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Starting Chemo in Nov 2011

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Re: Starting Chemo in Nov 2011

Just back from getting my mammogram and ultrasound before review with onc on Monday. Now totally freaked out as radiologist said she still saw quite a bit of evidence of disease on the ultrasound, so she clearly doesn't think the chemo has helped much yet. Also got stuck there for ages as they can't find one of the 3 chemo markers on the mammogram and had to get them done again. Still no sign of it and it doesn't seem to have shown up on the original set either.

3network3
Member

Re: Starting Chemo in Nov 2011

Paula a very nice happy birthday, may your wishes all be granted, truly 🙂 🙂 🙂

On the Dec trhead someone mentions she drinks 3.5 l a day, I only manage 2.5, now I wonder how much you all drink?

Love from Dec Christine

Lavenderlassie
Member

Re: Starting Chemo in Nov 2011

I am not sure what made me look in here, but glad I did as I can wish Paula Happy Birthday!
Lunch with a sea view sounds great.

Love to you all, keep going it does eventually come to an end, honest

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Re: Starting Chemo in Nov 2011

chemo brain, i forgot they break up next week, i might force myself to do a bit tomoz, like the lazy days, i have to do a 45 minute round trip to take mine to school so will be glad not to for a couple of weeks not to mention my petrol costs ouch!

PP xxx

gill13
Member

Re: Starting Chemo in Nov 2011

PP i wanted to get my wrapping done, without any "help", so much easier when they're in school, and i know next week i won't feel like doing much at all, so glad there won't be any school run next week, lazy days all week

Gill x

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Re: Starting Chemo in Nov 2011

its weird the way the taste buds go because it feels like the roof on my mouth is burnt. think i will leave the wine as i did try a glass of beer the other day and it tasted like soap!

nice to see evryone is getting ready for xmas think i'll leave my wrapping for next week as i have no motivation to do anything!

PP xxx

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Re: Starting Chemo in Nov 2011

Thanks Gill. My eyebrows haven't been affected.
A

gill13
Member

Re: Starting Chemo in Nov 2011

i have started wearing marigolds lately, but that was really to try and protect nails which have become quite brittle when washing up, and i did buy some anti bac handwash and wipes, but keep forgetting to use it. Maybe i should be a bit more concerned about my lower immune system, but i tend to forget most of the time
the thought of wearing rubber gloves to wipe your bum made me laugh..oh we have no shame on here, no subject is taboo lol

i'm just taking a bit of a break from wrapping presents, i'm not far off finishing now, i did a big Asda shop this morning incase i don't feel like it beginning of next week

Gutted about your eyelashes Audrey, i noticed a gap in one of my upper ones the other day, i just fill in the gap with a bit of eyeliner, my eyebrows don't seem to be affected at all, wonder why that is?

Back to the house work now, Boo!!

Gill x

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Re: Starting Chemo in Nov 2011

Paula - Happy Birthday to you!!

Gill and Pleasant 1 - I also use marigolds all the time I didn't do before but I do now. Also when I do go out and go shopping I wear gloves oir touching everything especially hand rails and doors. I also carry antispectic gel in my handbag and have bottles of it dotted around the house.

Feeling weak and wobbly today but I only had 3rd FEC on Monday and have felt much better than I did on the first two. Is this because my chemo was after 2pm and I had drank and eaten plenty all morning? I also took emend for 2 and 3 as I was so sick on 1. I am making sure I get plenty of rest. Going to wrap some xmas presents later as I can do this sitting down.

PP - I haven't felt like drinking alcohol at all, may have a small glass of wine at Christmas. At the moment I am drinking a lot of ginger ale and I think this is helping with the sickly feeling. Tried ginger beer but couldn't stand the taste.

