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Starting chemo October 14

Junash
Member

Re: Starting chemo October 14

Hi all,

I had hair buzzed today - was falling out in handfuls this morning - run my hand through it and just soooo much coming away. Scalp been tingly for a few days but sore last night. Honestly, I've had lots of tears this morning but met group of good friends and they shaved it for me and I feel so much better - felt like a black cloud lifted. I'm day 16.

A tough morning - feeling a little drained !!! Xxx
Peta
Member

Re: Starting chemo October 14

I'm on day 13 like Lainie - I miscalculated! X
Peta
Member

Re: Starting chemo October 14



So hair...

My head is dead itchy, but I don't seem to have shed a single hair yet. I keep counting them. πŸ˜‰

By my reckoning I'm on Day 12.

Has anyone's hair fallen out yet? If so, on what day and did it just all fall out in clumps and disappear over a couple of days or was it more gradual?

My head is so itchy something is definitely going on, but it all feels very firmly attached at the moment.
LainieG
Member

Re: Starting chemo October 14

Hi everyone. I really admire you ladies who've shaved your hair before it goes. I'm too scared. I'm leaving it until the very last moment. It hasn't started falling out yet but I'm expecting it every day. I've bought some hats and scarves too. They're very fashionable just now so easy to get and it'll be nice to wear lovely scarves. I'm on day 13 now and feeling good. My energy is building. It is good to know that after the first week it gets easier. It'll definitely make it much easier to cope with the first week in future. Good luck everyone and stay well xxxπŸ’ž
Peta
Member

Re: Starting chemo October 14

Good afternoon everyone

I'm feeling really well at the moment, I'm going to cope much better with this that I thought if I'm only poorly one week in every three. Like jingo and Bettypoppit, I'm eating for Britain at the moment, I'm trying hard to keep it all healthy though and seem to have cravings for those tiny tomatoes the size of grapes. Yum.

Thanks for the H&M hats info Jingo, I'll go and have a look tomorrow when I take this huge pair of M&S pyjamas back. Why do M&S stuff always come up so BIG nowadays? I really can't be bothered to try things like PJs on in store.

Zelda good luck, it does sound like they're taking really good care of you, I hope it all goes well.

GeeG good luck with your first tomorrow, I hope you've been reassured by all the postings, I've been really surprised at how well I feel now in the second week, so hope you feel good soon too!

Linzz it's good to hear you've done your first, I found the first week hardest, but really not too bad, so take it easy and keep us updated, it's so good to hear how everyone else is doing as we go along, I find it so reassuring to hear that we are all feeling the same.

Sue, I was held back for ages because of my mystery hole in my femur and the bone biopsy, so I know how you are feeling. That was the worst, most frustrating and most emotional bit so far, so if you feel sad or mad or ratty then don't blame yourself, waiting is such a hard thing to do and you have every right to get annoyed and frustrated. I hope you get there as soon as you can, the docs do sound like they're looking after you and I was told too that a wait doesn't effect the outcome, it just feels like it should and you just want to get on with it I'm sure. Anyway, I'm thinking of you. Xxx.

jingo_x
Member

Re: Starting chemo October 14

Morning ladies - just like Bettypoppit I am on day 10 and feeling like superwoman, lots of energy and cooking and eating for Britain.

Still doing what I can to hang on to my hair - supposed to be doing it for my 5 year old, but he seems very excited about it falling out!  Just picked up a very glamorous blonde wig from the hospital as my back up though.

On the subject of hats and scarves just wanted to mention I popped in to H&M yesterday and they had a lot of soft beanie type hats and long, patterned scarves reduced to Β£3 each so I stocked up!

