Starting Chemo in October

[applestreet]

Hi ladies

I've popped in from the November thread just to say that I love my jammies!! I don't start my chemo until Monday but I am not scared to say that I have a jammie day every Sunday and they are donned every night at 7pm all year round.

I even bought new funky jammies to go for my op.

I think jammies are good for the environment, they save your clothes, they save on washing and that is good for "green" point, saving the earth and all that!! Most importantly they save IRONING!!

Also ladies your wigs all look brill, am going for a fitting tomorrow before my hairdresser comes at teatime to cut my lovely hair short before I go to be poisoned on Monday!!

Onwards and upwards ladies. M

[Guest user]

Hi October Ladies

My internet seems to be back up now.

Simone - hope all went well today and you now all comfy in ya new pj's. new jammies rule!! I also invested in several nice pairs before i started chemo and live in them haha. I normally have a nice bath and put fresh ones straight back on in the afternoon, nowt wrong with it!

I went to get my bloods checked today after having my 5 daily bone marrow injections, bloods cells are behaving themselves for a change so looking forward to a few injection free days, my tummy wast starting to feel like a pin cushion!

Scissors - so sorry that you suffering with your mouth, must be bloody awful, hope onc can suggest something to help x

Right im off to put my jammies back on ;o) x

[Guest user]

Thanks Ladies, good to know that there are other PJ addicts out there xxx

[Harrietxxx]

Simone - I stick my jammies on at every available opportunity, I love em :). In recent weeks I have even done the school run in my jammies, I don't have to get out of the car but god knows what I would look like if I broke down, lol. Can only imagine what the neighbours are thinking, me going out in some lovely floral or spotty number, oh well, I don't actually give a toss 🙂

Jules
X

[Lulu34]

Simone I love PJ days.... I frequently have them even if I feel not too bad I just find them much more comfy fir lounging about in than clothes with buttons, buckles and belts etc... Nothing beat jammies and the minging DG.

Scissors I had awful problems with my mouth last week from taxotere..... I have difflam mouth wash, bonjela, biotene saliva gel, nystatin thrush suspension, soft toothbrush and sensodine pronamel toothpaste, fresh pineapple chinks and pineapple juice.... Was bad from about day 3 to day 10 but better now.... Wasn't eating much either could only manage soft things I didn't have to chew so that was homemade chick soup and ambrosia creamed rice.... Remember to take your temp regularly and you can take analgesia too.... My toungue definitely swelled up and was really puffy with teeth imprints down either side and it even made my speech a bit lispy.... Hope it gets better soon it really made me feel pretty miserable.

Teresa sounds like you have had quite an eventful day... Glad your feeling a bit more normal.

My hair is still falling but find running my hands through it as it comes out weirdly therapeutic... Sister offered to shave it but I'm enjoining it coming out LOL.

Had bloods done this morning.... Got it first attempt too thanks to my microwave beanie bear.... Then went to young women's cancer group at Maggies which is a great support with great girls.... And then out or afternoon tea with one of my BC buddies.... Most enjoyable!

Now back home to veg out (may even put my jammas on) watching grays anatomy and bones on sky.

Love and hugs to all

[Guest user]

Hi Teresa, gotta be honest no matter how bad I feel, there is always a shower each day, I'm absolutely paranoid about the smelly but not about the clothes. Even before having BC I used to veg out in the jammies on my days off from work!!! Having a few slobby days has always made me feel better! I just nodded at the right moments to my chemo nurse, whilst thinking of my lovely new jammies that were going to get a good road testing!!! lol!

Crispgate was a beaut! Was feeling really rough, opened a cupboard to get a teabag out and a packet of crisps fell out and on to the floor, I got so upset that I actually said to the packet of crisps "well you can stay there"! clearly I was punishing the crisps for not realising how poorly I was feeling, there was even tears! Obviously the next morning I realised I was losing the plot and was quite grateful I lived by myself and nobody actually witnessed my "moment" in person as I picked the bag of crisps up and put them back!! Hahaha!