Judes - Know what you mean about the ears, one of mine looks slightly different to the other. Have always worn my hair over my ears. Don't mind looking at my bald head though, I think I look quite good bald when I have my make up on and put on my dangly earings. Have got a couple of like dinges in my head though. Just got a little tuff of original hair yet though. But I do think my hair is starting to grow a little i have a few grey/white hairs coming especially at the front of my head. Noticed this morning I only have 3 eyelashes left on one of my bottom eyelids.

Hope everyone is ok today.

A

Pleasant1
Member

Re: Starting Chemo in Nov 2011

Well Gill, apart from wiping my own bum, I tend to use Marigolds for pretty much everything!
x

gill13
Member

Re: Starting Chemo in Nov 2011

Happy birthday Paula, and a Wii! great pressy better than a boring old blender! i have bought Just Dance 3 for my girls for a joint xmas pressy, i think i'll probably have a go too 🙂

Judes - liking the cancer card thread, hey, i have no problem with us getting something out of this

PP - i was told that we're ok to have a drink, but i haven't really wanted it 😞 actually the only time i've really fancied a drink is the week before chemo, i'd just go with how you feel.

Emperor of all maladies sounds interesting, i think i'll take a look at that

Periods? What periods? - i can't remember when i last had one, it was either Aug or sept. very strange as it was end july i found lump, and round about then i started getting regular hot flushes? I've been told purely coincidental

Pleasant - whoops, should i have used rubber gloves to clean the sick up??

going to take 2nd lot of steroids now, last time i only remembered about 2nd load at 6pm!!! Not this time...

Gill x

Pleasant1
Member

Re: Starting Chemo in Nov 2011

Quick one y'all as I have accomplished so little in a practical sense so far today.
However, I've already used my BC. I am definitely getting older and madder; I asked a Question on the Gardeners' Question Time email link and used my BC hoping they would take notice of meeeee… Oh, the guilt, the guilt – I will let you know if it works!
Libralady, my p. lasted longer; more like my youthful self last session. Weird as I thought I wouldn't get one and had to go rush and get the, as my mother calls them: 'readies'! Also, re weeing; my bladder seems to be more youthful, i.e. able to hold more for longer. Last night I even slept right through. That hasn't been the case for years. Thought it was also down to the amount of physical activity I did yesterday; mainly long walk and too much gardening…
What is truly going on inside us; we can only surmise. x

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Re: Starting Chemo in Nov 2011

Paula - Happy birthday, enjoy the cake and hope you can forget all your problems for a bit.

Judes - Great idea on the new thread.

I just came off the mini-pill before chemo and only had an occasional period for the last few years, so I'm not sure whether it's affected me yet. Don't have any hot flushes so far. I did actually have some period pain last week, but no actual bleeding. With everything else that aches these days, it's hard to tell if it's just general pains though.

There seem to be quite a few us who know when they're having surgery after the chemo. I've not been told anything so far. Didn't really think to ask as it was enough for me to take in all the details on the chemo at the time, but must ask about it when I see onc next week.

Lost_4_Words
Member

Re: Starting Chemo in Nov 2011

Flying visit 🙂

Paula, Happy Birthday

http://www.youtube.com/watch?v=qTZ0GBkUUvM&feature=related

Hope you have a lovely day 🙂

t.t.f.n.
L4W

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Re: Starting Chemo in Nov 2011

Glass of wine sounds good, how long till i can have a glass? still on meds from chemo 2 on monday??

xxx

Daysie
Member

Re: Starting Chemo in Nov 2011

Good morning

and thank you all for my birthday wishes, I had a lovely lay in and feel ok so far 🐵 I am having some very busy and colourful dreams really weird ones lol.

I played the cancer card yesterday with SKY tv, I missed appointment for installation last month and they wanted to charge me £107 for the pleasure of re-booking - I told them I was having chemo (which was true) and they waived the fee! LoL result...!!! Feels bit naughty, but what the hec!

Nice sunny day so far in Norwich, looks cold and the strong winds have blown my garden fence down, another job on the to do list!

