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Starting Chemo in Nov 2011

Guest user
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Re: Starting Chemo in Nov 2011

Morning Ladies,

Hi Jackie, I had my 1st FEC yesterday and felt sick late afternoon and evening and when I phoned they told me if the nausea didn't get any better an hour after Domperidone I was to phone NHS 24 and tell them to send an on-call doctor out to give me an injection. I was told by onc nurse the day before to phone my GP and ask for a house call if I was sick at all in the first 24 hours.

It is a postcode lottery and you are having such a rough time - big ((Hug)).

This morning I am feeling much better - thanks for your support last night. I have had Domperidone, breakfast and one steroid - down from 4. The nausea has gone - hopefully will not come back as I was fine on Tax except for once or twice and very mild.

Take care all, Love, Liz.

italia03
Member

Re: Starting Chemo in Nov 2011

Great i just phoned the Chemo unit , and just tried to have a conversation with a really snotty nurse who didnt give me here name
and who told me to and visit my GP , Marvelous just bloody Marvellous ,

Hell i wished i lived in another part of the country and had a different unit instead of this one .

Wonder how shed feel if god forbid it was her or her mother .
Snotty cow

Sorry for the rant girls
just so bloody mad at the moment

jackie
xxxx

italia03
Member

Re: Starting Chemo in Nov 2011

Morning Girls

Second night ive been up with terrible Sickness an Nausea

ime taking everything the uit has given me Dexamethasone,

Ondanssetron, And Domperidone.1st Fec wasnt to bad but really sickly with Fec 2

I was going to call the unit to ask for something else to take but not sure weather ive left it enough time before we allowed to ask for something else .

Anyone else had there anti emetics changed this quickly ,

My unit dosent just wil not priscribe Emend untill your on your last legs apparently or so other patients have told me , but got to do something today i think with it being the weekend .

Thanks
Jackie
xxxx

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Re: Starting Chemo in Nov 2011

Fairy,
So sorry you're feeling miserable. I have a friend who gets a cough every winter which stops her sleeping and she finds that sitting propped up on loads of pillows does help her get a little sleep. Also my 2-year-old grand-daughter had a virus last month which made her cough so much she was sick and again sleeping sitting up helped her a lot.

Hope this helps and you can get a bit of shut-eye.

Take care, Liz.

Guest user
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Re: Starting Chemo in Nov 2011

Feeling miserable 😞 it's 3.30am and for the fourth night in a row, I'm not sleeping. I've had a cough and cold since Monday and I can't sleep for coughing. I'm so flippin tired!! Think I'll phone the chemo unit in the morning for some advice because I should be having bloods taken tomorrow, ready for 3rd lot of EC on Monday. I don't have a temperature, so that's good, but I'm exhausted coz of sleep deprivation and it's only gonna get worse next week!
Kym x

Daysie
Member

Re: Starting Chemo in Nov 2011

Hi Christine

I've sent you a PM.

My BC presented itself as a 'spot' that I thought was a boil! My boob became swollen and red and ached, and had the feeling of being pricked with needles, I thought I had an infection because of the boil...I was convinced the lump they found was a cyst or even mastitus. I was putting frozen peas on my boob and even cabbage leaves in my bra lol lol...

After my first FEC the fireworks went off in my boob big time...it went very red and stabbing pains during the first week, a right battle was going on. After a week of the first FEC my boob returned to normal colour, became softer and now it is becoming smaller than my normal boob! There is a big dent under my boob when they found the original lump, I think the tumours are in my milk ducts which I why I think it was swollen all around.

You are right though, the hospital consultants don't give out much information, and I am sometimes too nervous to ask questions. I find out a lot of information from the ladies on here and also I have visited the Breast Cancer Org forums, but they seem to be mostly Americans and Canadians, some interesting information though. They all seem obsessed with drugs and trials overseas.

Time for bed me thinks!

Nite nite all

Paula x

Guest user
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Re: Starting Chemo in Nov 2011

Sorry Troodles forgot to thank you too. I don't know where my brain has gone!

