Paula - glad to hear your blood sugar levels have improved. It's rotten having that to deal with on top of everything else.
Had first TAX on Thursday and felt Ok until later on Friday night after having the neulasta jab at the GPs. Friday night was mostly like having a bad period with pains round the lower back. Most of Saturday not too bad until later in the day when more aches and pains kicked in. Most of mine is in the shins, knees and back areas. Also sore feet from wearing old slippers on wooden floors. Have some painkillers from the chemo unit (dihydrocodeine)but trying to ration them as still feeling constipated. In the last couple of days I've only gone outside to take the bin out as don't trust my legs walking too far and have 3 flights of stairs to climb.
OH has an operation to fix a deviated septum on Wednesday. Couldn't be much worse timing but he's been postponed 3 times already and has been suffering for over 2 years with severe sinus problems so we'll just have to cope with it. At least it's now sinking in for him that I'm not likely to be fit to drive him there and FIL has been organised for chauffeur duties.
re the TAX aches and pains comments...I ached like I was 90 years old for about 3 days. I was in agony. I spoke to my oncologist about it and she said that as long as I don't have a temperature to keep myself stocked up on paracetamol and ibruprofen for my next chemo. I'm a bit concerned about taking too much ibruprofen though as I don't think it will help my constipation!
Re periods and hot flushes....I am still having regular periods and no hot flushes. However I am 34 so fingers crossed I won't have an early menopause (as I still want to have children at some point)
I better get back to work!
Thank you Lulu, that makes sense now!
Its weird, cause I had FEC for 8 months when I had Hodgkins and I didn't stop my periods then, but I guess my body has changed over the years and I can't expect the same things this time. It has also hit me a lot harder this time!
Trudi often Chemo makes you menopausal.... It might not be permanently but the closer you are to the menopause the more likely it is to be permanent.... So people over 40 are more like to become post meno after Chemo and those under 40 are more likely to have their periods come back..... It can take up to two or three years for them to come back though.
Tamoxifen is given to pre and post menopausal ladies so it's given whether your ovulating or not however the AIs are only given when your not ovulating.... So they are given to post menopausal women or women with secondaries who are on zoladex.
It's doesn't matter whether your having periods or not, but if your sexually active it's important to use contraception as pregnancy is a big no no when on Chemo.
Paula- glad your blood sugar levels down, keep up the good work. My chemo is booked in for 10.30 so might see you.
To everyone that replied to my last post, thank you, I haven'e had a period since 1st chemo so guess it could be early menopause. I am not sure though if I have understood correctly, Lulu this might be one for you - I thought the Tamoxifen was given if you are still ovulating? If I am not and how can they know if it is just chemo or menopause? I assume I need to let them know?
Thanks Lulu - helpful to know these things!
Teresa - yes my hips, knees and shoulders started to ache this afternoon, feeling like 100 going up the stairs! Going to bed now, had a long day, exhausted, going to bed alone due to farting marathon lol!
Night nite everyone!
Yes! Loads of hot flushes - I hate them. ever since my periods stopped after my second chemo. Especially bad in the evening and at night.
Also I am achey after my second FEC. Hope it will pass soon, but may need to resort to the paracetamol. Legs like jelly and my hips ache - feel like an old woman. Didn't realise this could happen on FEC too.
Glad your bloods are returning to normal again.... I get lots of niggly aches and pains.... The tax can cause it and the gcsf injection can too if your on that as well..... I get sore neck, ribs, hips, ankles.... I take tramadol... It's worst for 7-10 days then it feels better but still take a couple of paras at night if my temp is ok.
I love pepsi max normally but when my mouth starts going scummy it tastes weird but i like the coldness and fizzyness in my mouth.
Trudi good luck tomorrow.
I'm on day 2 after my first tax, the steriods I took the day before Tax made my blood glucose levels double! However, I have had them checked again today and they have returned to a more moderate level now as I was told not to take the other half of my steriods. I haven't knowingly touched anything sugary today or yesterday, had a wake up call with having far too many sweet things since Christmas and think I need to get a grip and eat more healthily and smaller portions.
I didn't even know I was borderline diabetic until I had my pre-op assessment :o(
Trudi - when I took steriods I did feel hot and sweaty during the night and the back of my neck was a bit sweaty, it only lasted for the duration of the steriods.
I didn't sleep very well at all last night, had so much water kept wanting to wee every 90 minutes! I was also fretting about my blood sugar levels, when the district nurse arrived this morning I was so relieved they had come down that I started crying, I am sure there is something in chemo that makes me weepy and emotional the first week!