 

Hope everyone is doing OK this week xx

bettypoppit
Member

Re: Starting chemo October 14

Update: shaved head = the fastest 'wash & go' of all time....brillient πŸ™‚ πŸ™‚
bettypoppit
Member

Re: Starting chemo October 14

Morning lovely ladies:) day 10 for me today...reporting that day 9 for me was like being a 1950's housewife on 'speed' with the appitite of a carb munching monster! πŸ™‚ πŸ™‚ lolol. Seriously tho, we are all different but for me i will chill out more on the duvet day's knowing that the fog lifts and that the bonus is that I will get my energy AND motivation back to get going again πŸ™‚ Had an hours amble with my lurcher girl in the cold but dry outdoors yesterday lunchtime....such a tonic.
One thing i need to watch, as ii haven't been drinking enough last 2 days (t & c don't taste right) is that i think I'm a little dehydrated. ..woken with a very dry mouth and a headache.
One last thing, head shaved yesterday morning...ive chosen to get rid ahead of it going on it's own, and although i did burst into tears when i first looked at myself - for me it was another "this really is happening to me' moment, i perked up and i did what any self respecting girl has to do..... i went internet shopping last night lolol. Turning any opportunity i can into an opportunity to feed my shopping needs πŸ™‚ i found a couple of very nice stretch jersey beanie hats (Β£4.50 each) on a website...'bohemia' (i think). They are winging there way to me as we speak πŸ™‚ i truely don't mean to sound flippant as i like wearing hats, i had short hair to start with, im no 'girlie girl', so for ME, this is a good way to go....half cup full. For a lot of you lovely ladies, this will be FAR more difficult and i send you big big big hugs....we will get it back remember πŸ™‚ πŸ™‚

One last thing, just 2 (20mg) tabs taken and omeprazole has done the trick re acid reflux πŸ™‚

Have a good day lovely ladies xxxxxx
LainieG
Member

Re: Starting chemo October 14

Oh Sue. It's rotten that you're having such a hard time but Kerena does make a lot of sense. It must be so hard for you but better to know that you'll be physically ready for the treatment.

Zelda good luck for tomorrow and I'm glad they're being more careful with you. We really are lucky to have experts looking after us and ensuring the treatment is right and is tailored to our needs.
Love to all xxx
geeG
Member

Re: Starting chemo October 14

Hi Everyone - I think you are so right, Bettypoppit - we have to psyche ourselves up for every tiny step as well as psyching ourselves for the whole caboose … not at all easy … especially when you find you need to support other folk as well…. It does help so much when specialists / experts share the current research and present understandings of cancers … like the broad picture indicating that outcome basically depends on the nature of the particular cancer. Like metastasis - some cancers metastasize, and some don't… if it is one that does it may give off mets really really quickly, and again any delay is less significant than it feels… So - really good if you DON'T have mets - but really not the end of the world if you do… (I shall still be really relieved when chemo starts and something is being done to control the armpit met(s) - and shall be so relieved once we get to the Other Side of these treatments…)
Anyway, it seems that the treatments take effect on the particular cancer we have, and these frustrating delays that get us so scared really have very little effect on final outcome. I guess that is really good for folk who get a late diagnosis.
Good to catch up Ladies - I now seem to be hitting "The Wall" - so I guess I'd better get to bed. Pre-treatment clinic tomorrow and first dressing change for my Hickmann Line, then first chemo Thursday …
Hugz to Everyone … x
bettypoppit
Member

Re: Starting chemo October 14

Hi Zelda, well done you for taking the next step...I'm sure you will do well and your care team now know you need extra tlc to get you through...you are one strong lovely lady πŸ™‚ gently taking each step as it happens you will get through this and BIG BIG hugs to you for tomorrow xxxxx
Zelda
Member

Re: Starting chemo October 14

Hi Everyone My next FEC is tomorrow at a reduced dose and I have the Amend to take beforehand really hoping I won't be ill this time The Oncologist feels it is better to have a further 5 doses at a reduced dose than have to stop it altogether because of illness. Because I was very sick and neutropenic after the first dose it is quite likely this will reoccur only it could be more dangerous next time.Hoping everyone else is coping ok xx
bettypoppit
Member