My lovely brother bought me a Wii for my birthday lol, a nice surprise as I thought he'd bought me a blender lol.

I hope everyone is feeling good, and those having chemo today don't have too many se's.

I am going to have a glass of wine (or 2) today and piece of birthday cake later 🐵

Cheers to you all!

((hugs)) Paula x

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Re: Starting Chemo in Nov 2011

hey girls,

Gill - i had my son and daughter home with a yummy bug and i caught it in my low week but was fine after 2 days, horrible time of year to go through this (well anytime of the year really)

Judes - yes start that thread, need something good to come out of this lol.

LL - i didnt have a peroid for years as was on the depo but had one last week, very heavy for a day or 2. not using anything at the mo as ive had a coil before and couldnt get on with it. not sure what other options there are??

Paula - Happy birthday hope you have an ace day. Im planning on having my 30th again next year to celebrate the one i missed 😉

hope everyone is feeling better?

Im on a steroid rush at the mo so making the most of it

PP xxx

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Re: Starting Chemo in Nov 2011

ps pleasant, i'm thinking of starting a thread 'how I played the cancer card' so we can share ideas ...

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Re: Starting Chemo in Nov 2011

morning morning

Emperor of all Maladies is fantastic, really brilliant, it's not hard going at all because he writes so engagingly with lots of human stories pf patients and crazy doctors. bloody small print tho. and sometimes, just sometimes, it gets a bit close to the bone. think we can be bloody glad we didn't get BC 100 years ago, or even 50.

LL i've had one period and think another is on its way. definitely more back pain and pain generally. it was also really painful when i ovulated this time, normally i don't even notice. me thinks something is up.

xx

Libralady
Member

Re: Starting Chemo in Nov 2011

Pleasant - my emperor of maladies arrived this morning from amazon - ordered it Saturday night so quick delivery. It's a biggun definetly. That book will see me through Xmas And new year...possibly Easter too! Lol

May I ask a bit of a personal question for those of us who are still menustrating. Has anything changed yet with your periods? I've had my regular as clockwork periods (28 day cycle) except last month I suffered awful period pains and had to take a pain killer.

My periods are usually heavy day 2 through 5 as I have an IUD fitted, then it gets lighter through to day 7. Both of my boobies are tender since yesterday and My back is hurting again like last month and I'm due on end of this week so it looks like I'm gonna get my period. I see with some ladies chemo throws them into immediate chemo induced menopause, just wondered if any of our group has experienced this as yet.

Sorry if it's a tad personal and don't feel obliged to share....but you know, a problem shared and all that 🙂

And......as its after mid night.......HAPPY BIRTHDAY PAULA xxxxxxxxxx

Pleasant1
Member

Re: Starting Chemo in Nov 2011

Hi all
Poor you Gill, having to deal with all that vomit. I'd have been sobbing after getting covered in it and panicking about being rushed to A&E. Hope you had your Marigolds on and washed everything at 90 degrees! You made me larf about the glamour model. I can't even watch that stuff.
Yeah Judes I now reckon it was the wheatgrass powder because those farts actually smelt of it! I didn't take any today, due to having to go to the school play, and I'm not half as windy. I'm supposed to be taking that wheatgrass to boost immunity and energy! Something must have had an effect 'cause I've been on fire today. I can't tell you how energetic I've been or you'll all feel fed up.
I too used my cancer today; to get off paying overdue library fees. I lost old Beryl Bainbridge since having Chemo. I only found her today under piles of other crap and so returned Master Georgie unread. I'm keen to get the Emperor of All Maladies? But I'm sure it will be heavy going too. My next Chemo is 23rd. Oh what a joyous Christmas we have in store. We'll come round about 28th and be on great form for New Year; but be unable to socialise due to low immunity!
Audrey, your posts were remarkably similar – you must still have a fully functioning brain.
Thanks loads for your posts Lulu. You've been through so much and must be an amazingly strong woman. I can't begin to express how upsetting even imagining what others have to deal with makes me feel. I'm guessing it's due to a selfish fear for myself.
I hope you're being kind to yourself and taking it easy Jackie. It took me a solid week to pick up after FEC 2 and I had to give in to it to allow it do its business. I took daily naps for over an hour when kids were at school and had very early nights. You will feel so much better in a few days.
Paula, Happy Birthday!
Sleep filled night all – my hot water bottle and I are off to bed. x

