said "just seeingeveryone". Which is lovely as was his cousins/aunties and uncles. Easily pleased my lad.
The tiredness ibeginning to settle in for me. Didn't feelthis tired during chemo. Not sure how rads are going to be. Dark thoughts have slowed down and have been pushed to the back of my mind. Was really sad to hear about SCACO though. Seems so quIck. is that the best? I donT know and will try not to dwell. Love to her family x
We are picking up a new (10 years old!) car today. Buying off friends who have given us a fantastic deal. Just thought to look at insurance quotes. Should have looked before we agreed to buy it...... North of £800?!?!? Haven't even added OH yet which is sure to push it up (claims!). Cannot back out as they would have part ex it and deal done. Ouch!!
Right I'd better g,et off the iPad. Have to clean up quickly, get to work, and get home for lunch with brand new SIL.
Im right by Stonehenge in terms of location, about 10 miles north of Salisbury. Would love to meet. I think!!!

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Re: Starting Chemo in May 2012

Hi Rattles. Hope your little girL is ok. Could it ve glandular fever?
X

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Re: Starting Chemo in May 2012

Hi Em, I am in Portsmouth right on the bottom of England, before you fall in the sea x

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Re: Starting Chemo in May 2012

Hi Em

I am in north Bristol

Squeakymouse

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Re: Starting Chemo in May 2012

Rattles, so sorry your little girl is still poorly - try not to worry though, sounds like a viral infection, causing her glands to swell, which can be hard to shift sometimes. My son had something similar when he was little. Does she have a sore throat too? As for a meet up maybe somewhere like Birmingham or is that still too far for our northern/Scottish buds? Perhaps we can all say again where we are based and I'll try and work out a middle point!! Add your location below and cut and paste and re- post. Night night buddies, x
Emylou- Cheltenham, glos.

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Re: Starting Chemo in May 2012

Nice to come on and catch up with you all.
Alix, sorry to hear about your infection. I hope you are not in too much discomfort. I agree. the nights are the worst and like you, I wake with hot flushes, and then later in the night, freezing.
Kitten-mad- sorry you were so tired. I am tired too. I also lived on milk - for months. Keep saying 'It is over.'
Em- hope your visit to work goes okay. I am going back to work just after the half term. Fingers crossed. Got mixed feelings about it. I wasnt planning to wear my wig though?
I dont know where would be a central place? I cant remember where everyone lives. Cambridge? Cheltenham? Manchester? The Coast? (From memory????)
I went bra and prosthetic shopping today. What an experience. I nearly turned around when I saw the shop - all frosted glass and very much aimed at over 60's (am really sorry to anyone over 60, there should be a greater choice), and so depressing to find myself 'young.' The silicone prosthesis, complete with nipple is seriously bizarre but at least it looked okay once in the bra, and some of the bras were pretty.
So, came home feeling pleased with myself but not meant to last...... Some of you might remember daughter been ill on and off for last month. She has a seriously swollen neck. Saw GP today with my OH (I was bra shopping) and had an urgent blood test (OH not sure why!!). Oh my ......., am half sure it is just about checking but got that sick feeling in the pit of my stomach, again. Me and lumps will now always have a difficult relationship. Am trying not to panic and remind myself that not every illness is cancer or something sinister. At least she is eating tonight and her tmep has gone. Good job I am having some counselling!!
Where could we meet? I thought I might email Pixie from the April thread and see where they ae meeting? What do you think? As much as I want to meet, I would not deccribe myself as an events organiser so I thought I might steal some of her ideas?
Look forward to hearing from you all.
Big hugs.
Rattles
(PS For all the anxiety and aches and pains, it is so, so great to know I dont have to be blasted this week, next week, the week after). xxx

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Re: Starting Chemo in May 2012

Hi Ladies,

Just wanted to let those of you who are nearly finished chemo that there is light at the end of the tunnel and you do start to feel better.

Em - good luck with your work meeting tomorrow, I am sure they will be very pleased to see you. Don't do what I did last week and stay too long in meetings and get over-tired though!

I had my pre-op assessment for the anaesthetic today which went OK - even met up with a friend there who is having abdominal surgery this week (not cancer). I have pre-op appointment with the nurse on Thursday.

I had herceptin at home today - beats the round trip into hospital!

