Morning Murphy1963 I hope you are doing ok today after treatment yesterday. It's a brutal way of saving your life isn't it?
I feel especially weepy when people are nice to me, and they don't even have to know what's going on! Like the receptionist at the opticians yesterday.....she greeted me so warmly it was all I could do not to burst into tears. Wish I had some control!
I have lost half a stone since Sunday and need to put it back before being weighed and having bloods taken on 17th. Has anyone actually been able to put weight on? And if so, any tips?
Love to you all xxx
Hi Junash, you and me both. I felt quite dreadful on Monday constantly on the verge of tears, unable to eat anything, completely exhausted etc.I guess the combination of lack of sleep, thrush, diarhoea and then a bout of cystitis got too much for me. I didn't get this in the first cycle so wasn't expecting it and I couldn't believe how poor I felt. I only got out of bed because the DN was coming to flush my picc line and change the dressing. She told me it was perfectly normal to feel that way - and I wanted to scream at her - not for me it isn't!
I went to my LGFB session yesterday, I was surprised that it was given by a big, black and let's not deny it, ripped, guy called Brian - but he knew his stuff. I don't wear a lot of make up and have only ever had my face done by a professional four times in my life so it was interesting. Unlike you, though I could not hold it together and did cry a lot - I was "pleased" so see that I was not the only one though - not really pleased because no-one wants to see another person so unhappy but because it made me feel that I wasn't the only one.
I've lost 6lbs since Sunday and I know they will want me to put it back before FEC3 on 19th, so am eating what I can at the moment and hope my appetite returns. Out for a walk this afternoon but not going to push myself too hard as I feel pretty weak.
Good luck to anyone with their treatment this week - thinking of you xx
Well, I am sorry to hear that so many of us have been emotional and feeling down during the second cycle, but I guess at least we now know we are not alone!
LGFB session was good today - it's a bit random what colours you end up with though - i tried to hand back a bright pink blusher, telling the make-up lady that I would never wear it and it would be a waste, but they insisted on opening it and putting some on me before agreeing that yes I did look like I was having a hot flush 🙂
Hi Robynv was there a reason they convinced you not to try the cold cap, ? i too have shoulder length hair and fairly thick but everyday is like a waiting game to see if if drops out, i will cry i know the day it does fall out its the hardest thing im dealing with - and friends say well at least it will grow back but i feel like saying yeh maybe, but its gonna take bloomin a long time !
Hello ladies, just been catching up on all the ups and downs, been keeping a bit of a low profile myself for a few days. Had 2nd FEC last MOnday and was feeling good for a few days, but by the end of the week I was sooo blue and couldn't stop crying. I don't think my SE were any worse really but I certainly wasn't coping so well, plus it was half term so with the kids home I think I felt more emotional.
Anyway, back on track today and feeling pretty good, had physio for useless right arm this morning and off to LGFB session this afternoon.
For those cold capping I can report that I have probably lost 20-25% of my hair but gradually and evenly so not too noticeable, and for now at least it seems to be hanging on in there!
Peta was horrified to hear of the man holding your move. Moving house and cancer are probably the two most stressful things I have ever done - and that's when moving goes smoothly. Sounds like a nightmare but I hope it will work out soon and you can get in a comfy bed!
re the injections I get them for 3 days, day 5-7, but both times they have left me with no energy and a racing heart for three days so think I will ask about the slow release version and see if I can avoid the heart thing because it really stops me doing anything.
Take care this week ladies xx
Lainie, anx56 and Peta – thanks for your positive words. As you prophesised my neuts level did come right back up over the weekend, and my treatment did go ahead yesterday. I would never have believed how happy I would be to get poisoned! It was a long day but it only took four (!) goes to get the cannula in, with minimal bruising, a vast improvement on last time.
Peta, what a bl**dy awful situation to be living in. I too lived in a very small place for a while until we got our current place, and I can’t imagine not having much space to myself when feeling poorly. BUT, at least at some point when the awful man has had enough of treating his ex badly, you have your new future in the country to look forward to. I am of course imagining your new place to be a huge pile, like you see on Escape to the Country . Your lovely photo is visible, by the way, by clicking on your name you can see your profile. I’ve therefore put up one of me with “intermediate Mohican” if anyone wants a larf.
I was told yesterday that I will get the immune building injection each time once I get to the docetaxil. Its called pegfilgrastim and it seems to be one injection instead of the several others are having. As there are only one per cycle, and as there is NO way I could inject myself , the DN will come do it for me. According to my copy of the BNF it costs £686.38 a pop, so definitely getting my moneys-worth out of the NHS these days.
Well, #2 Day 2 and I’m feeling not too bad (much as last time)… hope everyone else is doing OK xx
Hi everyone, been reading through your comments today and my friend works on the chemo ward and she told me about Udderly cream. You can only get it from the internet udderlysmooth.co.uk it is really good for the skin, but I haven't really needed as yet,only on my feet I tried it. Glad to see you are all doing and coping well with all the side effects. Stomach looks like a brusied pin cushion with all the injections, but have managed well with them and got used to injecting, Keeping my fingers and toes crossed for the 6th Nov to see if oncologist with give me the go ahead. I'll check out the makeup sessions, but can't remember who gave me the details. My son was 17 on the 30th Oct and we celebrated last night at a restaurant, enjoying the freedom from the after effects of chemo while I can. Hope everyone has a good week- Best wished Snapper58