Love, Liz.

Guest user
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Re: Starting Chemo in Nov 2011

Hi All,
Sorry for not replying sooner - just realised my internet was down.

Have had some Pringles and two more pills and am going to have some digestive biscuits and cheese since I missed dinner. Thanks Christine I think you are right and I'm sorry can't help with your questions.

Gill - the trial I am on is called SOLD and one of the sponsors is a Finnish drug company but it is a worldwide study involving 3000 patients.

Feel more settled now. You are all a great support.

Take care all, love Liz.

weme
Member

Re: Starting Chemo in Nov 2011

Hi Christine

I have inflammatory breast cancer (IBC), my symptoms were a thickening in the skin around the nipple area and the skin looked like orange peel, and was very red and hot. I am having chemo first before mx and it has really made it go almost back to normal after 4 doses. I don't have any lumps in my breast and it didn't show anything on the mammogram either.

I hope this helps, it seems that things have come on a lot for IBC in recent years and there are a lot of survivors out there. PM me if you want to talk more.

Weme

3network3
Member

Re: Starting Chemo in Nov 2011

Any thoguht / experience anyone on this ...I'm wondering if I have inflammatory breast cancer, everything I read about it fits the bill pretty exactly. Other women describing their breast with inflammatory one is the same as mine (Daisy, and two other members), the MacMillan site describing it sounds like mine. I was told I haven't got one lump but it is more scattered. My breast suddenly swell up and was "water logged", there was a red spot appearing within a week. The onoclogist said last time she saw me the swelling could have been caused by inflammation (!). She never diagnosed me though, she never saw me pre chemo. The breast surgeon is the one who diagnosed me and he never said it is inflammatory one. They don't say much to me anyway I always have to ask ask ask. I wonder if he 'misdiagnosed' me. Could this be? The MacMillan site says to have chemo for 4-6 months with inflammatroy one I only get chemo for three months. I don't know though how it is diagnosed. I phone the helpline tomorrow.

Liz I feel some nausea the first evening of FEC and some tummy cramps the next day and another couple of days.

Christine xx

gill13
Member

Re: Starting Chemo in Nov 2011

Troodles -i started thinking exactly that, i want to throw all i can at it, and being classed as young for this @ 45, i want to give myself the best chance of non re-occurance. i know that they will be fine whatever i decide, so i'll have a good think over the next 3 weeks.

i mentioned this forum to the onc, who admitted that she used to sceptical about them until her friend told her how much help and support she'd had from them. i think she was a bit surprised when i pullout out a little note book with all my questions, some of them certainly generated from info got from here lol

Gill x

Guest user
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Re: Starting Chemo in Nov 2011

Gill - I wait to hear next Wednesday if I am going on the rads trial, I was up for it because the least it would do is nothing but it could help. Apparently it is unproven to be beneficial to my age group (40) so they are trialing it, I don't meet all the criteria because I had Hodgkins 23 years ago and had chemo for 8 months, but they might let me do it as it was so long ago. Its a difficult decision isn't it because we tend to want to throw everything at it!

Liz - I felt very sick after my first FEC but have been fine since, not needed anti sickness at all for last two. I wouldn't worry too much, I think what you said to me is that it is all culmative (spelling? duh chemo brain) so that poss has something to do with it.

Trudi

gill13
Member

Re: Starting Chemo in Nov 2011

butterfly - my 1st reaction was that trials need to run in oreder to make progress, but now i'm not sure as to whether i would want to put my furture health in jeopardy, apighterarantly in Finland they are giving herceptin for only 9 weeks!

Paula - i have to be honest about meet up, and say that i'd prob only be able to do a one nighter away, childcare is difficult for me, my little one only goes to her dad for 1 night every other weekend, and for me Elveden would be too far 😞

Gill x

Guest user
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Re: Starting Chemo in Nov 2011

Hi All,

Had first FEC today and went well at first but have been feeling sick and a little bloated since about 5pm. Phoned the unit and was told to take the Domperidine and then have some toast which I did. Nausea comes and goes and I wonder if paranoia has set in! Still, only 2 more to go!