Squeakymouse xx

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Re: Starting Chemo in May 2012

Hi everyone , looks like we are all feeling a bit down , I dont have my last chemo until next wednesday, have suffered so much with this one that I'm not sure I want the last one , at the moment I am having a competition with the elephant man to see who looks worse , face and hands swollen , bright red and skin on face cracked and peeling , apparently its one of the side effects of the tax am now back on steroids every morning, but luckily bone pain has gone although cant put heels down as pain in them so tip toeing around , dont think I'm painting a very nice picture , would laugh but it hurts , hope everyone else is coping ok ,
love and hugs to everyone xxx

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Re: Starting Chemo in May 2012

Hi All - Haven't posted for a few days as I have been away since Thursday and just got back last night. Although I had a nice time I really wasn't well enough to go anywhere and had times of being so tired I could just have cried! In fact I was at a service station last night and seriously thought about just sleeping in the car as I couldn't contemplate driving another mile, and I didn't want to get out to go to the loo as I had taken my wig off! I felt so damned vulnerable I couldn't believe it. Harder to cope with when you are not at home too. My mouth has had me in agony for most of the week and the only thing I can drink is milk or milk shakes - which is all very nice but if that is all you drink all day it could be a bit fattening! Over a week since last chemo but still not feeling like rejoicing yet. It is really good to know that we are all feeling the same way though. I just want to be normal again!

Love to all
K M xx
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Re: Starting Chemo in May 2012

Morning buddies, Alix - hope you infection clears up soon and you're not too sore. Rattles I would love to meet up - where would be a good central place for us all? Im going ino work tomorrow or the first time since May to discuss phased return after my op - I'm dreading it - will have to dig out my 'work clothes' and wig!!! Hope everyone is ok and has a good week, X

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Re: Starting Chemo in May 2012

Morning all
Back from hols last night, had a fab week in the hired camper van in the Peak District (mostly sunny, unlike home!). Downside is that I got an infection in my reconstructed breast, am on antibiotics but it's still sore and weeping so I'm going to try and get it looked at by a breast care nurse today. OH has also been weeping, upset by my infection. At least we didn't have to cut the holiday short.
Sounds like we're all having similarly dark thoughts as we get to the end of our chemo (my last one is due on Weds, though I don't know if they'll delay it due to the infection). I wake up lots during the night at the moment with hot flushes, in my experience the early hours are the worst time for feeling pessimistic about things. Although it doesn't help with the underlying uncertainty, I find that listening to a story on my ipod helps distract me and get me back to sleep.
I'd love to meet up, though I guess some buddies are tied up for a while having rads? I'm planning to go the breast cancer care younger women's forum in Liverpool at the end of the month, which sounds really interesting.
Hugs to everyone,
Alix xx
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Re: Starting Chemo in May 2012

mornin buddIes, Zumba hope you're feelin a little better today, our journey is def a hard one emotionally as well as physically and our lives will all be changed by it. Im sure theback pain could be a SE I've had it with all my tax. but agree that every twinge will from now looked apon differently than pre BC.
Rattles glad you are havin some normality back. def makes you appreciate the small things more x
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Re: Starting Chemo in May 2012

mornin buddIes, Zumba hope you're feelin a little better today, our journey is def a hard one emotionally as well as physically and our lives will all be changed by it. Im sure theback pain could be a SE I've had it with all my tax. but agree that every twinge will from now looked apon differently than pre BC.
Rattles glad you are havin some normality back. def makes you appreciate the small things more x
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Re: Starting Chemo in May 2012

Big hugs to all the buddies,
I think we all feel the same fears about the future. Zumba, I misunderstood and thought you were having your ovaries out? Is this something you wanted? I am sure you are exhausted and you barely finish one thing and its on to the next.
I was so so low for the few days after we decided to stop chemo. Everyone thought I would be happy, but I wasn't. It was one of those moments when all my fears about the futures seemed to come down to one decision. Right or wrong. I think what is helping me to feel better is the return of some sense of 'normality'- actually being able to take my daughter to school, eat, and enjoy the sun. Like you zumba, every twinge and pain makes me feel very frightened.Don't have anything to say to take the pain away, but that we are all going through this and we all understand each other does help.
Gillian - congratulations on your wedding anniversary.
Doggirl- cant remember if your son's birthday was today or tomorrrow but hope he had a great day and you enjoyed it too.
Lots of love, Rattles x

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Re: Starting Chemo in May 2012

Hi Becks

I’m sorry to hear that you are having a pretty tough time at the moment. I’m sure the users of this site will be along to support you soon.