I havent felt as sick with Tax but starting to get aches and twinges here and there, my knees, shoulders, and standing for too long is starting to become as bit of an effort! Taste buds ok, except for pepsi max which tastes different lol. Has anybody else has the aches and pains on TAX, specially noticeable in my shoulders and knees, do the SE's get better after the 1st week?
Oh the WIND truck has hit big time, my botty burps everytime I move and they are getting bigger - omg is this another SE? lol
How is everybody else doing on the changeover to TAX?
Good luck for tomorrow Trudi, I've got an appointment at 12.00 with Dr E, what time is your chemo?
Hope everyone is coping well and pulling through - not far to the finishing lines!!
Yes had the same hot flushes & night sweats since starting chemo! They seem to be worse just after treatment & get less as I get to the end of the 3 wks. I haven't had a period since I started chemo so guess it's the onset of menopause. Ohh the joys of being female!! Although if I'm going to go through early menopause I think I'd rather be me than my OH!! Lol 😉
A question for all you lovely ladies.
I got hot flushes I assume from the steriods, but after my last FEC I have had them every night, has anyone else experienced this? I wonder if the chemo is forcing an early menopause on me, I know that it can do............
I am sleeping loads too but even after lots of sleep I still feel ever so tired and I am yawning all the time. Glad to hear your neuts are improving. They wouldn't let me out of hospital until mine were above 1. On the day I had to go into hospital I didn't feel ill and was quite suprised to find that my temperature was going up. I had all the antibiotics I needed in hospital and didn't need to have any at home. They couldn't find the cause of my infection I didn't have a cold or bad throat.
All the best for your 1st tax tomorrow - hope all goes well for you. I have been ever so careful all the way through chemo, I don't go out much and when I do I only go to certain places and then when it is quiet. I tend to keep away from lots of people. I am really careful about everything I eat as well. Therefore I was most suprised when I ended up in hospital, I couldn't have done anything more to keep healthy.
I am having my next chemo on Tuesday and I will be having FEC. Then only 1 chemo to go on 14 Feb. Three or 4 weeks after that I will be having 3 weeks of rads. I will be really glad when the chemo has finished, it seems like it goes on for ever. I have also been told that having rads can make you tired as well.
Going to go out for a bit after, not sure where yet, but just need to get out of the house and have a change of scenery.
Good luck to everyone having chemo this week.
Ive been sleeping loads the last day or so, I think its after coming out of hospital as you really dont get much sleep even when in one of the side rooms. The nurses have to check your obs every couple of hours and its always when you have just fallen asleep 🙂
Teresa – I am in Worcestershire, though it seems if I am poorly they move me straight to Cheltenham. I had planned to go to the Haven in Hereford on thursday just gone but unfortunately missed it so will try to be re-booking. I dont think they do anything at Worcs hospital where my appointments are.
Audrey – sorry to hear you were in hospital too. It was quite scary when I was told my neuts were at 0.01 but glad to say they are 0.08 now so improving every day. I probably had the same as you with the injections and the anti biotics. I have been allowed home with another weeks worth of anti biotics to take at home.
Lulu, you might just be right about after eights… I don’t seem to have any taste buds, yet I am craving sweet things. And I have never been a sweet person , always savoury !!
Gill / Audrey – I am exactly the same with my veins, the chemo has absolutely ruined them. The hard tight veins are the worst for me, I have been given some muscle type rub cream and told to use a warm compress on them.
Paula – I hope everything works out with the diabetes, must be a nightmare trying to sort that out aswel.
Trudi – Hope the tax goes well tomorrow, its was the nasty taste buds I hated the most.
Judes - You do make me laugh with your stories... when you gotta go you gotta go !! 🙂
Hope everyone has a lovely sunday, my mother in law bringing nice roast dinner round later, so its a lazy day for linda....
Linda/Audrey, sorry to hear about your hospital stays, I think like a lot of others, it has bought it home to me how careful we need to be as I am very blase too. Will certainly try to be more careful from now on.
Well first lot of 4 steriods taken for Tax 1 tomorrow, no sleep tonight to now look forward too. My last chemo should be 5 March, day after my birthday.
Thanks all for hoping I am feeling better. I am still feeling ever so tired and am unable to do much. did manage to go out for an hour this afternoon to a local craft shop and have a cup of coffee. First time out except for hospital in nearly 3 weeks.
Gill - I wasn't given a name for what is wrong with my hands, they didn't know what it was at first. It is not my veins that are affected. It is hard to describe but It is the back of my hands in a couple of places, across one of my wrists and down the sides of my fingers mostly. It has been very red, sore and itchy. I saw a dermatologist in hospital and it was decided that it was caused by the tax. I was given a hydrocortisone cream to put on it. But I stopped using this when my hands starting peeling where they had been red. My hands aren't sore now just look awful where they are peeling. I am using plenty of E45 on them.