Would welcome your experiences to reassure me.

Gill, I'm on a trial where some patients have only 3 Herceptin and at first that was the one I wanted to be on but I'm not and quite glad now as my onc thought the longer infusions were better.

Hope everyone is doing well. Take care all, Liz.

Guest user
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Re: Starting Chemo in Nov 2011

Elveden is Thetford, I have been and it is very good.

The outdoor pools and rapids are brill!

gill13
Member

Re: Starting Chemo in Nov 2011

Paula - a summer get together sounds good, have you got a link to the centre parks, where is Elveden? I'll have a look on google, but have heard centre parks are very good

Gillx

Pleasant1
Member

Re: Starting Chemo in Nov 2011

Hi all

I can't believe how many pages we (or rather most of you!) have notched up…

PP: know what you mean with the crazy kids. It's OK when you're feeling fine and unbearable during the first week after treatment.

Jackie, Lizzy and others with sore veins: poor yous and definitely insist on a PICC line. I can't believe they don't readily do it – I was offered it as soon as I moaned about my vein after the second treatment. I then wished I'd only had one chemo in the vein as it's still sore and hardened. A good looking male nurse even turned up at my home today to flush the line. It's painless and I now feel very fortunate after hearing your troubles. Also it's so much easier to get bloods than constant needles. I changed the dressing myself earlier in the week and it's all bearable.

Would like to reply to more posts but my I've badly neglected my poor boys due to having been on-line too much today. I've cooked them a good bolognese tho'!

All good wishes x

Daysie
Member

Re: Starting Chemo in Nov 2011

What a Day and Night!

Almost a week since last chemo and still feel slightly sick, think it's because I need to drink more. I have been awake every couple of hours this week, not sure why I can't sleep so well as usual.

I've kicked myself up arse today and been really busy. I received my December payslip from work :o( and they only paid me half salary which is contractually correct, but reality kicked in big time, so I've spent most of the day trying to find Virtual Work lol, I've been advertising my services here, there and everywhere! I've also advertised my 2 spare double rooms as a Monday to Friday let for femals only, which should help a lot with my bills. Guess survival has kicked in, if I can get through the next few months without going back to my normal work then it will keep wolfy from the door.

It was a wild night in Norfolk last night, the wind was howling around my house and my fence has completely crashed, although I think it's my neighbours turn to fund the next one as it's their side lol.

I've taken my decorations down and the house looks bear, but clean! I've got so many jobs to do that have backlogged since October. I may not be posting so often on here whilst I concentrate on getting house in order, but I read every posting!

Maybe we should have our meeting in the summer when we should all be without treatments etc ? I've found a nice Spa hotel in York, but a bit pricey, but sounds nice, also Centreparc in Elveden and Nottingham has the Aqua Sana spas, prices not too bad if 8 people share one lodge with hot tub on veranda! lol.

The forums have been really busy this week and it's good to see that we are managing to get through with not that many se's.

TTFN ((hugs))
Paula x

gill13
Member

Re: Starting Chemo in Nov 2011

4 Down, 4 down!! whoop, whoop!!

i saw onc today, the 1st time since before starting chemo, she has told me about a trail for Herceptin where you only have it for 6 months instead of 12 and whether i would be interested in being put forward for it. There is a random selection from those put forward, of patients who would be on for 6, and the reat would have for 12 months
i'm not sure, i think i'd rather have the 12 months.
Also found out today that i will be on tamoxifen for 5 years, i wish this had been mentioned before, i thought end of herceptin would be the end of treatment
i went armed with questions, asked about rads following mx, she said it was due to Node involvement., and my bloods were 5.2. So all good.

i've been given a longer cousre of steroids to wean me off rather than just have for the 3 days and hopefully will combat the queasyness, also another anti sickness if that doesn't help

i get told i'm brave all the time too, i just say, i just do what i have to.