In the meantime maybe you would like to talk to a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 600 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

Best wishes Sam, BCC Facilitator

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Re: Starting Chemo in May 2012

Morning Ladies
Hope your all ok.Had my last chemo yesterday,picc line out and zoledex hormone injection omg that killed like some of you on here i've been feeling really low scared thinking i wont be around to watch my kids grow up every ache and pain and i panic have been having lower back pain for a week but have put it down to walking an hr every day i'm so scared that i'm going to die young hate these feelings but can't seem to shift them i just wish i could feel normal again i can not believe what a hard journey it has been so far but think chemo has been horrible hope i never have to have it again.Also at my last appointement with onc understudy was told i would be having my ovaries removed only to be told tue by onc no way unless it comes back that i carry the gene.Hope you all have a fab weekend
lots of love and hugs
Becks
xxx

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Re: Starting Chemo in May 2012

Morning
Hope everyone is feeling a little better today. Yesterday I celebrated my 21st wedding anniversary,went out for a meal with husband, daughter & her boyfriend, taste buds had come back abit so managed to enjoy my meal. Today I'm going to my nieces wedding, the sun is shining so should be a good day. Will be seeing a lot of people I haven't seen since having BC so abit nervous.
Hope you all have a good weekend
Take care
Gillian xx

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Re: Starting Chemo in May 2012

hi all not posted for a while, but been keeping up. I had my Last chemo today. Been feeling muchlike lots of you this week, very emotional the other day, as well as having the same thoughts of whether I would have the strength to it over again if needed. I guess though it's like when we have a baby and we say never again but then many do..
Thinking of the snot and no nose hair thing.... I am a dancer and on the few occasions I,ve had the energy to dance with a guy, h
When he has spun me I haven't been able to stop the snot just coming straight out and landing on him!!! got to say it made me laugh, and probably pay back for all the sweat I normally get hit with!!!
rattles. would love ameet up.

Ange x
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Re: Starting Chemo in May 2012

Glad to hear that Rads are easy compaired to chemo! I love the hose in the lift story too!
I agree that now the end of treatment is near I too have started thinking about it coming back and could I cope with another lot of chemo etc. I know some people have had to do this and I take my hat off to them (or at least I would if I had any hair).
I am moving house in a couple of weeks and it is a three storey house. In my head I had started planning how my OH and son could live there together quite well if anything happened to me, working out how my son could have the top floor with his own bathroom so he had some freedom and privacy! I daren't tell my husband this as he would think it was the only reason I liked it so much!
It didn't help matters when I went to log in tonight and accidentally hovered over the fund raising tab at the top and it said make a donation in your will!!!!!
Sometimes it helps to laugh and sometimes it helps to cry. Seem to be verging on both all the time just now.
Take care
A
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Re: Starting Chemo in May 2012

Thank you all for your comments. It's so lovely to share. Snubbles all round here!! I wentout for a dog walk and met a lovely dog walking friend of mine. Was good to share and get it off my chest (albeit a slightly mishapend one ;-))

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Re: Starting Chemo in May 2012

Rattles I totally agree with the no nasal hair crying. I seem to have reverted to a five year old with snot bubbles, or snubbles as they are now called in my house. Its an attractive treameant all round. NOT!!
I was wondering if any of the ladies from last year may be able to help us with positive steps to move forward. Any of them pop in.
On a positive note. My aunty had breat cancer about 6 years ago and is still all clear, also, so did my froends mum, so it does happen xxx

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Re: Starting Chemo in May 2012

Big hugs Doggirl,
I feel exactly the same. Ialways feel it more just after chemo when I am on my own a lot in bed and can't sleep. I worry so much about it coming back, how I don't think I could do it all again. i was just having a blub to my oh earlietoad out knowing how to move on and and get back to normal once this is alL over. How do you go througn a year like this and then go back to normal?
Sending big cuddles to everyone.
Xxxx

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Re: Starting Chemo in May 2012