Hope the tastebuds make an improvement and glad you're feeling a little better xx

Sissors, ouch, hope your se's improve quickly, sending you a gentle cyber ((hug)) xx

Hope all you ladies have a restful night, Simone xxx

[keepthefaith]

For goodness sake, Simone - why did she say that? As if getting dressed will make you feel any better - have these people gone through it or not? Of course, recovery from chemo's all in the mind and if you have a positive attitude it won't be so bad! Nonsense! If you want to veg in fleecy PJs then DO IT!! (I did the same, got me some lush PJ bottoms from Fat Face). I think you should go with the flow and if you feel like it, do it, if you don't then don't, although it does make sense to have a wash if you can manage it 😉 - we wouldn't want you to be smelly!

What exactly was crispgate? Looks like I missed a corker there!

I've been up and about a bit today - vast improvement after I actually slept properly last night, and I even managed to walk the dog for 10 minutes - not far, but it's a start. Then I watched "Angus, Thongs, and Perfect Snogging" (courtesy of 14yo daughter - let me just tell you, the plot is not complicated so it was easy to follow!) and started a jigsaw puzzle and had a visitor pop in for half hour. Feeling a bit more normal, although the mouth and taste buds burned off feeling are still not good.

Poor you Scissors the mucositis sounds horrid, I've got a few sores but nothing that stops me eating thank goodness. I found, by the way that unless you log in the photos don't appear on here. Maybe that's why?

Good luck Simone for tomorrow, and Jules for Friday, and everyone else who needs luck or positive thoughts!

Teresa x

[Guest user]

Hey there Octoberites, thought I'd just come on and say bye for a few days, if the last 2 sessions are anything to go by!!!! Got myself a glug of swamp juice to down tomorrow at 10.15 hrs!!

Hi Jules, not giving me a second glance in a good way is a fab compliment, thank you, loving the art of back peddle there very skillful, hahaha!! Good luck for Friday xx

I fessed up to the chemo nurse that after my last session I didn't get dressed for 3 days, and I even told her about "crispgate". Whilst I found it funny she looked worried!! oops! She then proceeded to tell me that I should try my best to get up and get dressed and that way the "down days" might not last as long!! Didn't dare tell her I'd been and bought some really nice fleecy jammies in preparation for the "I feel sorry for me" days!! lol! I suppose it makes sense and I'll do my best to be human again and restrict the amount of inanimate objects I fall out with!!!

Mahoosive hugs and titchy se's to the Posse and see you all the other side of number 3, Simone xxx

[Guest user]

Hello October posse, it's been a while since I've posted but I've been looking in to keep up to speed with everyone. For some reason my iPad doesn't show any of the photos so I can't see the lovely array of new dos! I've my wig now, called Cameron, and I'm very happy with her. Takes a bit of getting used to, but I've only been out once with it on so not had a lot of chance to trial it much.

Days 8,9&10 of cycle one were good, I even went into work. Sadly all the other days have been pretty wrotten. My latest se is mucositis. I can handle a few ulcers but this is really taken a hold of my mouth, almost every inch is covered with sores or ulcers. I have washes, rinses, gels, etc but having had to drink and eat through a straw for three days, my patience is wear ing thin. Seeing the Onc tomorrow so fingers crossed he will have some fantastic miracle cure for it. If anyone has any tips, I'd be grateful.

Anyway, I'm off now to wind up the laptop to see if Microsoft are any better than apple at getting those photos!

All the best to everyone.
Sissors x

[Harrietxxx]

Hello fellow October lovelies,

Clare and Simone, those wigs look bloody fantastic, really. I know to you they maybe make you look different but to me they look the real deal and I wouldn't give you a second glance, in a good way if you know what I mean.

I have third FEC on Friday, day after you barometer Simone :). Been very weary this time and got phlebitis in my hand and arm where they put the poison in, but still counting myself lucky with SE.

Hope the rest of you are doing ok.

Jules
X

[Guest user]

Hey there ladies, thank you for your kind words about my new do. Finding it a bit strange, not having a wig but having a "hairstyle"!!! lol! Haven't had one of them in a long while!!