Blowing a gale in North Wales too, me and little one both awake 3 and 4 am!! not good as i didn't get back to sleep

hope everyone starting tax are doing ok, and not too many se's

Gill x

Lizzy1977
Member

Re: Starting Chemo in Nov 2011

Hi ladies, day after TAX and I feel ok, just tired but little nausea.

Chelle, I should be starting Herceptin with my 5th chemo on 25 Jan too.

My oncologist still has not decided whether I need rads. She wants to discuss it further with her other oncologist colleague who specialises in rads. She does not think I will need it as my sentinel node was clear and I have had a MX. I am not sure whether that is normal.

Re the PICC/ Hickman etc my hospital (St Helens/Whiston) only give them as a last resort. Although my veins and arm are now dead sore they still say my veins are good enough for the chemo.

Yes blowing a gale here in Merseyside too. I had to drag myself off the sofa to rescue the plastic recycling bag as have had milk cartons all over the yard!

I too am getting sick of the 'You're so brave' and 'what a great shaped head comments'. I know people mean well. When I told people that I only have two chemos to go they all think it's all over and so I find myself telling them about the Herceptin and Tamoxifen.

take care and hugs to all
Lizzy xx

Libralady
Member

Re: Starting Chemo in Nov 2011

Hi all

didn't get to see BCN - it was results day and they were hectic to say the least but one of them is going to call me tomorrow for a chat and possibly get me in tomorrow to see her

Christine - Yes I go in every week for a flush and dressing clean - was never offered a DN service - they must be cash strapped. To be honest I don't mind going in, I get to see the chemo nurses every week, they always chat to me to see how my SE's are so its almost like a mini weekly consultation.

italia03
Member

Re: Starting Chemo in Nov 2011

Hi Lulu thanks for the information on Pick And Hickmans
From what you have explained it makes think ill just hang on and keep going with the canular as i dont want to tempt fate .As far as infections go ive had my share already so thanks for the tip .

Edinborough Such a Lovely place , i used to travel there by train a lot when i worked for Cancer Research uk about ten years ago .

Sounds like you have a lovely support network Lulu
and i know that must make all the difference .

I know you have it really rough some days .

Love Jackie
xxxx

italia03
Member

Re: Starting Chemo in Nov 2011

H

Guest user
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Re: Starting Chemo in Nov 2011

Hi All

I am 2nd day after Tax. Chelle I have a red face and a red neck. I am still ok but just feeling very tired, can't do much but I am up and dressed but did lie in until 11.00am. Had a fairly good night's sleep. Have finished my Ondenestron and Emend now. Trying to drink plenty of fluids.

It is nice to know you are all thinking about me.

LL - sorry to hear you are worried, hope you can get to speak to and see your BCN. Let us know how you get on. Thinking of you.

Hugs to all.

A

3network3
Member

Re: Starting Chemo in Nov 2011

I'm in Inverness by the way, a couple of you were wondering.

Lisa, do you need to go in to get line flushed etc? The DN comes and do this in my home. Sorry to read your concerned about an area. Surely the cancer wouldn't be so active under a chemo, even if it wouldn't work 1000%? Hope it's alright, could be an infected area. Any temp?

Re the self injecting, as a nurse I stabbed thousands of patients no bother and I inject myself too, but I find it a lot more difficult to put the wee needle into my own tummy. It takes me some overwhelming for some strange reason.

Dogs nagging me for their dinner, have to obey LOL

Love from Christine xx

Libralady
Member

Re: Starting Chemo in Nov 2011

Blowing a gale here in West Mids too...im sitting in the conservatory working (i work on my good week) and the sound of the wind is appalling.

Going in to get my weekly line flush and dressing changed in a bit.

I have a slightly raised and sore area (can't see it but can feel it) above my breast and I keep getting stabbing pains in it - so going to see if I can quickly speak to one of the BCN's and get her to have a feel when I go into the unit....Im a bit worried to be honest. It wasn't there a week ago and considering I'm in the middle of 8 chemos now my mind is thinking what if this FEC isn't working and this blooming cancer is growing.

