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Starting Chemo in Nov 2011

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Re: Starting Chemo in Nov 2011

Hi All

Didn't post yesterday, was feeling really weak and wobbly after 3rd FEC on Monday. Still feel the same today. Can't do muchbut I have been wrapping the xmas presents as I can sit down to do that. It is the going up and downstairs that gets to me.

Jackie - sorry you have shingles, hope you are soon better.

I don't know who mentioned crisps, I normally love them and eat too many but the only ones I really like now are wotsits. Also going off tea and coffee again, just drinking fruit tea and ginger ale.

Lulu - I agree with the others that It is really good having you on here and giving us advice.

Jean - sorry you didn't get seen to yesterday at the hospital and have to go back again what a nuicance, and such a long time to have to wait round.

Troodles - good luck with the hat making. I have been buying some off the internet and have spent a fortune but I do like to have a change.

Good luck to all who are having treatment today. Good weekend everyone.
A

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Re: Starting Chemo in Nov 2011

Mazzalou

Thanks for comments! The website is http://www.trusuheadwear.co.uk and just set up the initial web page at the mo. The blog and piccies will be going on next week hopefully so I will keep you posted. Really chuffed with the ones we made so far and got so many positive comments, the nurses were amazed when I went for chemo on Monday. Each one in individual so no-one will have one the same.

Will let you know more soon.

Lost_4_Words
Member

Re: Starting Chemo in Nov 2011

Christine, I honestly think it's just different hospitals use different methods, perhaps at mine Nuclear Medicine is the least busy dept 😉

Lizzy, just like you I've got a really sweet tooth normally yet the yard of jaffa cakes I bought weeks ago are still sitting there and the other night I was tucking in to dry roasted peanuts (which I hate, can't even stand the smell of them normally!!). I just can't stop eating anything savoury, even had salt on my porridge 🙂 Hope you're feeling better but do ring your unit about the sore throat, better safe than ending up really poorly 😞

Jean, hope they got you sorted today. Could you have it done at your Drs next time?

Josie, wrap up and get some TLC hope you're feeling brighter soon 🙂

Have had a CBA day today so the rest of the deccies are still in the box. Had a nice visit from my boss who brought loads of pressies and cards for me from work, which really cheered me up and made me cry all at the same time!!

Snack time 😉
L4W

Mazzalou
Member

Re: Starting Chemo in Nov 2011

Hi Troodles

Looking forward to seeing your website and the hats so please post the link.

As for profiteering from the vulnerable it seems like a case of 'where there's pain, there's money to gain'!!!

Mazzalou

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Re: Starting Chemo in Nov 2011

Hiya all

Feeling much better today after last nights stomach pain attack, still not sure what it was all about, fingers crossed it doesn't happen again, thank you all for your kind thoughts.

Libralady - my second FEC was postponed by a week which is a real bummer when you psych yourself up for it due to a minor sniffle but it was only bacause my white cell count was too low, 0.9 rather than the 1.5 needed. Fingers crossed though, you will be fine for next week.

I have been making hats for the last couple of weeks, haven't felt like it again until today but me and a friend have got into making them as they are so expensive on line, we have made about 7 or 8 now and totally out of recycable material. We are thinking about selling them on line a lot cheaper than the other sites as I am really miffed that people make so much money out of something like BC. I didn't even know I could sew quite well until now! ha ha
We have started a web site and are just thinking on getting people's opinions first.

Troodles

3network3
Member

Re: Starting Chemo in Nov 2011

Dec Darling here again, Jackie so sorry re the shingles, never had them but believe their very sore. Hope AB kick in quickly.

Now you all get MUGAs, I only got an ECHO. Is it the same just not so accurate?

Love from Christine xx

Lulu34
Member

Re: Starting Chemo in Nov 2011

Lizzy

If your feeling poorly even without a temp it's prob best to run it by the Chemo unit.... It could be an underlying infection and they might want you to go in and get your bloods checked.... You can get very I'll very quickly when your neuts are low so please be careful.

I'm am loving crisps... Well I'm not loving them I just really want them but they dont taste salty enough have major salt craving going on.... Can't really taste crisp flavours but I'm eating loads mre than I did before... I was a couple of bags a month person now I'm nearly having a bag a day!

Jackie really sorryyou have shingles... Really not what your needing right now... Big hugs xx

Lulu x

Libralady
Member

Re: Starting Chemo in Nov 2011

yes I have a sniffle and slight sore throat. Hubby and granddaughter had it last week so I just knew it was coming to me.