I have now read all the posts seems like quite a few have been suffering with side effects as well. Linda and Lizzie sorry to hear that you have been in hospital as well. Daysie sorry to hear you have diabetes to cope with as well. Like such a lot of you I am also eating far too much. My taste buds have got worse and such a lot of food tastes awful.
Hope you all manage to get a good night's sleep.
So sorry to hear that some of you have been having a rotten time with SEs, especially Audrey and Linda. I must admit, the worse thing for me this time around has been the lack of taste buds and so everything has tasted just vile and smelled manky. I got cystitis because I was only drinking one glass of water a day. Not good I know, but even drinking that made me feel really sick. Will try better next time. But really not looking forward to changing over to Tax on chemo 5, everyone seems to be suffering more.
Paula, I hope you get the diabetes sorted out and managed. It's bad enough being diagnosed with that alone without having this BC on top and having to deal with two new things in your life. Xx
Judes, loved the poopy story, but admit for a split second I also was worried about your hats fate, lol! I'll still be on here after everyone else has finished chemo. I'm 3 down and 5 to go. My last chemo should be 23rd April. Think by then I'll be talking to myself on here!
Hi Filosofie and all
I've been so confused about what to eat today...lol C/Eggs definately off the menu! :o(
I will be getting a blood sugar monitoring kit on Monday from my GP on prescription. When I was diagnosed in October I was border line and normally as Type 2 Diabetes it would have been controlled with low sugar diet, but I was prescribed Metformin, only a low doseage once a day. However as the steriods pushed up my blood sugar levels to quite high I had to have insulin to bring it down, next week I will probably have my normal tablets increased for the duration of my chemo. They were still fairly high thing morning so I had another insulin injection and the district nurse returned after lunch and they had dropped down to a more moderate level. I will have them checked again in the morning and then back to the GP on Monday and also my half way appointment with the oncologist.
I've got an appointment with the Diabetic specialist nurse at my GP's on the 30 Jan and also the Educational Training Programme at the hospital, where more will be explained about the foods to avoid and those that are ok, and whatever else I need to monitor.
There doesn't seem to be a day goes by without counting down to the next appointment or treatment!!
Linda and Audrey I hope you are both feeling much better now and taking things easy.
So far with Tax so good, I haven't felt quite so sickly as I did with FEC, nor so tired, but will be having an early nite, bath then bed! I didn't sleep very well last night, only lightly because I was worrying about what effect my new chemo Tax regime would be having on me. Having only taking half my steroid doseage beforehand I hope it doesn't mean I will be having worse SE's :o( Will have to wait and see. I'm going to drink more fluids this time round to make sure everything gets flushed through quicker!
Hope everyone is having a good weekend.
Linda / Audrey sorry to hear you both been in hospital, and really hope you're both feeling better now. Somebody mentioned being a bit blase, i think i have been too, and reading how badly some people are affected is a bit of a wake up call, i don't really do anything different to what i would normally do (apart from not going to work lol)
Audrey - is it extravasation that you have on your hand? thats what they said i have, the veins are very reddish and sore and itchy. The unit said it was the tax, and i've been given hydrocortistone cream. your sounds worse than mine.
Christine - your dogs are lovely, the darker brown one looks just like my sisters
Good Evening Ladies,
Just wanted to say to Linda and Audrytoo i hope your feeling better, sounds like you both had a rough time, Sending you big hugs.
Judes, OHH the shitting story....Awful feeling like that,did worry a bit about the hat, not really better than Pooing pants!
Cooking Sunday lunch for twenty at work Sunday but hands really sore,skin and fingers, just hope they hold out.
Hope you all have a good weekend
Paula I do feel for you having to deal with diabetes as well. My gorgeous boy has had type 1 since he was 7 (19 now) so obviously uses insulin all the time. I know your experience will be different but do you have your own blood glucose testing kit? I know the jury is out on whether this is helpful for type 2s who are not on insulin, but in these circumstances it might be useful for you to be able to keep an eye on things yourself (and unfortunately show you the immediate effect of creme eggs). You could ask your GP to prescribe for the period of your treatment (test kits are very cheap OTC but the test strips cost a lot). I really feel that you need to get the diabetes services involved in your care. Your GP shouldn't be treating you as a normal newly diagnosed patient. If you don't get a serious response from your GP, is there a specialist diabetes nurse at your practice you could talk to? Even if there is I would be tempted to ask for a referral to secondary care, there are such a lot of interactions possible from your treatment and your GP does not have the relevant knowledge to deal with this.
Most people find the patient education courses e.g. DESMOND very helpful in making sense of this condition but I think you need some more immediate advice. The amount of sugar and high fat food people seem to be packing away on this thread, we'll probably be joining you soon.