Mazzalou
Member

Re: Starting Chemo in Nov 2011

Wish I could step into a bra, Audreytoo only I don't think that I would get it past my bum!!!

Happy birthday for tomorrow Paula, but watch that wind as it is already blowing a gale here in Norfolk so hang onto your wig.

And shame on you, we do have District Nurses here in Norfolk - they came out on a Saturday morning to give me my stomach injection, so if your neutrophils don't make it, you too could come face-to-face with a District Nurse armed with a hypodermic needle for your tummy !!!

Libralady
Member

Re: Starting Chemo in Nov 2011

*Lisa imagines Judes with measuring tape wrapped around ears* lol

gill13
Member

Re: Starting Chemo in Nov 2011

Jude - i actually lol'd at your comment about your ears, and then had to tell my daughter (big daughter not little one) she laughed too

Happy birthday to Paula for tomorrow, i'm lucky to live by the coast and can see the sea from my house, ok, so it's probably about 2 miles in distant but i can still see it.

i'm watching a programme at the moment called "glamour model, mum and me" OMG! what a drama queen, her breat implant has moved and she is deformed and cannot work or live a moment longer like tha!!! she deserves a slap, and she's pushing her 14 yr old daughter to be a glamour model, and a bigger slap for that!!

Gill x

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Re: Starting Chemo in Nov 2011

No Paula I am not rural I live in Dagenham you get District Nurses everywhere and an amazing job they do too.

They came in after my first FEC and I could have learnt how to do them then but i used to work with them all so they wanted to come in, catch up and keep an eye on me, but so that they don't have to worry about me over the christmas period I now do them myself.

Happy birthday tomorrow Paula have a brill day.

And minimal SEs to all those who had treatment this week.

Jean xx

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Re: Starting Chemo in Nov 2011

Hello ladies

I am happy to say its day 5 after Fec No 3 and I am slowly starting to feel human again 🙂

Ive been to see my grandson who is 4 in his school play today, it was just wonderful. Starting to seriously put me in the christmas spirit.

I have my tax no 1 on 30 Dec so hoping for a great xmas and forgetting the new year celebrations.

The info on the Bras looks useful, I am assuming this is all because you have had surgery first, I dont think i will be getting mine til March but good to know , me too unfortunately is in the A cupper gang too...

Judes you make me smile about your head shape, Ive realised I dont wear my glasses actually balanced on my ears, something you only notice when you have no hair. Didnt realise quite how grey i was either as the dark hair stubble can be seen but the grey is quite bald... Ive been told you cant dye your hair after this treatment so its going to be quite a different from blonde to grey !

Saving a fortune on hairdressers though.. 🙂

Wishing you a lovely birthday for tomorrow Paula x

And I hope everyone is okay with their chemo this week and se's.

Hope you are all having a good day.

Linda
xxx

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Re: Starting Chemo in Nov 2011

Did a long post before but lost it, having to start again, trying to remember everything I have said.

Lulu - Thanks for your reply. It was one of my breast surgeons that said the all clear not my onc. I had forgotten that My onc gave me all the statistics and treatments for someone my age (57) with my symptons and I made the decision that the statistics were better if I had chemo and the hormone tablets.My onc agreed with my decision to have chemo. I just want to throw everything at it to make sure it doesn't come back. I didn't have a lump, it was a shadow at the back of my breast and was picked up by the three year mammogram screening. I was so very grateful for this. I had my first op within 6 days of my diagnosis. I was very shocked and upset when I first found out and I still have the odd wobble, you just don't think of it happening to you. I have a very supportive husband (don't know what I would do without him) and family. Also very good and supportive work colleagues and friends. I feel so sorry for you having to go through all this three times, I just don't know how you do it and being so supportive for everyone on here.