Lizzy, hope the new boob fitting went ok xx

Lulu, caution to the wind, get yourself a new wig, like l'oreal says, "Because we're worth it", heehee! xx

Teresa, good to hear from you, sorry you're suffering, but good you found a chemo buddy. Hope you get a good night's rest xx

Daysie, nice of you to pop in and check up on us, hope you find a good do on Friday xx

Tiny1, good to hear from you, especially that your se's are minimal. My hair started to drop out round about day 18 after first chemo session, but strangely enough my eyebrows and eyelashes are still clinging on and I'm having my 3rd chemo this thursday!! Hope you continue to feel ok xx

Hugs to you all, Simone xxx

[Lulu34]

Tiny I'm day 13 after first carbo and tax and hair is coming out today.... Will shave it when it gets too annoying.

Lx

[Guest user]

Hello ladies

Just a quick one from me cos my internet down for some reason so onluy on my phone

Thanks for the comments on wig, im still not overly happy with it but at least feeling bit better bout wearing it

Simone urs also looks fab and u look much happier than me hehe glaad u gettin on ok

Hugs to all. Catch up properly soon xx

[Guest user]

Hi ladies
It's been a little while since I've posted anything and have been busy reading all ure posts.
It's been a couple of weeks since my first fec and I'm pleased to report no side effects apart from being tired and in bed by 8 pm.

Clare and simone ure wigs look fab hope mine will look that good. R u both getting on with them ok, not to itchy or anything as I've heard some people say they can make ure head itch a bit ?

Also how long was it b4 ure hair started coming out as I'm 2 weeks into my first fec but no sighn of any hair coming out yet not that I'm complaining but supposed to b having my wig fitted nxt week and head shaved.

Hope everyone else is doing ok

Tiny1

[Daysie]

Just popped in from November Group to keep an eye on those a month ahead of me lol.

Also to say Clare!!!! - your new hair looks great, very professional, looks really nice!

I've got my Wig session this Friday - knowing me I will be too busy LOL-ing to worry about it!

Daysie x

[keepthefaith]

Wow Clare and Simone! Both looking FAB-U-LOUS in your new wigs! I was supposed to be collecting mine today but have postponed tonext week.

It has been a week since I posted (hope you haven't missed me too much) and the reason is that second TAC chemo knocked me for 6! I have barely been able to get out of bed, and I am unable to sleep which does not help the recovery. My tongue feels like the taste buds have literally been burnt off it! Apparently some of the reason it's a longer recovery is due to the Taxotere (Docetaxel) which I am having along with the Epirubicin (aka Adriamycin) and Cyclophosphamide (the E and C of the FEC). Whatever, it's a b****** anyway, and none of these chemos are nice are they? I am lucky in that I have met a very nice lady who has chemo the same days as me, same type, neo-adjuvant the same, and we share a mutual friend, lives quite close by, so we have been able to ring each other up and compare notes - and that's the thing, isn't it, ladies. The question that's in our mind "is it normal to feel like this?" Well apparently the answer is a resounding YES - Still, at least I'm 1/3rd of the way through and have got out of bed today (this is day 7).

So not much else going on in my life other than watching TV, reading rubbish novels and trying to sleep.

Got to make plans for Xmas - I think I am just going to let it happen! I will do some online shopping, DH will have to wrap, decorate and cook. Good on ya to those doing Xmas cakes - I am VERY impressed 🙂 Round robin letter this year I think to tell those the news who don't know - well that'll cheer everyone up won't it? Not!

Onwards and upwards! Keep the Faith!

Teresa xx

Lulu's idea about the ipads on the NHS - lol ? Wow wouldn't that be lovely. Frankly, I think we all deserve one - a new toy!

[Lulu34]

looking good Simone and Clare

Not sure whether to get a new wig as still have my old one and looks pretty decent although makes me look a bit grey and pasty.... My head is starting to get quite tender and hair feel like it's growing the wrong direction so it must be staring to go a wee bit.

Lulu xx

[Lizzy1977]

Hi October ladies, Clare, I really like your wig. Hopefully mine should be ready soon.

I'm getting my new boob tomorrow so I'm hoping it's not too heavy!!