Hi ladies, I've not posted for a few days as I went back to work for a week. It has left me feeling pretty shattered. Sorry people are having a bad time on the TAX. I had to go to hospital a few days after my first TAX but wasn't neutrapenic. I'm having my 5th chemo (Tax no 2) on Wednesday but as I am starting Herceptin I've got to be at the hospital for 6 hours!
Right time for a nap as I am going to see a friend this evening and am feeling totally shattered!
Sofie glad you hit your Chemo over with... I get the red faced steroid flush too after Chemo and I lasts for a few days then dies away.... I find the nausea comes when the steroids wear off but think that's from the carboplatin not the tax as the carbo is meant to be pretty vomit inducing.
Anyway take it easy and try to rest even if you don't get much sleep.
Audrey sorry you had such a bad time with the tax... Hope going back to fec makes things easier for you.
Linda sorry yo were admitted too.... A reduction in tax seems quite common, my oncologist explained it that we all get given the same dose based on weight and height and type of cancer but everybody is unique so it will maybe go through some body quicker than some body else or what maybe ok for one person may be too much for somebody else and they assess this from your side effects.... If your having big side effects then the dose is probably too big for you.... The cancer will still be getting treated at a lower dose but it shouldn't make you feel so poorly.... Hope that makes sense.
Everything taste pants except after eights.... I'm gonna turn into a square minty chocolate thing any day now.
Finally did get my Tax yesterday but didn't leave till 7. Seems to have gone OK but of course I didn't sleep much last night and ended up spending 1 1/2 hours on FaceTime with my gorgeous boy.
Paula & Christine they just gave me the usual Dom Perignon for sickness, but rather than take it for 5 days the nurse suggested taking it for 3 and seeing how I felt. Haven't really had any nausea so far.
Steroided up so feel tired and hypo at same time. My face appears rather hot and red so hope that's just the usual flush and not some kind of reaction.
Very jealous of new bathroom Judes. I'd much rather have had that than the boring new roof that we're getting (once the wind and rain dies down so they can finish it...)
Will try and catch up on all the posts later, there are just so many of them.
I haven't been in touch as I have been ill and in hospital.
On my 5th day after 1st Tax my temperature rose and I ended up in hospital for 5 days with neutropenic sepsis. I had an infection but the cause was never found. My neuts were 0.02. I was given GCSF injections, injections to stop blood clots and intrevenous antibiotics. I developed redness on my hands which has been decided was caused by the tax. The red areas are now peeling.
They are not going to give me tax again, I am going back onto FEC and my next one will be on Tuesday. I will also be having GCSF injections.
I have been ever so tired and weak and have not been able to do anything. I am also sleeping such a lot. Will try and go out later for a bit. I feel as if the last three weeks have been a right off.
I hope that you are all managing to cope.
love to you all
How I laughed! Thought I was the only one who when reading Judes post thought for a split second "oh my god she went in her hat!!!"
Linda - another Cheltenham lady! Where do you live? Gingersmithy, Weme and I are all Cheltenham based too. What a pain ending up in hosp with neutropaenia, it just shows we need to be careful - now I've had number 5 I must admit, I have become a bit more blase. Did you have the GCSF injections with the Taxol? Gingersmithy and I are at LGFB on this Wednesday Jan 25th if you are going?
Christine - lovely dogs, I will put a pic of my Jimmy on my blog later and let you know and you can see my mad hound too! btw I felt much less sick on the TAC than on the FEC, althought the mouth symptoms were worse. Masterchef - I love it too, more food porn.....
Judes babes - go you it's so annoying when they don't have what you want in the delivery 😞 Happy cooking!
Paula hope all your blood sugar problems settle soon
LL hahaha fartypants - know the feeling!!
Ewww Lulu don't like the idea of losing nails - how soon after Tax do they usually come off? I had my last TAC end of November so I still keep looking at mine and wondering if they will start to go.
Love to all
Here is a link to my dogs http://s1062.photobucket.com/albums/t495/Forbes_Fraser/?action=view¤t=IMG_6491.jpg
The red white one is called Fipps and is a 6 year old Welsh Springer Spaniel and the other one is three year old Elkie an English Springer Spnaiel.
ottolenghi ... had to google, sounded like another name for one of these hundreds of drugs against breast cancer. It's actually a guy's name LOL, now how do you cook him?
Linda sorry to read you were in hospital. It's quite serious all this chemo lark and when things go well we don't really reckon with such a fall. When I was at morrisons on Tuesday I was very careless too, touched everything without gloves, didn't use hand gel, just a bit too confident me thinks. Glad you're out the other end and hopefully you can get your next Tax as planned.
