What did the doc give you for indigestion Linzz? I suffered really badly after my first FEC and now take an Omeprazole capsule every day and haven't suffered since. (Frantically waving about now trying to touch wood). New York not being re-booked and due to a long boring story wasn't fully insured. Basically date of booking and call back too close. My surgeon did mention having to sell the house if I went to the States even with insurance. However as she was telling me I would need chemo at the same time I wasn't really taking it in. I think a weekend in Portpatrick (beautiful fishing village on the south west coast) is about the height of my ambitions just now but I know it will change. Had my second hypotheraphy session today. All geared up to do my St George but dragons not even mentioned this time. I am not sleeping due to anxiety so it was all about sleep and not being anxious. In the midst of all this two workman were ripping up the floor in the room next door. The therapist just kept talking louder and louder to try to cover the noise. I don't know how the sleeping will go tonight but I certainly heard some choice language when I was under. The workmen were certainly very graphic in their description of what they were doing. I am a youth worker so used to a certain about of swearing but this was something else. Just hope hasn't imprinted on my brain. Must admit wanted to swear very loudly and strongly at the next person in the hospital at the weekend who lowered their voice to talk about the lady in bed 54 with BREAST CANCER!!! One day I will be able to look back at some of this and laugh..... Please someone agree with me.xxx
Hi everyone just popped back after a good few days off radar but feeling much better now! Sorry to hear about those of you that have suffered this week and those who have ended up in hospital, really hope everyone feeling much better. Next treatment isnt til next fri but starting to think about it already dont want it to spoil any good days I have coming, but just seems like such a long road ahead. Hoping to do some dreaded christmas shopping this week but feel so tired!
Love and hugs to all having treatment this week and those getting over last session xxx
FEC3 yesterday and I suffered all night with the the worst indigestion ever, despite taking the two prescription meds my GP gave me. Yuck.
Yesterday in the unit I was talking to a chap about insurance for trips. To put into context this his not his first fight with cancer and I think is on on-going "comfort chemo", unlike us lot first timers who have an end date for treatment in sight. But nevertheless I think it is something we should all take into consideration - he was quoted, for insurance cover for a one week trip to Florida - £29,500
To anyone thinking about booking a trip out there I'd say definately get a quote first from a specialist company. And perhaps replace NY dreams with somewhere equally iconic like Paris or Venice for the timebeing!
A friend is getting married in Vegas next year and everyone is invited. After hearing that chap's quote I don't think I'll even put myself through the bother of getting a quote (painful going through questions about your health and especially prognosis) and just give my apologies for the trip.
Morning Ladies. Not been on for a while so just catching up on everybodies posts. Alot of things to think about. I should have been off to New York on the 8th Dec. Never had any desire to go to the States apart from NY. A couple of girlfriends and I had been saving for four years to go to celebrate their significant birthday. Side effect wise thought was getting off quite lightly this time. Oh how wrong I can be. Been climbing the walls for days. Ended up in hospital on Friday with suspected DVT. Was all set for a stay but by some fluke there was a consultant still on the premises at 7.30pm on a Friday evening and I got sent home feeling rather foolish because they decided it was cramp. What I found the most upsetting was the way the staff kept referring to me as the lady with breast cancer. I felt such a object of pity. I do like the idea of getting a baldie/spikey posse together to sort certain people out. I was reading a post on the November thread from a lady from Sweden who had joined them as she could not find this kind of support in her own country. Feel so lucky to be with you all.xxx
Thank you to all the ladies in my Posse - it's really cheered me up!
Going to start tomorrow with a more positive attitude.
Murphy, hope that things get better this week...... and to all you lovely ladies with treatment this week - may the force be with with you and get you through it...
AmDriver having surgery after the chemo means you will get exact news of how much the nasty shrunk as a guide to how effective the chemo was - I'd say that's a good thing
Sounds like you are well rid of your bloke, your fresh start after treatment really will be fresh without him. Everyone who knows him must now know what a [insert expletive of choice here] he is. And by the way sign me up for the scary, bald (spiky) posse!
You could say that Peta! Not the kindest thing and coming 2 weeks after I lost my job - then the diagnosis 3 weeks later - it was a triple whammy.
The thought of everyone turning up with various hairstyles and sorting him out is most appealing though and made me laugh for the first time in a while!
I'll ask about going away between chemo and surgery but have been lead to believe that there will not be much time between the two.
So far on the food front I'm thinking a lamb roast (get a man in to do that) with a variety of salads and loads of delicious desserts (I'm best at cooking those but need to choose what to do!)
Loving the pork crackling analogy!
Back from a couple of really poor days, down in the dumps and totally fed up of being out of control of my life.