Re: Starting chemo October 14

Hi Sue456, that's sooo pants that you are continually being pushed back and back - i think its difficult for those on the 'outside' to understand how WE talk ourselves up and up to get ourselves ready for the next step of treatment and if that's whipped away it can be devastating and emotionally draining. (I nearly punched my OH's lights out this morning when we were running late and he suggested we could come back another day... grrrrrr, see, no idea and that was just to have my hair shaved off ;))
i think Jingo-x talks great sense that in the end you will be better able to deal with the chemo when you are truely ready for it. I think feeling down and miserable is part of the deal at times too (i had an afternoon of it myself yesterday and so went internet shopping lol). I'm sure it will all come good for you really soon..keep us all up with how you are...it's what we are about and look after yourself in the meantime. Hugs xxxx
jingo_x
Member

Re: Starting chemo October 14

Hi Sue, sorry to hear they keep pushing you back.  I know how miserable you must be feeling about it.  I had my surgery back in July and unfortunately my temporary implant didnt heal and I had a lot of fluid build up for 6 weeks + it just got worse every day.  The surgeons kept looking at it and saying 'lets leave it a bit longer', but as every week went by I kept thinking I was never going to get the all clear to start chemo and I was at my most miserable.  I felt defeated before I had even started.  Had my surgery re-done on 5th September and second time around I healed ok, and got underway with chemo on 6th Oct, five weeks later than originally planned.

I was reassured by the oncologist that in the grand scheme of things the delay wasn't significant and now I feel I am back on track.  I was also able to start chemo knowing that I was physically ready for it.  

I know the delay is frustrating and upsetting and no-one around you will understand that, but you will get there and soon you will be back on track 

love and hugs in the meantime

Kerena

sue456
Member

Re: Starting chemo October 14

Hi ladies   im so down over all this ive tried talking to hubby but he does not get. Went to c surgeon again today hoping to get the all clear for chemo, but no once again I still have FLUID it's really getting to me now. Have to have it drained on Thursday which is same day as im having pics line put in but doable in same day so I think. But no I get phone call from chemo unit to say surgeon thinks still not right time to have it. Sorry for rant dont no if im coming or going any more. Sue

LainieG
Member

Re: Starting chemo October 14

Well done Linzz. First dunk done and you're on the way.

I don't know whether I could have got through this so well without all the lovely ladies on our forum. Just reading all of your stories makes me feel less isolated. I feel I've made a lot of fantastic new friends. πŸ’•πŸ’•
Linzz
Member

Re: Starting chemo October 14

Day 2 (counting dunk as Day 1) and I’m feeling remarkably well. Which is a pleasant surprise. I didn’t feel greatly well last night but have been taking my meds as instructed (didn’t wait till next day as was told I could start one of them as soon as got home if I wanted, which I did!) and managed to combat the worst wobble with the surprisingly effective slowly-nibbled-cream-cracker.

 

I’m finding it very interesting to hear how things might progress as the days go on, thank you everyone.

 

Snapper58 – hope you have a super lunch today Robot Happy

 

Bettypoppit and Murphy – a friend of mine went to a hypnotherapist a few years ago with her pal to try to stop smoking. Her pal was very sceptical, but my friend was very hopeful that it would work. The pal was puffing away by that same evening. My friend has never touched a ciggie since. The moral of the story being, as you are both open to this kind of therapy it really might just do the trick. Good luck!

 

Lastly, when they weighed me yesterday I was 66.6 kg –a portent of the impending demonic apocalypse I think Robot Mad

bettypoppit
Member

Re: Starting chemo October 14

Hi Murphy1963, how you doing? A friend gave me a hypnotherapist's name and we spoke a couple of weeks back....i really felt like we got on so I'm toying with giving it a go (although as always my OH is sceptical). How was your experience? What actually happens? I've learnt a lot about my 'needle phobia' these last couple of weeks in particular and I'm quite hopeful that i can move forward in dealing with it, with the right help.
Hope you are doing ok and I'm confident and have all my fingers and toes crossed that you will get through the next few days a little easier πŸ™‚ πŸ™‚ πŸ™‚
Big positive hugs xxxxx
bettypoppit
Member