Has anyone else found that crying without nose-hair is not a pretty sight? I've always looked awful when I cry, but ruined a good blue t-shirt by getting snot everywhere!! I am sorry, but sometimes humour and pain go so closely together.
Doggirl, Gillian, sending you both big hugs. I think a good cry is really not something to be ashamed of, and I dont know how anyone could face cancer and not feel upset about it. I think the worst thing is that it takes away that assumption we all had before 'cancer' that we would have a long, long life. I have also met ladies with secondaries and it really brings home the fact that only a few of us will be able to claim we are 'cured.'
I also think that chemo make so many physical demands of us that you just cant afford to 'feel' anything. Look at all the athletes that broke down in tears once over the finish-line.
Like Em, agree that really the only thing that helps is to be able to hold hands with others and know you are not alone. I certainly could not talk to family or friends about my fears. But I also believe we are so much stronger than we ever know. Thank g.d that I did not know what I would face when I had my surgery in Feb. Who wants a crystal ball?! If anyone told me what I would have to face I would never have believed I could cope- and at times it feels like I have not coped. Its been so, so hard. But even though I am blad, one-breasted, sometimes hobbling, mostly exhausted. I am standing. Its amazing. We are all still here! We am awed by how amazing we all are.
Squeaky mouse- if its one thing I have learned about chemo its that it makes you tired! Great that you have managed to arrange to have your herceptin at home. Take it easy when you can.
Well, I had to speak to my GP, but only about my sicknote so this does not count. Also made an appointment to get a mastectomy bra and prosthesis. Big step for me. And tomorrow I lobby my MP. I am really nervous so wish me luck.
Is anyone interested in meeting up at all?
lots of love, Rattles

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Re: Starting Chemo in May 2012

Doggirl, Gillian, Em - yes I have had similar dark thoughts too (usually in the middle of the night!), so you are not alone. Sending hugs.
Rattles - only one more day to go for your doctor-free week!
I just tried to do 3 consecutive days in the office but had to comehome early due to one of those random bouts of tiredness after a meeting that lasted from 9am until 2:30 wth a 15 minute break. So its back to working from home tomorrow. I keep questioning whether the tiredness is caused by the chemo or whether its just tiredness and I am using the chemo as an excuse, if that makes sense...
good news I think I have managed to arrange the herceptin at home!
Squeakymouse xx

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Re: Starting Chemo in May 2012

Doggirl- your dark thoughts sound very similar to my own and probably most of us on this forum!! Think the end of chemo gives us time to dwell on things and think about what we have gone through and why. I just want someone to tell me that my cancer is gone and will never come back but I know that can't happen.....we just have to find a way to cope with the uncertainty I suppose. Sorry this probably isn't cheering you up much but at least you know you're not alone, XXx

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Re: Starting Chemo in May 2012

Hi Doggirl
Congrats on your last chemo.
I totally know where your coming from, my last chemo was last week and while everyone around me seems to feel I should be happy and pleased its all over they really dont understand how we feel inside. I have really felt emotional this week, I think finally it has caught up with me what I have been through over the last 6 months.
I really hope you start to feel stronger soon and enjoy your sons birthday Saturday.
sending you hugs
Hope everyone is having a good week, good luck to those having chemo, rads etc........
Take care xxx

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Re: Starting Chemo in May 2012

Go on Rattles. Could be a record week for you, but I don't want to tempt fate.
Thanks for the hose story needed a smile Julie.

******DOWNER ALERT*******PITY PARTY
So chemo done for me. Was a bit emotional. My friend brought doughnuts and champagne along to the chemo suite. Glad it's over but feelng sooooooo scared today. Scared of having to do it again. Scared of it not being over. Of it coming back. Of dying. The list goes on. I meet a lady with secondaries in the waiting room on Monday. She told me that her grandchildren were keeping her alive. At the moment I don't think I'll even reach her age. I'm so peed off. I don't want to bring everyone down. Is this always going to hang over us for the rest of our lives? It's just so not fair.
Too much time on my hands to think on chemo week. I need to give myself a slap and think of all the good things. My sons birthday on Saturday. The big 1-0! Doublefigures and all that. Have party food to plan, cakes to make?....

sorry to vent. Have to stop now as covered in snot xxxx

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Re: Starting Chemo in May 2012

