Well GP wasn't much help re fatty liver. He just said diet and stop eating rubbish, which is what I have been doing since starting chemo at the end of April lol ! My taste buds have been and continue to be weird so I tend to eat what I fancy rather than what I should be eating whoops !
GMC - I asked when my portacath would be removed and they recommended waiting until after my first mammogram next March, which seems an age away, but I guess it makes sense to wait until then. I will have to have it flushed every 6 weeks though. I hope your feet improve soon.
Sodastream- Yes, it does make sense to me to continue with the remaining 4 chemo sessions and I hope you are doing ok.
Pixie - Are you having 12 weekly Taxol? A break every 3 weeks seems like a good idea. I was doing fine on mine until week 9, then I seemed to hit a wall and experience all side effects in one wallop 🙂 The nurses told me alot seem to hit a wall at week 9/10, but if you have been having breaks , hopefully you won't 🙂
So its hi ho hi ho its of to chemo I go today at 11am, it will seem odd returning after a months break, but I feel like a pro now with my bag packed with my kindle, snacks,water and I have already looked to see what is on tv at the time I am there as I need the tv to focus when the cold cap first goes on 🙂
It is a long path we are all travelling, keep your chins up ladies 🙂 xx Ruth xx
Good evening Ladies
Hope everyone is well.
How did you get on today at the Dr's Ruth? Good luck for the chemo tomorrow too.Sheryl your family fb group slimming club sounds a good idea. My weight yo yo's at the moment and I'll have to do some serious exercising soon.- once the feet have improved.Ladycroft , I spoke with BC nurse today about my feet and she said they definately will get better but it can takes quite some time! Linda, Sorry your arm's a bit sore for the rads but thanks for the tips . I may try the Volterol for my arm too - seems I have developed cording! Ladycroft - what a way to celebrate your birthday,last rads and a hol in France -home of bubbly of which you will have to pour a glass or two! !!!
We're off to Sidmouth for 3 nights on Thursday - hence the change in the weather but will take the necessary clothes. I was meant to have my portocath removed today but it was cancelled first thing. Bit frustrating but it's just been postponed til next Wed when I go for my pre op tests.
Take care everyone, Gill X
Sodastream and Ladycroft - I have already discussed at length the pros and cons of continuing with the last four chemo sessions versus the long term damage on my bodys digestive system. He strongly feels that as I had 10 lymph nodes affected that were removed, plus the surgeon who removed them expressed surprise at the amount of lymph nodes affected, considering the small size of my lump ( 8mm ), they are both very keen for me to have all 12 Taxol chemo sessions.
I am off to my GP in a tic to deal with my fatty liver on the advice of my oncologist, lets hope it doesn't mean yet more hospital appointments and that ti can be controlled by tablets and avoiding certain foods 🙂
I am have my chemo tomorrow too so its all appointmetns here this week !
I hope everyone else is doing okay xx Ruth xx
Morning girls ,
Ruth -hope your last chemos go ok but I agree with Sheryl ,talk to your onc first. I still have numb feet amlmost 7 weeks on.
Sheryl I too have put on loads about 10-12lbs since Feb, I was doing well on SW too. I have been eating everything you can't on SW.cheese , butter ,bread more cheese etc so not too surprising. Will make areal effort after rads end next Friday, 3/4 's of the way done 5 more to go.
Sodastream - I am about to have my 4 remaining chemos from next Tuesday, after a months gap. I saw the oncologist last Friday and although my toes are still tingling and numb he wants to steam ahead but monitor it obviously. Good to hear you are able to do your exercises 🙂
I can't remember if I told you all the results of my CT scan from the other week as my brain is so addled at present. No evidence of cancer, but the chest pain I was experiencing is due to a conditon called fatty liver disease which has developed since my last scan in the summer, plus a small hiatus hernia too. No surgery required but simply to watch foods I am eating and lose weight, although this wekend I have felt sick and been in alot of pain where my liver is located, so seeing my GP tomorrow. My diet has been so awful since commencing this chemo treatment as I have had so many stomach problems ! I was on the high energy diet for the FEC for 3 months which consiste dof potato/rice and bread ! So I am not surprised my body is protesting 🙂
Hope everyone else is doing okay xx Ruth xx
Hello Ladies, hope everyone is looking forward to the weekend. After today I will be 8 Rads down with 17 to go! It's easy compared to chemo just the travelling and waiting around makes it tiring.The only thing I have found so far is that I haven't as much movement in my left arm as I thought I had after the mx, the position they put me in with arms above my head can be quite painful but I have managed by taking paracetamol before I go and rub voltarol on my arm aswell, seems to be working ok.