Re: Starting chemo October 14

Hi geeG, I'm with LainieG. ..my experience has been similar. Feeling 'ok' day 1 and into day 2, then downhill and feeling a bit yuk until day 6 when feeling on the up..day 9 today and my appitite came back from the brink yesterday. ..with a vengence lolol
i would also strongly recommend to keep up your fluids AND take the meds (right from the word go) as the clinical team advise.....I'm convinced that made all the difference for me (although as others have said, we are all different). I also felt the need to snack on simple sweet and savoury biscuits which I've been raised on, to stav off nausea and again - for me, it seemed to help.

πŸ™‚ πŸ™‚ πŸ™‚

Hugs and good vibes to all xxxxx
LainieG
Member

Re: Starting chemo October 14

Hi geeG. I've been counting the day of chemo as day 1. Not sure what others are doing. I found the day after treatment ok but the next few days got gradually worse. That's when I had dry mouth, which got steadily worse and I felt under the weather but not really ill. Today has been my best day so far. Just feeling a bit tired but energy levels definitely on the up. I think everyone's experiences have been different tho. You just have to wait and see. Make it easier on yourself by drinking lots and taking all your meds. Xxx 😚
geeG
Member

Re: Starting chemo October 14

Hi Gang! Love to y'all!

Thank you for all the personal reports about your day 2 (or is it 3? - is the day of treatment Day 0 or Day 1…?) and for your kind suggestions… was your worst day the one after treatment, then getting easier - or was the next day worse?

All so confusing… I guess I just need to wait & see how Thursday evening and Friday go before deciding if to/not to try big day out to Good Food Show on Saturday…

Got my Hickmann line in this afternoon - had to get one of the blood samples re-done cos it had clotted - when it finally came in (an hour later than line insertion was planned to start - I THEN remembered I should have been fasting from 10.30 - oooops and horrors - would they have to cancel & reschedule - thankfully "No" as we had waited so long for the blood result I was about 4 hours fasted anyway! … the nurses did a really good job putting the line in, but had some technical difficulties as I'd asked then to put it on my left side (had my DIEP reconstruction on R side so wanted them to leave the R side of my neck alone) - so doc had to complete the job. Finished at 4.30 - took paracetamol soon after I got home to take over when the local anaesthetic wore off, and it has felt fine (so far!). So breathe easy Snapper58 - it was ok - definitely do-able… Good Luck for Friday.

Pampering myself with a day off work tomorrow, then (almost) full day Wednesday (after pre-treatment clinic appointment) - with Thursday and Friday off (OH has taken both days off with me - love him to bits!)

Hope the rest of the week goes well for us all - heaps of hugs. x x
bettypoppit
Member

Re: Starting chemo October 14

Hi Snapper58, that's pants you've been put off till Friday.....BUT ...... now you have a few more days to get some great treats in....go girl and enjoy...Friday will be here soon enough πŸ™‚ xxxxx
snapper58
Member

Re: Starting chemo October 14

Many thanks for the advice and did wonder if they would give me the other parts of chemo, had a call today from hospital to cancel my hickman line and they made new one for Friday. Probably due to strike but I'd got myself all set up for tomorrow, I'll start worrying again on Thursday. Guys a really big thankyou for this support as the last few days have been filled with tears and emotions. Going out for lunch tomorrow and putting some slapstick on to get me out of this and start a new day positive. Best wishes xx

LainieG
Member

Re: Starting chemo October 14

Hi geeG I just booked the Look Good Feel Better session n the 20th so I'll probably see you there. I've also booked scarf tying for the same day xx
LainieG
Member

Re: Starting chemo October 14

Murphy I think you're so brave. Good luck with the next one.
Linzz good luck this afternoon. I'm glad you feel positive. I really think a positive attitude helps.
GeeG I hope you make the food show. I don't think I could have managed a whole day event at that stage . I would definitely have given it a try tho. You can always leave a bit early if it's too much. Good luck.
Good luck also to all starting or having their second dunks this week.
I'm on day 11 now so the hair will go soon. Haven't got my wig yet as I missed my appointment due to an ear infection. I'll have to get a move on .
Kisses and hugs πŸ’–πŸ’–πŸ’–
Junash
Member

Re: Starting chemo October 14

Morning lovelies,

Welcome Snapper, sorry you've had a tough time already - I've got a picc line and it's so easy, no sore veins and no problems in trying to find one either. Got a sleeve for showering bath etc. Β£5 from boots so I'd recommend that.