Lulu I haven't seen your facebook pics, need to be your friend first, haven't bothered much with FB. Not so sure if I want to see it though ...
My thumb is a lot better today, can see the wrinkles again, so swelling has gone down and it's not as painful anymore. Don't know what happened there. My body becomes more mysterious to me since DX. I used to be very confident about my health, my body never let me down, but it certainly tries to catch up with it now.
I read Erin's post in memory ... it's so sad. I read it out to my husband and I choked and could't read. Some women really get it badly straight away. BC can be as deadly and rapid like a lot of other cancers. We all just don't know what lies ahead of us.
Food ... think of some chinese today (home made, well partly) Don't dare going to a take away, day 11 today. Taste buds make a cautious re-appearing just now again, although Spag Bol last night just didn't tatse right and I couldn't finish it (not heard of before!)didn't enjoy it one bit.
I'll have to download a photo of my two darling dogs today on this photobucket account. Judes I'm not clever, I used my husband full name as a user name LOL
Lots of love to you all, hope you have a good day, as good as it can be with various chemo SE's. I feel tired and headachy, but meet up with a friend to walk our dogs.
Good Morning ladies.
Ive just read the weeks posts and the food fetish has made me smile and certainly hungry.
I was running a high temp last week and did phone the Onc unit on monday, unfortunately after having bloods taken it showed they were really low with reading of 0.01.
I was admitted to Cheltenham hospital on monday as I was neutropenic and was there until yesterday in isolation :-(.
All I can say is that I think because I faired well with Fec i was alittle complacent with Tax. I forgot this is serious stuff and going out when I had a cold on day 8 and 9 was not a good idea. As the nurse said in the unit Tax is like serious domestos to our systems and kills everything.
I have certainly learnt my lesson as not everyone while I was in the side rooms were as lucky as me.
I am due to have my next Tax next friday so I am hoping my bloods will be okay and I can still have it, they have mentioned a lesser dose however I am concerned about that.
I have my appointment to see my Breast Surgeon on 4th Feb so hopefully I will have my dates for the Lumpectomy and ANC.
I like the idea of the walk, i would love to be able to give something back. The nurses at both the chemo unit and chelt hospital are always so fantastic 🙂
I hope the SE's for those that have had chemo last week are okay.
Have a lovely saturday and I too will try and keep out of the fridge today... as I am watching the morning cooking programme which is making me very hungry.
christine you are so clever, i'm going to get into photobucket straight away and get back to you. and those cakes!
lulu and gill really! i never considered that. don;t think my woolly hat would withstand the rather slopppy consistency...
LL sorry to hear about your papercut. papercut! your man sounds lovely actually, every time you talk about him. i'm glad he's running around after you.
i've just had a little anger outburst. ordered my ocado delivery with all the ingredients for the dishes i'm cooking tomorrow for my bathroom "coming out" party, and they substituted dried tarragon for fresh tarragon. i had a little tantrum in my head then i had to burst out laughing, how precious is that?! when did i become so middle class? (not that there's anything wrong with being middle class). but really, getting all worked up about dried tarragon. (never mind that they left out my pomegranate seeds too). i'm cooking ottolenghi, obviously, with tarragon and pomegranate seeds. i want to make a really nice meal to repay my friends for the bathroom. but i can see i need to be careful not to get too stressed about it all.
back to the kitchen.
Yeah Lisa my fingers tips are tender and the nail beds feel a bit sore.... The nail underneath is somewhere between nail and skin it's like a wee but tougher than skin but not hard like proper nails it's still pretty soft.... I it's like the layer where the nail attaches to the skin is the bit that's left.
Paula sorry your blood sugars are all over the shop... Is your endocrinologist involved in your treatment? The insulin often doesn affect your blood sugar immediately but depending on te toe is can affect I many hours later so need to make sure you don't end up hypo later on so go to bed with a cream egg on your bedside table just in case. Thanks for the tip about the tee tree oil I might have some lurking in the back of a cupboard somewhere.
Christine the foot massage is great... Think this is new as didn't get that the last time had Chemo in 09, but I know at another local uni they did have aromatherapy.
Gill I lolled at Judes taking her hat off too.... I was thinking she was considering using I as a potty LOL
Stuffed my face full of pills and heading for bed soon.... But can already hear drunk BF snoring upstairs so dunno how much sleep I'll actually get LOL
Lovely to hear from you Judes. Sorry about your shitting incident - but glad you pulled out that card and got it sorted!!
Paula - sorry about your Blood Sugars and i hope they settle, keen to hear how you are over the next few days. As for the stuff you can't eat right now - guuurrrrlllll - ya'll need to know where to send it!!!