No temperature....hope it wont effect chemo on Wednesday. Has anyone else been postponed due to a mild sniffle?

Lizzy1977
Member

Re: Starting Chemo in Nov 2011

Jackie, sorry to hear you have shingles...what a bugger on top of everything else.

On the heart scan issue I had one before my first FEC with a dye and am having another one before I start Herceptin. I think my Herceptin is starting around the time of my 5th chemo which will be TAX no 2.

This is just a short post as I'm feeling really rotten today. On top of the nausea (but thank god haven't been sick due to Emend) I now have a sore throat and a cold. No temperature though.

Time to get back under the duvet!

Lizzyxx
p.s is anyone having cravings for crisps? I can normally take them or leave them but now the thought of eating anything sweet knocks me sick and I'm obsessed with savoury. Weird as I normally have a sweet tooth!

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Re: Starting Chemo in Nov 2011

Quick post from lunch break at work on the heart scan subject. I had one before 1st FEC. I think it was called ejection fraction.

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Re: Starting Chemo in Nov 2011

Hi ladys well was up the hospital from 8am till 4pm yesterday .
my bloods were good this time so was able to have 2nd chemo wich made me happy wich was short lived as last night and this morning have been feeling rubbish . hope every one ok as so many posts xx josie1

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Re: Starting Chemo in Nov 2011

Hi everyone not been posting for a while been so busy.

Went to hospital yesterday to have line redressed and flushed, sat there for 3 hours and still not seen, ended up having to leave as I had another appt, so have to go back today and probably sit for another 3 hours plus, was not amused.

Jackie so sorry to hear about your shingles but hopefully the antibiotics will deal with it quickly, take it easy.

I cannot believe how many pages since I last posted so will just send my best wishes to all those having treatment this week and hope your SEs are minimal.

Jean xxx

gill13
Member

Re: Starting Chemo in Nov 2011

Morning Ladies

Oh Jackie, i really feel for you, I know that shingles are a bugger, last thing you need, and i also can imagine not wanting to show your derrier!! i did mention on her that i have now got piles!!! they're internal (euwww) and i mentioned it yesterday, and BN said she would speak to doc, well she came back and said doc would take a look, i said "no thank you, theres nothing to see" lol they were fine with that, phew!!

L4W - Have to say the KFC was good, we thought we'd make the most of something nice before taste buds get it, i try and take my 2nd lot of steroids no later than 12 - 12.30 and they don't seem to affect my sleeping at all

And Have to agree we are lucky to have Lulu on here, so thanks from me too Lulu xxx

Is there anyone up today? Or anything exciting happening for anyone?

Gill x

Lost_4_Words
Member

Re: Starting Chemo in Nov 2011

Awwww Jackie you really are going through the mill, gentle (((((hugs))))) coming your way, hope you're feeling better soon 🙂

Take it easy and be kind to yourself 🙂
(((((hugs)))))
L4W xXx

Lost_4_Words
Member

Re: Starting Chemo in Nov 2011

Evening Ladies

Had a really good day, bit the bullet and put half the deccies up so that's one room done. Had to stop cause I was exhausted and then s-d left a drink on the floor and I kicked it over!! Out came the carpet cleaner and you just know what happened, yes I cleaned up the mess only to leave a nice clean patch on the carpet so I've spent the evening cleaning the whole carpet!! At least OH is away tonight so I didn't have him under my feet 😉

Well done to Dotflott, Gill, Chelle & Lizzy for reaching half way 🙂 Hoping any SEs are little ones.

Lulu, thanks for that, I'll take your advice. If 2mg keeps me awake I dread to think what I'll be like on 8mg 😉 I hope you know how much we (that's the royal we, cos I know all the BBBs will agree) appreciate having you on board, you're a star 🙂

Linda, Yes a MUGA (multigated blood-pool imaging) is a type of heart scan and I'm due to start Herceptin soon, I will have one after every 3 or 4 Herceptin treatments just to make sure its not affecting my heart function.

"A MUGA scan takes about an hour. In this test, a tiny amount of radioactive material is injected into a vein in your arm. This material temporarily hooks onto your red blood cells. You lie still while a special camera that can detect the radioactive material takes pictures of the blood flow through your heart as it beats."

PP, I didn't have a heart scan till this one but seems some do.

Gill, love the pic but did you have to mention KFC I'm almost drooling now 😉

Troodles, glad you're feeling better now, all this is scary stuff sometimes!

