Day 2- 2nd round of FEC T
As before feeling spaced out and hung-over after a very broken night's sleep. Looking through the diary that I keep of the side effects,pills taken and feelings I've had I can see that problems for me ususally kick in 3/4 days after and from day 4 I felt really fatigued.Linda, I may take a leaf out of your book and ask about a decreasing amount of steroids.
Leanne, I admire the positivity in your post, especially as it sounds like you have a lot to deal with. I've said it before but I so admire you ladies with young and teenage children. As my 2 daughters are adults I can at least wallow in my discomfort and self pity at times ! Although I find when they do call round with the grandchildren I am far more upbeat and positive.
Not heard of hiccups, Steadie, but had bad heartburn and stomach pains last time so have been given Omeprazole to take daily. Might be worth calling one of your breast care nurses for advice.
Ladycroft - hope the concert was fabulous and look forward to hearing all about it.
Have a good day everyone, hope you're home soon Sheryl,
Hi Gill, and morning ladies and new members . my son Joe plays piano and arranges her music and directs , he's also a singer and just taken his finals at uni. He's been working n a revival of a show called 'Fings ain't wot they used t'be' in London for the last month with Jessie Wallis and Gary Kemp as associate musical director.Joe and Christina are on the Paul O'Grady show on Tuesday! I'm arty ,love diy and stuuff and I do am dram and can carry a tune but we can't work out where he gets his talents from .
We are so proud of him as he has been having a rough time too as he suffers from intermittent depression and this cancer has knocked him for 6 too,
It's getting harder as my hair goes for me to stay upbeat for long too , I think I'll be better when it's gone , you know what they say ,...Hair today ,gone tomorrow !"
Have as good a day as you all can xx Jan
Hi to Steadie and Leanne. Good to have you on board - going for my second round of FEC T today.
Ruth - I'm not surprised you haven't any energy as you have had such a rubbish time of it with all those digestion problems. I think you've coped really well and managed to keep going. I'm worried the sickness will kick in like you this time round. I can't bear feeling nauseous .Also worried as bowels back to normal so I guess that will change after today!
Linda - I'm wondering if I will be put on those injections after my stint in hospital. I'll be interested to hear how you get on with them.
I hope you get out today Sheryl.
Best wishes to all,
Welcome to the new ladies :))
GMC - how you can clean the house etc is beyond me so kudos to you ! I feel very weak and light headed as I am not eating at all well and lost nearly 2 stone so far.Second chemo brought nausea with it, which I am still battling with despite several anti sickness meds.
I am surviving on rehydration sachets,multi vitamin tablets, then white bread and plain biccies as I just cannot face anything else. I have been told to steer clear of dairy which I don't mind, but fruit too which is my faveourite thing to nibble on. Curiously drinking coke seems to settle my tummy which is something I don't normally have at all.
Wax2014 A pal of mine does my jab for me the day after each chemo as I am too sqeamish, maybe the nurse could show a pal of yours to do this too?
Still trying to keep positive with my uni daughter returning home next week for the summer, a concert in london in June plus my cornwall hol in july, so klets hope we get to go to these treats ladies :)) xx Ruth xx
Hi everyone, I'm new to the page so thought I'd introduce myself 🙂
I'm Leanne, I'm 31 and married with two children aged 11 and 6. I was finally diagnosed with stage 3 idc at the end of January this year. Finally, as had an ultrasound on a lump in may 2013 and told it was lumpy tissue due to my age.
I've since had a mastectomy of the left breast, as it was riddled, 5/17 nodes were affected. I have a tissue expander and I'm awaiting a psychological assessment to have the right side removed and started TAC chemo on the 12th May. I'm due to have 6 sessions to be followed by radiotherapy.
I've been relatively positive which has surprised me as I also have borderline personality disorder.
Sorry if this is a bit garbled, I'm not up on all the lingo haha! But I'm really looking forward to getting to know some new people and reading others experiences 🙂
Just watched your youtube clip - she's really very good isn't she? What instrument does your son play? What a venue- you must be very proud.
Hope you sleep better tonight. I've been shopping and cleaning the house like a crazy woman as I know I won't have any energy after 2nd round tomorrow!