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Re: Starting Chemo in Nov 2011

Struggling to keep up with all the posts again.

Lulu - I'm so sorry to hear about your friend. It really makes me think about all the trivial things that have been bugging me lately and puts them into perspective.

Jackie - I'm glad you finally got your chemo and seem more positive again. You've had such a hard time of it lately.

Christine - I get a hot inflamed feeling going on in the affected breast, under arm and sometimes round towards the back area too. It's not really painful exactly and it kind of moves about and comes and goes a lot. I think it's mostly from blocked fluid, but onc was happy that things were moving in the right direction, so have put my trust in her.

Hope everyone who's been delayed gets the swamp juice soon and it's good to hear from everyone who's coming out of hibernation again after the festive season.

weme
Member

Re: Starting Chemo in Nov 2011

Hi everyone

I've just taken the plung and asked the DN if I could inject myself save them having to come round.... on my own tomorrow to do it - what have I let myself in for - but I managed it so I guess it means that they've got time for someone else and I don't have to hang around waiting for them to turn up - it was easier than I thought!

It's blowing a gale here in Gloucestershire, everything in the garden has gone flying. I've not been feeling too good today , I feel all heavy, that's the only way to explain it. Hopefully it will go away I just don't have the energy to do anything.

Re veins, as I haven't had the op, they went and used my other hand for my last dose, I think it was because i didn't drink as much as I normally do before going in and the veins on my right hand weren't so good - it is getting more difficult for them to find something though.

good luck to everyone this week.

Weme

Lulu34
Member

Re: Starting Chemo in Nov 2011

Jackie my veins re knackered too and my hosp is like yours they only put in a line as a last resort.... My hand and arm veins were so knackered I could only get a Hickman into my chest and not a Picc in my arm.

The risk of infection is a lot higher with a line in.... My hosp has recently done an audit and 40% of Chemo parents with a Hickman get an infection... 20% occur within the first 4 weeks after insertion.

I had a slight infection in my neck wound and just had a swab taken today for the actual line exit site which is red and oozing so looks like another course of ABs is o the cards. But I'm still glad I have the line despite the infections.

It's a lovely day here too... Blue skies and sun shining so much we had to shut the blinds! I'm in edinburgh! Christine is somewhere in the highlands I think.

Christine if your freind is coming you need to say your not on yiur usual firm and that she will need to look after you and not the other way around.... If she is a real friend she understand that anyway.... My friends are great at rally around and taking me to appts visiting to cheer me up and dint expect food or a tidy house.... As they say it's me they are coming to see not my house or my cooking skills!

And I too don't like the 'brave&inspirational' tag even my mum says it and she's had BC too... Just makes me cringe! But I do hate when folk say youll be fine when even my docs don't know that, and folk who tell me I should be positive.... I am bloody positive! BUT... Why the he'll should I be... Cos it doesn't stop you getting cancer or stop it coming back or stop it progressing or whatever! But the worst thing folk tell me it will make me stronger! WTF???? No it won't. I was actually a stronger person before it what it does is make you fearful and distrusting or your body and living in a hypochondriac world... Blethering idiots... I know the mean well but sometimes it's better to just say thinking of you or good luck,.... Sorry little mini rant there!

Chelle glad your doing ok today... I'm usually pretty good day after tax but the day after that I start to go down hill.... So make the most of today just in case that happens to you too.

Take care xxx

Guest user
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Re: Starting Chemo in Nov 2011

Christine - totally agree, I am fed up with being called brave all the time, like you say there is no choice, we have to do what needs to be done. My other pet hate which I think has already been mentioned before is 'you look great bald, it really suits you', oh that one does peeve me!

Moan over, lol.

