Just been for blood test before 2nd lot of taxotere and my onc has delayed it for a week and will reduce next lot. I had such a rough two weeks after first lot, bad pains , blistering to hands and face and very sore heels .
Heel on left foot still bad but I can walk about now. Looking forward to feeling normal for a while .
Glad you had a good time in Cornwall Ruth, hope they can sort your tummy out or you'll disappear on us!
Quite a few of us in the Fb group have had similar reactions to tax ,hopefully next lot won't be so bad.
Hope the rest of you are coping well and stay out of hospital!
Take care xx Jan
I am back after a lovely 2 weeks relaxing in Fowey. My 2nd week wasn't so good as I had the dreaded diaorrhea, so stayed close to the loo in our apartment 🙂 But I was able to sit on our balcony overlooking the estuary which is very busy and quite enjoyed the rest 🙂
I have just had my 1st Taxol today..one of 12 weekly ones so 1 down 11 to go 🙂 I saw the oncologist the day before I went away and he says after the Taxol I will be having 5 weeks of radiotherapy in mid October. He also put me in touch with a dietician who is coming to my home this Friday to see if she can devise a diet of foods not likely to irritate my stomach. I still have my hair and will be continiing the cold cap throughout the Taxol, but my eyebrows have almost gone 🙂
Wax2014 the portacth involves a mini op to have a port inserted under your skin, mine is near my right armpit.They were struggling to ge tinto my veins back in March and I was recommended it so went for it.It was fitted under sedation and will be removed after all the treatment. I hope you enjoy Cornwall.
I hope everyone else is ok and getting through the treatment?
XX Ruth xx
Hope everyone has managed to enjoy some beautiful weather today.
Had my 1st Tax yesterday and all seemed to go ok. No allergic reaction and the portocath seemed to do it's job. The specialist who put it in wouldn't let amyone else access it. I guess as I've now had 2 line infections they aren't taking any chances with this new one! Feeling very tired now but thankfully not had the sickness you've had Sheryl.Sorry you had bad news Zonda . Anything that delays the end of this treatment feels traumatic. I too have to have further surgery after this chemo as didn't have clear margins. Disappointing but at least I knew at the time and the information wasn't sprung on me like you've just experienced.
Linda , I hope all is well with you and that things are progressing ok.
Best wishes, Gill
Got some bad news today. The surgeon who did my lumpectemy in April said, at the time, that the clear margin after surgery was very tight but decided that with chemo and radio therapy it would be ok. She rang me today to say she had changed her mind and wants to make perform more surgery for a bigger margin when my chemo is finished in September, before radio therapy. Does it ever end!?! On the bright side, I would prefer surgery to more chemo any day.
Sodastream, I have not yet tried the frozen condom. I have not figured out how to make it narrow enough yet!!!
Glad today gave you some comfort Linda. I can't believe your sister didn't even ask how you were.The lady vicar sounds lovely . Don't sign up for that plot just yet - we haven't got this far without a hell of a fight!
Sheryl, your condom tip made me laugh! Wonder how she judged what size to buy!
Getting nervous about tomorrow when I have my portocath inserted but it's a means to an end hopefully.
Goodnight ladies , Gill x
Shouldn't watch "Long Lost Family" - just makes me cry!
Linda, you have been going through it you poor thing. These side effects are the pits and I think most of us feel we can't go on sometimes. I'm dreading my next chemo - should be on Friday - 1st one of the Tax part of FEC T. The girls on the facebook group are really going through it too. With "only" 2 more sessions to go the end is in sight for you but it's everything that goes with it too. Plus you have the added stresses with your family issues - insensitive sister! Don't worry about negative feelings - we're only human and on this forum we can at least be totally honest. Sending a big fat hug x
Zonda- good to hear from you and I too HATE CHEMO! At times it is all consuming . It is good to be able to have a rant on here sometimes. Try asking Dr for something to relieve the pain down below as some creams on prescription have an analgestic which numbs the area- I speak from experience!!! Gave up my dignity some time ago!
Having a portocath put in on Wed but with sedation this time. Hoping it will go some way to prevent another infection but nothing guaranteed. Seen enough of hospitals recently!
Goodnight Ladies, Gill
Hi All. I have been lurking here for a while but felt like posting this evening. It is so good to read that I am not completely imagining things. I was wondering if I was becoming incontinent with all the peeing and constipation rather abruptly becoming diarrhea. Forgive this next bit please, but my hole is sooo sore from it all!!! And at the last session (my 4th on AC) the nurse was very lucky to find a vein for blood tests and for the canula. I had thought all these things were just me. I am dreading my next session in just over a week. Like everyone else, I have never felt such a lack of energy. Regarding taste, food is leaving me very unsatisfied so I am over eating. Sometimes I think that if I could throw up it would be better.