I've been looking at all the holiday talk and wishing I had an OH - mine dumped me after 9 years between referral and diagnosis - it would be so nice to have something like that to look forward to.
I'd also like to say I "had cancer" but unfortunately my chemo is neoadjuvant and I won't have my surgery till February so I still have to say I "have cancer".
This is all so dark and miserable that I have decided to plan a party for all my family and friends who have been helping me through this grim time. That should give me something to look forward to and time to decide what to cook etc.
I hope you are all feeling well and are going to have a good week
Hi Linzz - I know what you mean about OH bag-packing - I asked for a couple of t-shirts and some underwear and he managed to bring in a top that I thought I had lost as I hadn't seen it for 6 months. Can't imagine how he even found it!
Good for you booking a holiday I thnk it's important to plan stuff, not just to look forward to, but also to be doing something normal and putting things in the diary that arent hospital appointments. I am about to be even more foolish and book flights for the end of March. I think my own deadline is a bit tight but by September I am sure you will be raring to go!
BTW ladies I was talking to a nurse in hospital this week who asked me what was wrong with me - I found myself saying 'I have breast cancer...well actually I suppose you could say I HAD breast cancer seeing as it has been taken out now and I don't even have a breast'. In theory it is the surgery that eliminates the cancer and the chemo that stops it coming back I think, so I have decided that going forward I might start saying 'I had' breast cancer see if it makes me feel any better!
Petran - nice to 'meet' you, thanks for hopping over and hope you find our thread useful! Whilst I was lying in hospital the last couple of days I decided that this pain in my scars and surgery areas is logical because this chemo attacks dividing cells and I assume that where the skin is healing and repairing the cells are more active and dividng more than in our 'normal' skin, so maybe thats why it gets aggraveated.
Was good to be in my own bed last night but at 9pm I found myself in agony with lower back pain - not an ache but a sharp throbbing pain all across my back. Was worried I might have to go back to A&E again but at 2am I caved in and took paracetamol and it eased right off so I think this must have been the SE pain that I had been waiting for with Tax. Who knows! I hope it was my bone marrow churning out lots of white bllod cells 🙂
Sorry bit of a rambling post, but feeling a lot better today, hope everyone else is having a SE minimal day xx
So glad to hear you are home Jingo! After reading about Lainie's epic admission I have been living in fear of getting a sore throat or a temp. Good to know it IS possible to only be in for a short while. Though I know even a short while is hard to deal with. It is my personal goal never to spend another night in hospital, EVER. Yep... not very realistic, but one can hope! Good idea about keeping a go-bag packed though. My OH had to bring me a bag when I had my car accident and he brought all sorts of random things he felt were essential, including my full set of "going-out makeup". Not sure what he was thinking!
After our discussions about "seizing the day" I have gone and tempted fate - I have booked a holiday for next September. I was going to hold off until after treatment, but I saw that the apartment in Valletta that we've had very happy holidays in previously was available AND that there were very cheap flights... so I just had to book it. What's the worst that can happen? NOBODY answer that please! My only real concern is insurance, but I'm already covered for everything except the BC with my annual policy plus the EHIC card covers Malta. I always love having trips to look forward to, and although this one is a long way off that will hopefully mean that I am well over any long-lasting SE's like fatigue. I sure won't have a beach ready figure so it's just as well I'm more of a tramping about the place and visiting museums type. I am also hoping I might have enough hair by then for a short, funky holiday do
It is fair to say I am VERY fed up with this treatment nonsense; I just want it to be over and get back to my life.
happy to say I got let out early for good behaviour, so have been switched to antibiotic tablets and will be sleeping in my own bed again. God that was a long two days!
Tricky with SEs too as I realise I need to be able to wander around the kitchen sniffing things before I know what I want to eat! not something you can do in hospital, and poor OH had to bring in a load of bits for my SEs, mouthwash, hand cream, eye drops etc. Have decided to keep a bag packed for the next few months in case I need to go in again.
Apart form my ongoing sore throat I am feeling ok - as usual a bit tearful on day 6, have finished injections, tablets etc so have two weeks to get prepared for the next cycle now.
GeeG hope the throat gets better xx
Just jumping in from the August thread if that's ok.
I just wanted you to know that you are not on your own. I too have the bubbling garden gate!
I had my last chemo on Wednesday and all the way through after each one I've had quite a lot of bubbling. At first it kept me awake at night! I've also had a lot of noisy wind through the gate too. Only yesterday just walking across the living room, there was quite a lot of wind.
I see my oncologist on Thursday so I'll ask her about it. I'll let you know what she says. A very weird SE!
Take care to you and all the ladies here.