Trudi

italia03
Member

Re: Starting Chemo in Nov 2011

So sorry guys Had chemo yesterday and ime all over the place , (chemo
brain)
The first part of that post was meant for Christine and the second of that post was meant for Shelle

Sorry Shelle i think it might be time for a lay down haha

Love Jackie
xxxx

italia03
Member

Re: Starting Chemo in Nov 2011

Hi Christine
What part of the country do you live , how nice youve got a lovely calm day its blowing a gale in Redcar in Cleveland where i am ,Have a lovely walk with the dogs .

Hope your bloods are good , and it must be quite unnerving swapping from one treatment to another all having different Ses ,

I didnt realise with Herceptin you had to stay in the hospital that long incase of reactions ,
Good luck for everything to go lovely and smoothly for you Christine.

Love Jackie
xxxx

italia03
Member

Re: Starting Chemo in Nov 2011

Hi Trudi Thanks i think ime gona push for a line next time because it would just save a lot of hasstle.

How things going anyway Trudi are you well this week .
Jackie
xxxx

3network3
Member

Re: Starting Chemo in Nov 2011

Good Morning to you all xx

Strange how different things are viewed by the carious consultants. In my hospital they seem to do a PICC or Port as matter of course. I have very good veins, but noone was interested they just said one day before chemo to come in and get a PICC fitted. Fine by me. Except that my skin under the statlock got all blistered now (reaction to the adhesive probably).

I'm also to get Tax and Herceptin from Feb onwards. Just get used to FEC and everything changes again ... just keep flexible, eh?

We have a beautiful day here today, mainly blue sky and calm, head out to meet a friend for a nice walk with the dogs. Another friend from 65 miles away phoned ths morning and invited herself to come and stay with us next week, so she can come to all the app with me (monday GP for pre chemo blood, tue clinic app, wed chemo, thu echo ... I will be exhausted by then LOL). I could have said not to bother, but don't want to be unkind. She's alright, she's a good friend and lovely. I'm sure she's easy going. It's just when I have someone here other than family you feel more under pressure to cook and entertain, but never mind.

I don't want to complain for having support.

I hope everyone feels no or little SE's esp our tax girls audrey, chelle and lizzy and everybody else. Jackie good to read you feel more positive, but what a hassle with your veins, it's normal for the hand to get all bruised looking after all these failed attempts as blood leaks into the tissue, so don't worry about it as being not a normal thing. Maybe some arnica cream might help with the bruising. If it's swollen maybe cooling down will help, like a cool pad or something. How is your chest doing now? Does it get better?

One more thing to share, I hate it when people say to me "You'll be fine". What a stupid thing to say to someone having cancer!!! And another thing I don't like when people say to me "You're so brave". Excuse me I have no choice, have I? I'm not brave, what else can I do as to take every treatment they offer me. What's my alternative?! I don't mind when we say here to each to be brave or call us brave girls, but for a healthy person to say to me "You're so brave" I find this silly.

Lot of love and hugs from Christine xx

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Re: Starting Chemo in Nov 2011

Jackie - You poor thing, that must really be uncomfortable, I have had a picc line put in because the chemo has made my veins too hard and on last visit the nurse couldn't get any bloods from my elbow as veins there too small. I think it could be worth insisiting on a line as you have had so many probs this time. I would call your nurse and tell them you can't cope going through that all again and see what they say.

Trudi

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Re: Starting Chemo in Nov 2011

Hi all,
Well today is the 1st post Tax and still feeling ok but do have a red face?
with the steriods you need to take 4 at 8am and 4 at 12pm day before chemo and then the same for the next 2 days so you will have to take the oral steriods while you are having the chemo drip.

I start Herceptin next tues 10/1/12 and was told it would be a least six hours on the unit due to the risk of an allergic reaction otherwise it would of been today but the chmeo unit did not have enough staff for it to be safe, so then as long as there is no reaction i can have the tax and herceptin together on the 25/1/12

Anyway I will let you know if i have anymore se's throuhout the day but i did take my emend today so that might be keeping sickness away

Have a good day all
Chelle xx

italia03
Member

Re: Starting Chemo in Nov 2011

Good Morning
Lovely Nov Ladies
Oh the joys of Sky tv , no sleep for me last night but feeling a lot more positive about life .

