LainieG, are you in Scotland or Wales then? I was told all cancer patients get the card I have in England and I could give it to any A&E in England and get rapid treatment. It states that I am on Chemo and at "high risk of developing neutropenic sepsis" - which was in fact what I had. (raging sore throat and temp of 38.6 - blood test showed my neutorphils at 0.5). You should tell them about the risk and they should respond. I was also given a seat not in the main waiting room so i wouldn't pick up anything else had.
Good luck... rooting for you! xxxx
You shouldn't have to wait LainieG - do you have your card "information for A&E" that should get you straight into Triage and straight into a bed in A&E - it did for me. I went to A&E at 7.20 am and was on antibiotics by 8am. It works really well. Let me know how you get on.
Hi all not been on for a few days, well its been an emotional day today washed my hair and fair few strands have started to come out, thought i was doing well to keep hold of it for this long, i did use the cold cap on first fec and will use again. so with the hair issue and an extra period thrown in this week and my normal monthly due next week i am feeling a little down with it all.
Yesterday my bloods were ok so monday is round 2 !! eek not looking forward to it at all but i think 3 weeks has gone quick.
Robynv i take it your bloods were ok so your next one is monday same as me, sorry to hear about your hair i dont know what to do with my hair either its thick and just past shoulder length friends are saying cut it into a bob ! but i dont want to cut it off if there is some hope with the cold cap.
I hope everyone else is feeling ok as can be, theres lots of us on here now i lose track whose who but its lovely to keep in touch and read your comments as they do help us all out. xxxxx
Hi my lovely ladies feeling little better today thank you for all your commenrs and advice once again helps so so much x
Back from the hairdresser she has shaved it really close to my head feels much more comfortable and have been putting e45 on it which is quite soothing. Was bit upset can't put any makeup on eyes are so sore eyebrows still intact no bottom lashes top once bit patchy.
Robynv - good luck for Monday. I feel for you having long hair, I feel bad enough and I have worn mine short for a while now. I don't know but I feel its like you loose another bit of your identity with all the other stuff we have to contend with.
Peta as you say can always go all the way next time, because I couldn't colour it anymore the back is dark and top is grey but looks so much better than yesterday.
Murphy 1963 good to hear about the body hair mine seems to be thinning same as the lashes but at least its under cover!
Having second FEC next Friday anyone same day? Had Onco app yesterday sked about alternative to one a day for 5 day injection was told there is a one slow release one but cant have it because its £1600. I don't know if I can face the pain in the back again but was told benefits outweigh the side effects. I know it wont be until Tuesday week but thinking about it already!
Good wishes to everyone having teatments this week be kind to yourselves and have peaceful and pain free weekend.
Hi lovely ladies hoping your all hanging on in there and getting through the best way you can! Reading your comments regarding weight I weighed exacly the same today as the first time. They were happy with that when I said wish I could loose some they said no you are better to be carrying a bit extra its better for you. Didn't think to ask why! I thought I might have lost a bit because I have not been eating as much, but they said the steroids make you put it on? Anyone have any thoughts about that?
Hoping I can enjoy this week second cycle next Friday. Eyes are so very sore any tips, onco said all drops are much the same. Not much I can do.
Had a cry this morning day 14 and as told, hair coming out in handfuls. Had it cut very short at the start but still a shock and felt much worse about it than I thought I would, hate the tufts and bald patches seeing hairdresser tomorrow to have it all taken off. Any advice a number 1 or shaved? Can you please share your experiences think I might feel better once its all gone.
Probably lowest day so far
I am being weighed every time I have my bloods taken. I'm told that this is because they calculate the chemo based on your weight. If you lose weight then you get less chemo and they are worried that it will not be enough to kill the tumour, or they keep the chemo the same and it flattens you more.......neither of which is good. My team have always stressed to me that I need to keep my weight the same or up so I'm a bit worried about not putting at least some of it back on in the next 10 days!
Well done on a good night's sleep - I can't remember the last one I had!!
HI Murphy1963, yes rather too drastic. Dont' get me wrong I could stand to lose 1/2 stone but had planned to wait until treatment was over not do it all in 4 days!
I'm going to attempt a hot meal today - I've only managed fruit and few ginger biscuits so far this week.
I'm on 3 x FEC and 3XT - I've heard that too about the T-phase but i hear the se are worse with aching bones as it hits the immune system harder - swings and roundabouts I guess 🙂
LainieG re the leg vein, I have a prominent vein in my leg - not fully varicose but not great and since I started chemo I have a 'flickering' feeling up and down my leg all the time. Was worried it might be a clot but because it doesnt actually hurt I have been ignoring it. I have more of a problem with the vein they last used for my chemo in my hand which reacted badly and is still swollen and sore, just went to the chemist who didnt have any suggestions for it.
I have lost zero weight during chemo - have to say I am a little bit disappointed! My onc said protein was v. important and I have protenin every meal. Breakfast is muesli with loads of nuts and seeds plus I have Nutribullet and make a nut/fruit/spinach smoothie. More breakfast than I ever used to eat.
Lunch I eat loads of raw stuff plus hummous, cheese etc for protein, then a meat based meal in the evening with veg. I did lose weight before chemo as I was following a vegan diet for a few months after reading some Cancer books, but I abandoned it for chemo as it seemed impossible to follow and get my bloods back up.
I think smoothies can really help and the Nutribullet has been a really good piece of kit as you can chuck nts and seeds in.