Gill = Re the bras, I wear sloggi comfort tops, they come just under the bust. Cost £12. Comfortable to wear. You need to buy them a couple of sizes bigger as they are quite small. You can step into them so don't need to put them over your head if your arm hurts. They also wash well.

Good luck to every having chemo tomorrow. Those of you on FEC 3 you will be halfway.

A

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Re: Starting Chemo in Nov 2011

Did a long post before but lost it, having to start again, trying to remember everything I have said.

Lulu - Thanks for your reply. It was one of my breast surgeons that said the all clear not my onc. I had forgotten that My onc gave me all the statistics and treatments for someone my age (57) with my symptons and I made the decision that the statistics were better if I had chemo and the hormone tablets.My onc agreed with my decision to have chemo. I just want to throw everything at it to make sure it doesn't come back. I didn't have a lump, it was a shadow at the back of my breast and was picked up by the three year mammogram screening. I was so very grateful for this. I had my first op within 6 days of my diagnosis. I was very shocked and upset when I first found out and I still have the odd wobble, you just don't think of it happening to you. I have a very supportive husband (don't know what I would do without him) and family. Also very good and supportive work colleagues and friends. I feel so sorry for you having to go through all this three times, I just don't know how you do it and being so supportive for everyone on here.

Gill = Re the bras, I wear sloggi comfort tops, they come just under the bust. Cost £12. Comfortable to wear. You need to buy them a couple of sizes bigger as they are quite small. You can step into them so don't need to put them over your head if your arm hurts. They also wash well.

Good luck to every having chemo tomorrow. Those of you on FEC 3 you will be halfway.

A

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Re: Starting Chemo in Nov 2011

ps: things i've noticed now that i'm bald

1. my ears are different sizes. truly. my friends say may they're just different angles, one more sticky out than the other, but they're really (really) different.

2. the skin on my face is so much more damaged than on my head. it's obvious i suppose but has surprised me. i always thought i was doin' pretty good for 45, but my nice protected head has exposed the sun damage on my face.

3. people stare. a lot.

xx

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Re: Starting Chemo in Nov 2011

paula you make me laugh, i'm imagining the chemo swishing around in your braless boob. happy birthday for tomorrow, a pub lunch on the coast sounds fantastic. have one for us. x

pleasant i'm with you on the chemo farts. they seem to arrive at the start of my third week, or is that just normal farts? i'm always a bit windy.

lulu i agree about dying. we all live as if it's forever, when of course it's not. it's just a matter of time. there was a great quote in a book i read recently (snowdrops by ad millar):
"Life is dangerous, no one has survived it yet."
so of course no one wants to die soon (and hopefully none of us will) and i'm not giving up or anything, but it is part of life.

lizzy nice to meet a fellow A-cupper. i've also struggled to find the right bras, i got a nice one from john lewis but the cup is really too big. makes me look 'enhanced'. thanks for the tips on asda gill, i also only have two bras that i sort of rotate at the moment.

LL i'll be joining you for number 3 on December 21, we're in for a good christmas. somehow it hasn't stop me making arrangement, i'm just assuming i'll be ok.

i'm still mega-tired, just slouching around, haven't really achieved much today. think i'm going to go to bed to watch the two episodes of the killing (forbrydelsen) i've been saving - highly recommended.

xx

italia03
Member

Re: Starting Chemo in Nov 2011

Hiya Paula
Have a lovely birthday tomorrow and enjoy yourself.

ive had a bit of a lousy day today , seems to be all different symptoms rolling around together , sickness headache and a bit twitchy .
Hope i can get some sleep tonight now the steroids are finished

Just having a down day i think , early night for me girls .
Love and Hugs
Jackie xxxx

Daysie
Member

Re: Starting Chemo in Nov 2011

Re Bras - at the moment I would rather not wear one unless going out, I feel that not having a bra on lets the chemo swish around my boob more freely lol lol

Libralady
Member

Re: Starting Chemo in Nov 2011

Indeed - my sense of smell has been heightened also. Things like cigarette smells. I can smell it sitting in my living room when my neighbours are smoking - horrid smell.