Morning girls , I seem to be having the opposite effect with diet , i seem to be hungry all the time and have put over a stone back on in about 3 months .My hair is fast receding and I was hoping it would last until
the weekend as my son is playing at the Elgar room at the Royal Albert Hall for the next 3 nights for Christina Bianco Check her out http://youtu.be/ZQZZpFrVSOQ (and haven't got my wig sorted yet , perhaps the burkha after all !
Hope your nausea passes , I had a little queasy feeling in the night but did take meds late due to sleepless night
Hope we are all ok for the weekend xx Jan
What did you actually eat to combat this nausea? I am also right off dairy foods, tea,coffee,chocolate. All I am able to stomach is white bread,white rice with chicken or plain potato,plus the occasional plain biscuit such as digestive or rich tea.Its miserable not being able to indulge, but then again I have lost nearly 2 stone !
I hope you are feeling better xx Ruth xx
Glad to report that the nausea is subsiding a little.......I will certainly try to get more medication next time around for it.....such a horrid feeling...!I certainly find that eating little and often is the best way. There are so many similarities to pregnancy! I have gone right off tea, coffee, chocolate, most foods, and any containing any fat! Not sleeping too well, with quite depressive thoughts - just randomly possing into my head - which I think is the side-effect of the steroid drug.....makes it a long night though.....
Cant wait to get some energy back to tackle the garden.
Hi Everyone !
gmc - great to hear you are back home well done and I hope session goes ok on friday.
wax2014 - Good Luck for today too.
I woke at 4am this morning feeling rather nauseous...I haven't suffered with this so far. So watched rubbish on tv after taking anti sickness meds and feel slightly better after water and dry toast. Otherwise just tired after fec number 2. A few strands of my hair are beginning to come out but no clumps yet. xx Ruth xx
Got out of hospital yesterday so it's great to be home. I had to go back for pre chemo checks today and as bloods ok I'm having my second session this Friday so only got delayed 2 days in the end. However , knowing how quickly circumstances can change, I'm keeping everything crossed. I was really impressed at the checks as when asked what problems I came up against I mentioned indigestion and thrush. The nurse said she would arrange for suitable meds / pills to combat these for me to take home on Friday to prevent it happening again. Save me buying packets of rennies !
Well done to all having had their 2nd chemo and hope you're feeling as well as poss.
Second FEC went ahead yesterday and other than feeling really tired, it went well. The nurses checked my portacath scare, which isn't infected but still isn't closing properly so I have daily fressings to change still.
I had the cold cap again and my hair has gone very dry and a few strands falling out, so the nurses advised to keep going with it.
I still have bowel problems so they still advised this high energy diet aka bland and boring lol. I don't think I can look at white rice/bread or potatoes again but will keep plodding. What is the brat diet ? I hadn't thought of bread sticks sodastream what a good idea 🙂 My first FEC wekk wa sok it was 2nd week that things went pear shaped so hears hoping it doesn't happen this time.
My dad is in hospital still and we managed to get mum into a specialist dementia home for 2 weeks initially, so the pressure is off my 3 siblings now although I cannot visit either of them 😞
Good Luck everyone with your treatment xx Ruth xx
Good luck for Ruth and Jan from me too for your second round of chemo. Let us know how you get on. Had my bloods taken this morning and have to say was in and out in 5 minutes so I now feel it was worth going through the discomfort of having the portcath fitted (although I didn't think that at the time).
With regards to early sickness feelings, agree you should check with the chemo nurses for some additional anti-sickness medication. They gave me Cyclizine Hydrochloride as a back up if I still felt sick after the other tablets (Emend and Dexamethasone) and I only had to take it on two occasions in the first couple of days after my chemo session, so I have plenty left. I will see if I need them after my second session which is tomorrow.
Yes you are! I'm just looking at the forum as going for my oncology appt tomorrow, had results last Friday
and now find myself starting on the chemo route! As I'm hoping to get away for a quick holiday in a couple of weeks won't be starting until June.