I also started taking Tamoxifen and almost felt like I'd lost the plot last weekend , had a complete meltdown..cooker and head came into the conversation just felt that I couldn't cope anymore and was so emotional. I stopped taking the clonidine tablet that the doctor had given me to control the hot flushes and things have improved on the emotional front although I'm back to crying at the drop of a hat. I also feel like an old woman, aching back, kness and anckles. After reading some of the other ladies experiences of this I am going to try and switch brands , see if that helps. It's not going to be much fun if these side effects last for the next 5-10 years of medication.
I'm off to the boob microwave now... looking forward to a Friday night glass of Red later ( not good for the hot flushes - but I'm not giving everything up !! ) xxxxxxx
Sodastream - You sound in good spirits, I am glad all seems to be going ok 🙂 When I had the drain in under my arm, it stayed there for 10 days and I was draining upto 70ml per day ! I was carrying my bottle around in a little shoulder bag they gave me . its surprising how quickly you get used to it, although I did forget about it a few times and dragged it behind me.
GMC/Ladycroft/Zonda - Yes the numb toes are a nuisance, interesting that none of your chemo was delayed but mine has been, I will ask oncologist why this Friday. I have been delayed by 3 weekly sessions at the mo, which is frustrating to say the least as in turn it delays my 5 weeks of Radiotherapy beginning. My ankles, feet and legs beneath my knees are all swelling up daily too. I am having to lay on the bed or levitate my feet to get the swelling to go down.
I just want to get all this treatment done and dusted now, but for me I still have 2 months or more in total.
I don't understand why we aren't all tested for the BRAC gene as whether the breast cancer is in the family or not, it must start somewhere surely? With two daughters I would prefer to be tested to safeguard them, but I am told that only 5% of cases are due to genetic issues and that the test is only carried out when there are other cases within the family.
Ah well keep your peckers up ladies ! xxRuth xx
Ruth, I haven't seen an oncologist since before my last chemo. I have mentioned the numb feet all the way through the docetaxol but no-one seemed too worried so it wouldn't appear to be going to delay any further treatment.My hopeful end date is delayed because of a couple of stays in hospital for infections . Also got to have this port removed before breast op. May know a date this week for the breast surgery.
Jan - glad you have a trip to France to look forward to. Once I have som e confrimed date i will be doing some serious planning.
Sheryl - how are you feeling a couple of days on from your op?
Zonda - it'll be no bad thing to be full of anti-biotics when you have your op. At least your body won't be at risk of any infection problems.
I'm having to wear a finger condom as one finger nail is coming away but is still painfull when it catches on things. About 3 others are almost in the same state making it an absolute bugger to do up buttons or undo the foil off milk bottles etc. Worst of all I can't do my bead work - very frustrating. I've plastered them with nail polish in the vain hope that it helps them to stay on a bit longer and give the new nails underneath a chance to grow!
The weather here seems to have changed but hope it's better where you are,
Best Wishes, Gill X
Sheryl so glad your op went well and nodes were negative,
Ruth ,my feet are still numb and my left ankle keeps swelling up
Gill good news about your scan and hope your op goes well
The 50 mile trip is ok we can do the lot in 2 hours dep on traffic on M25 ,I'm halfway through my 20 treatments (last one is on my birthday!) and left boob is a bit tender and very pink ,have put on so much weight though that my clothes are tight .am wearing those bras with no wires or fastenings which are a beggar to put on as they twist but very comfy .
Hope the rest of you ladies are getting through ok ,I'm planning my trip to France for the week after last rads and I can't wait to get there
Hope we do have an indian summer .enjoy the weather ,not looking forward to the cold x
Sodastream glad to hear all went ok with your op 🙂
GMC - Was your treatment delayed because of the numbness in your toes and feet? Seemingly this is what is causing my treatment delay, the oncologist isn't happy with the prolonged numbness, he doesn't appear so concerned with the other side effects I am experiencing, i.e the fatigue/swimmy head to name a couple.
