First Radiotherapy done and dusted so 1 down 24 to go 🙂 Although I found Mount Vernon lacking in explaining things such as what products to use on skin, I did find them really efficient yesterday. Although I thought I would lay on a bench get zapped for 10 minutes and it would be over, but the session actually took 45 minutes as they took a long time arranging me into a very uncomfortable position, then popped in and out saying most of it done now !
Although I whinged about having evening sessions the parking was a delight ..Loads of spaces, but the downside was getting caught up in rush hour which doubled the time of our journey home. Hubs and I ate dinner prepared by our lovely daughter and promptly fell asleep lol.
Ladycroft thanks for the tip re parking tokens and the booking in card as well.
Wax2014 sorry to hear of your loss.
Hoping everyone else is doing okay xx Ruth xx
Good Evening Ladies
Hope everyone is ok and looking forward to the weekend - especially those on rads who will have a 2 day rest!
Had a lovely morning this morning with Sheryl and we chatted for hours. It was great to meet face to face.
My portocath wound is healing now and looks to be infection free so all being well my op should be on Tuesday. Still on anti-biotics so fingers crossed nothing goes wrong this time!
Ruth, no-one has suggested a flu jab to me so will investigate that after the surgery as it seems a good idea as immune system would still appear to be compromised.
Ladycroft and Jj1981 - how are you geting on with your new pills? I'd been on Tamoxifen before so they'll give me something different this time but not sure what yet. Linda, I hope you can work out which brand suits you best. I must have been fortunate as no side- effects other than those brought on by the blocking of oestrogen and triggering of menopause. Glad my routes for rads won't be anywhere near as far as you've had to travel.
Take care , Gill x
Ladycroft - I have bought my 25 parking tokens already, thanks for the tip re booking in card, I will ask for that on Monday. We gave our c/park ticket to someone as we left, as it cost us £5.20 and we only there for half hour! It said in the letter we could be there for upto half a day 🙂 I have to say no one at Mount Vernon told me about creams and not to use deo etc, so I am finding out through trial and error here and through another few pals going through bc too. Whta is Anastrazole>? I havent been told I will be put on any further meds after Radio? I asked to change my appts but they wouldnt let me saying I would have to delay my treatment to do so which I didnt want to do at all.
Sodastream - I cannot remeber now who told me not to colour my hair, it was way back at the beginning as they also told me not to blow dry or use stying products.Also not to use nail polish on any nails, so I was a good girl and listened and as I still have my hair and all nails I guess it must have worked...I ve gone grey though so roll on next year when I can dye my hair once more 🙂
Everyone, t you for your good wishes, I just want to get going now on Radio and cross one day off at a time, then in Jan I am having my portacath removed, so I have to have it flushed every 6 weeks in the meantime. I had my flu jab yesterday as I was told not to have it whilst on chemo.
We are getitng there ladies slowly but surely :)) xx Ruth xx Good Luck all
Hi Ruth, I got my appts changed at Mt Vernon as my husband works nights . Make sure you get the parking discs (£1 each) you'll often find people leaving will give you their car park ticket. Also ask the reception for a booking in card ,this'll save you lots of time when it's busy .
I was in LA9 for most of my treatments and they were all lovely. I finished my treatment on 10th October and it took a good two weeks for the 'burns' to heal. You tend to meet the same people in the waiting room at all different stages and different types of cancer- really brings it all into perspective,but we found them all to be upbeat and friendly .
I'm now on anastrazole and didn't start it until afer the rads. I thought I had enough going on without needing more side effects
Good luck x
Well I had my planning meeting at Mount Vernon today, The journey is a 54 round mile trip...more than I thought, Hubs and I got there in half an hour.............then spent a further half an hour trying to park it was absolutely diabolical !!!! I was late for my appointment as a result but then went straight in for my scan, given my timetable to begin November 17th, finished by December 19th, we were on our way home within half an hour ! So 5 weeks of stress to look forward to, especially as all my appointments fall during evening rush hour...oh joy !
I had a tattoo done to mark areas on my boob...whatever that is, then got called back in for them to take further photos.
Sodastream...when I asked re hair colouring I was told in no uncertain terms not to use any dyes on my hair until all my treatment is over? No wonder we get confused with all the different advice we are given !
I am also about to start my 5 year prescription on Tamoxifen, can thid be taken whilst having Radio? I have received conflicting instructions regarding this and need to calrify with my oncologist I think 🙂
My hair is growing back fast very curly and fluffy...it is usually dead straight, I never did lose it all, it just thinned out a bit.