Thank you all for posting here. These are things I am not comfortable talking to other people about and it is good to know I am not a freak, these things are happening to other people too. I expected the pains and discomfort but not the digestive issues.
I absolutely HATE chemotherapy.
It is quiet ! I haven't posted because I've been feeling rubbish, I think as the chemo is cumulative I seem to have had more side effects this time, although they are presenting themselves more slowly. I had usual constipation for the first few days that quickly turned the other way for three days at the end of last week ! I have mouth ulsers which I've not had before and the usual loss of taste which this time came on more slowly, it acutally took till this weekend for it to disappear completely. My cuticles are sore and red in places and the fatigue and hot flushes are worse too.
Sorry to sound 'doom and gloom' but I am really fed up with it all now to the point that I could say no more I just want to feel normal again. I'm scared of going next week to play hunt the vein as both arms are now really painful /bruised and swollen but the oncologist is not interested in a line as I only have two sessions left.
Tomorrow we finally lay dad's ashes to rest as we have been waiting till the plague/stone was ready so I'm not looking forward to that....my so called 'sister' will be there, the one that treats me like I have a cold rather than BC and since the rows about Mum moving in with them hasn't spoken to me anyway.....
Well I've got it all off my chest , sorry for the negatives just hoping I can post something more positive soon........Linda x
Very quiet on this thread for the moment. Hopefully that's a good sign that everyone is coping OK and enjoying this lovely weather. Very noisy in my neck of the woods as I live next to Farnborough Airport and there's a lot of practicing going on for the airshow. My cat's very upset about it as the jet's worry her!
I'm enjoying being home and will probably go back into hosptal in the next week or so to have a portocath fitted.
Have a good weekend ladies, Gill x
Sorry to hear about your flushes ladies. Glad to say mine are over now as was put into early menopause when taking Tamoxifen years ago. Should be going home tomorrow after 11 days here. Can 't wait. So looking forward to seeing my cat and the garden.Will just have to ignore the state the house will be in as Ian won't have had any time to do any housework between working and hospital visiting ! Back here on Thursday to discuss line options 're future chemo. Have a good evening. Gill x
Thanks for the insurance advice and I will definitely check that out. Prices don 't sound too outrageous. The wine glass breakage sounds like it was the last straw in a tough time. Sometimes it can be small things that set us of and anything with sentimental value is particularly upsetting to lose. A big old hug though was just what you needed and it's a release to let the tears flow sometimes. Goodness knows we've all done it at one time or another.
These aches and pains sound just awful. Hope you feel heaps better in the morning ladycroft
Goodnight for now ladies , Gill.
Well day 5 of first Docetaxol and I can honestly say I've never felt so bad.Every bone and joint aches and i feel like I've been run over .Just about to make it worse with second injection too. Stayed in bed since9.30 last night but too sore too stay longer, codeine not working either and massive indigestion .
Sorry for the moan but i wasn't expecting it to be this bad so soon .
I know how you feel about the holidays. We had one booked earlier in the year and I was mortified to have to cancel it. Hoping to be able to get away somewhere in the UK after chemo and before next surgery but it's not quite the same. When I had breast cancer previously we did go abroad on hols the following year and our travel insurance covered everything except a pre existing condition and I believe that was only for 12 months after ward's. Will have to do some checking. Managed to go home for few hours yesterday between treatments so feel a little more human and hoping to do the same today. Husband at grand prix so can go and play with the grandchildren.x
Thanks Linda. Glad your session went well in the end and only 2 more to go. Isn't this vein thing tricky.fingers crossed for you , rest well and hopefully you can start crossing the days off til your holiday. Have just had a stomach scan an d all well with my liver so it obviously enjoys my usual alcohol intake prior to all this stuff. All the best, Gill x
Still in hospital and could be for some time. The doctors have said the hickman line needs to come out and I am to have some scans to check if infection has travelled elsewhere. Feel so well it's hard to understand there is a problem. I am climbing up the walls here and no-one can tell me when anything will happen so feel totally out of control. A portocath has been mentioned but they have no specific funding and would have to apply which is long process. All delaying my next chemo which should have been tomorrow ! Moan over - at least it ' s a sunny day .All the best to everyone, Gill
Wax, just dropping in from the February thread to tell you about my portacath. It's a little terminal that they put in under the skin, sometimes in the arm but usually just under the collarbone, with a catheter inserted into a vein, so there is nothing protruding from the skin at all. It is accessed for chemo by use of a special needle each time (just a prick like an injection) then the whole chemo thing is plain sailing: they plug in a canula and put the chemo in through that with no searching for a vein. The portacath is put in with a general anaesthetic (though I've heard of it being put in under a local, which sounds bad news as it takes a while) and then removed when chemo is finished, leaving a small incision and a sore patch (mine only came out a week ago...) But the whole time it's there you can bathe and shower normally and with nothing protruding there's no risk of infection. If not used for 4 weeks it needs flushing through, but with 3-weekly chemo sessions that wasn't a problem. The main difficulty seems to be that NHS hospitals don't often offer it - cost implications, I guess - so you would need to ask. But it is highly recommended - at least by me and my oncology nurses!