Night all, sweet dreams
L4W

italia03
Member

Re: Starting Chemo in Nov 2011

Hello Ladies
I havnt posted for a few days , ive been out of sorts and really tired , this morning though had to go to the unit as i developed these awful sores (sorry if TMI ladies )on my backside ,
anyway iv up, bloods taken , felt like a right plonker ,nurses , doctors all looking at my Derier,which isnt a pretty sight girls and quite embarrising .
Eventually i was told i have developed shingles and finally got home tea time today with some more antibiotics .
What a day , my low imune week starts now so gona take things easy for the next couple of days.
Hope you lovely ladies are having a good week with little or no SEs
good luck to those who have had treatment this week
Love and Hugs
Jackie
xxxx

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Re: Starting Chemo in Nov 2011

Lulu

Thanks for comments, I did eventually call the hosp main number and after 15 minutes they got the ward only to tell us they couldn't find the chemo nurse who was on duty! Eventually got a call an hour and a half after the pain started. Thankfully is all now fine, they told me they think it was a spasm but in honesty she sounded a bit vague so not really confident of what she said. I am just going to drink plenty of water and take it easy, will call my specialist nurse tom for a chat.
Scared both me and OH though as I thought I was going to have to call an ambulance!
I did have an ECG before starting chemo but this said this was routine, didn' have a scan.

Lulu34
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Re: Starting Chemo in Nov 2011

Linda if you have a temp I'd be very wary of taking anything with paracetamol in it as it can make you appear to have a normal temp... But if you have a temp of 37.5 you should phone the chemo unit especially if your not feeling well..... If you have two temps of 37.5 an hour apart that means you need to call the ward and if you feel unwell even without a temp call the unit..... If in doubt call the unit! What is your procedure for out of hours? We have an on call reg we have to call you may have to call nhs direct or attend a and e.... Please do it!

With regards to lumps and Chemo... Chemo works best at eradicating microscopic cells..... It can give good shrinkage and even complete pathological response in some cases although this isn't the norm and hence they would still have surgery to remove the area... Complete pathological response can only be determined by a pathologist anyway as an area that doesn't appear to have cancer any more could have tiny cells that aren't visible to the naked eye as mammos and scans can usually only pick things up from about 3mm in size.

L4W I am on the same steroids prechemo.... But still take at 8am and 12pm.... Even if you wanna take at 6am and 2pm but wouldn't take any later than 2pm I took my first lot about 4pm and was awake all through the night day before my first tax and carbo.... As for the light/dark debate with the nails most nail polish is opaque so even a light colour wouldn't let the light through if you put on enough coats unless it was clear nail polish.

Hickman as been bled, flushed and redressed today and my neck suture removed but that took ages as it was pretty deep in my neck so she kinda had to gouge it out but it wasn't sore.

Troodles what Chemo are you on as I think cychlophosphamide the c in fec and cmf causes urinary problems.... If you don't get through try contacting nhs direct, but you can call tge hosp switchboard and ask if they can bleep the on call onco reg.

PP if you have epirubicin it can affect your heart so you should have nuclear heart scan at the start of treatment... Usually before you start.... They inject dye and you go away and drink fluids then lie on a scanning machine it's quite quick... I didn't get one this time as not on epi so this is from 2 1/2 yrs ago so may not e accurate.

Lulu

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Re: Starting Chemo in Nov 2011

Just had a bit of a scare, I suddenly got a really bad tummy ache, came on in about 5 minutes, so bad I was rolling around on the floor, we tried calling the acute oncolo team at the N & N and no-one answered! Handy! It eventually passed after an hour and I am now pain free. Has anyone experienced that? I could have cried, the pain was so bad. I had FEC no 2 on Monday and have been injecting the white cell boosters, appetite okish and been drinking.

Troodles

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Re: Starting Chemo in Nov 2011

I had an ECG the day before I started the chemo.

Mx

gill13
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Re: Starting Chemo in Nov 2011

pp - i think its just herceptin, i was supposed to have one before starting, but had had 2 sessions before i had my 1st heart scan, apparantly it will be montiored a few times whilst on it

Gill x

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Re: Starting Chemo in Nov 2011

Should we have heart scans before starting chemo? Or is that just herceptin ? Xxx

gill13
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Re: Starting Chemo in Nov 2011

evening BBB's

3 down, 3 to go (not including 12 Herceptin!) All went ok, and we stopped off for KFC on way home and i've just had a glass of wine...Very nice too

i've had different anit sickness drugs as the nausea lasted for about 10days last time, so hopefully these will help

regarding MX area, my area still feels numb especially under the arm pit, i can't even feel when i spray deodrant, this has improved though because the numbness used to be part of way down my arm too. when i have rubbed bio oil on mx scar i get a weird feeling, i really don't like it, and can't even describe it. i haven't really used it as often as i should due to this