GeeG I felt fine after my first dunk - took Emend as directed and the steroids (before 2pm) - 3 days worth starting day after chemo. I had a 'muzzy' head but paracetamol worked. I could have managed a day out, kept anti sickness in my purse but didn't use as I think water and having small snacks to keep food in tummy staves off nausea. Hope you'll do as well as I did and enjoy the Good Food Show.

Murphy - full of admiration for you Hun, phobia must make it doubly difficult but you've got it under control!!!

Linzz - good luck today, you'll be fine - I was stressed before mine but thought was worse then the deed. I hadn't noticed the emoticons but that made me laugh, that really is taking the P.

Bettypoppit - glad that you're feeling normal, what more csn we ask thrn that :-). I'm off the same mindset re. Being outside, spent all day at rugby yesterday, not to concerned about getting a cold being outside, felt much more concerned being inside at sons school harvest festival last week. Paranoia setting in!

I'm still in the itchy head gang with Lainie - I'm day 14 - lots of hair in hairbrush this morn, so it's deffo on its way out - hats and hair halo at the ready.

Right am off to sainsbury - it's a stormy day here today - wondering if I'll have any hair left by the time I get back.

Catch up later
Love from me xxx

Barb23
Member

Re: Starting chemo October 14

Morning Ladies, Good luck and hugs to everyone starting treatment this week xxx

I am day 7 after my first dose of TC , and am feeling good todayπŸ˜€ . I have had a very "windy" weekendβ˜ΊοΈβ˜ΊοΈπŸ˜‰ but my energy levels seem to be on the up, and apart from the strange taste/feeling in my mouth feel normal!!!

Off to the hospital for a blood test then going to pick up Wilma (the wig) in preparation , not sure if I will wear it but it's there if a choose to!

Love to all

Barb xx
alabamasam
Member

Re: Starting chemo October 14

Snapper welcome, I'm from the 2013 group but just wanted to say Hi as I had exactly the same experience as you & reading your post brought it all back. They managed to get the red nasty into me and then all my veins shut down, they tried about 5 more times in various spots up my arm but in the end gave up. I was very sick after that as i wasnt given the anti sickness. I then had a Hickman line fitted the following week at the Christie. This made treatments so much easier & no more needles ! 😊 Having it fitted took about an hour but I didn't feel anything and after about a week I was used to having it there. It stayed with me until about 3 weeks after treatment & when it was removed it was quick, painless & easy. When I went back for my next chemo they just gave me the balance if the first lot that they couldn't administer plus I got great anti sickness & was never sick again.
Good luck with the rest if your treatments, same to all you lovely 2014 ladies.
Love Sam xxxx πŸ’•πŸ’•πŸ’•
bettypoppit
Member

Re: Starting chemo October 14

Morning lovely ladies, great to read through all the posts..loving it and keeping me 'afloat' through this bizarre time - THANK YOU πŸ™‚
Much better nights sleep last night, until 4am ....woo hoo...almost feel 'normal' this morning.
Murphy1963 i think you are being amazing...hoping all the positive stuff you're doing in readiness for your next cycle is fantastic. ...way to go πŸ™‚ πŸ™‚ got the omeprazole from GP ready too (as i think you suggested last week) ..just feel like i need to check with the chemo helpline at my hospital that I'm ok to use....annoyingly the helpline wasn't very helpful as it seems to have been shut all weekend!!! Will be calling shortly.
My hair has gone like straw...can feel that my scalp is already feeling a little sensitive. ..for me i think a #3 or whatever tomorrow will be the right move...thinking about all those nice scarves i can wear;)
I love food and all things cooking too (although to be clear my culinary skills rest with a one pot ;)) so i really hope you can get to the GFS geeG....if you don't, there is next spring to look forward to :). I'm already planning a trip to a big Christmas foodie market..hoping that being outside will minimise risk of catching a cold or flu... or am i being dumb?
Have a great day ladies. Hugs. Xxxcc
Linzz
Member