Christine - OMG!!!!!! that dessert is the BOMB!!!!!!! I want some......NOOWWWWWWWWW. Hope you get your thumb sorted - I got a paper cut 3 days ago thats STILL painful so it must be down to low WC's cause a paper cut can be painful .....but 3 days?? When I got the cut you wanted to see how I carried on....DRAMA!!! Get the dettol spray....QUICK - i had my hubby charging round the hues to get the dettol spray, he was like the Milk Tray man.........ummm, milk tray!
Lulu - I just looked at a pic of your nails on Facebook, they do look sore hun but they also look like new nails are coming up - is that correct?. All my nails are black underneath but not sore, I'm sure TAX is gonna wipe them out. DOes anything help the soreness?
Filosofie - Well Ive booked the Feb 6th one but I'm gonna play it by ear - the lady who booked me in did say if I'm not well just call and rebook for April - so you may see me yet 🙂
Im so chubby now officially Im a budda! I'm starting to get a chubby face too! Booohoooo
And my farts........well................STAND WELL AWAY!
I was give some Ondemet anti sickness tablets for 3 days to start taking from tomorrow, although they said I shouldn't have any sickness feelings, but just in case I got some.
They also gave me some anti biotic tablets for low immune week from day 7, as with Tax they said I would be more prone to infections.
I've not had insulin before, they only gave a couple of small doses to bring sugar level down, I was only diagnosed last October so don't really know much about it yet, I've been too busy worrying about the BC! Now it seems like another thing to worry about! I've been taking Metformin and the chemo unit said my dosage was fairly small so guess they will up the tablets for the duration of chemo.
Hopefully I will get a good sleep tonight and try not to worry, hopefully things will settle down over the next few days.
Lulu sorry about your nails, hopefully the new one underneath will be better, I have had that happen with one of my toenails a few years ago and the new was was crinkley to start off with then I ended up with a lovely brand new smooth toe nail, think it was a fungal infection. Some tea tree oil is good and natural product for dripping behind the toe nail, it is a very good natural anti-biotic etc.
Nite night all
Judes so nice to see you back. I used photobucket for the cake pics. I'm not on twitter, can I still have a nosy on your pics? The train story ... this chemo lark has a lot ot answer for!!!
You taxers, do you still need to take anti sickness with it? I don't want to see any anti sickness tbl till my general anestetic in April!!! The SE of the anti sickness is worse than anything else. not having it anymore, fed up with it!
Lulu is loosing nails sore? What's underneath? Hope it's not as bad as I imagine it! Refelxology during chemo, never seen anything like it at the place I go. There are just very busy nurses rushing around with little black cases shouting CYTOTOXIC aarrgghhh
Paula, the chemo is making your blood sugar go all over the place. You're not normally on Insulin? i think I remember you said you're type 2. I send you bucket loads of will power to resist the sugary food. Aahhh the Bible has a good one "Resist the devil and he will flee from you", so on you go LOL
Off to look Masterchef on i-player now,
good to see you back Judes, love your train / poo story, i did wonder for a minute where it was going when you said you took your hat off!!
Lulu - not good news about your nails, mine seem ok at the moment, but i have been neglecting my feet, and couploe of days ago i notice they were looking pretty horrible! it was like that were shedding the skin, they are looking better since pampering them with loads of foot cream
Paula - why did you have to mention creme eggs again??
i have decided to do something with my days and today i have dug out a rug which i had started making, probably about 8 years ago, i am now determined to finish it, my little one wanted to give it a go too, so i've shown her how to do it, She caught on quite quickly too.
oh lulu so sorry to hear about your nails, that's nasty. am thinking of you. hoe long do they take to grow back?
L4W do get monopoly, it's really good - altho it eats a lot of battery. it's hard in the beginning but after a while you get to know the way the computer plays and it's quite easy to beat it, even on the hard level. very satisfying.
filosofie did you have chemo in the end? hope you're ok.
and paula sorry to hear you had a lousy day. hope you get some sleep.
i've realised i cant post pics on here, took me a while! what i might do, after we have the bathroom wetting party on sunday, is post some on twitter then if anyone wants you can see them there. i still haven't got facebook right, went straight to twitter!
Hi Lovely Ladies
Filosofie - sorry you didn't get to have your 1st Tax today, when did they reschedule for?
Judes it would have been awful if you had poo'd yourself on the train, oh dear, glad you made it to the toilet, I avoid station toilets like the plague urgh they are awful! You never know who's lurking in them either, horrible places. Maybe an idea to get panty pads for long jouneys lol!