I hope you are all doing okay, I can't even see the lighnt at the end of the tunnel just yet with the 5 weeks of radio looming xx Ruth xx
Good evening ladies
I hope you all had a good weekend and ready for another week although as I'm signed off til jan 1st all the days seem the same and I never know what day it is! Lost track of the no. of times I've put the bins out in error!
Linda, I really hope you hear some good news from your scan and good luck if you use Sheryl's dye. Mine isn't really long enough yet to worry too much but I will be using it if it's too grey. You really were down on the 5th but sounds like you're feelijng a bit more upbeat now. We are all too aware of having those dark days and this forum is wonderful for sharing those feelings . Love the response from Ladycroft - ting a ling a ling!!! Still wanting to move to France Jan ?
JJ1981 - glad to hear your numbness comes and goes as mine is constant. Hope for me that it will go sometime?
I guess your radio starts soon Ruth. Good luck with it and hope everything is going along smoothly for you. Will you be done by Christmas?
I'm still on anti biotics to clear up the infection in the wound following the removal of the portocath. If it's ok I'm pencilled in for my op on the 18th but I'm not holding my breath ! Heard last week that the dental surgery where I work 2 days a week has been sold but they hope it will still run in the same way. Not sure the new owner will want to keep me on their books as long term sick! Really hope so but I can't see me working again til after rads and no idea when that will be!
Sheryl, you must be starting your rads soon too. Hope you had a great holiday,
Take care everyone
Hi Linda , I know exactly how you feel.If I hear one more person say ' you can put it all behind you now and get back to normal' ,I'll either deck them or go into meltdown! It's the same when I go out with wig and makeup they'll say 'You look so well!'
I know it's hard for some to understand but it is frustrating as we don't know if we are cured or not. I've had some really down days recently ,it's been a month since treatment finished , having to face going back to work with people I've heard nothing from since I left in Feb and losing my mum 2 months ago ,I just want to pack it all in and go and live in France !
Hope your scan goes well and chin up (in my case since the weight gain it's 'chins'lol!)
AS long as we have an outlet for our fears and frustrations we'll get through one way or another.
That reminds me of a song,no not Blondie,but Benny Hill...
Now if you're feeling miserable, if you're feeling blue,
Here's a little ditty that'll help to pull you through,
All the clouds will disappear, the grey skies turn to blue:
Just stick your finger in your ear and go ting-a-ling-a-loo.
Now suppose you've got the fell pest, the gout and goose's cough,
A severe attack of hiccups and your kneecap's just dropped off,
The surgeon says "We'd operate, but the anaesthetic's gone,"
You just look up and smile at him and say "You carry on."
"I'll stick me finger in me ear and go ting-a-ling-a-loo,
Me finger in me ear and go ting-a-ling-a-loo,
I'll just be like Nelson at the Battle of Waterloo,
I'll stick me finger in me ear and go ting-a-ling-a-loo. "
love and hugs to us all xx
Hi Ladies !
Chemo done and dusted it was a really weird feeling I can tell you ! The nurses and I had hugs and kisses and I gave them a card and a huge box of biccies for looking after me so well. I will see them now and again as I have to go to them to have ny portacath flushed every 6 weeks until it is removed, which wont be until January 2015 at the earliest. I think they were concerened about me going to Radio with an open wound.
Blimey Radio sounds quite onerous with broken skin and blistering>? I knew skin got sore and only certain products can be used...I was worrying more about the daily round trip of 40 miles plus trying to park once I arrived there !!! Thanks for the tip re cool pads, I hope to get ahaead of the game and get these products in place at home before my radio begins after a 2 week break.
Thanks for all your good wishes ladies and I hope you are all coping okay as well xx Ruth xx
Brilliant news Sheryl. I'm soooo envious but truly happy that you'll have all the treatment behind you by Christmas. How lovely to start the New Year with all that treatment behind you after all you've gone through.Probably means we won't be going to St Lukes together but I'd be happy to come and meet you for a coffee sometime.
Ruth- hope you're feeling OK after your FINAL CHEMO. I know you'll be better able to celebrate once a few days have gone by but isn't it a great feeling to know you haven't got to have yegt another cycle.
Jan - I still have numb feet and it's really annoying. I have bought a pair of "Hotter" shoes and boots as the soles are really supportive and as comfortable as anything can be right now!