Big virtual higs to all the buddies feeling low, nice to hear from everyone. I really enjoy reading everyone's posts.
Alesha- my OH has a CHILLOW (he was having hot flushes before me!!!) which I try to steal. They are plastic and a bit like cool jelly. They are great to put your head on when you are hot. I was also told sage tea- I bought some but the smell makes me feel ill and so I don't dare try it yet.
Zumba- I am having my ovaries out too. Got mixed feelings about this.
Well, I have done 5,055 steps today. Feeling very tired indeed. To be honest I thought I would be feeling better by now, a bit better anyway. My hands and feet really hurt and my two nails are starting to lift. My muscles and bones ache so much! And, I feel like I am fighting a cold! My stomach is still not right. I have put on weight this time too. I find this astonishing as I know I am not eating anywhere near the amount I would normally and my appetite is not good.
Emotionally, have great highs. Just so happy to be able to take daughter to school. Have been meeting friends. So amazing not to face chemo. Wonderful. Then I drop like a stone. If I manage to make it til Sunday, this will be the first week I haven't seen a doctor or been to hospital since April.
Julie- good story. So, wish you had said it. Would have been hilarious!
love to you all, Rattlles x

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Re: Starting Chemo in May 2012

Hi Ladies
hope your all doing well have not been on here for a while Julie your post made me laugh,I've got my last chemo fri not looking forward to side effects but least it's the last one.Had appointment with oncologyist yesterday and after my last app with his under study i was told i needed an op to remove my ovaries which i was quite happy with as i've had periods every month through chemo only to be told yesterday no way because of my age and the side effects so will be having monthly hormone injections so not looking forward to them as side effects are just as bad told him i would be divorced the next time i see him as my moods are really bad at the min he said they will get a lot worse :O( my weight gain is really getting me down too at the min just on a low and don't no why want to scream at the next person that tells me you should be happy you have your life which is true but when u feel so down fat bald scared and ugly it don't help will be starting rads in 4 weeks for 4 weeks and will be on tamoxifen.
Lots of Love to you all
Becs
xxx

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Re: Starting Chemo in May 2012

Alesha - rads is a walk in the park compared to chemo! I've just done number 6 today. I can totally agree with the just get on with normal life thing. I did that until my last chemo and then I realised how tired I was (and still am)
Slightly amusing story to cheer you all up on this miserable wet afternoon (well it's wet in Bradford!) When I was leaving the hospital today I got in the lift followed by 3 men - they worked for a fire prevention company. One of them was carrying a large hose - I was dying to say something like 'that's a big hose you have there' but didn't because I thought they might think they were trapped in a lift with a mad bald woman and there were other 'elderly' people in the lift too!
Take care
Julie

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Re: Starting Chemo in May 2012

Hi everyone, Alesha I so know how you feel , I'm at the " Stop the TAX truck I want to get off" stage, so fed up with feeling 100 years old , aches and pains everywhere , stomach cramps that make me want to curl up and die , has taken forever to type as fingers have lost most of their feeling, still got one more to go, last week of September and a year of herceptin, rads start 16th Oct feel like its never going to end, sorry for being so negative just cant seem to find any positives at the moment . Love and hugs to everyone xx

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Re: Starting Chemo in May 2012

I haven't been on for a while. I think I have been trying to ignore all that has happened in the last few months and have just got on with my "normal" life. This however has resulted in me being really tired now.
I have been so lucky with my chemo side effects but for the last month if not longer the hot flushes have been soooo bad. It was just at night at first but now I have them in the day. Quite awkward when I have been in work and just want to wip off my wig or bandana! The breast cancer nurse suggested a chill pillow (or something like that) has anyone tried one? I haven't had a decent nights sleep in weeks and it is making be really irritable and emotional.
Had a total meltdown at my last chemo as I didn't want to do it anymore, couldn't stop crying. Have chemo today and feel really tired and trying not to get worked up about it. I also start four and half weeks of rads on Monday so fear of the unknown once again.
One good thing, my work have decided to pay me for all the days I didn't work last month (which I am not officially entitled to). They seem to be grateful that I have gone in when I can. Restored my faith in my employers somewhat!
I have read through all the posts of the last few weeks and lots of people seem to be nearing the end of chemo. Although I do not post much I do still think of everyone and what they are going through.
Take care all
xx
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Re: Starting Chemo in May 2012

Jodie- so pleased for you, what a relief and last chemo too- hope you sleep well tonight, X

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Re: Starting Chemo in May 2012

Er, Josie not Jodie, whoever she is?!!