Lizzyx

[Guest user]

Hi Octoladies, hope you're doing well

Lulu, know exactly what you mean about the food, haha! after eating a massive pub lunch that I finished and felt I wouldn't need to eat anything else that day, how wrong was I when at 9 o'clock last night I went hunting for the quavers and wine gums!!!!! Glad your tastebuds are mended xx

Clare, it really was great to just wander about feeling human again, even if human is only going to be until thursday!!! Your new wig is cute, got mine today, not worried about getting used to a wig, but am struggling getting used to having a "hairstyle", as I've said "short and tidy, with nowt stuck up anywhere" to my hairdresser for the last 20 odd years!! lol! Popped it on my profile pic, slight step up from looking like a match, heehee!

Hi Pat, good to hear you're feeling better, starting my cakes in a couple of weeks, fingers crossed! Good luck with your wig shopping/fitting xx

Big zzzzz's for tonight ladies, Simone xxx

[Guest user]

hi lovely ladies
chemo second session much better new anti emetic 1 hour before treatment and no vomiting amazing. but yesterday temp and hot reconstruction site(little tit)so spent day having blood cultures ect but home on oral antibiotics .

clare glad you doing well this time and love the wig it looks great .my hair is very thin now having it shaved off and wig shape on thurs if fit
gentle hugs to all and wishes for strength and minimal side effects love joy xx

[Patlufc]

Afternoon all. Feeling much better this week, I've just made some Christmas cakes 🙂

Lulu, know what you mean about the eating bit, I can't stop. Gonna end up putting on all the weight I lost going to slimming world before diagnosis 😞

Clare, the wig looks great. I'm going for 1 tomorrow. My daughter and best friend are coming with me so goodness knows what I'll end up with lol.

Hope your all doing ok.

Pat x

[Guest user]

Thanks Lulu, i tend to be the opposite and get a little constipated for few days but mummy petts bran cake always helps ;o) I didnt manage to go shopping for new shoes because of my hospital dramas but i wore my nice red stiletto type ankle boots that i havent worn very much and they went down a storm. Hoping to shop for some new ones for next time though.

Simone - high five to gadding about and sunday roast, its nice to get out and do something normal isnt it? Good luck with the wig fitting.

Nats - glad the helpline was a help and your son is behaving better thats really lovely news

Happy Monday to all x

Edit - ive updated my pic with my wig, what do you think?

[Lulu34]

Good luck with the wig fitting simone and glad you had an enjoyable Sunday lunch my food is starting to taste more normal again so I'm enjoying eating again just wish I knew when to stop LOL

Nats so glad to read your positivevpost about your son. They can be little angels when they put their mind to it.

Swamp juice is what one of the girls called it when I had Chemo last time and the name kinda stuck.... Good luck with your 3rd swamping today.

Lxx

[Guest user]

Hi Girls
Thank you for your supportive comments. I spoke to the helpline and they really helped. On Saturday afternoon my son turned into a little angel and made me smile all the time and was really helpful. Bless him. He has made me feel so important, needed and loved.

Lulu, I love the term "swamp juice". Hopefully I will be getting my 3rd this morning. I think I put more effort into how I look on swamp juice day than any other.

I'm glad to hear that other peoples treatments are going a bit more to plan and the SEs aren't too bad.

Have a great day girls, may your children remember how great you are and show you their thanks and may SEs be minimal

Hugs, high heels and high hopes
Xx

[Guest user]

Hey October Posse, hope you're all doing good and have had a restful and pleasant weekend.

Clare, you got it right for me, I've been gadding about this weekend visiting friends and even went out for the whole day today and did a pub lunch, full Sunday Roast and no washing up for me!! Yum! Glad you're doing ok and well done you with the wig outing, got my fitting tomorrow!!

Lulu, glad you're on the up, isn't finding lost fab shoes a great feeling and falling for them all over again!! And an i-pad, good treat, and I think you're right, nhs i-pad's is the way forward!! lol! We can dream!!

Have a good week everyone, Simone xxx

[Lulu34]

Hey Clare glad your doing ok after you swamp juice..... I was starting to feel better yesterday and this morning but then got the runs so not feel quite as good but now I'm eating and drinking normally again that has def perked me up. Did you get your new shoes? I'm thinking I may just keep my pink ones as my chemo shoes fir all my cycles or dig out a few pair of lost fab shoes that have been relegated to the back if the cupboard for being too high and lethal.... Not quite sure why I think stoating around in killer heels while half spaced out on lorazepam, chemo and steroids is a good thing to do mind you.