But we soldier on, no other alternative I guess !
xx Ruth xx
GMC, no she didn't say how long my immunity will be compromised and I didn't think to ask but my next surgery will be six weeks after my last chemo. She said I will get loads of antibiotics and they will be monitoring me closely for infection. I also have to have someone with me to sign in and out of the hospital and be prepared for an overnight stay. The surgery is a day operation. The first op I had I was not told I needed anyone at all with me so I assume the high risk of infection is the reason for needing a carer.
Sheryl, I had the drain after my second op. I second the sofa, Xfactor and/or Strictly. Maybe add some chocolate.
Ruth, what a pity you have the delay but it is best for your body to be able to handle the Taxol. You know that anyway, I'm sure, but it is still a bummer. How weird to have numb toes, and you GMC, you poor things.
Good evening Ladies
Looking forward to Strictly tonight - and Sheryl it sounds like the sofa and x factor is where you should be too. Hope you are still feeling comfortable. Did they give you a little handmade shoulder bag to keep your drain in? At Frimley we were all given a heart shaped cushion and a drain bag made and donated by volunteers.
Great news Ruth about your Ct scan and sorry to hear about your hernia. I ,too, have numb toes and also the soles of my feet are numb and painful at the same time (which doesn't make any sense). Hope it doesn't last too long. It's so frustrating to have any treatment delayed isn't it as we build up a finish date in our heads!!! I thought I'd be done by Christmas but seems highly unlikely now.
Trish - happy to hear you've finished chemo and sympathise about the tiredness. Did your surgeon give you any idea how long our immunity systems are compromised for?
How did you get on with your radiotherapy Linda?
Jan, hope you are getting on OK with yours and the journey isn't getting you down too much,
Best wishes to all, Gill x
Sodastream - I hope your op went well xx
I saw my oncologist yesterday with ct scan results. No sign of cancer for now and no blood clots. But I have developed a hiatus hernia which would account for chest pain and breathlessness according to the oncologist anyway. I think I may have caused hernia lumping furniture about whilst having my massive clearout and springclean not so long ago whoops ! No surgery required just adapting food and taking gastro tablets.
He still doesn't want me to have remaining 4 Taxol until my existing side effects have cleared up as I cannot feel my toes at the mo ! So my taxol will now delay my Radio which was due to begin November and finish before xmas which is a nuisance. I see him again next Friday for dates to resume chemo.
Hope everyone is coping ok xx Ruth xx
Well, I had my final chemo on Sept 3 and have been waiting impatiently to be better since. My son, who had a knee op on Sept 10, has an exercise bike to help his recovery so I hopped on thinking I would start regaining my fitness. After a half hour of slow cycling I had to stop. I was so tired I had to have a lie down! So next I decided it was time to start riding my horse regularly and get back my riding fitness. Again, after a half hour I was as weak as a kitten and had to get off, go home and have a lie down. The next day I was so stiff and still very tired. I also tried dieting to lose the weight I have put on during chemo. Needless to say, I have not been very successful there either.
I am riding twice a week as this is the most I can manage and hope to try the cycling again but maybe for 15 minutes at a time. I have put the diet on temporary hold. I have just realised it has only been just over 3 weeks since the last chemo so I suppose I am trying too much too soon.
More surgery on Oct 15 and my surgeon told me that even then my immunity will still be very compromised by the chemo. No sign yet of hair growing or of pins and needles in fingers and toes going away but I have started sleeping all through the night which is an improvement. However, I am beginning to think the hot flushes must now be all menapause rather than chemo.
Keep smiling, everyone still on chemo. It won't go on for ever and you will feel so happy when it ends.
Good luck Sheryl, will be thinking of you. Hope the time goes quickly before you have your op. Meeting up next May sounds a good idea. Bone scan results were fine yesterday so was much relieved . My op should be in a couple of weeks hopefully. Also have to have portocath removed. Hope everyone is as well as possible and enjoying this good weather,
Take care, Gill
Morning Ladies, how are we all today?