Linda - well done for getting through the rads . Good luck with the last one tomorrow and glad you are getting some relief from the cool pads. I shall have to remember that when my time comes! When I had rads 11 years ago the only relief was from aloe vera gel so it seems there are a lot more options nowadays thankfully. Linda- you asked what my op is and it's to remove about a third of the breast as surgeon didn't get clear margins back in March . He'll make good the reduction to match other smaller breast.
I'm seeing the consultant tomorrow so hope to get some stronger anti-biotics to clear up this infection. The District nurse has told me to eat lots of honey as it's nature's natural anti-biotic.
Have a good evening ladies , Gill X
Yippee! Well done Ruth ,have a good rest after this . The radiotherapy is nowhere near as tough. Just the journey (50miles round trip for me ) and the sore patches. If your skin does blister badly and break ask your doctor to prescribe Actform Cool pads they work better than the Polymem that Mount Vernon give you as they are a gel pad not just a sponge and obviously more expensive . My doctor had never heard of them !
My feet are still numb 10 weeks after last taxotere and i need to lose the weight I've put on but my hair is coming back and I had a great time in France last week
Good wishes to everyone on here it seems we are seeing a bit of light at the end of the tunnel x
Good Morning Ladies
Good to catch up with your latest news.
Will definately be thinking of you on Tuesday Ruth and raising a glass to celebrate the last chemo given to you and the last for all our chemo thread ladies! I always enjoy going to Portsmouth - especially Gun Wharf keys for the harbourside restaurants. I was at Teacher Training College in Portsmouth many of years ago but it's all changed so much!
Sheryl, Hope they manage to squeeze you into an appt with rads so the process can be kicked off asap. How lovely to be going to Malta. I've been a couple of times and would happily go back again.My hus band really enjoyed seeing all the old British cars they still drive in! I loved the old city and windy streets with quaint shops. Fascinating historically too if that interests you - or maybe you've been there before too?
Linda, I really applaud how upbeat you're sounding when you've still got a fair bit in front of you.How's the treadmill regime working out? I've been quite down recently as I'd thought all my treatments would be over by Xmas anad could start the New year with a clean slate!
As I know I may still have cancer cells in my breast due to lack of clear margins last op I haven't used the USED to have cancer option when talking to people. I still say I'm having treatment for breast cancer.
I can't tell you all how bloody fed up I am with this infected wound. I've got no idea how long it will take to improve but may have more of an idea next Wed when I see consultant. The district nurse came out yesterday to dress and pack it and it's quite uncomfy. The hole is about an inch in diameter so could end up with an impressive scar - as if I haven't got enough already!!
No sign of rain so far so hope to have a drive out somewhere, a walk and maybe some lunch out - although tucking into a doughnut right now! Appetite back !!!
Take care girls, Gill X
Blimey what an accolade the longest running chemo babe lol ! 🙂 I guess 6 months is a long time 🙂
Its interesting what you say about how to talk to folks about the cancer diagnosis. I must admit once I had the lumpectomy in March, from then on I have always said I HAD cancer but now receiving treatment to ensure it doesn't return 🙂
Yes not a big gap between chemo and Radio beginning, but I lost September to cancelled sessions of treatment so it set me back a bit.
Inbetween, we are going to Plymouth fir a couple of days, to visit our daughter who is at uni down there, plus hoping to organise my xmas gift shopping, as I want to get it all done incase radio affects my energy levels 🙂 Its been a funny old year all told and I cannot believe 2014 will soon be over, I seem to have been on my own little planet for the bulk of this year ! xx Ruth xx
Wax2014 - Yes, last chemo on Tue 28th October.
A 2 week break then its driving upto Mount Vernon every weekday for 5 weeks for radio, which will take me upto xmas. Its a round trip of 40 miles for me each day and it was supposed to begin sooner but I had 3 chemos cancelled in September as I was suffering from too many side effects.
After radio finishes, I then don't see anyone until March, when I have my 1st mammogram and get the results from a follow up appointment with my surgeon.
I hear that only certain products can be used on skin whilst undergoing Radiotherapy and yes I had heard that the skin gets sore and also you can also be very tired, but I have been really tired throughout my 6 months of chemo anyway, so I am used to that 🙂 Good luck with all your future appts.
I hope everyone else is doing ok as well xx Ruth xx
Hi GMC - So sorry to hear of your portacath being removed causing you problems. Interestingly, when I had mine put in back in April, the scar just wouldn't heal at all for a long time, even now its one of three scars due to cancer and its the smallest but most obvious one.