Also my hubby's aftershave - suddenly its really powerful!

Yes Happy Birthday for tomorrow Paula, 21 yet again eh!! lol

weme
Member

Re: Starting Chemo in Nov 2011

Hi All

lots to read again... on the subject of district nurses, they come in and do my 7 injections every day from day 2 post chemo and were a godsend when my husband was going through treatment 2 years ago, I don't know what I would have done without them. Nothing like nurse gladys but very very friendly and always helpful!

Paula, I hope you have a great birthday tomorrow and enjoy your trip out.

On the steroids front, I start taking mine twice a day the day before chemo, day of chemo and day after then once a day for 3 days after that, everyone is so different aren't they, maybe it's the chemo I'm on - or my postcode!

It's been interesting reading about the bra's, I've been making notes so that when I'm in that situation I will know, got an mx to look forward to in March and dreading it more than the chemo.

Good luck to everyone receiving treatment this week, lets hope the se's are small and managable.

Weme

gill13
Member

Re: Starting Chemo in Nov 2011

Lizzy - Asda do post surgery bras, and my store only had small sizes, so might be worth checking your local store, i'm pretty sure i saw 32a (and only £6)

LL - thanks, i'll check out peacocks for those, i tried the boob tube style after surgery but couldn't lift my arm up enough to get them on!

Troodles - welcome to the thread

good luck to Chelle and Lizzy for No3 tomorrow, and to jaxette and jmk30 for no 2

i had a visit from an old college friend this afternoon, we were in art college together about 25 (or maybe more) years ago, i have seen her since a few times, but was good to have a catch up

washing machine still on the go with little ones bedding!!

Gill x

Daysie
Member

Re: Starting Chemo in Nov 2011

Lizzy

I can't take the credit for the dates as L4W did those a few pages ago! Very useful to see where all are up to, there are a few on there that we haven't heard from for a while, I hope they are ok.

District Nurse Gladys springs to mind lol!

Lizzy1977
Member

Re: Starting Chemo in Nov 2011

Paula, that's very good getting everyone's dates. Happy birthday for tomorrow. Yes I'm up for FEC no 3 tomorrow provided my bloods are ok. I've finished my Christmas shopping and now have got to wrap them all while I still have the energy.

On the bra front I am really struggling to find pocketed bras in a 32A. Marks only start in a 32B and they are very expensive from the specialist mastectomy stockists.

My taste buds are ok but agree that my sense of smell is now like a dog!
Lizzy x

Lulu34
Member

Re: Starting Chemo in Nov 2011

Paula DNs are still around.... Just don't travel on bicycles anymore lol.... My DN is coming on thursday to flush my line and remove the suture in my neck.... It's still very red and itch but I was allowed to take the dressing off the suture today and hopefully the fresh air will help the sensitive skin to get better....and happy birthday for tomorrow hope you have a lovely time xx

Troodles I think if you o on the positive posts about tax thread you will find a girl called broad stairs who had lymphoma a number of yrs ago... Presuming you had upper mantle radiation as part of your treatment.

I have had BC three times and couldn't take part in any trial either but I'm quite happy (if you can say that!) with th Chemo I'm getting as it's similar to what I'd have gotten on the trial.

I also get the insomnia from the steroids... You should take the first dose early in the morning and the second dose about lunch time.... But def before 2pm.... The antisickness meds shouldnt really cause insomnia.