HOORAY!!!! LOOKS LIKE I,VE ARRIVED....... First chemo yesterday (lst of 6FECS) felt very nauseous during the night - wondered whether actually vomiting would make the feeling go away, or not? Does anyone know the answer to that? (Nausea is my horror!!!)
Hi, I keep on trying to get onto this thread, but am pretty clueless on cumputers, so, here we go again. I will hope that someone lets me know if I am on here now?!
Morning ladies ,
Round 2 for me today too. Not going to bother with cold cap as it obviously hasn't worked . I bought a couple of fitted scarves from our local hospital as there is no Headstrong clinic near me ,cheap nasty quality and £9 each so they are going back as my lovely caps from AnnaBandana came this morning and they are great quality and so inexpensive . I think the hair loss has been the worst part for me,I sailed through the surgery and chemo and thought I'd got away with it until day 18 .
Hope everyone has a good day and those incarcerated get parole soon, those of you who are having a rough time of it get relief asap . In the immortal words of Mrs Brown ....FEC it !
Oh well ,can't sit here moping sun is shining, birds are singing and I have a lot to be thankful for. So I'll take my own advice .
All together now:-
If life seems jolly rotten
There's something you've forgotten
And that's to laugh and smile and dance and sing
When you're feeling in the dumps
Don't be silly chumps
Just purse your lips and whistle, that's the thing
And always look on the bright side of life
Always look on the right side of life
Good luck Ruth for today, first one of us on the second round, (I think) so many names and stages to remember now..please let us know if it's better, worse or the same !
Again welcome to cassa and amerthey (another Linda, this may get confusing) I am having 6 x Fec so I think getting off quite lightly, although it's been a complete learning curve this time round. Back to the doctors last night as I now have two rather large swellings on my lower arm from my veins complaining loudly ! Have been told that this will reduce in time but not sure if chemo can take place without some sort of line to avoid them.Cassa really hope you are braver than me ! I've been trying to pluck up the courage to shave my head for a couple of days now, Will have to wear my hats and scarves from today as it is really thin now.
Main advice is to listen to your body, relax when you can and any symptoms get them checked out and I'm sure you will be fine. If you need to ask anything we are all here to answer what we can from the various experiences we have had from our first rounds.
Lorraine - good luck for tomorrow and Gill how are you feeling today?
Well here I go again.....2nd FEC today. I have remembered to pack a hairbrush and a cardigan this time 🙂
GMC, I hope you get home soon,keep your spirits up I know it must be difficult xx
I am going to stick to the high enrgy foods in the hope that I don't get the upset stomach this time, its a boring bland diet but seems to be effective , although I am still burping for england !
Good Luck everyone xx Ruth xx
Morning ladies and welcome to Cassa and amerthey.
My treatment plan is 3 x FEC then 12 x Taxol, followed by radiotherapy. My second FEC is this Wednesday which I'm hoping will go as smoothly as the first one. I did feel anxious before the first one, but the nurses know what they are doing and will make sure you feel comfortable. Make sure you take the meds on offer and supplement with pain relief as required (as long as your nurses say this is ok). I did not use the cold cap as didn't like the idea of that on my head and am now getting more used to the hair loss and started wearing a scarf today as my hair is now quite patchy and I don't feel comfortable going out with nothing. I agree with Sheryl in that everyone is different and will not have the same side effects, but just be prepared in case you have any. I went through sore mouth (bonjela and cordosyl good), sickness feeling (eat little and often) and hair coming out (avoid mirrors). Hope everyone has a good day, Lorraine xxx
morning may chemo buddies .Had my first batch of chemo on friday .Been ok till yesterday when injections started and feeling very achy now .Also suffering all night with heart burn .Had taken drugs now so should be up and about planning weddingss today for a bit to keep me occupied nothing like counting in chair covers and sashes ready for the next wedding but will keep me occupied .Cant seem to sleep at mo been like this since diognosed in dec .Hot flushes dont help .hows everyone doing that has just started would like to keep in touch .lindax
Good morning ladies. Still writing this from my hospital bed - been here a week now and bored stiff ! Still on IV antibiotics in the foot and antibiotics in the hickman line. All getting a bit tedious even though the staff are very nice. Looks like wed 2nd chemo will have to be postponed. Mortified about that as just want it over with.