I'm at work..last but one day till I finish and I just want to leave now. I had some lovely flowers this morning from our Pipe Fitters !! A lovely surprise and thoughtful for men !.
We finally moved Mum into my sisters at the weekend although her house sale is still lingering on, but at least this way she can begin to settle, she hated being all alone in the house at night and I wanted her moved before my radio started as I won't be able to visit her daily as I have been doing since dad died in April.
I must share my milestone with you ... I had to shave my legs or rather shins on saturday and arm pits..1st time since May. It's coming back thick and fast, I have a full head of really soft fluffy hair albeit really grey although no way near enough to take off the hats and scarves which I am getting fed up of. I haven't worn my wig much as I just don't feel comfortable in it.
Jan - so sorry you lost your Mum, it's an emotional time for you in all respects so take time out for yourself, I know I haven't really had time to come to terms with losing my dad so suddenly earlier this year, as most of my time has been taken up with treatment, it was only after my chemo finished that the tears and realisation began and I'm still battling with it..
Ruth - Hope your CT scan goes well, let us know how you get on, I can understand your comments about your Dad and him not understanding what you are going through, I too have a brother in law that survived a cancer diagnosis, so everytime I have a treatment or issue it is compared to what he went through although it is completely different !! It really is annoying.
Gill - Hope you are well and get your operation date confirmed soon
Sheryl - what a good idea with the blog.. writing it down must help and I am with you about remembering what we have been through and what we will go through. It's been a hard journey and will, no doubt, change us all and our outlook on life. Too many of the people around us just expect us to go back to normal and forget, but we know it won't be that easy..
I start radio on Wednesday, the next part of my journey. I will let you know how I get on, i'm really getting jittery as I don't know what to expect when I get there, but I'm sure it will be fine..
GMC - Thanks for the info on classes.
Sodastrem - I am glad they have brought your surgery forward, try not to worry and let us know how it all goes, I wish you the very best of luck.
My Dad is a very self centred person, when I told him that the oncologist had concerns and as a result I am being sent for a ct scan his reply was : Well I have had prostate cancer for 17 years so I don't know what you are worrying about mine is worse than yours ! My siblings and I are all totally fed up with him since he broke his hip in May. He tells me I am not doing enough to help !! He has never experienced chemo so doesn't understand the side effects and the tiredness that comes with it. I found myself losing it with him and saying look on the bright side Dad, if I get bad news next week you will have had 34 years longer on this earth than I will have had. I know I shouldn't have said it but he tries the patience of a saint at times. xxRuth xx
Hi Sheryl, the discharge from the nipple must have been very scary and I'm so pleased they may get you in even earlier for your op. I do think we're very lucky in this area to have such good hospitals. Good luck tomorrow,
Take care, Gill x
Ruth - the hospital where I will go for rads has a unit where they do all sorts of therapies including the "Look Good Feel Better" one that I went on. This is a nationwide charity and if you put the title in google you will come up with their website. You can then put your post code in to find out the nearest venue to you where they hold the classes. Really worth doing.
Hope everyone is getting on as well as poss. I had line care on my portocath today , maybe for the last time as surgeon wants it removed before he operates which could be mid oct.
Not a very sunny day here but hope it cheers up for the weekend.
Best wishes, Gill
Wax2014 - I am supposed to be having a further 4 Taxol. But after seeing the oncologist today, hes not happy with all the side effects I am currently experiencing i.e numb toes, light/swimmy head, but particularly the breathlessness and pain across my chest wall, so hes sending me for a ct scan at Mount Vernon next week and I am seeing him again next Friday.
Sodastream its interesting that you say you felt things were not right and worried about cancer returning, as when I asked the oncologist could the chest pain be a sign that the cancer has returned to which his honest reply was we shall see what the ct scan results yield but try not to worry, which of course I will. My initial diagnosis was an 8mm lump in my left breast, the lump was removed and the margin taken was clear.However i did have 10 lymph nodes removed with cancerous cells which is why they chose to hit me hard with all this chemo. The pain I am currently experiencing is under my right breast so we shall see. Good luck with your surgery.