Audrey I don't really want to burst your bubble but after you have had breast cancer you are never normally given the all clear.... The I risk of recurrence or progression is most common within the first five years but some people get recurrence 10 or 20 years later.... I'm very surprised your oncologist said this as they do not normally use the term 'all clear' and will say things like remission or no evidence if disease (ned).... Meaning there is no sign of cancer.... The risk of recurrence varies depending on your age, type of cancer, grade of cancer, size and amount of nodes involved.... But they are averagesand not specific to you... So even where prognisis is 97% chance of surfing 10 years three people out of 100 with the same prognosis will not survive and likewise where prognosis is 22% to 10 years you would have a good a chance as anybody else of being one of the 22 in 100!

The recurrence I had is very rare only occurs in 1 in 1000 cases so I thought it couldn't possibly be me but it was.... Somebody has to be the ONE! All I am meaning is don't spend too much time dwelling on statistics and prognosis.... Just live your life and enjoy it and don't just 'exist' worry about something the might never happen.... And the the concern does get easier in time as you start living with life after BC.

LL hope your starting to feel a bit better.... I have been living on home made chick soup and after8s!

Norfolk Liz thanks form the info on the bras!

Lulu xxx

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Re: Starting Chemo in Nov 2011

Paula

Happy Birthday tomorrow. Hope you have a nice lunch out.

A

Daysie
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Re: Starting Chemo in Nov 2011

I only have a mild steroid as my first drug that goes in with the FEC. Then the anti-sickness drug goes in. I thought district nurses were a thing of the past, didn't know they still did home visits! Granny - is that because of your location?

I am feeling better today, have slept a lot but mainly because my bed is so warm and toasty and weather is icy cold and very windy, just don't want to get out lol. I wake up a lot for a wee cuz of all the water drinking lol. I have had fruit jelly and custard with crackers and cheddar for lunch and a small piece of lemon cake! and feel ok, sickness feeling seems to be going away.

I've got some friends visiting tonight as it's my birthday tomorrow, low key, maybe have a pub lunch at the coast, if weather not too bad, I love a stormy sea!

Is everyone feeling the cold, or is it just me, my head is sooo cold, even indoors with the heating on lol and my hands feel cold as well. My taste buds are fine, but sense of smell is a lot stronger than it used to be and sometimes things smell weird lol or I smell things that others can't lol, getting cat like sense lol.

Paula x

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Re: Starting Chemo in Nov 2011

Hi Troodies always room for another one, unfortunately.

I have the course of 5 injections after each FEC and I also do them myself, which is much better than sitting around for the district nurse to come and do them.

Its the steroids the dexa....... (can't remember the full name) that keep you awake but you normally only get them for the first 2 days.

Jean x

Libralady
Member

Re: Starting Chemo in Nov 2011

my No.3 is 21st December.

So I'll be eating metal tasting turkey for xmas dinner! 😞

Gill - Its the vest type - its stops just under the bust. I cant do boob tubes lol - I need at least a little bit of support.

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Re: Starting Chemo in Nov 2011

Hi guys, have come into this a little late, I started chemo 14 November, had another one yesterday, was delayed a week because my white cell count was too low, I have got to inject myself every cycle for 5 days to boost my immune system, has anyone else had to do that?
I was grade 2, full mx and 1 lymph node affected, 3 FEC and the usual, radiotherapy possibly - I have been asked to take part in a trial but don't meet all the criteria as I had chemo 22 years ago for Hodgkins when I was 17. Then 5 years tamo.
I feel better this cycle than first, felt really sick for first three days and tired. I am taking the anti sickness regulary this time rather than wait till I feel really bad. I am tired but apparently a side effect of the anti sickness is not sleeping?

Daysie
Member

Re: Starting Chemo in Nov 2011

I've re-posted L4W's list a few pages ago!