When i was having treatment yesterday it took the nurse over an hour to get a vein in my hand because she said they were so small and kept popping.

This happened last time as well and where she attempted 4 attempts in the back of my hand its gone black and blue and is so swollen .Is that ok and normal for this to happen girls .

The nurse gave up in the with my hand because it was hurting so much and put the canula in my arm .

I asked her about different types of treatment regarding lines etc but she said our hospital only operates this as a total last resort and its not really recomended .

Will they just carry being able to go into my arm then rarther than
stabbing and trying to push canulas into my skinny and bony hand which is really swollen , but bless the nurse was lovely .
Thankyou Guys
Love
Jackie
xxxx

Lulu34
Member

Re: Starting Chemo in Nov 2011

Hi Lisa

You get higher dose of steroids as well with tax as it is more likely to cause a reaction, so it's given prior to treatment more as a prevention of reaction than for anti sickness effects.... But it is a pretty harsh Chemo and blasts your bloods more than fec.

The regime is usually 8mg twice per day, day before, day of and day after Chemo. If you don't have a reaction after your first tax you could discuss reducing the dose.... I took my steroids and still had a reaction to tax so wouldn't not take them..... I don't sleep the night before Chemo but even when not having steroids I don't sleep the night before anyway.

My sleep is very disrupted but that doesn't really bother me, but I know some people can't operate on disturbed sleep or less than 8 hours but I can operate on 3 hours.

Take care
Lulu x

Libralady
Member

Re: Starting Chemo in Nov 2011

I note that with TAX steroids are given in advance. Whats the usual regime?

Cant stand steroids, the lack of sleep is horrid, just horrid. When I do sleep I manage maybe an hour and a half then Im wide awake and I note I jump out of my sleep alot, its quite unsettling actually.

Out of all my SE's the tiredness is defo the worst, heartburn & indigestion 2nd and constipation 3rd. Im blessed I had no nausea or sickness at all, no sore mouth nor infections so far (touch wood)

I go back into a normal sleep mode in the last week before chemo again, like now I will go to bed and sleep until 7 easily.

Lulu34
Member

Re: Starting Chemo in Nov 2011

Jackie I'm glad you went through with your Chemo... Hope your SEs aren't too bad but that's another one down hunny.

Chelle, audrey and Lizzy hope you don't find the tax too taxing.

Iv not washed my wig and was told I only need to do it every 6 weeks or so of I was wearing it frequenty which I'm not..... They suggested hanging it on a big juice bottle to dry.... But not washed it at all yet as only had it on a handful of times.

Still feeling poo and head a bit mince but thinking of you all.
Lulu x

Lizzy1977
Member

Re: Starting Chemo in Nov 2011

Hi ladies, wow so many posts

Chelle and Audreytoo, glad your first TAX went ok. I had my first TAX today and strangely feel ok. I was at the hospital for 4 hours though! I don't feel the sickness I had with the FEC so am now waiting to see what SEs I will get. I am starting Herceptin with my next TAX

Time to try and get some sleep unless the steriods prevent it!
Lizzy xx

gill13
Member

Re: Starting Chemo in Nov 2011

PP or i should say, i've liked you FB page, i think the ladies who have bloggs or pages like this are very brave, I'm happy to speak openly on here or to discuss with close friend, but on the whole would prefer to keep this relatively private.
Mind you if i keep like the pages and having the convos and status updates that i do on FB those who don't know soon will.. lol its not that i'm embarassed or anything.

Having said that, i do enjoy reading them, and have a few different bloggs saved to my favourites to keep up with the posts

I'm just enjoying a Magners whilst i can, before tomorrow, as i know i won't fancy a drink for the next couple of weeks. And very nice it is too 🙂

Gill x

3network3
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Re: Starting Chemo in Nov 2011

Jackie I'm glad you went to chemo today. Well done xxx. It's true it's a matter of weeks and chemo is over, after next chemo you're half way (aren't you?) but so worth it, it must be worth it!