Hope your first chemo goes well on Wed Cassa and you have stocked up with rennies
Ruth, hope your parents are doing as well as poss and you can enjoy your sisters visit.
Glad one of us has escaped Linda and sounds like you are coping really well Sheryl.
All the best to everyone and make the most of his glorious weather.
Best wishes Gill
I am having 4 x FEC, 12 x Taxol, radiotherapy then Tamoxifen for 5 years. I have my 2nd session on Tuesday 20th. I also had the cold cap like Sodasteam and agree, if you can bear the first 15 minutes it is fine. The actual sesison is relaxing and I just read and watched tv and the nurses are really nice too.
I bought Cordysol mouthwash and bonjela for the sore mouth if you get it and lip balm. I have found eating little snacks rather than meals better for the digestion too. We all react in different ways, I would just say listen to your body, nap if you are tired and drink loads of water to keep hydrated.
Let us know how you get on , good luck xx Ruth xx
To look at your PM's just look at the top right hand side of the screen and click on 'Messages'. Your PM's should be in there.
Linda happy birthday for yesterday and sorry to hear that your in hospital, hope you and Gill are out soon and able to enjoy your familys xx i seem to ahve lost a day yesterday it was a normal day footie with little one, housework and shopping (i dived in and out of small supermarket rather than sainsburys) and then a girly afternoon watching the football followed by a chinese from my trustworthy chinese ( i rang them and explained and they were happy to prep everything fresh for me). It was a great day. Hair still moulting but apart from tinny taste all is good.
Ruth So sorry to hear you cant get to your mum and dad but what a good idea doing a video message 🙂 Let social services help out and good to hear your sister going to be here soon so she can help out, you need to keep as well as possible. Sending big hugs to all of you not well and in hospital or just feeling horrid.
Sheryl how are you today?
Im doing 3 cycles of FEC then 3 x tax, i have chemo once every 21 days with blood test the day before
Have a healthy happy day girls Lucia xx
Good Morning Everyone !
Hurrah ! First full nights sleep since having my first chemo on April 29th and first poo where I can honestly say stools rather than diahorrhea lol, sorry to be so graphic ! So advice on a high energy foods intake seems to have done the trick.....plain white bread and rice, plus potatoes with no butter sauces etc.
Lets hope it is not going to be a cycle situation as I have my next FEC on 20th May. Period also seems to have finally stopped after 2 weeks too.But the skin infection surrounding my portacath scar doesnt seem to have shown much sign of disappearing despite anitibiotics, so the chemo nurses will sort that out hopefully.
I hope you are all doing ok and wax2014 and gmc lets hope you are both on the mend xx Ruth xx
Ladycroft, Thank you for your support, I am steering clea rof visiting da din hospital, but my daughter hit on the idea of recording a video message from me on her mobile to play to dad when she visits him 🙂
Sodastream, Thank you for your support and wishes too.I have my bloods done on the day I go in for my chemo session, then the chemo and then sit there for a further one and a half hours with my horsey helmet aka cold cap on, so all told I am there for 4 hours.
Keep your peckers up girls, glad to be able to chat to you and shar eour thoughts.
p.s can someone give me the facebook page to add please? 🙂 xx Ruth xx
Happy birthday to you, happy birthday to you, happy birthday dear Linda, happy birthday to you !
Sung from one hospital bed to another.
Love Gill x
Sheryl, my first set of chemo is also FEC every 3 weeks with a blood test the day before like Jan. On day 17 now. I am to have two further FECs then start my second set of chemo being weekly Taxol for the following 12 weeks (with a blood test the day before). Followed by 18 sessions of radiotherapy which I am going to have when we come back from Florida (which we hopefully will be able to go to). Then Tamoxifen for 5 or 10 years, can't remember which.
Sorry to hear so many of us have ended up in hospital - sending hugs to everyone, especially Linda for your birthday.
Added stress for us is having to appeal for a school place for Annabel as she didn't get a place where all her friends are going. These things are sent to try us! Lorraine xxx