My finger tips are feeling tender too, sore cuticles

And finally, my profile picture, me in my cold cap, and not looking too happy really, it was my 1st chemo and i was a bit nervous

Gill x

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Re: Starting Chemo in Nov 2011

Good Evening

Its not been the best of weeks after having Fec no 3. No 2 probably went too smoothly. I have been running with a temp of 37.5 since last friday and just not feeling myself. Going hot and then cold literally all day long. I am also suffering from headaches - is it okay to take paracetamol whilst on chemo? I probably should have phoned up the unit today ...

Its amazing how I seem to have good weeks then bang its not a good one and I feel literally drained and oh so sorry for myself...

My veins seem to also be shot from the chemo and almost look as if the two main veins have collapsed - I hope it doesnt effect me having the next lot on 30th Dec.

Gill you mentioned about having surgery even if the lump has disappeared, my surgeon said to me that if I was lucky enough that my lump disappeared he would still have to remove the footprint to ensure its all gone 🙂 sort of makes sense.

L4Ws - what is a MUGA - is this the heart scan you have when you go on herceptin ?

Hope everyone else who is having treatment is okay and their se's minimal...

Linda
xxx

Lizzy1977
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Re: Starting Chemo in Nov 2011

Chelle, you're the same as me..I had FEC 3 yesterday,start TAX on 4th Jan and then Herceptin shortly after that. So far the Emend is working and I have not been sick this time. Just a bit of nausea.

My heart scan is not until 11 Jan.

I hope your SEs are minimal. Take care of yourself
Lizzyx

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Re: Starting Chemo in Nov 2011

Hi everyone,
I had fec #3 yesterday so i am now halfway through, again i have had no sickness just quite tired, my next chemo is on the 4th jan wich will be tax then a few days later i start herceptin,i am soooo hoping tax is not so bad as i have coped ok with fec.
I have a heart scan booked for the 20th dec then after that i will not think about anyhing but giving my children the fun christmas they deserve.

Any way i hope everyone is ok and all se's go away sharpish

Chelle xx

Jay66
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Re: Starting Chemo in Nov 2011

Hi Girls....
I too am popping in from September...
I had normal periods for the first 3 FEC, had number 4 two weeks ago, and no period! but have had hot flushes for the first time, not sure if theres a conection....
Good luck to you all...
Keep chatting...

Jay X

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Re: Starting Chemo in Nov 2011

Hi ladies,

Just popping in from the September thread. You are a chatted lot, you have over taken us already, we are only up to 95 pages!

I have had shellac or Gellish nails since starting tax and my nails are s in good condition. They feel tender each time so I would advise keeping them very short. I had my last chemo yesterday (yippee!) So I am just hoping now that I don't lose my nails a few months down the line. I am going to stick with gel nails forever now as I love them, the last 2-3 weeks with no chips and they look fab. I never knew about gel nails before chemo so at least it is one good thing to come out of it!

Also, sorry I can't remember who mentioned it, but my lump area and the area around my node biopsy scar hurts in the 2 weeks after chemo. Fec can aggravate scars and apparently, my onc told me that the pain in the lump is a good one as it is the evil cells being murdered by the chemo. If you are worried though, check with your onc.

Well done ladies, most of you are half way there now. Good luck to those changing to tax. Don't believe all the bad things you might read about it, I found it sooo much easier than fec.

Kate xx

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Re: Starting Chemo in Nov 2011

Deleted as double posted, oops!

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Re: Starting Chemo in Nov 2011

Gooseberry Girl

Hiya, I had my maxec middle of September and I have only just been able to start sleeping on that side again. I did have a lot of trouble with neucrosis and a large portion of the spare skin they saved died but it is now looking ok without further surgery and the scab finally dropped off last week! I am still totally numb under my arm pit where they cleared out the lymph nodes and my chest is very sensitive where the nerves still are above the scar tissue.
I think some people recover quite quickly and others slower, mine is about 3 months now.
Hope that helps.
Troodles

Lost_4_Words
Member

Re: Starting Chemo in Nov 2011

Good Morning BBBs

Well that'll teach me to go AWOL for a couple of days but I'm glad to see we are all doing well and treatment seems to be progressing ok for all 🙂

LL, on the periods I started one the day I started my 1st chemo (lasted 10 days) and that's been it. I did have bad stomach cramps a week after no.2 but nothing happened. Pre chemo they were getting a bit erratic so I never know when they are going to happen! I have had a couple of restless nights with HF's (covers on, covers off) but don't know if that's down to the treatment or P's.