Re: Starting chemo October 14

Mornin’ all, especially the other new folks like me Robot Very Happy

I’m due my first dunk this afternoon - can’t believe I’m actually quite calm LOL. They say you can’t hope for the best without preparing for the worst – and reading what everyone’s saying here is definitely helping me feel more prepared, and also cautiously positive Robot HappyThank you

Good luck to us all for the coming days… whatever they hold for each of us xxx

ps having emoticons on here that feature long red hair is just taking the poverbial! Though I suppose they could all be wearing red wigs... Woman Wink

Murphy1963
Member

Re: Starting chemo October 14

Hi lovelies, good to hear everyone is in ok spirits and having lovely roast dinners today. I had one too and fair enjoyed it.

Been thinking for a couple of days I might have had a uti so phoned today and was told to get up to the hospital and get it checked out. Five hours later urine checked ok and bloods were fine however Seemingly tho the c part of fec can cause an irritant to the bladder. I've to tell the onc next time so that something can be added to the chemo to combat the irritation.

Good luck to anyone starting their chemo this week. You will all be fabulous. My second one is wed and I'm trying to be positive. Have a busy 2 days beforehand though. Having a hypnotherapy session tomorrow morning and a acupuncture session in the afternoon. Tue I have my pre chemo appointment, a wee relaxation session at the hospital and then an appointment with the psychologist. I'm determined I am going to be fine this session, mind over matter and all that!!

Geeg, I think everyone is different and you just have to play it by ear, but you might struggle at an all day event, I would just wait and see but don't be too hard on yourself if you don't feel up to it.

Welcome to our group Snapper. Sorry to hear you had a false start but still got the dreaded se. I hope you find our group supportive to you whilst your going through this rubbish time xx

Re acid reflux, ask your GP for omeprazole bettypoppit, I had it bad last weekend and this done the trick for me πŸ™‚

Right that's 3.15 am, going to try to get some shut eye.

Love to all xxxxxx
LainieG
Member

Re: Starting chemo October 14

Welcome snapper. Sorry you've had a false start. That must be frustrating but you'll be on your way before you know it. You'll get lots of excellent advice on here.

geeG I had steroids for the first 3 days. Had to take one 3 times daily. I was warned not to take the last one after teatime because it would keep me awake. They made me feel quite agitated so I understood what they meant.

My head is itchy today too. I was almost in tears when I realised it could mean my hair will go soon. Didn't realise how much it would upset me.

Good luck to all starting this week. Hugs from me xxx
Peta
Member

Re: Starting chemo October 14

Hi Snapper! Welcome and hi from me too. I'm sorry to hear that your first one didn't go to plan. Yes, my head is very itchy too, I think one of last year's ladies said that that happens before your hair starts to fall out - a lot of people have said it starts around day 14 - have I got that right everyone? What's the ETA for the big bald beginning?

Yes, that's how my steroids were given geeG. Exactly as you say. I was told to take them in the morning - none later than 12 so they didn't keep me awake at night.

I'm keeping a diary of my side-effects so I know what to expect next cycle on each day. My day 3 - 2 full days after chemo - I said that I went for a 30 min walk in the woods, was nauseous, tired and a bit hot and cold and dizzy/juddery. I don't think I ate a lot that day because the smell of food was a bit off-putting.

I think some of the other ladies started feeling a bit rough later than me, even though they started chemo on the same day, so you might be okay - but a long day on your feet with all the food smells might be hard work.

