Hi Barb - my new ‘messy’ pixie cut has turned out OK – but a bit of a shock after years of having a carefully styled and straightened bob. Doesn’t really look like me in the mirror. An unexpected benefit has, however, been the hilarity that ensued this morning when I was discovered to have the MOST impressive bed head.
GeeG, I’m with you, wig on order and it will quite possibly be an improvement on my usual. If I find it comfortable I’m thinking of buying one or two more (cheapy ones), just to mix things up a bit. I’m also in the under 50 camp, and from Edinburgh. I do hope our wigs help keep our heads warm for the Scottish winter! I didn’t go back to work yet after surgery – my office is based off a clinical unit in a hospital and I didn’t want to risk picking up any bugs that might derail starting chemo. I’ve been working from home though, so haven’t truly escaped.
Junash, I had heard the ladygarden goes quickly – aargh! I haven’t dared tackle the armpit jungle on my affected side yet, so fingers crossed that also drops off sharpish. Silver linings and all that.
Hoping the weekend goes as well as poss for all of us. x
Thanks SO much everyone for such a warm welcome and for the positive words and advice. Murphy, you are doing so well despite your phobia.
I have been "cooking for chemo" and shopping for weeks now and the cupboards and freezer are full of what I THINK I’ll be able to eat. Including loads of soups. And of course biccies!
So, my plan is now to try to not work myself up over the weekend and to stick to my guns to get as much pharmaceutical support as necessary on Monday.
As the conversation has turned to hair… in two hours (and counting) I am getting a pixie ‘do’ so that there’s not so much to come out. As I am not exactly pixie-like in build or appearance I may well regret the decision but I just thought “might as well”. And once it starts to properly go my SO has volunteered to buzz the rest off for me. Which reminds me, must buy some elastoplast…
Thanks so much for your quick response!
Alas, Emend is only on the "Additional" list of the local Formulary which means it is only "approved for use in specialist units when formulary drugs are ineffective, not tolerated or are contraindicated". The consultant already said she'd order me "the good stuff" (which I presumed was Emend) but can only do so IF I am really unwell the first cycle.
Needless to say, I would rather NOT start off with a really horrible time, as this will make the anticipation for the remainder cycles all the worse.
I'm such a coward when it comes to illness - maybe one day I'll learn to "woman up"
I thought I’d join, if that’s OK.
First FEC cycle due next Monday 13th.
I thought I’d got over my phobia of ‘all things medical’ after going through surgery but found myself sobbing after the needles for the heart scan. Oh dear.
My main fear/terror for the chemo is not being able to control nausea & vomiting, but despite voicing this to every health professional I’ve seen all I can get out of them is “might not happen”. Right, but what happens when it DOES? I need at least the illusion of control over my own illness/treatment LOL
In my neck of the woods they give you the steroids plus one kind of drug (they wouldn't even confirm what!), but no additional "just in case" drug - I really, really would like to have something extra on hand for peace of mind if nothing else, but it seems that is too much to ask for.
Any advice from those who’ve already started would be very much appreciated.
Welcome Tanz, and sorry you had to join us. Hopefully you will be able to pick up some tips from the lovely ladies here.
I did the cold cap on Monday - took paracetomol before I left home and althought the first half an hour was uncomfrotable by the end of it I was telling them that it had stopped working as I couldn't feel the cold anymore (it was still cold). Had it on for about 4 hours in all and didn't find it too bad.
Day three has been a bit of aslump for me so had a duvet/TV day, hoping for better tomorrow
Another vote for lemon and mint riccola sweets here too
Good to hear that you are all coping well with the first dunk, my advice for food would be like i did, eat whatever you fancy and when you fancy it! Yes i put 2 stone on whilst on chemo but my GP referred me to a local gym after treatment where i got a preferred rate and i lost it all in 12 weeks.
Don't worry about weight at present just concentrate on eating what you feel like. Apart from the wig i got on the NHS, i also purchased a couple from a site on Ebay and depending on mood, chopped and changed them about although at home i went 'au naturalle' - scared the postie a couple of times when answering the door lol!
For wind and burping i found mint tea helped and also sucking aniseed sweets although i was still pretty bad with it lol!
take care xx