Had my MUGA scan Tuesday and all looks ok, it's only a benchmark for my Herceptin so no results as such to wait for 🙂 I was a good little girl and laid very still so it only took 15mins to get the pics they needed. I was a little miffed cos they didn't give me much info about the procedure (just told, lay there, lay still) and I had to ask about what to do after, then another nurse realised it was my first time and went into greater detail about precautions etc. Being the techno geek that I am, I asked how it works so he showed me the images and explained how it takes the images and how they calculate the results. It was quite fascinating to see my heart working away (do I sound really sad!! ;-)).

Fec No.3 seems to have gone ok (better than No.2) but I did prepare better this time and did the same routine as for No.1. I've come away with my steroids to take before my next session (29th) which will be when I start my TAX. I'm a little worried as with FEC I got an injection on the day (8mg) and 3 days to take at home (1 x 2mg 3 x/day) but this time I have to take 8mg twice /day for 3 days starting the day before!! They have warned me their is a slight risk of an allergic reaction with 1st TAX so that's why they give the higher dose of steroids but as they kept me awake on 2mg I'm worried my eyes will be on storks 😞 They also told me to space them evenly through the day (12hrs apart) and suggested 6am & 6pm. On the up side they have said the nausea isn't as bad with TAX but I may get bone/joint pain and they did warn me about the nails. The nurse seemed to suggest that the nail damage is caused by light (hence the dark nail varnish) and that wearing gloves was also a good idea. She also suggested putting on hand/nail cream and wearing surgical type gloves and leaving it soak in!!

For those looking for a bra top, have a look at Genie Bra, Ahh Bra or Barely There. I think GB's also have a pocket so may work with a prosthetic if needed.

Right I need to have a re-read and make sure I haven't missed anyone off for next week 🙂

Happy days to all and if anyone doesn't like wrapping pressies give me a shout 🙂 I may be 'bah humbug' when it comes to shopping but I love wrapping. OH hires me out at very reasonable rates (for wrapping!!) 😉
L4W

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Re: Starting Chemo in Nov 2011

Thanks, Gill/Judes/Lulu - I'm feeling much more positive again now.

Gill - I asked my onc why chemo didn't just get rid of tumours and she said that sometimes it does and they used to not bother with surgery then, but found it tended to come back if they didn't. Good luck for today and glad your daughter's feeling better.

Judes - I think the radiologist was having problems figuring out what's going on as there's a lot of thickening of the skin and she maybe let something slip she shouldn't have.

Lulu - I just had mammograms repeated post insertion at the time. The mammographer let me see the images and there is clearly only one marker so I suspect the other one must have been missed. I think the mammographer was starting to take it a bit personally when the radiologist asked her to do a 3rd image yesterday and wanted to prove the point to me.

Mazzalou
Member

Re: Starting Chemo in Nov 2011

Just to continue with Lulu's nail issues theme, carry on with the nail strengthener even when you have finished chemo as the part of your nails that will be affected may not be the part that you can currently see as your nails start growing far below the nail bed. Even though I had my last docetaxel at the end of September, and my nails are now pink again halfway up, some of them on my left hand have turned opaque in the last couple of weeks. Does anybody know why this is? I wonder if it is linked to the radiotherapy that I was having on this side over this time period, or just coincidence.

I also started taking my temperature before I started my chemo as I had no ideas what was normal for me.

Lulu34
Member

Re: Starting Chemo in Nov 2011

With regards to the nail issues... Acrylic and any other stuck on nails are a no-no as germs can get trapped under them and could cause an infection.

Nail polish is perfectly ok but as far as I can find no research on whether to use dark or clear makes any difference.... But I have read lots of research articles which supports the use of any nail polish to help harden and protect nails.... However you may still lose them.

My finger nails, finger tips and nail beds are getting quite sore now but not sure whether its a nail thing like nails coming off or if it's the start of neuropathy.... Not agony or anything but just a wee bit tender.

Pleasant and Fairy thanks so much for your comments .

Period wise..... I was on the mini pill before my first diagnosis and had no periods it was fab but had to stop it when I got hormone pos BC..... I didn't need Chemo but did have tamoxifen and after a few normal periods I then started having very heavy frequent periods with flooding.... I had a d and c and a mirena coil fitted and then had no periods again.