I love cooking so would love to go to the Food Show, what terrible timing for you! See what the others say, Junash and Lainie sounded quite energetic in their first days! Good luck, I hope you can make it. 😊
geeG
Member

Re: Starting chemo October 14

Hi JingoX and Snapper58 - greetings! - and welcome - how are we gonna keep track of us all?!

And Hi to Everyone! Glad to hear so many folk having a fine roast dinner their first (and second?) weekend after starting chemo....

I get my Hickman line in tomorrow afternoon, and start chemo on Thursday 16…

A question to folk ahead of me - do I understand correctly that you get steroids as part of the first session, then 3 days of steroids as tablets (to help control side effects) - but these are a reducing dose so by day 4 nothing?

Did you feel up to a day out all day (Good Food Show!) 2 days after your chemo? (We had booked it before we knew chemo was needed/starting .......)

Any advice (pro or con … maybe especially any CONs…) very gratefully received…

Meantime - here goes for another week. I hope your week goes better than you anticipate, and that you get time to call by here to say hello… loadsaluvnhugs … x
snapper58
Member

Re: Starting chemo October 14

I only had the Epibuiricin (FEC + Herceptin) but still went through the sickness and haven't started herceptin as yet. Hair still in place also but have a wig ready, my scalp is really itchy does this relate to the chemo?

I'll keep reading through the tips and comments from you Guys and good luck to all. Snapper xx

bettypoppit
Member

Re: Starting chemo October 14

Hi Snapper58 and welcome to our party πŸ˜‰ I'm sure you will get great tips and support from this forum and all us newbies and visiting oldhands. Real pants that you've had a bit of a false start, but you will do ok and we are all here to help you through it.
Good luck and welcome again, hugs, xxxxx
p.s. day 7 for me today...other than tired and woosie, I'm doing ok...my issues boiling down to wicked acid reflux and not sleeping....both attributable to the dose of steroids - apparently! Any ideas if this is true peeps? Only 3 days of steroids so hoping that will. Improve now. Oh, 2 days to the head shave and having to fight with a scarf thingi πŸ˜‰ xx
snapper58
Member

Re: Starting chemo October 14

hi Rosie14 told me to join this thread as I had my first chemo on the 3 Oct, I only managed to have one part of my chemo due to my veins seizing up. The rest were cancelled and I'm due to have a hickman line fitted on Tuesday 14 Oct, then start chemo again on 24 Oct.  I still felt dreadful all week with sickness and tiredness, tried the cold cap also but could not cope. It felt like my head was in a vice and after 30 mins my hair had frozen, so won't be doing it again but admire those who cope with it.

Junash
Member

Re: Starting chemo October 14

What a lovely read i have had - positive posts, Sunday dinners cooking and Peta and Laine feeling better - fab.

Long may this last, who is starting or having their 2nd lot this week? Good luck if its you, sending positive vibes and hugs.

Xx

jingo_x
Member

Re: Starting chemo October 14

Good to see so many of us doing OK.  Day 6 for me and my best day so far - just a really sore throat (but no temperature so doctor tells me it is just a side effect), able to face cooking again and  another big roast dinner here - which my kids seemed to appreciate more than usual!

 

Good luck everyone starting tomorrow and this week.

Kerena xx

bettypoppit
Member

Re: Starting chemo October 14

Hi Peta, great to hear that you are getting on ok now and snap, roast chicken on the go in my house too....mmmm...enjoy :).
Here's to a good week for us all and good luck, big hugs - we are all here for any of us starting this week, recovering or moving into cycle2...go girls πŸ˜‰ xxx
Peta
Member

Re: Starting chemo October 14

I'm glad you're feeling better now Lainie. Hugs back! We all seem to be doing pretty well.