I had my 1st Tax today, it didn't really go to plan. My appointment was at 2.30. When I got there I reminded the chemo nurse that I'm diabetic, yes I know I have been having cream eggs. I said that I must have my blood sugars tested before starting chemo as the steriods I have already taken yesterday and this morning can push glucose level high, which it had! I had to wait an hour whilst they decided what to do, in the end they said I must not take the remainder of my sterioids, and they gave me an insulin injection to bring it down, but after chemo it was still high so they gave me another insulin injection and arranged with my GP for a District Nurse to call in tomorrow and sunday to check my levels and give a couple more insulin injections. What a worry, I really must have less sugar things as well. I doubt I will be sleeping tonight as I don't know what effect this is going to have on my body. The chemo nurse was annoyed that my GP surgery wasn't keeping a closer check on me, but I felt the chemo unit should have some input as well! Oh well I'm back home now, have a sore vein in my wrist as they used a different vein, in a more sensitive area. Had some tea, don't feel too bad at the moment. It took an hour for the jungle juice to go through.
Feeling a bit sad that all was going so well on FEC and now this with only 2 more to go, I'm so fed up with keep monitoring my bodily functions!! Talking of poo Judes, mine are fine now, I saw the chemo doctor and oncologist pharmacist today and he said the Tax is much kinder on the digestive system yeayy!
LL - I got far too many naughty things in my Tesco delivery, some of which I cannot have for a while due to being sugary :o( Sooo fed up with having to have restraint, have been booked on the diabetic eductional training programme at the hospital, great, something else to look forward to!!
Hope everyone is doing well and looking forward to the weekend.
Judes lovely to see you back.... Looking forward to seeing your bathroom pics.... With all your bowel antics it will be nice to have a lovely place to poop!
Lemon meringue pie was a craving I had when I was pregnant with my daughter.... Brings back memories but now your talking about it I really want one or a lovely raspberry pavlova.
L4W I have found my symptoms kicking in quicker with the scummy mouth and naff taste buds.
I had reflexology foot massage at Chemo yesterday... Don't really have tickley feet anyway but it's certainly not tickley getting it done it's a bit more pressure than you get with a tickle... I find I really relaxing and makes me want to nod off.
Since speaking to Gail yesterday about losing nails I have nearly lots 3 on my right hand and one on my left over night!!!!! The dark nail polish trick didn't work for me.... Had a light colour on my toes which are all (still) intact.
off to raid the fridge for food porn!
Good to have you back Judes and glad the bathroom is all done 🙂 loved the tube tale and so pleased you made it in time! Guess we need to remember what goes in must come out!!
Am lovin my iPad, I haven't done a thing all day except play & download Apps. Love a good game of Monopoly so off to see what I can find!!
all me, me, me
meant to say i hope your tax went well paula and filosofie, and that everyone else is feeling ok.
christine and GG hope you're feeling better. thanks for recipes christine
LL so so so glad your scan was clear. am really enjoying your food posts.
and everyone else love to you
hello hello dear people
thanks so much for all the birthday wishes and the concern, sorry i've been quiet but i have read all the posts, am loving the food porn. if we could put together everything we all eat in a day i imagine we could feed a small village. i'm trying not to eat sugar/carbs on the advice of a nutritionalist but sometimes that's impossible. today i had a lovely apply cinnamon muffin with a massive coffee while i played monoploy on my ipad in starbucks. i've joined the ipad fan club, it is really lovely, but i have to say what i do most on it is play monopoly. i have to ration myself to a game a day, and i find i dream in monopoly terms too. better than cancer.
so i've been ok, quite busy because i'd scheduled all sorts of things for this week, i did a LGFB course, and another 'reinvent your image one', and had a massage, all at the haven. i was astonished at how seriously they take their make-up at LGFB - i'll never be quite there, but it was fun and the goodies are amazing. prada perfume. i never thought i'd have prada anything.
if we can digress from food for a moment, can i bring up our other favourite topic - bowels. i nearly shat myself on a tube today, literally. i had quite a long journey and when i got on i could feel that i might need to go but i'd already been twice in the morning so i decided to tough it out. but in 20 minutes tings were bad. i was sweating and shuffling and trying to reason with myself, what could be the worst that could happen - well, that i could shit myself on a tube. so i got off at the next station and took off my hat and went to the first station person i saw and said 'i need a toilet, it's urgent'. he took me to the dingiest grimiest of places but it was such a relief and i felt so good afterwards it was almost worth it.
well then, i knew i had to come back to raise the level of the conversation! been missing you all.
i have my first tax on january 31 but it goes on until mid april. will you all have left by then?
i think we should do one of those long walks or short runs, at the end of the year. we could train and keep in touch with progress reports then meet up for the big event. wouldn't that be great?
love to you all xxxxx
ps my bathroom is looking great. i'm going to try to post before and after pics.