Ladycroft - Thanks for the info regarding Mount Vernon and I hope you get on ok with your radio.Mine will be delayed now until it is decided what will happen with my remaining chemo sessions. I was supposed to be finishing chemo 7th Oct, having a 3 week gap then commencing my 5 weeks of radio at the beginning of November. So sorry to hear you lost your mum,
xx Ruth xx
Hi Ruth, I finished my chemo on 20th August and am about to set off for my 4th of 20 radiotherapy sessions at Mt Vernon, if you bring your letter with you ,you can buy £1 tokens for the car park and if you park in car park B it's nearest the reception .plenty of space . Just hard to find from the postcode they give you. My appts are between 2 and 3 as my husband works nights and this way we miss the rush hour (coming from Luton jct9 and then M25) request a time that suits you if you're not going on hospital transport. We've done the return trip from2 to 3 1/2 hrs dependent on traffic .
My fingernails have all gone and toes going same. Nail underneath is very ridged and thin so they'll probably have to grow out twice .Everything seems to be returning to normal except my feet are numb still and sore knees. Not looking forward to taking Anastrazole for 5 years as causes brittle bones and menopause side effects. Been there done that already,but now wondering if me taking black cohosh for it then instead of hrt could have contributed to cancer.Just found out my great grandmother died from it and my 2nd cousin on her side had it too.
Hope we all get through the next leg relatively easily x Jan
PS to cap a crap year so far I lost my mum last week.
Good evening Ladies
Good to hear everyone is either finished or close to the end of the chemo nightmare.
Ruth, I hope you feel loads better soon and can understand how you feel your body's had enough now. With a bit of luck the oncologist will suggest that it's time to stop that side of the treatment.
Linda- good tip about getting a few items on prescription as I hadn't thought about that.
Sheryl - hope you can do some really enjoyable things in the next few days before your op - as you say, fitted around all the other appts! Still, good news that the actual op will be behind you in less than 2 weeks.
If you ladies haven't yet been on a "Look Good Feel Better" master class I can thoroughly recommend it. I spent a lovely 2 hours playing with skin care and make up and came back with a goody bag that must have contained at least £200 of quality goodies.
Have now lost 2 toe nails!
Take care everyone , Gill
Ruth, sorry to hear that you've hit the 'wall' with your treatment, it really does sound like your poor body is saying enough is enough.. how many more are you supposed to be having? Listen to your oncologist and weigh up the pro's and con's of continuing ...ultimately it will be your choice. I finished at 5 FEC's and although I'd wished I'd got to the end, after speaking to the oncologist it just didn't make sense to carry on as she said I'd had most of the benifit from it anyway.
I'm still struggling with aches and pains and Hot Flushes at night which are depriving me of sleep, I'm exhausted most of the time. The doctor prescribed Clonidine which is supposed to help reduce the amount of flushes and is not hormone based , it's in the same group of medines as blood pressure tablets.
I also took my shopping list and got free prescriptions for Replens and a huge tub of E45 ready for my radiotherapy next week.
It is quiet on here , I'm hoping it's because you other ladies are enjoying the sun and getting out and about ??
Wax2014 - Your side effects sound exactly the same as mine ! I also have the ridges over my nails and they have become very brittle. My joints ache too, plus I tire so easily regardless of how much sleep I have had and my head is swimming and I get dizzy spells. Up until now I have got off lightly with side effects other than stomach problems when I was on the FEC. When I went for my 9th Taxol yesterday, because I had so many side effects, the nurses were not happy to proceed and rang the oncologist who suggested I had this week off. I am also seeing him Friday, as the nurses said most people tend to hit a wall on the 9th or 10th weekly Taxol, which is what I have done. It will be interesting to see what he decides as th enurses said sometimes he calls it a day a few sessions earlier. I also have tingling and numb toes and fingers and a sore right foot.I think ym body has gone on strike after constant poking,prodding and drugs for 7 months to date 🙂
I too will be having 5 weeks of daily Radio beginning in November at Mount Vernon North London. Its in a very congested area traffic wise and apparently terrible to park. Someone told me if you are a cancer patient visitng daily, they give you tokens for the carpark>? I will look into this as it would save me £80 plus !