How are this week's new people feeling? Not too bad I hope. X

I hope everyone is having a good weekend. I'm just about to start cooking the roast chicken. Mmmmm. πŸ™‚
Nn
LainieG
Member

Re: Starting chemo October 14

Hi geeG. I will definitely book for the 20th and hopefully meet up. It'll be so nice to see you. The sign in issue is ongoing. I've ticked the box to stay signed in but it keeps asking me to do it then says I have the wrong password. I've reset the password every time I've used it today. Don't know what's wrong. They're going to check it anyway so hopefully it'll be sorted on Monday. Just need to keep resetting my password til then. It's a bit of a pain. I'll stick with it because, like you I get a lot out of reading everyone's posts. They're so encouraging and some of them make me laugh and cheer up what are difficult days. Love to everyone πŸ’“πŸ’“
geeG
Member

Re: Starting chemo October 14

… and PETA - GREAT to hear you are Home Again! … and Linzz, Bettypoppit and Murphy1963 and Junash - Thank you all for your postings - you really raise my spirits when I look in here…

I so hope we all get a good night's sleep so we can enjoy tomorrow… loadsaluv x x x x x x
geeG
Member

Re: Starting chemo October 14

Hi LainieG - the "Look Good Feel Better" session at the Maggie Centre is from 2pm - 3.30pm on Mondays - you have to book - has been highly recommended to me by several folk - so do try to get along - and it'd be really good if the 20th suits you and we can meet up!
As for signing in… I had LOADS of difficulties to start with - my current endeavour is to never EVER sign out! (This seems to work a treat!) - tho ongoing problems with our broadband and wifi connections… have lost a few posts because of these… x
bettypoppit
Member

Re: Starting chemo October 14

Hi Peta, that's brilliant that you're now home and doing ok....soooo glad πŸ™‚ and great advice not to hold on if temperature rises or in fact dips too I think! !!
Hope you and all peeps can enjoy your weekend xxx
LainieG
Member

Re: Starting chemo October 14

Glad you're out of hospital Peta. Hope you stay well now. I went into hospital before my temp rose too much. I was 37.3 and was only in for one night. Like you, I wouldn't hesitate again. I think just being in hospital helped me. With the worry gone and antibiotics started I began to feel better really quickly. Sending hugs xxx.
Peta
Member

Re: Starting chemo October 14


I'm the same as you bettypoppit, a bit of a tomboy who very rarely wears makeup! My skin has got really dry too and maybe even feels a bit rubbery? I was recommended E45 cream and have been slapping that on all over and it seems very good. It doesn't have scents or anything and it's a very big pot so it's supposed to be good for chemo sensitive skin. I bought it at the supermarket, but I've also seen it in the chemists too.

I'm also putting lots and lots of Vaseline lip salve on, my lips are so so dry too. They're not normally at all so it has to be the chemo.
Peta
Member

Re: Starting chemo October 14

Good afternoon all and welcome Barbara. πŸ™‚

I'm home from hospital - I came out late afternoon yesterday. I really was fine in there, I felt pretty awful when I got a temperature - 37.9 - but I felt a lot better when they'd put me on antibiotics and got it all under control. I'd definitely go straight in again if my temperature started to rise again at any point. I met another lady in there who had first chemo around the same time as me, and she'd left it and left it because she didn't want to go in and finally went when she hit 38.6. That was too high and too late. She was there for 8 nights and I was there for three because of it, and I really felt pretty good the whole time whereas she was really quIte poorly. So I recommend hospital if your temp rises! It is lovely to be home now though. :-). Thanks for all the kind wishes!

I feel tired, but that's all now - I'm eating lots and seem to have a bit of a craving for tomatoes of all things!

No hair loss as yet - I still have my lady garden but I'm watching it now Junash! - my head is really itchy though so think it's on the way out soon.

LainieG
Member

Re: Starting chemo October 14

Hi geeG. I haven't booked it yet. I was going to do it on Thursday while trying on wigs but ended up in hospital and missed it. I'll phone on Monday. What time are you going?

Is anyone else having problems with signing on? I keep having to reset my password. I've emailed support but they need to look at it on Monday. Just in case, I won't be ignoring anyone, just might reach a point where I can't get on the forum. Xxx
bettypoppit
Member

Re: Starting chemo October 14

Hi GeeG, just loving your spirit πŸ™‚ xxx