Kym I had a bit of stabbing pain in the breast after 1st FEC, not so much at all after the seond, only my armpit is a bit sore now. How much cancer have I got in there!? Saying this on the CT my lymph nodes in the axilla were not enlarged (cancer was found in there through biopsie though).

Wig ... I was told to wash it every four weeks if I wear it a lot. Considering that i don't wear it at all I guess I bought this wig shampoo / coditioner in vain! They told me when I wash it to put it on the wig stand to dry it naturally.

Christine xx

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Re: Starting Chemo in Nov 2011

Hi All,

Well done Jackie - you won't regret it!

Bad luck to all of you having chemo postponed - it is what I dread.

Paula - I'm happy to go anywhere but new grandchild due 20th May in Surrey and I'm in Glasgow so will want to visit them at short notice. I will still be having Herceptin then but will find out the likely dates tomorrow if I remember.

LL - I do my own manicure every week - just going to do it now.

My onc nurse told me today there was no difference in the strength of FEC and Tax they were just different and the FEC was more likely to make me feel sick.

Take care all, Love, Liz.

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Re: Starting Chemo in Nov 2011

Duh chemo brain lol it's Hayley's breast cancer diary, it's also on my profile page xx

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Re: Starting Chemo in Nov 2011

Gill thanks for the info, in need if something to fund my travelling to chelt when I start rads.

Forgot to mention that I have a fb diary too if anyone wants a read, some sad but also some funny bits well photos on there too 🙂 xxx

gill13
Member

Re: Starting Chemo in Nov 2011

hi all
i've seen on another thread about a Macmillan grant for those with cancer, so i have been working out my finances to see if i could be eligible
i thought i'd just copy and paste criteria from their website so others could consider it, nobody official has mentioned this to me so i though there may be other who don't know about it

your savings amount to no more than £6,000 if you are single, or £8,000 as a couple or family


your household disposable income is under £100 a week for each person (this means that once you have paid your mortgage or rent, council tax, insurance, child maintenance and water rates, the total amount left – from the combined income of everyone living in the house – is under £100 per person, when divided by the number of people living in the house).

the form needs to be completed by a social carte worker or BCN

Gill x

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Re: Starting Chemo in Nov 2011

Hi everyone,

Gosh really busy on here tonight! Lol

Thanks for your posts of support ladies, am feeling a bit better but then the kids are in bed now, thinking about it, it would be horrible to have FEC and feel even worse with my bad throat and cold and I would of been delayed again to a Monday (my chemo day) things were out of sync because of the holidays.

Well done jackie 🙂

Paula, I haven't washed my wig either yet as I'm scared I will ruin it somehow but it's starting to look a bit well shall we say worn haha on my todo list for tomoz.

Kym, jealous of the glass of wine, would love one but don't think I could manage it 😞

In bed now with iPad and DVD, hopefully get some sleep tonight love to all xxx

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Re: Starting Chemo in Nov 2011

jackie

Really pleased thatyou went for your chemo. Well done - it took a lot of courage. You should be very proud of your self for having the strength to go.

Kym - Just to let you know that I am doing ok after yesterday's tax. Just feeling very tired. I did manage to have 6 hours sleep last night.I have eaten well all day. Still troubled with wind. Felt like a nap this afternoon but couldn't sleep perhaps it is the steroids which I have now finished. Have one more vanilla anti sickness tablet totake tomorrow. Hve not felt sick today. Have had a pyjama day today and have spent it mostly in bed resting just getting up for lunch and tea. Just hoping the se's are going to be minimal.

PP - sorry your treatment has been postponed = thinking of you especiall with having your childre to look after = I hope someone a friend or neighbour can give you somehelp.

Haveread all the other posts but I am finding it to much to try and reply to everyone.

Love to all

A xx

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Re: Starting Chemo in Nov 2011

Sorry, I've waffled again, haven't I.