Hi ladies. Still here with little hope of escaping just yet. Infection is in the hickman line again so they are deciding how to treat it this time and the wheels grind slowly. Very frustrating. I think most of us like to plan ahead and it comes hard not to be able to. My surgeon suggested a reduction on other breast to match what the other breast will look like by the time he 's finished with it. I am going to need a lot more discussion about it when the time comes. Could look very odd with tiny blobs ! Hope everyone keeps well and out of trouble.
Well I had my last FEC yesterday...a three week gap now until I begin my 12 x weekly Taxol.
GMC - I hope you are recovering well in hospital, or even better back home 🙂
Wax2014 - I hope you get the full blood count results you are hoping for. Have you thought of asking for a portacth/picc or hickman line to be inserted, rather than have this ongoing battle with your veins? I feel for you,as thats why I opted for a portacath. In the early days my arms were beginning to look as though I was going 10 rounds with mohammed ali on a daily basis ! I have my oncology appt this coming Friday, presumably to discuss the next stage and I have a list of questions for him too !
I hope everyone else is doing ok? xx Ruth xx
Hi ladies. Writing this from hospital as admitted Sat with high temperature. Seems I have an infection so having anti robotics through hickman line. Gutted as 4th chemo should have been Friday and now delayed at least a week. Queried why this should have happened again as been so so careful to avoid germs Tec and was told thAt the bacteria we all have in our bodies can turn on us. No chance to avoid that then ! Hope to get out asap but no idea yet. This doesn't seem to get any easier. Glad some of you are feeling better and get well soon to the others.
Hello Everyone 🙂
Wax2014 - Am I right in thinking that you have just had your 3rd FEC too? I am due to have number 4 and my last tomorrow. Like you, I have found as the sessions have progressed, I have been more and more tired, experiencing for the first time what real fatigue can be like. For me, the worst has been the digestion and diaorrhea problems, still experiencing them now. I see my oncologist for the 2nd time this Friday so will discuss all with him then.Also suffeirng problems with a very stiff neck both sides so not sure what is causing that ! I hope you fele better soon, I definitely feel much better my 3rd week, it is like a cloud lifting regaridng tiredness but still have to watch what I eat.
Sodastream, It sounds like you had a tough time at the hopsital, it must be so annoying when people confuse you with different information, I found that when I was ringing th ehospital asking for advice on what to eat and what to avoid anf got told so many different things, I have worked it out for myself really by trial and error !
Ladycroft, loved the concert thank you 🙂
I hope everyone else is doing okay? xx Ruth xx
Hi Rith glad you enjoyed the concert , I'm looking forward to my next few good days, seeing my son doing a showcase of his own songs in London on Sunday then Monty Python on Tuesday. I hope your next lot isn't as bad and I start my 4th lot next Wed doxetaxol so we'll see how that goes. Hope you enjoy your holiday and are ok for it xx
I am on cloud nine today, after seeing George Benson last night. He was brilliant and really lifted my spirits !
I took a packed lunch to our hotel in the end to be on the safe side, so we ate tea in our lovely room 🙂 Breakfast was ok as I was able to have my usual namelt white bread toast with marmalade 🙂
Wax2014 I have my 4th and last FEC on July 1st and like you I am not looking forward to it as my side effects have been the same every time, but slightly worse each time, namely the bowel and digestion problems and the fatigue. I still have my hair to date as I have been having the cold cap, but I did get it cropped short in readiness 🙂
Hope you are all doing well xx Ruth xx