Nats sorry to hear your having problems with your son, my kids are the same my daughter especially is so self obsessed.... But I jokingly say 'look after your poor sick mother' and they do sometimes get the hint but on the whole my daughter pretty much ignores me.... Nice! Anyway I'm sending huge cyber hugs your way as I know how hard it can be with teenagers and their mood swings and hormones and their crappy fathers!

I'm glad your Hickman is making life a bit easier in that respect. I hope my appointment comes through soon so I have it in time for my next chemo.

I got a new toy yesterday.... An iPad... OMG I love it... So much easier than my lappy.... Think we should all get one on the nhs while going through treatment! LOL

Love to all my October buddies
Lulu xxx

[Guest user]

Hi October Crew

Its been quiet on here this weekend, hope everyone ok and just resting up or well enough to go out and about!

Im doing ok so far after 2nd chemo on friday. Having to have daily injections but been ok with them so far.

Me n my wig had first public outing today, felt very nervous and paranoid that i stood out like a sore thumb but noone batted an eyelid and my family all said it looked nice n natural. My mum even said it looked better than my own hair....charming! lol

Nats - sorry you are having a rough time, hope things improve for you x

Hugs to all
Clare xx

[Guest user]

Hi Clare, glad your chemo went ahead, another one chalked up, hope you stay good xxx

Hi Nats, sorry to hear you're suffering. Teenagers are a tricky species but are far more resilient than we give them credit for, my son is 24 now but I remember some days when I could have cheerfully throttled him through his teenage years, until I learnt to say what type of behaviour I would not accept, I also learnt if I ignored his bad behaviour and didn't speak to him, it drove him mad!!!! Fight fire with fire I say!!! Seriously though if you haven't got close friends and family that you can offload to definitely do it on this site, just so you can hold on to your sanity! Big deep breaths, and take everything a day at a time, do not accept other people's bad behaviour, no matter who they are, you've got enough to deal with right now, hope things improve for you really soon xxx

Hope all you ladies have a restful weekend with titchy se's, Simone xxx

[Guest user]

Thanks Lucy. I will call them tomorrow
X

[Lucy_BCC]

Hi Nats

Our helpliners can offer you a listening ear if you feel it would help at this difficult time, they can also talk to you about other forms of support BCC can offer you

The number to call is 0808 800 6000-weekdays 9-5 and Sat 9-2

Take care
Lucy

[Guest user]

Hi Girls
Had a hell of a week and just feel like crying all the time. Chemo hit me hard and was so ill lost 6lbs in one day. Also trying to deal with teenager who just doesn't seem to get how ill I am. I don't want to scare him nor do I want him to think everything is ok. Most people think I will be fine by Xmas but they just don't get it. I get zero support from his dad and each day just gets harder.
On the plus side my hickman line is great and I haven't lost my hair.
Big hugs to all of you and I hope you have good weekends xx

[Guest user]

Hello October Crew

Chemo went ahead as planned today thru my hand and it was ok. I got that prickly feeling in bottom this time...very bizarre...i escaped it 1st chemo maybe because of the picc line. Feel fine at the moment just bit tired.

Simone - oh you do make me chuckle i absolutely love your sense of humour and wit! Loving the matchstick look x

Alison - i found out about the lines today, hickman is in the chest and done under local anaesth with dangly bit, (picc line is the one through the arm which is what ive already had but got infected and removed) the portocath is the one thats under the skin and a bit more of a procedure i think they are mainly used for people having a lot of treatments and you can swim/bathe properly with that one. Im being fitted for my hickman 22nd november x

Hope everyone else ok, hugs to all, off to rest x

[Guest user]

Teecass, you give yourself a break, your poor little body's going through the ringer. My kleenex moment the other week was a corker, it's only this week I can look back and think, oooh that wasn't pretty!!! Going for my 3rd chemo next thursday and seem to be getting the pattern now, 1st week = feel like s*@t, 2nd week = bit weak and wobbly but can face food, 3rd week = resume sense of humour and pull up a chair to the fridge and cupboards and consume at a vast rate!!!

Lizzy, Bandanashop.com have got some nice ones, I've ordered the snowman one for Christmas, can't wait, heehee!