No.3s
Audreytoo Mon 12 Dec
Dotflott Mon 12 Dec
Chelle4 Wed 14 Dec
Lizzy1977 Wed 14 Dec
Butterfly61 Thur 15 Dec
Gill13 Thur 15 Dec
Paf Thur 15 Dec
ChloeM Fri 16 Dec
Gingerrizzie Fri 16 Dec
Sheepfarmersotherhalf Fri 16 Dec

No.2s
Pink Princess Mon 12 Dec
Soapflake Mon 12 Dec
Jaxette Wed 14 Dec
Jmk30 Wed 14 Dec
CaroleW Thur 15 Dec

gill13
Member

Re: Starting Chemo in Nov 2011

Lulu, your post didn't make me feel morbid, it kind of made me think, i always thought i'd want to die without any notice (so to speak) but i think you're right, i really do want to use this BC as a wake up call and do some stuff that i always thought i'd get around to some day

LL /Liz, those bra's you're talking about, are the a vest style or boob tube style? Vest style would probably be good, i'm still struggling to find bra's, i now have grand total of 2!! and another 2 pack on order from M&S (again) I went to the only local shop to stock post surgery bras yeaterday and the price was ridiculous! £40 ish and only had white, i want black now, i'm not paying £40 for 1 bra!!

My daughter slept all through the night with no more throwing up (thank goodness as she was in my bed) went off to school quite happy but i've just been called to pick her up as she was feeling sick, i don't think they wanted to chance having to mop it up, so shes here with me now watching TV.

had my bloods done earlier, Ouch!! i'm not ususally bothered by this, but it hurt today, she used different vein as i still have a mark on my arm from previous blood taking

from what i can remember from L4W list i don't think anyone is up today? so i'll just hope that those suffering with se's get over them soon

Gill x

Libralady
Member

Re: Starting Chemo in Nov 2011

Liz - are the peacocks ones the ones you pull over your head with no clips or fasteners etc?

If so, I bought a 2 pack, black & white one a few weeks back - and they are very comfy. I wear mine in the day too!

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Re: Starting Chemo in Nov 2011

Gill

Sorry your little girl is sick, that is very hard for you when you are not well yourself. I am not very good at dealing with cleaning up sick children, I usually feel sick with them.

Paula

I managed to eat a good meal last evening, managed to stay up and not go straight to bed. I wondered if it was because I had my FEC in the afternoon,and therefore had had a lot of drinks and food before the chemo. I am the same as you the first two FEC wiped me out for the week. I am still in bed at the moment just resting, watching tv,but I feel wobbly and weak when I get up. I am drinking plenty. I wasn't able to use my laptop at this time previously.

Lulu

Thanks for your info. I've had two ops, wle and snb, aux clearance and a shave for pre cancerous cells and to give a bigger margin. My cancer was grade 2 and 3 lymph nodes were affected. I am on 3FEC 3T, 15 rads, and 5 years hormone tablets. When I asked for a prognosis I was told that I would be told I would be all clear after I had taken the tablets for 5 years.

Hope everyone is ok today. Good look if you are having treatment.

A

Daysie
Member

Re: Starting Chemo in Nov 2011

Gill - just reading your post make me feel pukey lol...poor little babe - hope she's ok now, you've got so much to deal with, I don't know how you ladies manage with youngsters to look after, it's hard enough to look after ourselves!

Paula x

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Re: Starting Chemo in Nov 2011

Lulu,
loving the pink hair, I just wanted to let you know that the seam free bras are for sale in Pekcocks, (two pair pack I think). Really comfy to sleep in.

3network3
Member

Re: Starting Chemo in Nov 2011

Thanks for your post Lulu, I found it helpful. The node involvment you mention, I only got a biopsy and ultrasound on my nodes and yes they are involved, but at this stage (chemo pre-op) they can't know how badly the nodes are affected. So am I right in thinking it's a bit of a hit and miss kind of chemo then? I'm like most of us on 3xFEC 3xTax.

Love from Christine xx