Chrstine - i'll order a cake too 🙂
i currently have a lemon meringue pie defrosting, thanks LL, and little one won't eat it and big one going out for a meal, All mine :))
LL- i was booked on LGFG, 5 days after my last chemo, i didn't make it, i didn't have the energy to go out at 5pm and drive 20mins to the hospital where they hold them. i might see if i can book another session
Hope those having tax today did ok, another crossed off x
Christine, do you do online ordering/delivery?? That cake looks delicious, I'm positively drooling!! 🙂 Recipe please if you get chance 🙂
GG, the only way is up now hopefully, I found once I started to feel better I just felt better every day and had so much energy it was great 🙂
Been reading all the posts, at last feel better, took till day 10 of the Tax, but went to work today and felt so good to be nearly "Normal" whatever that is!
Love The Idea of taking the Fridge to the Bedroom...Classic!
The Reflexology at the Hospital is really Fab, Have ticklish feet but it doesnt tickle and really is relaxing. Snorting with laughter at you Libra.. involantarly kicking the woman in the face, OOOhhh Awful!
Feel Cheered Up Thanks Girls xxxx
Filosofie, I hate when people say to me "you're so brave", but reading through your post re work I thought "she's brave". Hope you'll be fine. Take a rest too though 🙂
The cake is in the oven and here is a link to the same cake when I baked it last time http://s1062.photobucket.com/albums/t495/Forbes_Fraser/
Thumb seriously swollen and now I think I know why my lymph node has been swollen on Tuesday's ultrasound, eh?
Well still waiting to start treatment - appointment at 12.30 but they gave my cold cap to someone else despite my ringing this morning to remind them....
Nice idea rescheduling work next Thursday Debbie but it's a national meeting so rearranging the great and the good is not a possibility. Not to mention all the people waiting on tenterhooks for the results. Still thanks for all the warnings everyone, if I don't feel up to driving I'll just have to get up earlier and brave the taxi/train route.
Sympathise with all the peculiar taste experiences. As I think I posted on here before, I was expecting it to be like a heavy cold but of course that affects smell not pure taste receptors. I've had problems with bitter so often can't taste olives and the smell without the taste is slightly medicinal. Also experiencing lack of salt now Lulu, though your experience of it coming and going in one sitting is odd - maybe interaction with smell again. I've even added salt to food occasionally which is something I never usually do. Somehow never seems to affect sweet receptors though!
Lisa have you booked on to a Moving Forward course? I wanted to go to the Feb one in QE, where I'm being treated, but it's on Monday mornings and I'm teaching then this term. So I've booked onto the April one which is at City - thought I might see you there. Must book a looking good course, still have fair amount of head hair but eyelashes going fast now.
I've just had an Indian Head massage, that was nice, better than reflexology as I couldn't relax properly
as regards food from a chocoholic I am now a fruit-a-holic I have boxes of chocs left from Christmas (and good one's!)and all I crave is fruit!!!! probably ate more fruit this week than I did all last year!
Very quick one as on way to bed for nap!!
Lisa - reflexology is the best. I have had 3 treatments, and it fulfills therapy on may levels - emotional, physical and in supporting my poor old body. Also the healing power of touch, and being able to talk about what's going on with someone who is not involved is a blessing. I would say "go for it" and for some reason no the feet don't tickle!
Lovely friend came to visit this morning - got to listen to all her news and woes for an hour! I love that! So boring talking about me all the time 🙂
LL, my mum does reflexology & massage and I don't know if it's the way they do it but it doesn't tickle. If you warn them before they start they can start on the legs/ankles and work towards the feet, I love it and it's so relaxing, just wish mum lived closer I'd have one booked every week 🙂
Christine, cake sounds lovely especially the meringue, I buy the ready made cases and just add different fruit and ice cream for a snack.
I would ring your unit about your thumb, it may be an infection and after seeing my onc yesterday he told me to monitor my fingers and take very good care of my hands (avoid washing up, use gloves if you do).
I haven't been out & about socially much since dx (real home bird) but when I have I tend to get the 'how are you' bit over with then concentrate on them & what they've been up too, if they start 'going on' about my dx then I politely change the subject and tell them I'm out to get away from it and have some fun. Also if it's an invite then when I accept I explain that I may not be on best form and not to worry if I slip off early and under no circumstances do I need (or want) fussing over 🙂
Taste buds are going already & the waxy tongue has arrived 😞 not that it's stopped me eating, on that note it's time for lunch!
Lisa I love Twix too, one of my favourite biscuits, always has been. I have the fun size ones in the cupboard ...
I could never go to a reflex thingie, just the thought someone touching my feet, I'm hopelessly tickly, would never enjoy that, pure toture for me LOL LOL