That's good to hear Jingo_x... and thank both you and LainieG, I am feeling a lot better since yesterday. I have no idea why though!
Am pretty terrified of this week - first tax on Wednesday assuming bloods are ok tomorrow. I still have just enough hair left but and thin eyebrows and full eyelashes but think none of them will last after this and I will have to resort to a wig.
I cannot say how much I admire you ladies with young chidren, I don't know how you do it. My adult children have rallied round (well 2 of 3 have) and sorted out Christmas between them so I don't have to put up any decorations, drive anywhere, cook anything, or basically worry about anything at all which is marvellous and takes a huge weight off my mind. For that alone i am very lucky.
Debtex glad you are out of hospital and Murphy hope you soon are.
I have appointment with the oncologist tomorrow as well and had a list of questions but have forgotten where I put it!
So sorry to hear of all the complications in our group - it's a good reminder that we need to be vigilant about all kinds of infections and symptoms and as Bettypoppit says I am full of admiration for how everyone has bad days and still manages to bounce back, mentally and physically. Having said that I think we all need help to do that sometimes. I have just finished my six sessions of counselling and I think it has helped so hope others can access that where they are getting treated. (AMDriver how are you doing this weekend? hopefully not so teary?)
Bettypoppit we are still on the same schedule so I am back in the chair with you tomorrow having Tax #2. FEC wrecked the veins in my arm, but they managed to find one on the underside of my arm for Tax and it caused no vein problems I am happy to report - not even a bruise. Trouble getting bloods on Thursdya for me but that was from a FEC vein so the nurse told me to tell them next time that it isn't as good a vein as it looks!)
Tax has been harder on my eyebrows and eyelashes (or I guess it could just be the cumulative effect of 3 cycles of anything!). Bald patch has grown a little and my hair has thinned in the last few days so I would say Tax is harder on the hair too! But I have done pretty well all told - played football in the park with my 6 year old and felt full of energy and didn't even have any pain from my mastectomy when I was jiggling around.
Also I am now the proud owner of a prosthetic breast - took a long time, been using a rubbish little sponge thing since 24th July!! I am over the moon with my new one - a really good match to my other boob and I finally look ok in a t-shirt.
Murphy, I'm with you, totally knackered post chemo 2, just can't get excited about Christmas. Husband and kids went off to get the tree earlier, I couldn't face it. I did put the lights on and now have left the kids to it. We usually have a small tree in dining room and kids play room - just leaving them to it, so far boxes everywhere and I think I feel a rest period coming on! Also decided no Christmas cards this year, just can't do it. And if the kids presents are going to be wrapped, hubby had better learn quick!
Having a bad day as my wound has opened up, I can see my implant though a 10p piece size hole!!!! On antibiotics and very very scared. Also due chemo on 19th Dec so guess that will be put off - again.
I was hoping to get help with school run next week, but my help has just asked for my help as she's working.... just at the wrong time!
Someone said we WILL get through this, I suppose we have to, just pretty crap isnt it? Son age 12 just walked in dressed as Santa, so that's a bit cheering!!! He's also wearing his Christmas jumper and cat had the reigndeer ears on earlier!!!!
Debtex - sorry to hear you having such an awful time - try not to think about giving up as I'm sure they can do something to make the next cycle easier eg they can alter your dose.
AMDriver also sorry to hear you are feeling down in the dumps and I can well understand why, but things will be different for all of us next year and you never know what good things might be around the corner.
Bettypoppit try not to think too much about long term side effects - my father in law is a retired GP and when I start fretting about the side effects he says 'none of the side effects are compulsory' to stop me fretting. I now try not to even read the list of side effects if I can help it.
Peta thank you so much for the Belgium story - the Belgians make great beer and chips so there is lts to look forward to. So far the people seem very nice too 🙂
Regretting putting my 'hair shot' up this week as I lost a ton of hair int he last 24 hours, all from my crown, so now I have thick hair and a beautiful little bald patch on top of my head - I guess my cold cap wasnt so snug on my 3rd cycle! Also had our car stolen last week and my son dropped my phone and broke it yesterday so I have lost all my phone numbers. I think that is my 3 bits of bad luck for this week!!
Back on steroids on Sunday for T #2 on Monday, so going to enjoy feeling knackered tonight as I will be bouncing off the walls soon enough.
wishing you all the best weekend possible - keep those chins up and tick off the days. We will get through this!
bettypoppit - please don't worry about long term side effects. They are much more a problem, I think, if you have had a lot of chemo - and as we are all (as far as I know) having just 6 to 8 cycles for the very first time, it would be very unlucky to result in anything long term. I only focussed on this as the onc was asking me to sign the consent form at the time, which specifically asks you to tick a box to say these had been explained (nope). In the end I signed that form without ticking any boxes. I'm willing to bet it's sitting in my notes all ticked off !