Then I was diagnosed with a hormone negative BC and needed Chemo and had to stop tamox.... Still had the mirena in and had a couple of bleeds on the Chemo but then none again for almost a year.... Had restarted tamox and then had a hysterectomy and ovaries out last year.

So when i got the recurrence and I had to stop the tamox again and start the Chemo again and obv no periods this time cos no lady bits left.

But Chemo can cause bleeing changes.... It can stop bleeding it can cause prolonged or more frequent bleeding and when you finish Chemo and if you go on to hormones then they do it too! LOL

gooseberrygirl
Member

Re: Starting Chemo in Nov 2011

Hi There Everyone,

Love reading the posts,so many each day, Not felt too bad on second FEC, down to have 3rd next Tuesday, then a scan to see how stuff is getting on in the rest of my body, have a problem with enlarged nodes in my pelvis/stomach and a problem with my right breast,
Still can not lie on my Left side, feels like a giant bruise where my breast was and my arm, the area is completly numb to the touch, the Chemo seems to aggrivate this area, do any of you others have this?
Re Period thing, really bad cramps and flooding periods, thought they would stop or wain on Chemo?
Still having Wig nightmare but ordered 2 on Internet today, cant be worse than the "hamster" from the hospital

Good to read all posts, Good Luck to all on Chemo this week, and Lizzy half way Brilliant

gill13
Member

Re: Starting Chemo in Nov 2011

ok Fairy, we'll both do it, i think its only fair

just sharing a link, that was shared by a FB friend, How to talk to someone with Cancer, i think i should print out and hand out to some of the people i know!!

http://www.salon.com/2011/12/13/how_to_talk_to_someone_with_cancer/?source=newsletter

Right i have posted enough for one day, early night for me, once i've made packed lunch for tomorrow, put the ironing board away, tidied around the living room... Ah sod it, bed and book, the reat can wait

Gill x

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Re: Starting Chemo in Nov 2011

Hmmm, thanks for that Troodles, Audrey and Gill. Thing is, I've had acrylic nails for last 10 years. I treated myself as a 'one-off' for my friends' wedding all those years ago, but ended up with them ever since coz my own nails have always been horribly thin. When I was diagnosed I soaked them off myself (couldn't go into the salon because I would have been sobbing in the corner - because of the diagnosis. Not that my nails were coming off!) That was nearly a month ago, and I'm still wearing plasters on my fingers coz my nails are so thin and I'm forever filing them down. I've been using that OPI nail hardener to try and harden them, but they're just the same.
Gill, I also have a rather fetching photo of myself wearing the cold cap, lol. Might stick it up here too.
And all this talk of drinking enough liquids makes me realise I'm really not drinking anywhere near enough as perhaps I should!
Judes, I don't think you should worry. When I got my thermometer, I panicked because my temp ranged from 35 something to 36 something. I thought normal temp was 37 until I was told that that wasn't always the case.
xx

gill13
Member

Re: Starting Chemo in Nov 2011

i also forgot totell everyone, that i've been booked on an event in January organised by Breast Cancer Care on reconstruction. My BCN told me about it but you can actually view all events online, i think it was under the Media section link above. theres a few on in various parts of the country

Gill x

gill13
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Re: Starting Chemo in Nov 2011

forgot to say Well done to Lizzy, half way. Yay

And Ok, i'll get my daughter to put pic on laptop, so that i can upload it

Gill x

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Re: Starting Chemo in Nov 2011

ooh gill yes, show us your cold cap!

and pleasant i meant to say, my bladder is also performing better these days, i'm drinking loads but don't need to wee nearly as often. i thought it might be because my cells need the fluids so more is absorbed rather than expelled, but not sure whether that makes physiological sense.

also, on temperatures, mine is generally 35.something. is that just cos i'm stingy with the central heating or should i worry?

x

gill13
Member

Re: Starting Chemo in Nov 2011

Fairy - looks like you'll be using the C card on Xmas day then 🙂 and yes daughter was fine today thanks, she went to school and it was the infants Xmas concert this agfternoon and this evening, She was a real star, i was very proud of her

Fairy/ Audrey / Toodles - i was also told that nail polish is ok, and that dark nail polish can stop nails dis-colouring whilst on Tax, my toe nails are purple but i'm not keen on dark on fingers so just have a pale one to try and strengthen them

i have watched Gypsy Wedding and those dresses were pretty OTT, but missed the christmas one, i have to say though the glamour model by the end of the programme had changed her opinion and was not pushing her daughter to follow in her footsteps, i know i watch some rubbish lol

i am thinking of updating my picture to one of me in the cold cap, my daughter (big one) has one on her phone, seeing as everyone is bravely putting more recent pics on

Gill x

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Re: Starting Chemo in Nov 2011

Lizzy - Congratulations on reaching halfway. You will be fine with the Emend. I am also on Emend after being so so sick on No1, and have been fine since, still get sickly feelings but not being sick. My Onc has also prescribed Emend for when I am on Tax.