[Lizzy1977]

Thanks Simone, good point. I've never had so many drugs in my life! Painkillers are not shifting the headache. I guess it will go eventually!

I like your new bandana 🙂 I've bought a bright pink one and am thinking of getting a special festive one

Lizzyxx

[TeeCass]

You're a star, i have felt soo bloomin sorry for myself all week, you have made me smile for the first time in days :))
big kick up my bckside
Thank you, i wish i had your strength xx

[Guest user]

Thought I'd keep my end of the bargain and show you all how I can immitate a matchstick with my new bandana!! Haven't quite got the hang of the make up part yet, thinking the lippy's a bit bright!!!!

Move over swan vesta!!!!!!

Hope you're all doing ok, Simone xxx

[Guest user]

Hi Lizzy, absolutely did get the headache from hell. I put it down to being poisoned for the first time in my life and my whole body was protesting, it lasted a couple of days, oh and having a freezing cold bonse for a couple of hours can't have helped me either!! hope you feel better soon, Simone xxx

[Lizzy1977]

Did anyone get a killer headache following their first chemo. On top of the nausea, the tiredness and the achy hips/legs my head feels like it wants to explode. I think it could be a a SE of the anti-emitics. I've tried painkillers but it's not shifting...argh!
Lizzyx

[impatiens]

Hi,

Clare, the Hickman as I understand it, is a line into your arm that has a bit on the outside which is there All the time. A portocath is inserted under the skin in your chest just under your collar bone. So theres nothing on the outside. I didn't fancy something on the outside all the time, I was worried about it catching on something or getting infected. Which can still happen with a portocath ! But you can leave a portocath in for years, so hope to have it for whole of treatment, including recon in 18 months. It makes such a difference.

Simone, the crisps thing made me laugh! Gnomeo and Juliet?? Can it be worse than the Real Housewives of Orange County which is what I got hooked on in the weeks after the mx

Hope everyone's doing ok today.

Much love

Alison xxx

[Guest user]

Evening Ladies, good grief I need to get back to work!! Today's entertainment was 2 loads of washing, hoover fix with the cranberries blaring away, then afternoon dvd "Gnomeo and Juliet"!!!!! However the gnome in the mankini made it worth it!! lol! Work have been quite good and are considering letting me come and go when I feel up to it, which will be a big relief! Just waiting to hear from them!

Hi Dizzycloud - good to hear from you, sending you a gentle ((hug)), fingers crossed for quick healing so there are no more delays. xx

Hi Alison - Good to hear you're doing ok. Hope you have a great time in Prague xx

Hi Clare - isn't this emotional rollercoaster amazing, last week I felt very sorry for myself and cried when the crisps fell out of the cupboard and I felt too tired to pick them up!!! I felt very silly the next morning having to pick them up!!! lol!! Irrational but at the time completely justified in my head, as if I was punishing the crisps for not realising I wasn't well!! Plot completely lost!! lol! Glad you're on the up again and hope everything goes well tomorrow xx

Hi Joy - fingers crossed for you for tomorrow and glad you're mouth's healing xx

Good luck with the se's everyone, and wishing all you lovely ladies a good night's rest, Simone xxx

[Guest user]

hi october ladies getting ready for round 2 tomorrow bloods permiting . at last the bladder has settled and mouth ulcers healing . managed to get out today .
clare hope round 2 goes well for you tomorrow and wishing minimal se to everyone .
still hanging on to a bit of hair but wake up with guniepig on my pillow so it wont last much longer love and best wishes to all joy xx

[Guest user]

Hi October Ladies

Im feeling much more positive again now, have picked myself up off the floor. Supposed to be having second chemo tomorrow but cant get a definitive answer, got appointment with oncologist tomorrow morning first thing and if shes happy we can go ahead. Hope it can go ahead as feel dandy now, not looking forward to canula though, still sore from last one as it was in there quite deep

KTF - Dexas Midnight Bummers, what a funny description but clearly not funny having them x

Jax - Well done for shave off ((hug)) i thought i was fine about it but sobbed all way through shaving and couldnt look in mirror for several hours but im ok now x

Gill - Hope chemo went ok for you today x

DizzyCloud - Boo rubbish to your seroma still delaying things must be so frustrating when you feel fine but good that its not burst again sounds like it is on the mend now x