They want to take mine out when I finish my chemo next week , but I am going to ask the oncologist when I see him next week if it can be delayed until next March and just have it flushed every 6 weeks until then. Then SHOULD my mammogram result not be good I won't have to go through another insertion.
I hope everyone else is doing ok, the cehmo nurses said they will put bunting and balloons out to celebrate me finishing my chemo next week, as I have been going since April, with a months sabbatical when I hit the wall. I asked was it because they are getting rid of me or to celebrate finishing with me but they just laughed :)) xxRuth xx
Like you Linda I am going through a bit of a wobbly time!
Successful day, despite the NHS strike, as had pre op tests and the portocath removed. Happily that was a painfree process although a little sore now the anaesthetic has worn off.
Ruth - cording is when a tendon in the arm heals following lymph node removal, but it heals badly and forms a cord along the lenth of the arm. This either improves in time or can be cut surgically. All the best for your chemo tomorrow- nearly there !
Sheryl - I'm having more margins cleared (about a third of the breast removed) and a reshapeing of that breast to make a better match with the other smaller one! The surgeon has warned me that as he'll be repositioning the nipple there is a chance that it might not "take". Time will tell. It does sound like we may very well be at St Lukes together for radiotherapy but if that doesn't work out we can always meet up for a coffee when it is convenient to us both. Hope you find somewhere lovely to book for a break and try not to worry too much about the Tamoxifen. I was on it for 5 years and had no problems whatsoever. I really wish I had been kept on it for longer as feel it may have kept this cancer in the other breast away.
Thinking of you Linda and hope to hear from you soon. It's so good to be able to let of steam on the forum without worrying about being negative as we have all had periods of feeling down and sad.
Very best wishes too to all you other ladies on this thread.
Hope everyone is progressing as well as possible,
I am not sure what 'cording' is? Fingers crossed for all those about to have surgery or awaiting test results. Sodastream you are so right, when I was waiting for the results of my CT scan its such a scary uncertain time and it felt like a weight being lifted when they told me no signs of cancer at the moment.
I have Taxol number 10 tomorrow, after that it will be 2 more to go. My feet are a bit numb again but I am going to keep quiet this time as I don't want any more delays in my treatment. Going to chemo sessions hasn't been particularly onerous, but I imagine 5 weeks of travelling to Mount Vernon each weekday will be quite trying, with the weather/traffic, then trying to park there each day.
Keep your peckers up ladies you are all doing so well 🙂 xx Ruth xx
Hi Linda, sorry to hear your new problems. As if you haven't had enough to go through! I really hope they fast track your tests so you have as little time to worry about things as possible. We'll all be keeping everything crossed for positive results. I, too, have developed cording but doesn't sound as severe as yours although the BC nurse said when I have my op in just over a weeks time the surgeon can cut the cord that is a problem. Not sure about that though as can cope with it at the mo and I don't want to add to the healing time before rads.
Apologies to everyone as I have posted here recently but it seems to have disappeared into the ether!!! Hope you are all doing OK. Having a few days in Sidmouth, Devon and luckily the weather is great. Can't do too much walking as feet still very sore and legs a bit weak - but I can manage the cream teas - not to mention the G & T's now my taste buds are better!!!!
Take care everyone, Gill X
Chemo went ok for me yesterday, although in my brain addled state when it was time to switch the cold cap machine off, I couldnt find any of the nurses, so I forgot to switch it off to allow time for the ice on my head to melt and levered it off with difficulty whoops ! I usually find side effects tend to hit me at the weekend.
Sodastream - I keep hearing about these feel good courses re applying make up etc and to date I havent been given any info about them? Whether it is because I am currently at a private health hospital I don't know, but my 5 weeks of radio will be at an NHS hospital so perhaps I will find out more then.
Pixie - I had 10 out of 11 lymph nodes affected by caner cells so that is why they ar ehitting me hard I am told. A recent CT scan showed no cancer but did show a fatty liver as I have said earlier to the other ladies. I had to laugh when I went to my GP and he said diet as I have lost 2 and a half stone since beginning chemo ! I am dieting without having to try these days 🙂
Those of you who have finished chemo and now on Radiotherapy have you moved onto the Radiotherapy group on here or have you stayed where we are? Just wondering 🙂
I hope everyone is doing ok xx Ruth xx