I hope everypne else is doing ok, there are not many posts here since my last post? xx Ruth xx
Just catching up with all your posts, hope no one is too grumpy today I am 7 weeks post Chemo now and feel like an old woman ! I have aching bones and my nails too are very brittle with what look like moon shaped ridges across them, hope this doen't mean that they will come off? Seems like the side effects go on for some time after the treatment has stopped. I went for my planning meeting yesterday at Coventry ready to begin Radio on 24th , we clocked the miles at 38 each way and took roughly 45 minutes to get there. My appointment was at 2.00pm and I was back in the car by 2.15pm ! A very long way to go for such a short process and I have to do this daily for 5 weeks ; I also got my tatoo's , I did ask for a butterfly and a dolphin but just got dots !!It did 'smart' somewhat though ...
I've had my redundancy notice, another kick in the face is that they are making me take all my accured holiday during my notice period so they don't have to pay me.. I have checked and they can ! .. luckily it's worked out ok as when the radiographer handed my start appointment it was for the 24th and my last day at work is on the 23rd !!! So good timeing in the end; although I could do with the cash !
Next step is to sign on for ESA and I'm planning to take a break , if money holds out until the new year. I don't think I'm in the right frame of mind to start looking for another job, I really couldn't face an interview etc with no hair.
It is growing back although very grey but so soft, Jemma said I reminded her of Roxy - (we had a grey guinea Pig !!)
Enjoy the sunshine and for those still in the grips of chemo and it's SE's I'm sending a huge hug, it does (slowly) get better....xxxxxxxx
It's difficult to drink enough when everything tastes foul isn't it? I will try to up my intake before appt tomorrow in case of probs with my portocath too!
As I've had such painful fingertips I've rubbed Bio oil into them for weeks now but sadly doesn't seem to have made a difference. I now have a toenail hanging on by a thread and I have a foam sleeve on it to protect it from snagging all the time. I think It's only a matter of time before a fingernail goes the same way - aaah !
Hope the tummy improves soon,
Best wishes, Gill
I hope everyone is ok and we are allowed to be grumpy 🙂 I know I sound thick but what does SE stand for?
I had my 8th Taxol today, four remaining now. They struggled to get bloods today via my portacath and rapped my knuckles for being dehydrated again. Curiously, my hair has started growing back and I am still having the cold cap each week.I havent had my hair cut since May.
I ve had an upset tum for past 2 days again, not sure whats causing it.
GMC - the nail thing sounds nasty, mine have become very brittle,have you tried rubbing a cream on them?
xx Ruth xx
Good Morning Ladies - lovely sunny day which is always cheerful.
Sheba, sorry to hear you've had an overnight hospital stay but sounds like you've recovered well. Great news re your scan results and the reassurance from the RT team.
Jj1981,your BC nurse sounds brilliant. All we need at times is some straight talking and explanations as I don't know about you but my mind goes into overdrive and can blow things up way out of proportion. can't help it at the time though. At least now you've got a few weeks with some of the worries taken away and can recover further before your op.
Sheryl, sorry I got confused re your appts/surgery. I am very easily confused these days - blaming chemo but prob age! Good luck for your next appt and hope you hear everything you want to hear. I have appt tomorrow with consultant/surgeon to discuss the further surgery.
Zonda- you sounded in a really positive frame of mind . Hope all went well with your son's knee op.
I'm on day 12 followingmy very last chemo and still have no taste buds or energy. The SE have been quite severe this time and my feet are still really painful and the skin is peeling like mad. My fingertips are numb but the nails are really sore and look like they may well come off.
Ruth and Linda- hope you are both as well as can be and enjoying a bit of an Indian Summer this week.
All the best to everyone, Gill X
just caulght up with everyones news it seems a lot of us are feeling grumpy and fed up with all the treatment etc it certainly takes its toll and just seems never ending. I finished my last chemo on 22 Aug. and the SE's weren't quite as bad as last time but I have just had my first stay overnight in hospital with a mild infection which really depressed me as you see so much suffering there and I felt guiltyf for moaning when so many people are in much worse pain and situations
On a good point I had a ct scan prior to radio therapy last week and it was all clear the staff at radio therapy were brilliant explaining things and really put my mind at rest regarding the reasons for so much preventative treatment. I felt really good for a few hours but it doesn't take long for the doubts to return I think I need almost constant reassurance that things will be ok and of course nobody can say that.
HOpe everyone has a good day to day.x