Alison - So glad you are ok and having a bit of a better time now. Im one of them looking at getting a hickman line since my picc got infected and removed. What is the difference between portocath and hickman? Good for you booking a break to prague, enjoy x

I know its early days but i really cant be doing with the headscarfes, dont feel right, for now im sticking to funky hats got some nice ones and feel that people less likely to bat an eyelid seeing someone in a hat than a headscarf, wearing a thin hijab liner underneath so can always take off if i get too warm when im inside 🐵

Hope everyone else is ok, hugs to all you lovely ladies x

[Lulu34]

Alison i hope you have a wonderful time in Prague. Do you have a European health card? And make sure you have insurance just incase you get an infection when your away.

Lulu xxx

[impatiens]

Hi everyone,
I havent posted or even come onto the site for a few days, I think because I've been feeling almost normal so wanted a break from thinking about it!

Clare - so sorry you've been having such an awful time. It sounds grim and well done you for coping.

Dizzy, sorry to you too about the seroma. Like I said before, I do know how frustrating and upsetting it is to have to wait for things to clear up before you can get on with treatment, it's really hard. When it happened to me it was my worst point since dx. I fact I found it harder to cope with than the original dx, I think it was when it really hit home that I was I'll and not in control. Very upsetting.

Sorry not to be able to remember everyone's name - some of you are brilliant at it - have you been doing those memory exercises or something! To all those who are considering getting hick mans or Picc lines, I had a portocath fitted - and it's absolutely brilliant apArt from the second time they tried to access it and it had turned on it's side . But I strongly recommend them. I had a hideous tine with canulas when I was in and out of hospital so had a portocath. Apparently not everyone offers them, and I get the feeling that you have to ask even in places a do do them. But it meant that having the chemo was really easy - it was the cold cap that was horrible.

I've felt so much better this week.in fact I felt ok really last week the first after my first chemo. Just a bit nauseous for the first couple of days at times, and then tired for thet rest of the week. But touch wood, ok. In fact so ok that I've booked to go to prague for three days next week...back the night before my second chemo. Told the hospital and they said officially they have to say I should nt go, but I should be fine. Hope I'm not Tempting fate! But sooooo excited.

Simone - you sound back on form which is great - hope it continues to be ok now you've changed your me.

Love to everyone and good luck to those having chemo this week

Alison xxxxx

I never had the tingling downstairs when I had my first FEC,I was almost looking forward to it!

[dizzycloud]

hi October gang

I havn't posted for ages but i have been keeping up with everyones progress.

I am still not allowed to have my second chemo session due to seroma on back not healed well enough yet, but at least it has not burst again!. Might be another 2 or 3 weeks, so I am feeling a bit down about it. I am however enjoying the time I have in between and catching up on jobs around the house, its nice to have my energy levels back!. I am feeling guilty for not working but I feel if I did go back to work I could compromise my wound healing which would devestate me.

I'm getting used to having a bald head, though even my stubble is falling out leaving a strange pattern on my head. My periods seem to have stopped too which is a side effect I am not going to complain about as I really suffered painful ones prior to chemo.

Sending my best wishes to all and hoping side effects are minimal xxx

[Guest user]

Happy Birthday Lizzy, gentle ((hugs)) and fingers crossed your se's stay small, enjoy your dvd xxx

[Lizzy1977]

Hi October ladies, just checking in after my first chemo. I feel fine so far...just nausea and I've taken the tablets. Feel like I'm waiting for something to happen! Yeah I had the prickly bum and one of the made my nose itcy..oh yes and the red wee!
time for a DVD but don't feel like having a birthday drink.
Lizzyxx

[poppy333]

hey ladies,

u r all doing really well.
good luck for cemo tommorow gill

reading posts made me remember the ants in your pants sensation. . one caused a twitchy nose, and the red one makes u wee red. . funny the things u forget, or your mind blocks out.

xxxxxxxxx

[Guest user]

Thanks for the advice guys xxxx

[gill13]

thanks Simone, the feeling didn't get any worse, so i was ok, and i've bought some corsodyl mouth wash today in readiness

i'm looking forward to treating myself to Nana naps 🙂

Gill x