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Came on to see if you had posted Josie. So pleased and releived for you. Well done!
Kitten-mad, big hugs for today. I know what you mean- so hard for those who care to read our minds. I've bought a pedometer and trying to do the school run once a day. But to be honest, its too much and I am exhausted. But too proud to admit defeat!! Cant work out when you start rads? Is it a long drive?
Em, sorry you are poorly. Think we all need to take it easy.
Way past my bed-time so night, night.
xx

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Re: Starting Chemo in May 2012

Just popped on to say I had the lump scanned and am thrilled to report it is fluid lump from the op which have Hardened. Also had my last chemo. We were at the hospital for 7 hours so I'm now tucked up in bed.
So relieved. now now I justhope the se's go easy in me.
Love to all xxx

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Re: Starting Chemo in May 2012

Sorry the computer is playing up and froze and I hadn't finished! I drove myself up this morning despite it being an early start and not having had much sleep - I was in a bit of a strop and wanted to be treated as "normal", well totally knackered now that's for sure! Side effects - apart from the fatigue - are the usual sore mouth, thrush and ulcers. Oh and why do all liquids taste so poisonous. Will be finished the 5 weeks of rads by the end of October, which is a bonus as I thought it would drag into November. They don't give you much of a break do they? and Rattles - you are right - the numbers on here are dwindling.
Take care

K M
x
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Re: Starting Chemo in May 2012

Had my rads measuring appt this morning, I was early so they took me early. Didn't realise that they did the lymph area as well, it was quite sore keeping both arms above my head due to the dodgy arm!! Now any tips to get rid of all that red marker pen?
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Re: Starting Chemo in May 2012

Rattles hope you enjoyed your LGFB session and got some lovely goodies to take away !! Squeakymouse- the same op date as me - will definitely appreciate some hand holding!!. Julie - think you will be first to finish treatment- how are you coping with the rads? I thought I was recovering well from last tax and went out to meet a friend for lunch yesterday but when I got home I started to feel a bit queasy and once kids were home I had to go and lie down. Then spent the evening being sick several times- yuk!!!!! Hubby was really worried and kept thrusting thermometer down my throat but didnt get a temp at all. Probably just a bug and feel ok, if a little washed out today. Don't want to feel ill anymore!!!!!!! Good luck to all you buddies getting juiced this week - nearly at the end now, Xxxx

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Re: Starting Chemo in May 2012

Rattles - have a lovely time at LGFB - I went to mine in July and it was brilliant. I've done 5 rads so far - 19 left to go! Not that I'm counting or anything!
Julie

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Re: Starting Chemo in May 2012

Hello all, our numbers seem to be dwindling dont they?
I was thinking of Josie but Josie, you wont read this post til later today. So glad you enjoyed your birthday.
By now Doggirl, and Kitten-mad have had their chemo. Joise fingers crossed you get the go-ahead for tomorrow.
Squeaky-mouse, its a surreal thing having a date for surgery, something you want (to be rid of the cancer) and don't want, well for me at least, I was quite attached to my breast, small and saggy as it was............I really think that if they could avoid surgery then then would- that has been my experience, but if you have any doubts, don't sit on them. I am thinking of you and Em. You don't say how you feel about delayed reconstruction, but while the wait will be hard, at least you will have a better cosmetic outcome and less complications.
I m going to a LGFB this afternoon. This week could be my first week since April without seeing a doctor/nurse/hospital. I say could as I have just phoned surgeon as my 'hole' is ever-present. Waiting to hear whether he thinks I should see him or persevere with it.
All of you who are suffering, hang on in there.....nearly at the finish line now.
Rattles x

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Re: Starting Chemo in May 2012

Hi Ladies,

Good luck to Dogggirl, Josie, and KittenMad (and anyone else lurking) who are having last chemo this week.

I saw the surgeon today - I am to have Mx and ANC on 27th Sept but can't have immediate reconstruction because of the rads, which is what I was expecting. I will be in and out of hospital in 24 hours. So same op same date as Em, I think - we can hold hands! My rads will include the chest wall just under my collarbone but not under my arm as these lymph nodes will have been removed. The doc did an ultrasound - first scan I have had since starting chemo (mine doesn't show up on mammograms) - and said he was very pleased with the response to chemo. Hubby is wondering why I have to go through surgery if it has responded to the chemo and herceptin (i.e why can't I just carry on with herceptin indefinately), and I must admit I was wondering the same, but I suppose they don't want to leave any stray dormant cancer cells behind.