And yes, I've been told I am within my rights to ask to be assigned to a different onc.
AMDriver - I am so sad to hear you say you feel you are on the border! You've had the worst time, but I expect some splendid new men and jobs will be in your future. You just don't know it yet. I don't mean that to sound flippant, because I know it's hard to be positive when you are feeling down. Remember that you ARE stuck right here in central Belgium with the rest of us
Ladies, just a thought, but perhaps we should add Brussels into our list of potential meet up places next year?
I've been crying for no reason all day and that story just gave me a reason Peta!
I'm dreading my life after this - at least now it has a focus but when it's all over I will have no job and I'll still be single and netiher of those things were anticipated let alone this BC.
I feel like I will be on the border of Belgium and some other country.....rather than with you all in Brussels - which is lovely by the way.
Murphy I really hope you start to feel better soon. xx
Murphy, I think Gelclair on prescription is the best thing for ulcers, though I managed with Bonjela when I just had the one [monster] one during my first cycle, I couldn't have managed with OTC if I'd had more. And sodium bicarbonate mouthwash and a very soft toothbrush. Hope your mood lifts a bit soon
Peta's excellent Belgium story made me tearful too - and also a tad ashamed because all I could think of was the film "In Bruges" where Bruges is just lovely, despite the dark plot of the film. We always refer to the film, as it is very sweary, with a swear word inserted. Which fits in nicely - we are all on that flight to "In FEC-ing Bruges". Lets hope the turbulance stops for a bit and they start serving champagne...
I'm rambling. Sorry!
Well ladies, that's me back from my oncology appt. It WAS the same doc as last time, and I have mixed feelings about how it went. For a start there was a student present. Now I usually don't allow that, but I reckoned a witness would be a good thing. So she was being extra pleasant in front of her minion. "Grandstanding" is how I would describe it. She was OK with some of the stuff, but after a bit she clearly got fed up with me and got snippy again. I therefore didn't persist with all of my queries, because what would be the point? I have an appt about rads in a few weeks and I am hoping they will cover the ground I want to know about. I am still not sure what to do, but may still ask my BCN to change my next appointment (due after chemo ends) to another doc. On top of everything else I discovered she is due to go on mat leave not long after my chemo finishes, which may well leave me in follow up limbo, which I'd really like to avoid.
Oh, and she said that because I am young (hurrah!) - and thus pre-menopausal - she is going to put me on Zoladex as well as tamoxifen. Which had never been mentioned before. Spent the bus journey home googling it, and it does NOT sound like a bundle of laughs. At least I know about it now though so have time to do some research and get my head round it.
So, on the whole less confrontation than feared, mostly because I couldn't face the fight this morning. I am more worried today about my 87 year old mum who rang 10 mins before the appt to say she has a chest infection. She sounds awful. The last one almost did for her, and I'm not exactly in the best of positions to be playing nursy on a daily basis, which is what I had to do last time. There's no-one else around to help, so really not sure what I'm going to do if she gets very ill again.
Thanks Peta, and everyone else. Notebook already in the handbag! For the record the first thing I usually do when I meet a new doc is produce the notebook and say "I'm afraid I'm the type to ask lots of questions" to alert them to the fact that I DO want info. They usually then adjust the consultation accordingly. This onc responded with "oh you won't need to write anything down" and handed me a print out (from this site, or Macmillan) of the side effects of FEC. Which she proceeded to read out loud to me verbatim. Like I might not be able to read. Ahem.
The biggest porky was when I asked "are there any side effects that might be permanent?" knowing full well that there are - I wanted to know which she would highlight, thinking those were the ones worth being concerned about. And she said "No." Plain and simple no. I then asked her about cardiac effects and peripheral neuropathy - which can happen, and can be permanent. And she repeated "No" and then paused and said "you have done your research haven't you?" But didn't recant the "no".
I have a couple of questions which I already know the answers to for tomorrow which I will be kicking off with. And yes, I will write down her answers and read them back to her for confirmaton - that's such a good idea. And if it's more porkies from her then I'll be bringing up the peer-reviewed papers I've read on the topics.
Gawd I hope its someone else tomorrow as I'd really like a positive consultation and not a fight.
I'll set off a flare if I need one of our famous posse's organising!