Happy birthday Lainie for last week. I am just reading all the chat and there is so much to take in, everyone is going through such a tough time.
Off for afternoon tea with a twist (cocktails - I hope) with a good friend so I guess this is my pre chemo meal. Trying to get ready and put a bit of make-up on but suddenly burst into tears thinking about pre chemo visit tomorrow, I really need to pull my self together.
Think I will ask about a pic line as I really don't like needles.
Hope everyone stays strong this week and we will get through this.
Hi Julie I came out of pre chemo chat feeling shattered my head was pounding with all the information to take in. Had blood test and they checked my veins . Apparently they are rubbish so I will b having pics line put in. Was told to buy sleeves from Boots does anyone no if u can get them from doctors surgery? Having heart scan on 7th Oct AT 7PM yes 7PM and we don't drive we don't live to faraway but will have to get taxi. Hope everyone not to bad. Suexxx
Hello all, I'm Kerena, 49 married and with three sons 17, 16 and 5. Supposed to be enjoying a career break when I was diagnosed on 9th July - same as Petra. First diagnosis was invasive lobular ER+, HER- , had a mastectomy and node clearance finding a whopping 15cm tumour, also in 2/31 lymph nodes (none of which had shown up on my mammogram!). A few weeks later had a second diagnosis in my other breast of invasive ductal 7mm ER+, HER+ (also didn't show on mammogram) and had WLE and sentinel node biopsy.
Like Petra I have been delayed due to tests and scans and 'something on my bone' (and two lots of surgery), 3 weeks ago it was confirmed that I did have a metastasis to the bone, but since then I have been told they are not 100% certain. Have not done a bone biopsy, so now I am living with this huge uncertainty about whether I am stage 4 or not. Currently still going ahead with chemo on 6th Oct, FEC-T, but that might change at the last minute.
Keen to get on with it, but right now I wish I could just know if I am stage 4 or not.
Well Peta I might as well jump on the wagon:
Name Melanie, age 47, married to Terry for ten years, 4 children one daughter and three step sons, two grandaughters and one grandson. Live in County Durham.
Diagnosed middle of August with grade 2 invasive ductal cancer, 3 out of 11 lymph nodes were possitive, ER and Her2 positive.
Masectomy on 26th August.
Start fec-t on 1st October (6 rounds) then 18 rounds of herceptin.
Today I am ok but probably have a bit of a wobble on Monday when I need to go for my pre chemo visit.
We will get through this together x
If I am due to start my chemo on the 1st October am I too late to have a flu jab, does it not give you a mild cold and will that not then delay my treatment.
Lovely to hear from ladies who are through the other side it gives us all hope and comfort.
I got a sort of filo fax from the Macmillan website (came in a few days) and this seems really handy as wou can write all your apointments in it and also your medication. Think I will need it as I don't seem to remember much at the moment.
If anyone does go onto the Macmillan website (which is great) and orders anything be careful as I ended up with 25 cookbooks, not sure how that happened, will take them back to there shop and appologise x
Hello all, just had my start date confirmed as 6th Oct after lots of delays(FEC-T), so a bit scared, but quite keen to get on with it now. I asked about a flu jab and my oncologist said it was a good idea by the way (ie before treatment starts).
Thank you Louise3721 for dropping by with a few kind words, I think it helps all the newbies to be able to think ahead.
Good luck to all those having treatment this week, and hope others are starting to feel a bit perkier after round one.
Morning everyone, I too start chemo next week and am feeling very scared after some horror tales from one of my colleagues at work. Not knowing exactly what to expect is the worst of the worries and also coping with my husband's anxieties. I'm glad to have found this forum so that we can all support each other. Here is something that I found on the Ravelry (you'll know what that is if you are a knitter!) Knitters with Breast Cancer group page.
“When you first start this journey you join support groups for the support. As you move forward you will give back to the new “sisters” going through this journey. That is how it works. I am sure that I speak for all of us when I say it is our pleasure to hold your hand. We are each eternally indebted to the sisters who held out a hand to us when we started.”
I found this thought very helpful as in the end everything, however difficult or unpleasant, passes and it is that idea which helps the most at present.
Best love to you all.