Judes - I will look at your cancer card thread.

Troodles - I have started drinking ginger ale, as I went off ginger beer. I also drink raspberry tea, and plenty of cups of ordinary tea, nd decaf coffee.

Fairy - Not sure about the nails. I had stopped painting my nails before my op as they were getting brittle. At the moment my nails have never been so strong and long, I have put that down to not being able to do much since the end of July. I also put hand cream on everytime I wash my hands and wear gloves for doing any jobs. I have had to really file my nails them down. I am having tax next ans was discussing se with my chemo nurse. She said I could paint my nails with nail strengthener as tax can make the nails go brittle. I told her that I had read that some people paint their nails with dark nail varnish when on tax. She said I could do that if i wanted.

Hope everyone is ok. Good luck to those who are having chemo tomorrow.

A

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Re: Starting Chemo in Nov 2011

Fairy

Not sure on that one, I was told I can't even paint my nails. Not sure why.

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Re: Starting Chemo in Nov 2011

Quick question - I know acrylic nails are a no-no. Does anyone know if you can have shellac nails?

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Re: Starting Chemo in Nov 2011

Happy Birthday, Paula! Hope you have had a lovely day! And yes, a Wii is much nicer than a boring old blender any day! x

Mazzalou - hilarious comment about you not getting a pull-up bra past your bum!

Gill, I hope your little girl is feeling much better now. And I totally agree with your comments as re the model and encouraging her daughter to be one too. I always feel like slapping them too! Like those godawful tv programmes about American Beauty Pageants, where they dress up tiny little girls to look about 30. I know, I shouldn't watch them, but it's like car crash tv.
Did anyone watch 'My Fat Gipsy Christmas'' last night? Those wedding dresses are hilarious. What DO they look like?! Especially the girl whose dress weighed 15 stone and she had been shoved into the limousine. We couldn't stop laughing, her bum looked gigantic and in the car she looked like she only had a head!

Lulu, I agree with Pleasant1, you really are an incredible lady. You've been through so much, but you've come up smiling. You really are an inspiration to me! Wish you were at my chemo unit, you look to be such good fun!
Actually, wish you were ALL at my chemo unit. I feel I know you all pretty well, and it could all get quite raucous!

PP - Love your new picture!

LL - my periods have been erratic for about a year now. I didn't have any for a few months, then I started again about June. My last one was September, but then I started another one a couple of days ago. So, all over the place! I also started with hot flushes at the beginning of the year, and took Menosan drops (wild sage), which were brilliant! (also used Serenity cream, which was good too, and much cheaper than the sage drops). Then the HF stopped about last April. They started again about the time I was diagnosed with BC. So I started using the Menosan again, until my Onc told me not to, but that I could have one last dose. I did. But strangely, the HF stopped again anyway (they were making me quite miserable the first 2 or 3 weeks when I was diagnosed).

I must say, I've felt pretty good the last 10 days or so. In fact, I feel pretty 'normal'. Every now and then I remember that I actually have BC. To me, the first 2 weeks after diagnosis were just awful. Ever since then, everything that has happened has been a positive (scans, SLNB, chemo) - a path that needs to be trod in order to get me better. I just feel there is no point in worrying about anything until I KNOW there is something to worry about. I refuse to let all this get to me. Ok, I've only had one lot of chemo yet, and most of you have already had no.3. I don't know how I will react next time around. But I know that, hopefully, the bad days don't last forever, just to chill when I'm tired and don't fight it, and that my taste buds will come back. My next chemo is on Monday. If I respond the same as last time, then I'll be wiped out on Xmas Eve, but coming round again on Christmas Day. Still, it means I get out of cooking, yay!!
I'm going to my sisters house with my family, she lives on a farm tucked into the hills in the Lake District. She said I can just snuggle on the sofa with a blanket and they'll just shove a glass of port at me every now and again. (not sure I'll be able to drink it tho!)