I now just have to try and get the hospital to arrange the herceptin at home as they appear to be fobbing me off again but I won't bore you with the details.

Squeakymouse xx

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Re: Starting Chemo in May 2012

Just popped on to say good luck to all having last chemo this week. I'm still suffering with SE's can't wait to start to feel abit normal again.
Take care
Xx

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Re: Starting Chemo in May 2012

Hi Doggirl. Its my my last one tuesday. Have to see the surgeon first to check the lump out. I'm seeing my onc tomorrow though so going to get her to cop a feel.
my birthday party was amazing. My friends spoilt me beyond belief. So many gorgeous presents, balloons, bubbly, hats, party poppers and cakes. Even got a bald head massage 😉 We stayed up until two and I was wiped out yesterday but it was so worth it.
This lump has taken the shine off my reaching my last chemo and dresdingfeeling crap and bed bound for the week, but we got there! I've actually got quite a bit of hair now, I can't wait to have my hair back and get this scarf off.
Good luck to everyone who has chemo, ops or SE's this week. And everyone who is feeling well have a fun week.
Hugs xxxx

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Re: Starting Chemo in May 2012

Doggirl - all the best for tomorrow, you are just a couple of days behind me. Alix glad the road trip is going well, and squeaky mouse great that you are in Spain! and Rattles that you are outside!!!
Side effects not too bad as yet, very tired - up till 6 am on Saturday morning so took a sleeping tablet last night and slept from 11 - through till 7! Sound like a baby! Things will I am sure get worse tomorrow though.
Hope everyone has a good night.
K M x
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Re: Starting Chemo in May 2012

Hello to all,
I HAVE BEEN IN THE SUN!!!! I think this is the first 'hot' weekend that I have been out in the sun, and not lying listlessly in bed, trying to take sips of water (fizzy) and feeling like a slowly boiled lobster! I am exhausted but it was SO worth it!
Spain sounds amazing squeaky. I hope you wont think this really strange (well, I am quite strange), but you could take photographs of yourself pre-surgery. I did on a friend's advice, then deleted them. I really regret it now (deleting them!)
Doggirl, like you obsessed with holidays. So badly want to go away. Good luck for tomorrow.
Ginger, thinking of you. I still feel sick when a box of domperidone drops out of our medicine cupboard. Need to have a bit cancer-clearout!!
Rattles x

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Re: Starting Chemo in May 2012

Hi all. I hope you're all enjoying the last burst of summer. I hope you went topless squeaky !? Spain for the weekend sounds bliss. I am currently obsessed with holidays. I am constantly on trip advisor. I thi k I am addicted.

Well done kitten mad. Collect your rosette and medal from the finish line.

Last chemo for me tomorrow. Have had such a busy family and friends weekend that I have not had time to dwell on it which is great. I'm going to celebrate in 3 weeks. Not actually dread g tomorrow. Combination of the last one being okay (ignore neutrapenic bit!) and it being last one.

Who else is this week. I have lost track completely xx

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Re: Starting Chemo in May 2012

Hi all,

Alix - so pleased you managed to get away on holiday.
Congratulations to Kitten Mad and anyone else who has just finished chemo.
We went to Spain for the weekend as it was my last chance to lie on a beach wearing a bikini with my own real boobs to put in it!
Squeakymouse xx

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Re: Starting Chemo in May 2012

Well done everyone who have now finished chemo . only one more to go but just started herceptin, decided 3 o'clock is not a good time for tax trots to start , just coming down from steroids and was actually getting some sleep , hope everyone is enjoying their weekend ,
Love and hugs to all of you xxx

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Re: Starting Chemo in May 2012

Hi buddies from the sunny Peak district.
Having a lovely time enjoying sunshine and sunsets on great (and quiet!) campsite - mind you, had another visit to A&E today with weeping seroma (self-diagnosed, so maybe the medical profession is for me!). Was in and out in 10 minutes, and came away with bagful of dressings. 2nd visit to A&E in 3 days, OH is calling it the NHS tour. Today's was in cottage hospital with lovely views, staffed by just valiant 2 nurses. They had a whiteboard up in the waiting area, encouraging feedback. Maybe Squeaky's hospital would give better service if the feedback was so public.
Big congrats to everyone who's finished Chemo, let's hope it's onwards and upwards from now on.
Alix xx