Hi. Think I have got the photos on now. They were marked private which obviously wasn't much good. Let me know if they ate there. No semi baldy ones....xx
So glad for you Nicnac that it isn't another thing to worry about
Peta - we shall be using your photos as an inspiration - our lives are pretty much "on hold" for these few months but your pics remind us there is a whole big wide world to get back out into and enjoy come next spring/summer - thanks for posting them!
Re the docetaxil, from what I've seen although the infusion only takes an hour, waiting for it to come and waiting and waiting for the nurse to come and unplug you etc can increase the time exponentially. I know my last FEC actualy took from 11 am to 6.30 pm because of one delay and another. So I won't be planning for a quick in and out, I just don't think my unit is up to it!
I have a very sore/swollen arm at the mo and had to go get it assessed for a DVT, this took 5 hours till 1.30 am in the assessment unit (for less than 10 minutes of examination by junior onc) and then another 4 hours the next day getting a 10 minute scan. At least we have the NHS though, I can't imagine how awful it would be to have this disease in other parts of the globe. No DVT by the way, though I am meant to repeat the assessment process if it gets worse. I am regularly glaring at my arm in a threatening manner to make sure it knows it is not allowed to get sorer
Hi. Bored this evening so decided to change my avatar. Got quite emotional looking through photos. Would like to be able to say it was because I was looking at photos of my kids 21st/graduations/family get togethers etc. NO!!! It was all about the hair.......... So if you look at the one I have used just try to imagine me with hardly any hair and a few kilos lighter thanks to the chemo diet. In fact dont really look anything like that just now. I know I am going to rock the pixie hair though!!!!xx
Really good news Nicnac. All the best for your last FEC on Monday. Debtex and Lainie I hope you have a peaceful s/e free night. Debtex you said T was easier. Do you mean it didnt take as long? Just curious as I am staying on FEC for the duration. On the subject of hair...... I have been cold capping but am now at the stage where I have to wear a hat all the time because my hair is so thin and I have baldy bits. I did have thick hair which I had cut into a short bob a few days before chemo. I still have a fringe and enough hair at the sides to make it look as if I have hair under the hat. Starting to look like Wurzel Gumageat the front though and Golam at the back. Hair sticking out at all angles. Anyway it is time to call it a day with the hair. I have beanies, scarfs, buffs and a wig. What does everybody prefer to wear? I can't even look at my wig just now. Lesleyxx
Good luck to those having last FEC or first Tax - I hope you all fare as well as I have - week 2 on Tax has been good although my legs get tired and achy sometimes (a bit like when you've been to the gym...only I haven't!), and a little tireder than before. I am marking the end of this week as my half way point and it is starting to feel this chemo thing is doable!
By the way, anyone else still have hair? I still have a lot and it's confusing me, even with the cold cap I expected to lose half and it hasn't happened - so I am back to worrying that my chemo dose is not strong enough!!
love to all xx
Right Ladies, here is my Porkscratching Posse Party menu for next year!
Mini vegetable kebabs (vegan)
Thai salmon parcels (v)
Mustard and honey cocktail sausages
Goats cheese and red onion mini muffins (v)
Sticky pork belly bites
Haddock and gruyere tartlets
Chicken and wild rice bake
Potato curry (vegan)
Toad in the hole
Spanish chicken with chorizo
Cabbage, potato and cheese bake (v)
Black bean pasta salad (vegan)
Savoury rice (vegan)
Stilton and leek tart (v)
Coffee and walnut cake
Lemon layer cake
Chocolate and hazelnut meringues
Key lime pie
Hope you are all hungry!
Thank you Debtex. I have no idea what you look like but have a fabulous image of you hoovering over a toilet with a tub of vaseline in hand. Made me laugh.......
HI Debtex - I was very anxious about Tax, but it really hasnt been that bad so far. I am day 9 today and have ad less fatigue and zero nausea so have been able to get out and about more (except when on a drip in the hospital of course :)). Had a few days when I couldnt tolerate some flavours which has now settled down to food not tasting of much at all unless I add a ton fo salt, chilli or pickle! Today I ate for Britain - was craving dairy products all day
Most noticeable side effect has been lack of moisture in my skin, especially my mouth, lips and eyes. Also one to watch out for is that this apparently also goes on in the digestive tract and I am sorry to report the bowels. Be careful not to get constipated and if you do you could end up with some damage!! I feel I can share this, seeing as Bettypoppit has shared her innermost babbling brook. Be warned, keep vaseline in the house and a hot water bottle to sit on if you need it.
I know everyone reacts differently but so far I would choose T over FEC (I will read that again in Feb when I have had my 4th T!)
Lah21 - I have omeprazole too, which has worked up till now, and some aniseed liquid stuff which I hadn't even needed to try till last night. Am taking the omeprazole in a mo (prob left it too late yesterday), so hopefully better tonight.
Junash, that's very heartening for insurance - must be that you'll have compeleted all "active" treatment. That's great news in fact