Hope everyone is doing ok after chemo the last few days and that the SE's are only small. Jude, will take a look at your new thread, great idea! Sure we will all use the cancer card to our own advantage in the next few months - it would be rude not to!

xxx

Lulu34
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Re: Starting Chemo in Nov 2011

Gail... Sometimes Chemo doesn't shrink the cancer but kill the cells so there is still an area or lump there but all the cells inside are dead.... So keeping my fingers crossed.... Good luck with our onc appt.

Did you have post insertion marker films done? If no sign of it after insertion and no sign since I would presume it wasn't actually inserted.

Judes off to find you new thread.... Im a big supporter of the cancer card!

Troodles.... Sorry your nieces singing made you cry but your right a good old cry does you good.... I drink fizzy drinks usually pepsi max or flavoured water as I find the bubbles make that scummy layer in my mouth diseappear for a wee while.... Lots of folks say pineapple juice is good for your mouth and taste buds.... But seems to vary from person to person so your prob in for a bit of trial and error.

Christine there isn't a set amount to drink but usually you are recommended to have around a litre and a half a day but may find taking bit more will help through treatment around 2-3 litres this would work out around 8-10 drinks a day.... You don't want to over do it either as that can mean your body has to work extra hard.

Audrey i noticed today that my lashes seem sparser.... They look like I had alread put mascara on as there were lots of gaps between them...l eyebrows still holding on.. Leg hairs very reduced... It's a week ounce I lasted shaved them and they were only long enough to do today cos I was cold and had goosbumps and they stood out better

PP I have had quite a few glasses of wine on my good weeks, but in my pants week I just couldn't face it.

Had Christmas lunch at Maggies centre young women's cancer group today ..... It great.... Good food, fab friends but now completely knackered and off or a snooze

Lulu xxxx

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Re: Starting Chemo in Nov 2011

Thank you Lulu and Nanny for your comments, now understand it is the steriods that cause this no sleep/weird dream things that are going on.
With regards to the period thing, I was actaually having one when I had first FEC, it got really heavy, tailed off then stopped and started again really heavy a day later. The hospital told me to keep an eye on it but it finished after 4 days and nothing since, had second FEC on Monday so will see what happens.

I struggle with drinking volumes of fluids as I don't like squash or water. I have been drinking peppermint tea as it also helps the sickness and flat ginger beer. Anyone got any ideas?
The onc told me I could drink alcohol but like most of you, don't really fancy it although I did have a couple of pints of guiness last weekend, told myself the iron would be good for me. ha ha

The injections aren't as bad as I thought they would be, I have managed to do them myself. Saves a lot of time waiting at the Dr and honestly don't feel like even stepping out the front door quite yet.

Had a really good cry today, probably the first proper one I have had, my sister in law sent me a posting on facebook of my 2 year old niece singing a Xmas song for me and it just set me off, probably just what I needed, anyway, sorry, I have gone on and on...

Troodles

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Re: Starting Chemo in Nov 2011

ok, so i started the cancer card thread, so y'all have to go and post your stories so it doesn't die an ignominious death.

Pink Princess nice pic! i was told it's ok drink except a few days after chemo because your liver is under strain. now i'm wondering if that counts for the day before chemo too, since i moved my chemo to accommodate a party the night before, should i really not drink?

gail sorry to hear you're stressed about the mammogram. sounds like the radiologist should've kept her mouth shut, it's no good giving you an incomplete picture. i know it's hard but try to hold on for monday when you'll get all the details.

audrey my head is also covered in dings. so much for the "beautifully shaped" one we're supposed to get on diagnosis.

christine i think just drink as much as you can, or maybe as much as you need to feel less toxic and headachey etc. for me it's 2-3litres.

love to all xxx

Lizzy1977
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Re: Starting Chemo in Nov 2011

yay FEC no 3 done! Now half way through. I had Emend so hopefully I will not be sick this time. Fortunately I did all the Christmas wrapping yesterday while I had the energy.

I like the idea of the Cancer card thread!

Lizzyx

gill13
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Re: Starting Chemo in Nov 2011

Gail - try not to freak out too much, surely if chemo got rid totally there'd be no need for surgery?? i though idea of chemo before surgery was to shrink tumour.
sometimes i think they say too much, and you are sent away worrying

PP - 45 min round trip for school run!! no wonder you'll be relieved for holidays

Dec Christine - i've never tried to measure how much i drink, but i reckon at least 2 pints of squash a day and a couple of mugs tea / coffee, but its usually more the week after chemo. maybe i should try and drink more?

Gill x