Welcome nicnac15, I hope you will find this forum useful especially as You haven't had much time to prepare.
Kf791 I did the cold cap on 6th Oct and found it ok - took paracetomol one hour before starting which apparently helps, the first 45 mins was the most uncomfortable. I had it on for 4.5 hours in the end and kept asking them to check it as it didnt feel cold enough! I know lots of people get ice on their heads but I didn't so I am still not sure it really was cold. Based on my dates I expect to find out by Wednesday if it worked or not
I have a wig which was free from my hospital - it is really lovely and from a company called Hot Hair, if you google them you will find the range. Mine retails for something like £120 so I was a bit staggered to be given it for free - I think it varies by hospital if you need to pay or not.
re the constipation issue, I think a lot of the drugs we get cause this. I couldnt take laxatives alst week as my stomach was too gurgly and they made me feel worse, but if anyone needs another tip then can I point you in the direction of glycerol suppositries which work via 'the other route' without having to take yet another tablet!
good luck to all those having treatment this week, will be thinking of you and cheering you on xx
Hilda is NHS, which in Scotland comes free. She seems very good quality to me (though what do I know she's the first wig I've ever seen). My oncologist told me she used to work in London and the wigs there were a lot worse than here, so I guess what comes on the NHS may vary across the country. If the NHS ones don't seem up to much in your area perhaps looking online might be the way to go if you're planning on using as a backup only. I have spotted one (in a different style to Hilda) that I'm going to order for a bit of variety. I think as long as what you order has the net-type parting (for realistic parting colour) and the bra-type fastenings on the insides then it stands a good chance of being half decent. The one I'm ordering is under £30 and has those things. It's for a masquerade ball next month, mind, so if it's awful I'll wear it once and get rid! Also, someone earlier has mentioned that nationally there are centres where you can get re-used and re-vamped wigs for decent prices, so perhaps there is one of those in your area you can check out. Your Maggies will be able to tell you.
I thought It was too good to be true, I lost a bag full of hair yesterday afternoon and now my hair is so fine. I just run my fingers through and it came out in clumps, reckon by Friday there won't be any left. Still to get some hats for the cooler days and wig on stand at the ready. Best wishes Snapper
Welcome to all the new people, and hello to everyone else! So sad that so many of us have to be here but this is a great group and we are all keeping each other’s spirits up. I am amazed at everyone’s resilience. Because I had to have my surgery first I knew when chemo would start for about 2 months, I can’t imagine only having two weeks to get my head round it. And I am totally in agreement about all the ladies going through this with little (or big) kids to look after – wow, you are really, really strong.
My top tip to new people (based on this weekend’s experience after first treatment last Monday) is if a nurse says in a seemingly throw away comment “this tablet might cause constipation” BELIEVE HER WHOLLY AND UTTERLY and make sure you get a gentle laxative on board early days. The chemo didn’t make me feel bad hardly at all but being bunged up over this weekend – well, probably enough said. Needless to say I will be making sure I get an alternative antiemetic in future (it was the granisetron that did it to me I think).
Apart from that – hope everyone who is onto hats and scarves and wigs already are holding onto them tightly this windy weekend! I can’t remember who has called her wig Wendy (sorry), but in the same vain I picked up Hilda the Hairpiece yesterday in readiness. She’s glossier and healthier looking than my real mop, and although she did look for all the world like a guinea pig lurking in the box I am sure she's going to do me proud.